Re: my 2 1/2 month son keeps knocking shoe off from dennis browne bar, HELP

April 7, 2006

Hi and welcome to the board!

Hang in there! We're here to help!

A few questions:

1) Who is your son's doctor? What's been his history of treatment

thus far- number of casts, tenotomy? etc.

2) Have you seen/read the tips and tricks document for the FAB?

3) What is the width of the brace? Hold it up to his

shoulders/back. The inside edges of the heels of the shoes should

be at a minimum distance of the width of his shoulders. If it's too

narrow, he'll be able to pull the foot out.

4) Does the foot look fully corrected to you?

5) Was the last cast set at a 70° outward angle and is this how the

shoe is rotated also?

6) Do you have the ability to share digital pictures of his feet and

brace with us? You can join the group CFPics on yahoo (moderated

group to ensure safety) and we'll try to see if we can notice

anything unusual.

Hugs! If the foot is fully corrected and the brace is set up right,

the bracing is usually a breeze....we'll try to help you get there!

Here's another site that might help:

http://members.tripod.com/ponseti_links-ivil look in the bracing

section.

& (3-16-00, left clubfoot)

April 7, 2006

Hello, Welcome to the group. So sorry to hear that you are having such

difficulties with the shoes! Hang in there!! We are here to help you!

Many of us felt like throwing that contraption across the room at one

time or another when beginning with the FAB but once you get it figured

out and your baby is comfy in the shoes, you really will come to if not

love then appreciate the brace for what it is doing for your child.

Know this seems impossible now but it's true I promise

If you could give us some more info (answer the questions posed by

) then we will put our heads together and figure out why your

little one is able to pull his foot out, this of course as you know,

should not be happening.

Once we get this figured out, it WILL get so much easier!

& Grace

unilateral right club foot FAB 13hrs

>

> Hi everybody, my son just began wearing his dennis browne bar this

> past saturday (thus day number 5) and we are having a real hard time.

> He keeps knocking his shoe off from his left club foot (unilateral

> left club foot). I have tried everything, tightening the shoes,

trying

> different socks, adding a heel stopper to the shoe, change the shoe

> siz altogether, and now the casting technicians are at a loss. My son

> continues to manage to wriggle out of his shoe and I have got to keep

> placing it back so he has been crying bloody murder all week. I am on

> the verge of throwing those damn shoes in the garbage!!!! Please

> please help, the technicians don t know what to do either except for

> me to keep replacing shoe.

> thank you for your support.

>

April 7, 2006

Yup, right there with you!!!!

My son had the same problem (and this was just a few weeks ago), and

worse as when he would try and pull his foot out the heel would rub

on the back - it gave him a blister! He was in the 0000s, with 3

layers extra of padding at the back.

Unfortunately for us, the answer was replacing them with the

shoes. He couldn't wear the Markell's with a big blister

causing so much pain anyways (you might want to check that). The

s took a week and half total to order. Also, I spoke to

to explain the problem and she was able to get them turned

around very quickly.

http://www.mdorthopaedics.com/pages/6/index.htm

My doctor was not bothered by the lack-of-wearing for that time

period, in fact he then says he prefers the s - which made

me want to stangle him for having us go through the Markell process

it the first place!

Good luck!

> >

> > Hi everybody, my son just began wearing his dennis browne bar

this

> > past saturday (thus day number 5) and we are having a real hard

time.

> > He keeps knocking his shoe off from his left club foot

(unilateral

> > left club foot). I have tried everything, tightening the shoes,

> trying

> > different socks, adding a heel stopper to the shoe, change the

shoe

> > siz altogether, and now the casting technicians are at a loss.

My son

> > continues to manage to wriggle out of his shoe and I have got to

keep

> > placing it back so he has been crying bloody murder all week. I

am on

> > the verge of throwing those damn shoes in the garbage!!!! Please

> > please help, the technicians don t know what to do either except

for

> > me to keep replacing shoe.

> > thank you for your support.

> >

>

April 7, 2006

Hello and welcome to the group! I'm sure we can help you get this

working for you. My first instinct is that his foot may not be fully

corrected. This is often the case in unilateral babies who are

getting just that one foot out of the shoe. If you would like to

share a bit more about your son's case, i.e. who his doctor is and how

his foot looks, we can certainly help you get this figured out. The

things to look for with his foot are this:

1) How far past neutral (straight) was his last cast turned out?

2) How much dorsiflexion does he have, i.e. with the palm of your hand

on the bottom of his foot, how far can you push it up past " L " ?

