Re: Pediatric check up right after baby's birth

[Guest guest]

Hi Jane,

I don't get to post much anymore but I just happened to read yours today.

First, congratulations on the pregnancy. Now, according to Dr. Herzenberg,

it is okay to take your baby home and start the clubfoot treatment 2 weeks

after birth. I think that the story you were reading was a very rare

occurrence. Assuming all is well with the baby, there is no reason for

blood to be taken at a " normal " well-baby check up. Therefore, it would not

interfere with the casting process.

Hope this helps.

Good luck!

Pediatric check up right after baby's birth

Hi, I am expecting a baby girl in about a month and a half. I guess

I know I will have lot more time NOW, compared to the time when

actually baby comes, so doing lots of research on clubfeet!

I was browsing someone's website which detailed their child's

clubfoot treatment process from the beginning up until now and have

a question on one thing.

According to the website, they said they started treatment from day

4 of the baby's birth and had to go through a routine pediatrician

check up for the baby. And it included bloodtest for infants--and

there were some problems between her cast and blood test.

Here is the link which explains their story;

http://hometown.aol.com/vc11/warning.htm

I am thinking about taking my baby to the clubfoot clinic within a

week to ten days after the birth and I am not sure what to do with

mandatory baby check up with a peds--which thing should come first?

Cast or ped check up? Any experiences or thoughts? Our hospital

recommends to bring our baby in two weeks for ped check up.

I am a first time mama and just full of questions...

Also, when you see the website on the above, the parents also

mentioned hip problem and she wore a harness to create a depression

in her hip.

Is this common to have when the baby has clubfeet?

I am a first time mama and just have full of questions...

Jane

[Guest guest]

The biggest obstacle we had was figuring out the shots with the

casts. Never problems with drawing blood. But then again, I don't

remember them needing to get blood from Aleksander while he was in

casts.

I only remember one blood test, and he was much older. I think it

was to check lead levels in his blood. They just pricked his finger

and got what they needed that way. No big deal.

Also, Aleksander didn't get his first cast until he was nearly 1

month old. He was a little older when casting was done as a result,

but again, no big deal.

Aleksander, 11/24/04 bcf

>

> Hi Jane,

>

> I don't get to post much anymore but I just happened to read yours

today.

> First, congratulations on the pregnancy. Now, according to Dr.

Herzenberg,

> it is okay to take your baby home and start the clubfoot treatment

2 weeks

> after birth. I think that the story you were reading was a very

rare

> occurrence. Assuming all is well with the baby, there is no

reason for

> blood to be taken at a " normal " well-baby check up. Therefore, it

would not

> interfere with the casting process.

>

> Hope this helps.

>

> Good luck!

>

>

>

> Pediatric check up right after

baby's birth

>

> Hi, I am expecting a baby girl in about a month and a half. I

guess

> I know I will have lot more time NOW, compared to the time when

> actually baby comes, so doing lots of research on clubfeet!

>

> I was browsing someone's website which detailed their child's

> clubfoot treatment process from the beginning up until now and

have

> a question on one thing.

> According to the website, they said they started treatment from

day

> 4 of the baby's birth and had to go through a routine pediatrician

> check up for the baby. And it included bloodtest for infants--and

> there were some problems between her cast and blood test.

> Here is the link which explains their story;

>

> http://hometown.aol.com/vc11/warning.htm

>

> I am thinking about taking my baby to the clubfoot clinic within a

> week to ten days after the birth and I am not sure what to do with

> mandatory baby check up with a peds--which thing should come

first?

> Cast or ped check up? Any experiences or thoughts? Our hospital

> recommends to bring our baby in two weeks for ped check up.

> I am a first time mama and just full of questions...

>

> Also, when you see the website on the above, the parents also

> mentioned hip problem and she wore a harness to create a

depression

> in her hip.

> Is this common to have when the baby has clubfeet?

>

> I am a first time mama and just have full of questions...

>

> Jane

>

>

>

>

>

>

>

>

>

>

[Guest guest]

The only things that I know of that require a blood test are the

newborn screen and then additional screening if your little one is

jaundiced. The newborn screen should be done before you leave the

hospital so no worries of conflict there. We started 's

casting at 10 days, so he had his pediatrician check up before then

and had blood drawn to check his bilirubin levels (he looked a

little jaundiced).

We also had a problem with his newborn screen (the initial sample

was no good) and he had to have it repeated. We had the

pediatrician cut the casts off, take the blood, then we took him to

the ped ortho for his next casts. I posted here because I was

concerned about that, and several people said their children had

blood drawn from the arm or hand without any problems, so please

don't let that worry you!

Congratulations on your little girl and best of luck as you continue

your pregnancy!

