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Great news!!!!!!lisa

Good News!

> My daughter just had her annual testing at the local public school and

they determined that she was no longer elligible for Speech or OT and that

she " no longer met the criteria for PDD-NOS. " YEAH!!!!!!

> Now to work on my son!

> -Phyllis B.

>

>

>

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Phyliss that's GREAT!!!!!!

Wendi

Good News!

> My daughter just had her annual testing at the local public school and

they determined that she was no longer elligible for Speech or OT and that

she " no longer met the criteria for PDD-NOS. " YEAH!!!!!!

> Now to work on my son!

> -Phyllis B.

>

>

>

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At 08:16 PM 11/24/01 -0500, you wrote:

> > --- Bergenholtz Family wrote:

> > > My daughter just had her annual testing at the local

> > > public school and they determined that she was no

> > > longer elligible for Speech or OT and that she " no

> > > longer met the criteria for PDD-NOS. " YEAH!!!!!!

> > > Now to work on my son!

Phyllis,

This is great. When did your daughter start school, and how old was she

when starting the diet?

Marty

p.s. we've had some great news about our son lately too

Gluten & Casein Free Recipes and Resources

http://www.newdiets.com

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  • 4 years later...
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Our son Max is now out of the FAB! Dr. Herzenberg wants to see him

more regularly now -- every 3 months. He has an overcorrection and

I think he wants to be sure that the feet start to reposition on

their own. He will take x-rays at our next appointment.

I would be interested in hearing from those whose kids have had the

post FAB experience. I have noticed that he has trouble keeping his

feet in a straight position -- such as what is needed to pedal a

tricycle.

Max's case is somewhat unusual in that he is only 2 and a half -- he

had a mild bilateral case, and did not require tenotomies -- and he

was casted first by Dr. H -- at 10 days of age.

If I can answer anyone else's questions, I would be happy to do so.

Best to everyone-

t

mom to Max (bilateral CF)

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Juiliet... is 2 yrs old and just came out of a relapse cast for a month.

They just came off last Thursday. He is not bending his legs when he walks

because of the casts. His feet now are also overcorrected and he is having

trouble turning them to the correct position. I was curious if this will correct

itself. I am getting him a physical therapy evaluation tommorrow. Anyone have

advice?

Tichauer

2/9/04 BLCF

strangefruitblues wrote:

Our son Max is now out of the FAB! Dr. Herzenberg wants to see him

more regularly now -- every 3 months. He has an overcorrection and

I think he wants to be sure that the feet start to reposition on

their own. He will take x-rays at our next appointment.

I would be interested in hearing from those whose kids have had the

post FAB experience. I have noticed that he has trouble keeping his

feet in a straight position -- such as what is needed to pedal a

tricycle.

Max's case is somewhat unusual in that he is only 2 and a half -- he

had a mild bilateral case, and did not require tenotomies -- and he

was casted first by Dr. H -- at 10 days of age.

If I can answer anyone else's questions, I would be happy to do so.

Best to everyone-

t

mom to Max (bilateral CF)

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t,

I'm curious, did Dr. Herzenberg try reducing the angle of Max's shoes

(abduction) for a period to see how his feet reacted to the reduced

angle over time? Was he diagnosed with loose ligaments? (can he

hyperextend his knees, fingers, wrists, elbows etc.)

& (3-16-00, left cf)

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Guest guest

I am curious here too!

My son is loose ligamented-it still scares me what he can do with

his joints, however, he has just had his angle of his shoes reduced

to help tighten his ligaments. His doctor still believes brace wear

will be necessary until he is at least 4 years of age!

Just curious!

kathleen

mom to david 19 mo old bcf fab 12/7

>

> t,

> I'm curious, did Dr. Herzenberg try reducing the angle of Max's

shoes

> (abduction) for a period to see how his feet reacted to the

reduced

> angle over time? Was he diagnosed with loose ligaments? (can he

> hyperextend his knees, fingers, wrists, elbows etc.)

> & (3-16-00, left cf)

>

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