Letters from MAGIC

[Guest guest]

I'm just catching up on the last few days and noticed much discussion about

letters from MAGIC. Any member of MAGIC can call and request a copy of the

RSS library log. MAGIC will then mail you any article(s) you need free!!!

Here are a few of what I would call " the must haves " .

Dayna

ARTICLE ID#

TITLE

AUTHORS

SOURCE/DATE/PAGE

KEY SUBJECTS

Silver- Informational Brochure

Genetic Counselor Workshop of the Southeastern Regional Genetics Group

Complete & useful overview of RSS, features, development, common questions

-- a must-have for handing out to local doctors & ER

H - 26

Ask the Doctor - Use of Cornstarch to prevent nocturnal hypoglycemia "

Dr. Madeleine Harbison

MAGIC Newsletter, Summer 2001

Prevention of nighttime hypoglycemia

H - 27

Ask the Doctor - Use of Periactin/Cyproheptadine as an Appetite Stimulant "

Dr. Madeleine Harbison

MAGIC Newsletter, Summer 2001

Complete info on use of Periactin/cyproheptadine as an appetite stimulant

H - 28

Ask the Doctor - Explanation of Ketones & Link to Hypoglycemia

Dr. Madeleine Harbison

MAGIC Newsletter, Summer 2001

Why RSS kids are more at risk for hypoglycemia & spilling of ketones

H - 43

The RSS/SGA Infant Medical Letter

Dr. Madeleine Harbison

letter written by Dr. H to parents of RSS/SGA infants about what to do and

expect

H - 50

" New Visions Feeding " - Summary of Available Articles

, Suzanne , Ph.D.

New Visions Website: www.new-vis.com/fym/p-feed.htm You can either go

directly to this website for all of the articles or request this ID# from

MAGIC & get a listing

Extremely informative! Complete listing of articles related to the subject

of feeding problems -- including anatomy, relationship to speech, GI

problems, G-tubes, aspiration and more

H - 51

RSS Height Growth Curves (boy and girl - please specify which gender you

want)

European study done by Wolmann et al

Great tool to chart where your RSS child is in height in relation to other

RSS children (curve is based on RSS kids untreated with GH)

H - 53

" Small for Gestational Age - Pathophysiology and Management "

Chernausek, S. & Czernichow, P., Editors

Pharmacia educational booklet

Great resource summarizing SGA and good description of how hormones and GHT

works in body, so useful for RSS too.

Dayna Carney

RSS/SGA Scholarship Coordinator

The MAGIC Foundation