Kaci

>

> Hi, I am expecting a baby girl in about a month and a half. I

guess

> I know I will have lot more time NOW, compared to the time when

> actually baby comes, so doing lots of research on clubfeet!

>

> I was browsing someone's website which detailed their child's

> clubfoot treatment process from the beginning up until now and

have

> a question on one thing.

> According to the website, they said they started treatment from

day

> 4 of the baby's birth and had to go through a routine pediatrician

> check up for the baby. And it included bloodtest for infants--and

> there were some problems between her cast and blood test.

> Here is the link which explains their story;

>

> http://hometown.aol.com/vc11/warning.htm

>

> I am thinking about taking my baby to the clubfoot clinic within a

> week to ten days after the birth and I am not sure what to do with

> mandatory baby check up with a peds--which thing should come

first?

> Cast or ped check up? Any experiences or thoughts? Our hospital

> recommends to bring our baby in two weeks for ped check up.

> I am a first time mama and just full of questions...

>

> Also, when you see the website on the above, the parents also

> mentioned hip problem and she wore a harness to create a

depression

> in her hip.

> Is this common to have when the baby has clubfeet?

>

> I am a first time mama and just have full of questions...

>

> Jane

>

[Guest guest]

Hi there! The pediatrician check-up is usually about 3-4 days after the birth of

the baby. This is when they will do another prick in the heel for the PKU test.

If you are planning on having your child casted at 7-10 days, it should be fine.

I never had a problem. The only thing I encountered was when my son was due for

his 2-month vaccination and he was still in his tenotomy cast. I simply

postponed the vaccination by a week or two and it worked out fine.

jieun_kang wrote: Hi, I am expecting a baby girl in

about a month and a half. I guess

I know I will have lot more time NOW, compared to the time when

actually baby comes, so doing lots of research on clubfeet!

I was browsing someone's website which detailed their child's

clubfoot treatment process from the beginning up until now and have

a question on one thing.

According to the website, they said they started treatment from day

4 of the baby's birth and had to go through a routine pediatrician

check up for the baby. And it included bloodtest for infants--and

there were some problems between her cast and blood test.

Here is the link which explains their story;

http://hometown.aol.com/vc11/warning.htm

I am thinking about taking my baby to the clubfoot clinic within a

week to ten days after the birth and I am not sure what to do with

mandatory baby check up with a peds--which thing should come first?

Cast or ped check up? Any experiences or thoughts? Our hospital

recommends to bring our baby in two weeks for ped check up.

I am a first time mama and just full of questions...

Also, when you see the website on the above, the parents also

mentioned hip problem and she wore a harness to create a depression

in her hip.

Is this common to have when the baby has clubfeet?

I am a first time mama and just have full of questions...

Jane

[Guest guest]

Hi Jane, congratulations on your upcoming baby girl! It's great to be full of

questions, it's the " Know It All " people I worry about, haha.

I don't know what club foot clinic you plan to go to, could you tell us?

As far as when to begin treatment, it is perfectly OK to wait a couple weeks,

even three weeks if necessary, before you start casting. The only blood test a

cast would interfer with is the PKU which is done around 4 or 5 days old in most

cases. By the time she needs her first round of vaccinations, the casts will

probably be off (2 months of age).

Given a choice, I would wait the 2 or so weeks to begin casting simply to give

your new infant time to adjust to being born, time for you to adjust to being a

mommy and recovery physically adn time for the family to all bond. And take

lots of pictures of her before the casting cuz you'll regret later not having

the " before and after " shots.

Hip problems are not really a side affect of club foot but doctors keep an eye

out for it.

I also suggest you visit the photo's section of this group. Clubfoot comes in a

variety of shapes, some look quite severe, other's not so severe - anyway, the

photos give you a well rounded idea of what you might expect so you don't have

teh shock-factor at birth. Know though that the visual look of the foot really

doesn't dictate the severity of the condition. A not so bad looking foot might

be stiffer than a terrible looking foot, or vice versa. Really no way to know

how bad it is until a qualified doctor examines it.

The treatment goes by pretty fast, 2 or 3 weeks in most cases. Time really

flies. I was in Iowa City during March/April having my 3rd son treated by Dr.

Ponseti. I have a small photo journal in the photo section of that visit you

can look at too.

Wishing you the best!

ee

Mother of 3 Clubfooted Sons:

- Bilateral Club Feet April 1998

Everett - Bilateral Club Feet September 2003

Garrison - Bilateral Club Feet March 2006

Pediatric check up right after baby's birth

Hi, I am expecting a baby girl in about a month and a half. I guess

I know I will have lot more time NOW, compared to the time when

actually baby comes, so doing lots of research on clubfeet!

I was browsing someone's website which detailed their child's

clubfoot treatment process from the beginning up until now and have

a question on one thing.