3) If you hold him up in a standing position does his foot go flat on

the floor?

Let us know and we'll get this figured out for you!

Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace, 12-14hrs/day)

>

> Hi everybody, my son just began wearing his dennis browne bar this

> past saturday (thus day number 5) and we are having a real hard time.

> He keeps knocking his shoe off from his left club foot (unilateral

> left club foot). I have tried everything, tightening the shoes, trying

> different socks, adding a heel stopper to the shoe, change the shoe

> siz altogether, and now the casting technicians are at a loss. My son

> continues to manage to wriggle out of his shoe and I have got to keep

> placing it back so he has been crying bloody murder all week. I am on

> the verge of throwing those damn shoes in the garbage!!!! Please

> please help, the technicians don t know what to do either except for

> me to keep replacing shoe.

> thank you for your support.

>

April 7, 2006

hi, so glad to hear from you, anyhow today is day 6 and he did not wriggle out

of his shoe today. His shoe size is 000m and i tightened the strap to the

8thhole so i think this finally does the trick. This said, my heart is breaking

for my little beautiful angel, he cried again all day and i cant believe i have

three full months of this. i dont know how much more i can take i really hope he

adjusts to the shoes and quick cuz im really depressed now.

thanks for the support

gracesmommy04 wrote:

Hello, Welcome to the group. So sorry to hear that you are having such

difficulties with the shoes! Hang in there!! We are here to help you!

Many of us felt like throwing that contraption across the room at one

time or another when beginning with the FAB but once you get it figured

out and your baby is comfy in the shoes, you really will come to if not

love then appreciate the brace for what it is doing for your child.

Know this seems impossible now but it's true I promise

If you could give us some more info (answer the questions posed by

) then we will put our heads together and figure out why your

little one is able to pull his foot out, this of course as you know,

should not be happening.

Once we get this figured out, it WILL get so much easier!

& Grace

unilateral right club foot FAB 13hrs

>

> Hi everybody, my son just began wearing his dennis browne bar this

> past saturday (thus day number 5) and we are having a real hard time.

> He keeps knocking his shoe off from his left club foot (unilateral

> left club foot). I have tried everything, tightening the shoes,

trying

> different socks, adding a heel stopper to the shoe, change the shoe

> siz altogether, and now the casting technicians are at a loss. My son

> continues to manage to wriggle out of his shoe and I have got to keep

> placing it back so he has been crying bloody murder all week. I am on

> the verge of throwing those damn shoes in the garbage!!!! Please

> please help, the technicians don t know what to do either except for

> me to keep replacing shoe.

> thank you for your support.

>

April 7, 2006

hi, thanks for reply,

my son s doctor is doctor beneroch and we are doing the treatments in

montreal, quebec, canada at the shriners hospital. my son underwent six castings

and a tenotomy, this is his first week in the dennis bar brace. his last casting

was set at 70 degrees. as i mentioned to gracesmommy, he kept the shoe on today

but i needed to tighten strap to 8th hole on his 000m shoe. i was reassurred by

casting technicians that this was not too tight but im so scared ill cut off his

circulation, anyhow he is still crying bloody murder and i want my pleasant

happy son back, is there no other alternative to this damn brace? he has some

redness at the heel and i noticed his leg is still swollen but i was told that

is to be expected because he was casted for 3 weeks after tenotomy. is all this

normal?

jennyandkelly wrote:

Hi and welcome to the board!

Hang in there! We're here to help!

A few questions:

1) Who is your son's doctor? What's been his history of treatment

thus far- number of casts, tenotomy? etc.

2) Have you seen/read the tips and tricks document for the FAB?

3) What is the width of the brace? Hold it up to his

shoulders/back. The inside edges of the heels of the shoes should

be at a minimum distance of the width of his shoulders. If it's too

narrow, he'll be able to pull the foot out.

4) Does the foot look fully corrected to you?

5) Was the last cast set at a 70° outward angle and is this how the

shoe is rotated also?

6) Do you have the ability to share digital pictures of his feet and

brace with us? You can join the group CFPics on yahoo (moderated

group to ensure safety) and we'll try to see if we can notice

anything unusual.

Hugs! If the foot is fully corrected and the brace is set up right,

the bracing is usually a breeze....we'll try to help you get there!

Here's another site that might help:

http://members.tripod.com/ponseti_links-ivil look in the bracing

section.

& (3-16-00, left clubfoot)

April 7, 2006

baby is now asleep but i ll check tomorrow and let you know, thanks

wrote: Hello and welcome to the group! I'm sure

we can help you get this