Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 There are a lot of things that can have clubfoot go along with them. I want to assure you that it might be that she just needs therapy and a little more time. My son was born with alot of issues, one of which was clubfeet. We see a neurologist for various reasons. As for development, we see him because has a syrinx cavity in his spine that really has no origin. This is a cavity that is filled with fluid. Where it is located would cause leg problems. Currently,we only see high reflexes so nothing is being done. has weak abdomenal muscles, or at least he has a hard time activiating them when trying to stand, as they are pretty strong. He also has poor coordination. PT has helped alot, but it has been slow going. Everything he does comes in spurts. He finally started crawling at 13 months, and within 2 weeks was pulling up and cruising. He will be 20 months tomorrow, and we are still working on walking. Everyone that sees him says how much better he is getting. I see it, but since I am with him everyday it is harder because the changes are so subtle. I think the neurologist won't hurt. They my recommend an MRI. has had two of these. On the last one, they said the white matter was a little behind, so he will repeat that is a year to see what is going on if anything. They do sedate them, so that is the only bad part, but there is no recovery and other than a little crankiness was back to normal by the end of the day. They will probably look to see if everything in the brain looks like it is developing normally, or the spine for a tethered cord, which is fixable. The neurologist could also just want to watch her for a little while to see if there are any changes. It can't hurt to get a second opinion from someone a little more qualified with this than the ped. If you have any questions about anything now or after your meeting with the neurologist feel free to email me. I have done a lot of research on way to many medical things! 11/19/04 mdfrye1 wrote: I'm hoping someone might have an answer or some advice. Maddie has weakness in her legs, hips and lower abdomen, which has caused her to become developmentally delayed. She is at least 2 months delayed in her gross motor skills, and as of right now, she will soon be receiving PT. I had to bring my other daughter to the ped today because she was sick. Maddie's ped is now concerned enough with her delays that he is sending her to a ped neurologist. So, of course, I'm worried sick about it. He thinks that there is something bigger is going on that might not have been caught because so much was concentrated on the clubfeet treatment. What other problems can have clubfoot be a symptom? He's worried about her spinal cord. Any advice or personal experience would be great. Thanks in advance for your help. Michele 5/18/02 and Maddie 9/6/05 bcf s 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 --- Michele Frye wrote: > Maddie doesn't have a deep dimple. There is a small one though. I actually > lucked out and there was a cancellation at Children's Hospital and she'll be > seen on Aug.9th. Otherwise, they were booking in late September. I'll just > be happy to get some answers. It's probably nothing, but I'd rather know for > sure. Thanks for the advice. I'm so glad you will be getting in soon. It's hard not to worry when we hear something might be going on with our kids, and I'm glad you don't have to wait it out too long. I hope it's nothing for you and Maddie. Does Maddie receive any PT? Take care. Joy Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) http://www.caringbridge.org/visit/grantphilip __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Maddie will be beginning Early Intervention PT home visits next week. I'll keep you posted. Michele Joy wrote: --- Michele Frye wrote: > Maddie doesn't have a deep dimple. There is a small one though. I actually > lucked out and there was a cancellation at Children's Hospital and she'll be > seen on Aug.9th. Otherwise, they were booking in late September. I'll just > be happy to get some answers. It's probably nothing, but I'd rather know for > sure. Thanks for the advice. I'm so glad you will be getting in soon. It's hard not to worry when we hear something might be going on with our kids, and I'm glad you don't have to wait it out too long. I hope it's nothing for you and Maddie. Does Maddie receive any PT? Take care. Joy Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) http://www.caringbridge.org/visit/grantphilip __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Michele- Good luck with your appointment-hopefully it will be all for naught. I do know that my son who has received EI therapy since he was 6 months old-a lot of that therapy had been and still is focused on developing strength in his legs/hips and abdomen. He has no other " issues " per se-just a week lower body. Since he has received therapy-he has flourished. His newest therapy homework is walking on his hands-with feet balanced on a ball to develop upper body strength. Like I said, hopefully it is all for naught and that Maddie too is just weak in those areas!! take care and keep us posted! kathleen mom to david bcf fab 12/7 22 mo old and daughter edd 9/1/06 > > I'm hoping someone might have an answer or some advice. Maddie has > weakness in her legs, hips and lower abdomen, which has caused her to > become developmentally delayed. She is at least 2 months delayed in > her gross motor skills, and as of right now, she will soon be > receiving PT. I had to bring my other daughter to the ped today > because she was sick. Maddie's ped is now concerned enough with her > delays that he is sending her to a ped neurologist. So, of course, > I'm worried sick about it. He thinks that there is something bigger > is going on that might not have been caught because so much was > concentrated on the clubfeet treatment. What other problems can > have clubfoot be a symptom? He's worried about her spinal cord. Any > advice or personal experience would be great. Thanks in advance for > your help. > > Michele > 5/18/02 and Maddie 9/6/05 bcf s 14/7 > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.