Re: Re: poor immune system and RSS

October 25, 2005

Leah,

Thank you. No, it is not old information. luckily with have not had to

deal with sickness except for when she was 9 months she had roto virus and we

were in the hospital forever because we had a ped that was more concerned with

her wait than treating her stomach bug.The whole time we were there I dont

believe anyone checked sugars though. They did a cap gas and her bicarb was

low,but they never mentioned sugars. However they were trying to give her

polcose and guclose of some sort but it would only make her sicker.

Thanks again,

Reah and Chloe:)

Leah wrote:

Hi Reah,

In general I don't think our kids have compromised immune systems

at all, it's more that when they get sick they're " extra " sick with

the hypoglycemic problems (spilling ketones, low blood sugars) when

they can't eat enough to keep stable.

This is a different hypoglycemia than diabetes. With diabetes the

sugar's can't get into the cells. With our kids they have very

little fat for sugar storage so they plain old run out of sugar.

The problem is that the brain only uses sugar for a fuel, it cannot

substitute anything else therefore we need to keep a closer watch

when they do get sick.

Sorry if this is old info for you, I haven't been keeping up on

the listserve 100% latley!

Leah, mom to 10 and Olivia 5yrs, 11mth, 22lbs, 36 "

>

> Hello Everyone,

> I had a question about rss children and thier

immune systems. Is that a common trait,does it start from birth or

is it something they grow into when they start school. I've been

very blessed when it comes to chloe being sick,she's rather a

healthy child. Even though she doesn't get sick alot only your

occasional ear infection she still wont eat unless we corner her in

her highchair and sit there for hours.Still I have noticed she's

much smaller than most of the kids that I have seen posted so far,

thats very scary for me. She's on periactin,gh,and she doesn't even

get sick and she still is smaller than most,why?She is 27.5

months,17lbs and 29 inches tall. She has been on gh since

june,should I worry?I guess it's really too late for that. Thanks

for listening please get back with me if you have anything to help.

again god bless you

> Reah and

Chloe:)

>

> ---------------------------------

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>

October 28, 2005

Leah,

Thanks for your mail, I thought I was well up to speed about RSS, but the

section you wrote:

" This is a different hypoglycemia than diabetes. With diabetes the

sugar's can't get into the cells. With our kids they have very

little fat for sugar storage so they plain old run out of sugar.

The problem is that the brain only uses sugar for a fuel, it cannot

substitute anything else therefore we need to keep a closer watch

when they do get sick. "

I didn't know this. From what you say the body needs fat in order to store

sugar and RSS brains can't convert fat directly to energy. I thought spilling

ketones happenned when they were burning fat directly. Am I right?

Thanks,

Gillian

REAH MCNEESE wrote: