Re: a little overwhelmed...

[Guest guest]

Hi ,

Ya, it gets to be a pain explaining stuff to strangers, I feel for you.

You can adjust your shoes to 70 degrees with out the orthist doing it for you,

just loosen the bolts and move it accordign to the scale on the bottom.

I don't use the white shoes (Markells) because I had issues with them putting

sores on my babies heels. I use the s now and love them although they

are pricey. I hope others will offer you some advice on the shoes though - I'm

not sure what to tell you unless you want to cut the heel out like some do. I

hear that's a good way to fix the problem.

Best of luck,

s

a little overwhelmed...

My daughter Maggie is 9 weeks old and has bilateral clubfeet. R foot

only required casting for 1 week, left foot was casted for 6ish weeks

and had the tendon released. She just got her shoes/bar last

Monday. She has the red bar with the open sandal/hole in heel style.

After screaming for the first day, she is now pretty use to the

shoes, but is having heel redness. I had the orthotist place foam

padding in her shoes yesterday and now both heels look worse, so I

took the foam out this morning. I was only trying to help her, but

feel I have made it worse.

She is slipping out of her shoes and I found your information on the

tricks so I am trying those tips.

After reading your information about the angle being 70, I noticed

that one foot is 70 the other is 80. I called the orthotist and he

said it was no problem, he also said I could leave t he shoes off for

a day or two to give her skin a rest, but the information on your

site says the foot could relase in a few hours.

My husband seems okay with everything but I don't feel like I am

coping well. I know wahat I blessing Maggie is and we are lucky that

her only problem is her crooked feet, but I am already tired of

explaing to people why she has a cast on her leg, and now what the

shoes and bar are for.

What a blessing to have found your site, wish I had it months ago.

Thanks for your time,

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.394 / Virus Database: 268.9.2/370 - Release Date: 6/20/2006

[Guest guest]

,

was her foot out of a cast the whole time the other foot was being corrected?

and no clubfoot needs 80 degrees. 70 is quite enough. and you

really can't leave the shoes off for a day or two. That's bad

advice. Either the shoes stay on or you put her into a

holding/healing cast. But not out of shoes, these feet can relapse

in a matter of hours. Which is why I asked about the first foot that

corrected easily. If it was not casted then I really have to wonder

about the correction.

Do you have any pictures of her feet?

The tips file will tell you a lot. Use the information within and

apply the shoes EXACTLY as detailed. If you still experience

slipping, something is wrong. Either you aren't getting the heels

down and just can't tell or they won't go down. Make sure they are

VERY tight. Much tighter than you would think they need to be. Use

some force to cinch them down, but push the heel deeply into the shoe

to do so.

tell us more about her feet and how they look now, and we'll go from

there. If you have any pics that would really help us troubleshoot

this for you.

Kori

At 10:52 AM 6/21/2006, you wrote:

>My daughter Maggie is 9 weeks old and has bilateral clubfeet. R foot

>only required casting for 1 week, left foot was casted for 6ish weeks

>and had the tendon released. She just got her shoes/bar last

>Monday. She has the red bar with the open sandal/hole in heel style.

>

>After screaming for the first day, she is now pretty use to the

>shoes, but is having heel redness. I had the orthotist place foam

>padding in her shoes yesterday and now both heels look worse, so I

>took the foam out this morning. I was only trying to help her, but

>feel I have made it worse.

>

>She is slipping out of her shoes and I found your information on the

>tricks so I am trying those tips.

>

>After reading your information about the angle being 70, I noticed

>that one foot is 70 the other is 80. I called the orthotist and he

>said it was no problem, he also said I could leave t he shoes off for

>a day or two to give her skin a rest, but the information on your

>site says the foot could relase in a few hours.

>

>My husband seems okay with everything but I don't feel like I am

>coping well. I know wahat I blessing Maggie is and we are lucky that

>her only problem is her crooked feet, but I am already tired of

>explaing to people why she has a cast on her leg, and now what the

>shoes and bar are for.

>

>What a blessing to have found your site, wish I had it months ago.

>

>Thanks for your time,

>

>

>

>

[Guest guest]

Hi ,

I know, I wish I found this site sooner too. But you're here now

and I hope you find encouragement like I have. My son cried the

first night he had the shoes too. I slept like 5 minutes that

night. But he got use to them the next day. He just had to learn

how to move his legs now. He's 8 1/2 months now. We were having

problems with him slipping out of his shoes too. I tried double

socks, but that didn't always work. Your doctor gave you some

foam? I had no idea about the foam until I came here. My husband

had some weather srtipping laying around and we super glued it to

the inside of Caleb's shoes just around the ankle part. And with

one pair of socks on, he hasn't slipped out yet. A true miracle if

you ask me! And it does get tiring answering everyone's questions

doesn't it? But you'll also find alot of people out there who have

experience with the dennis shoes and they will encourage you. But

no matter, you're little one will get through this, and so will

you!

[Guest guest]

Hi ,

I'm glad you found this board. Going forward you'll find it to be a

big help and support.

My daughter cried the first night, too. She was just about 3 months

old when she went into the Markells. By the third day, she was

fully adjusted and content. Her heels got red also so I found Band-

Aid brand blister band-aids which worked well. They stay on for 3-4

days and are waterproof and the adhesive didn't bother her skin at

all. Also, I used thick-ish socks to protect her tender skin at

first. After about a month, her heel started to drop and her skin

toughened up so we don't have to use anything on her heels anymore

and I get to put cute little thin socks on her without her feet

being sensitive.

It will get better and it will all become second nature.

and -J'nee, bcf, born 01.07.06, FAB 23/7

>

> My daughter Maggie is 9 weeks old and has bilateral clubfeet. R

foot

> only required casting for 1 week, left foot was casted for 6ish

weeks

> and had the tendon released. She just got her shoes/bar last

> Monday. She has the red bar with the open sandal/hole in heel

style.

>

> After screaming for the first day, she is now pretty use to the

> shoes, but is having heel redness. I had the orthotist place foam

> padding in her shoes yesterday and now both heels look worse, so I

> took the foam out this morning. I was only trying to help her,

but

> feel I have made it worse.

>

> She is slipping out of her shoes and I found your information on

the

> tricks so I am trying those tips.

>

> After reading your information about the angle being 70, I noticed

> that one foot is 70 the other is 80. I called the orthotist and he

> said it was no problem, he also said I could leave t he shoes off

for

> a day or two to give her skin a rest, but the information on your

> site says the foot could relase in a few hours.

>

> My husband seems okay with everything but I don't feel like I am

> coping well. I know wahat I blessing Maggie is and we are lucky

that

> her only problem is her crooked feet, but I am already tired of

> explaing to people why she has a cast on her leg, and now what the

> shoes and bar are for.

>

> What a blessing to have found your site, wish I had it months ago.

>

> Thanks for your time,

>

>

>

[Guest guest]

,

Have you tried lengthening the bar? Sometimes, as the child grows

and slipping starts it's due to the bar being too short.

The foam is called platizode and it's a U shaped piece of pink foam

designed to press into the Achilles, called a heel counter. The old

Markell shoes did not have any heel counter built in so the

plastizode was necessary (it also facilitates dropping of the heel

pad). The new Markells are re-designed and the shoe itself has a

counter built in. Most feet will do fine with this, but some do

still seem to need the counter added. The shoes with a built in hole

probably need the counter for every foot IMO.

Additionally, you'll want to look closely to the feet if you

experience slipping. Slipping, could be an indicator of

relapse. but more often than not, it's shoe size or bar length and

the feet are just fine. Just know to look for it when this

happens. Any nite waking changes recently? at or around the 7-9mo

mark lots of things happen. Nursing can go funky due to growth

spurts, and lookie lou (my term for their apparent interest in

anything other than eating even when they're hungry. latching off to

look around), and sometimes this looks like early self weaning (it is

not, just focus baby on nursing and this phase will pass). They will

be hungrier at night during the spurt as well. Waking every hour is

not uncommon for any baby (cf and brace or not). Also, baby is

getting more mobile and turning over under covers, gets tangled with

brace. more night waking. foot grows lots and could even be between

strap holes in size.

HTH

Kori

At 10:39 AM 6/22/2006, you wrote:

>Hi ,

>

>I know, I wish I found this site sooner too. But you're here now

>and I hope you find encouragement like I have. My son cried the

>first night he had the shoes too. I slept like 5 minutes that

>night. But he got use to them the next day. He just had to learn

>how to move his legs now. He's 8 1/2 months now. We were having

>problems with him slipping out of his shoes too. I tried double

>socks, but that didn't always work. Your doctor gave you some

>foam? I had no idea about the foam until I came here. My husband

>had some weather srtipping laying around and we super glued it to

>the inside of Caleb's shoes just around the ankle part. And with

>one pair of socks on, he hasn't slipped out yet. A true miracle if

>you ask me! And it does get tiring answering everyone's questions

>doesn't it? But you'll also find alot of people out there who have

>experience with the dennis shoes and they will encourage you. But

>no matter, you're little one will get through this, and so will

>you!

>

>

>

>

[Guest guest]

Kori,

Thanks for the reply. Well, Caleb got a 12 " bar in March. He got new

shoes in May. When he got the new shoes, the slipping out was much

worse. Caleb is going to a new doctor in 2 weeks and looks like he'll

be having a 2nd tetonomy. Perhaps because the shoes weren't staying

on, I dunno. But the weather stripping has kept him in all week. So

we'll see what happens. And he is 8 1/2 months and changes have been

happening. I blame the shoes though for his waking. He's been

sleeping thru the night since he was 6 months. And since his shoes

are staying on, he's sleeping all night. Though he does stay up much

later. Guess that's the typical 7-9 month change. Thanks for the

info on the foam. I'll have to ask the new doctor about that. Thanks!

[Guest guest]

Hang in there hon! I was just where you are and now it seems like it was a long

time ago! Everyone here is terrific and ready with lots of advice! Take care.

oliverdogplay wrote: My

daughter Maggie is 9 weeks old and has bilateral clubfeet. R foot

only required casting for 1 week, left foot was casted for 6ish weeks

and had the tendon released. She just got her shoes/bar last

Monday. She has the red bar with the open sandal/hole in heel style.

After screaming for the first day, she is now pretty use to the

shoes, but is having heel redness. I had the orthotist place foam

padding in her shoes yesterday and now both heels look worse, so I

took the foam out this morning. I was only trying to help her, but

feel I have made it worse.

She is slipping out of her shoes and I found your information on the

tricks so I am trying those tips.

After reading your information about the angle being 70, I noticed

that one foot is 70 the other is 80. I called the orthotist and he

said it was no problem, he also said I could leave t he shoes off for

a day or two to give her skin a rest, but the information on your

site says the foot could relase in a few hours.

My husband seems okay with everything but I don't feel like I am

coping well. I know wahat I blessing Maggie is and we are lucky that

her only problem is her crooked feet, but I am already tired of

explaing to people why she has a cast on her leg, and now what the

shoes and bar are for.

What a blessing to have found your site, wish I had it months ago.

Thanks for your time,

---------------------------------

Now you can have a huge leap forward in email: get the new Yahoo! Mail.