Re: Re: positional clubfoot?/

[Guest guest]

,

I think Brittanie was almost 3 before we didn't have any issues with her

breathing. Hang in there it does get much better. She does still choke alot

when she is trying to hurry to eat so she can play etc. She was on the oxygen

for about 5 months then monitor for 9, Also it helped her if her head was

elevated to sleep. Trying to keep the food and such where is should be. She

slept in a recliner until she was 3, and even now at 6 will not sleep unless we

have several pillows stacked up for her. I don't really know how we did it

because I know my Karter would never stay in a chair to sleep he would be all

over. Good Luck

Tabitha

JGOODIN wrote:

Tabitha,

Just reading your post. I am so glad to know these things correct themselves.

has a similar problem in that the muscles are not pushing his food all

the way down and it is collecting there. He has stopped breathing several times

in his sleep. They say he will grow out of it, but at 16 months, I am ready

for that to happen. Thanks for posting this.

Yarolim wrote:

Kathleen,

Glad to hear Madison is doing well. My daughter also had similar problems when

she was born. Would stop breathing whenever she ate and sometimes when she was

not eating. She was on oxygen for some time and then on a monitor at home for 9

months. Scary when that would go off in the middle of the night. What they

found out later was that the flap that goes into your stomach wasn't working

properly and the food was blocking the airway. This is something that has

corrected itself. Just wanted to let you know now she is a healthy 6 year old

and is hardly ever sick, been on a antibiotic maybe 2 times. Good Luck.

Tabitha

Brittanie 6

Karter 19 months blcf

leenernd wrote:

Madison is doing well and has been home for almost a month now! She

is on oxygen because she has tiny episodes-she works so hard to

eat/swallow that she will sometimes forget to breathe. These

episodes were pretty frequent at first however now they are

happening 2 or 3 times a day. They hope with the next checkup that

she will be off oxygen(next week). I will send picts to the cfpics

group site and get your guys opinion!

thanks,

kathleen

> >

> > Anybody out there with positional clubfoot knowledge? My friend

> from

> > college who gave birth at 25 1/2 weeks to a beautiful little

girl

> has

> > been diagnosed with a positional clubfoot-her left foot. Since

she

> has

> > come home from the hospital(in late Feb), her daughter was seen

by

> a

> > ped orthopedist. He confirmed that it was positional only

> (background-

> > the reason for the early birth, my friend has only half a uterus-

so

> > Madi ran out of space). She was taught and is doing some

stretching

> > and massage and it seems to help. I just want to assist her as

much

> as

> > possible. She is based in Pottsville, PA but I would think she

> would

> > be willing to go anywhere if Madi's care needed it. Madi is

still

> on

> > oxygen so this part of her life is on the backburner. If anyone

has

> > any advice or history of positional clubfeet/foot, I would be

most

> > appreciative!

> > thanks,

> > kathleen

> > mom to david bcf fab 12/7

> >

>