Re: Re: G-Tube Decision and Questions

[Guest guest]

hello Jodi and ,

I have a question about g-j tubes. When and why do you

need to look into this? My daughter is so perfect.Never sick and shes so

smart,talks all the time. She has so much energy.She's not found of kid's that

she's not around alot because she doesn't go to daycare,i guess thats why.She is

just small.She looks like a normal sweet child just a tiny version. It's so hard

for me to put my baby through all of this,the medication and the gh shots

everyday and now possibly a g-tube?How do you do it? You must have the strengh

and the grace of angels.god bless you.

Reah and Chloe:)

jsepr2003 wrote:

Hey Jodi,

Thanks for your reply, that gives a lot of new information which is

helping to make it clearer for me....there is just so much to learn.

Just when you think you have everything settled...something new, but

I guess I don't have to tell you that....you are the queen of dealing

with the unexpected.

I don't fully understand the reasoning for the J-tube, but when I was

on the phone with the endo who was on call she said something about

bypassing the stomach so that it didn't increase his sugar so much,

does the sugar only get into the blood from the stomach and not the

intestines????I have no idea. I will let you know how things go

tomorrow....Thanks again for your input.....It is great to have such

RSS experts at my fingertips.

I hope all is well at your end.

R

Mom to Josiah, 29 months RSS, Ng tube

>

> ,

>

> Max has had the g-j tube and it is really easy to handle. His was

> first a g-tube placed surgically, not via endoscope. Then he had

> the g-j conversion which was done in interventional

> radiology/special procedures. It needs to be done there because

> they need to use special instruments to make sure the j part goes

> into the jejunum. There is no more discomfort or cutting than when

> you place a g-tube.

>

> Let me explain this better: The hole for the g-tube needs to be

> made first. That I understand is now done via endoscope. I'm sure

> it is less invasive than a regular surgical procedure. After that

> hole/stoma is made, then interventional radiologists would need to

> place the j part. It can all be done eventually with the same

> button, but at first he will need a tube that will extend from his

> stomach until the site heals. In fact, I'm not sure if they can do

> the j part right away, or if you have to have just the g part

> first. You will have to ask.

>

> The care is basically the same. It just depends on which port you

> use for which purpose. Medication is NEVER placed in the j port.

> NEVER. Only formula. And the g port can be used for venting if

> there is a build-up of air. Other than that, the rest is the same

> no matter what you are using.

>

> I hope this clears things up a little bit. I don't really

> understand why the j tube feedings would be better than the g

tube.

> I'm not clear on the metabolics of it all. But if Josiah is

keeping

> food down, not really refluxing a lot, then why the j tube? I'm

> curious to find out.

>

> Jodi Z

>

[Guest guest]

,

Hi. Thanks for getting back to me. I kinda feel like the new kid in

school. I wish I had more to offer to the group, but right now I'm the one with

so much to learn( I don't guess any of us ever stop learning).Have you met

with Dr.H?Do you know how I could talk with her?Before I make a decision on a

g-tube I would really like to speak with her. Thank you again. Do you mind me

asking what state you live in? I just wandered if there was any rss families

close to me. I live in Athens, Ga.

God Bless,

Reah and Chloe:)

wrote:

Hi Reah!

WElcome to the group! If we got our daughters togehter it sounds

like we would be exhausted from chasing them and have hurting ears

from hearing them chatter all day! My daugher is also very

energentic and loves loves l oves to talk too!

If your endo is giving GH he is at least thinking correctly on this

matter. Many endo shrug off " small girls " and say they will just

be " petite " .

Someoen here will explain caloric catchup better than I can.

BAsically it means your daughter's body has to have been ready to

start GH by acheiving maximum growth of height beforehand (but still

gaining weight) and that she can now eat enough to support the

growth GH will stimulate.

Take care,

, mom to and Emerence 32 mo, 22lb, 32 "

> >

> > ,

> >

> > Max has had the g-j tube and it is really easy to handle. His

was

> > first a g-tube placed surgically, not via endoscope. Then he

had

> > the g-j conversion which was done in interventional

> > radiology/special procedures. It needs to be done there because

> > they need to use special instruments to make sure the j part

goes

> > into the jejunum. There is no more discomfort or cutting than

when

> > you place a g-tube.

> >

> > Let me explain this better: The hole for the g-tube needs to be

> > made first. That I understand is now done via endoscope. I'm

sure

> > it is less invasive than a regular surgical procedure. After

that

> > hole/stoma is made, then interventional radiologists would need

to

> > place the j part. It can all be done eventually with the same

> > button, but at first he will need a tube that will extend from

his

> > stomach until the site heals. In fact, I'm not sure if they can

do

> > the j part right away, or if you have to have just the g part

> > first. You will have to ask.

> >

> > The care is basically the same. It just depends on which port

you

> > use for which purpose. Medication is NEVER placed in the j

port.

> > NEVER. Only formula. And the g port can be used for venting if

> > there is a build-up of air. Other than that, the rest is the

same

> > no matter what you are using.

> >

> > I hope this clears things up a little bit. I don't really

> > understand why the j tube feedings would be better than the g

> tube.

> > I'm not clear on the metabolics of it all. But if Josiah is

> keeping

> > food down, not really refluxing a lot, then why the j tube? I'm

> > curious to find out.

> >

> > Jodi Z

> >

>

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>

>

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