According to the website, they said they started treatment from day

4 of the baby's birth and had to go through a routine pediatrician

check up for the baby. And it included bloodtest for infants--and

there were some problems between her cast and blood test.

Here is the link which explains their story;

http://hometown.aol.com/vc11/warning.htm

I am thinking about taking my baby to the clubfoot clinic within a

week to ten days after the birth and I am not sure what to do with

mandatory baby check up with a peds--which thing should come first?

Cast or ped check up? Any experiences or thoughts? Our hospital

recommends to bring our baby in two weeks for ped check up.

I am a first time mama and just full of questions...

Also, when you see the website on the above, the parents also

mentioned hip problem and she wore a harness to create a depression

in her hip.

Is this common to have when the baby has clubfeet?

I am a first time mama and just have full of questions...

Jane

[Guest guest]

The hip problems are not all that common, although they do occur in connection

with club feet sometimes. The pediatric orthopedist you choose will check out

your baby's hips very carefully. Generally no xrays are needed as the doc can

tell how things are moving around just upon exam. Our daughter had no hip

issues. (She has bilateral club feet.)

was casted at one week old and then we found out that her newborn blood

screen which was taken at the hospital had come back with a potential problem

(not an uncommon occurrence). So I took off her cast, rushed her for the blood

draw in her heel and then took her to the ortho for recasting. I did all of

this in conjunction with our regular ortho appointment so it was no extra

casting for her, just a lot of running around for me. The second blood test

came back with a problem, as well, so we had to have another one done. This

time, the blood was taken from her arm. This sounds horrible, but

literally didn't bat an eye. I took her to the local children's hospital where

the phlebotomists are well-trained on babies and children so they know how to do

it with as little discomfort as possible. didn't cry even a bit. I was

amazed! Most babies don't have to have the blood work repeated, though. None

of my other babies did, of course, just who already had enough to deal

with, in my opinion. But it all worked out fine.

I delayed 's two month vaccinations for a week or so in order for her to

be out of the casts. This was not a problem. I refused to have her shots given

with casts on. These issues generally work out just fine, although I know they

are nerve wracking when you are dealing with them. I was a nervous wreck about

all the blood draws but they really went just fine. All the best to you,

Carol

Pediatric check up right after baby's birth

Hi, I am expecting a baby girl in about a month and a half. I guess

I know I will have lot more time NOW, compared to the time when

actually baby comes, so doing lots of research on clubfeet!

I was browsing someone's website which detailed their child's

clubfoot treatment process from the beginning up until now and have

a question on one thing.

According to the website, they said they started treatment from day

4 of the baby's birth and had to go through a routine pediatrician

check up for the baby. And it included bloodtest for infants--and

there were some problems between her cast and blood test.

Here is the link which explains their story;

http://hometown.aol.com/vc11/warning.htm<http://hometown.aol.com/vc11/warning.ht\

m>

I am thinking about taking my baby to the clubfoot clinic within a

week to ten days after the birth and I am not sure what to do with

mandatory baby check up with a peds--which thing should come first?

Cast or ped check up? Any experiences or thoughts? Our hospital

recommends to bring our baby in two weeks for ped check up.

I am a first time mama and just full of questions...

Also, when you see the website on the above, the parents also

mentioned hip problem and she wore a harness to create a depression

in her hip.

Is this common to have when the baby has clubfeet?

I am a first time mama and just have full of questions...

Jane

[Guest guest]

Hi - Congratulations on your upcoming baby girl! We had our baby

daughter start casting around 3.5 weeks - we flew out to

Iowa so we wanted to make sure that she was okay before we flew out.

Dr. Ponseti's office also told us that we should enjoy the baby and

bond with the baby before we brought her in. initially was

told that she might have border-line jaundice, so she had to get her

blood drawn from her heel twice - I think around day 4 and day 6.

She was fine, but our pediatrician wanted to be sure.

Good luck!

Best,

Yuuko ( DOB 8-4-05; P/M 12-14/7)

>

> The hip problems are not all that common, although they do occur

in connection with club feet sometimes. The pediatric orthopedist

you choose will check out your baby's hips very carefully.

Generally no xrays are needed as the doc can tell how things are

moving around just upon exam. Our daughter had no hip issues. (She

has bilateral club feet.)

>

> was casted at one week old and then we found out that her

newborn blood screen which was taken at the hospital had come back

with a potential problem (not an uncommon occurrence). So I took

off her cast, rushed her for the blood draw in her heel and then

took her to the ortho for recasting. I did all of this in

conjunction with our regular ortho appointment so it was no extra

casting for her, just a lot of running around for me. The second

blood test came back with a problem, as well, so we had to have

another one done. This time, the blood was taken from her arm.

This sounds horrible, but literally didn't bat an eye. I

took her to the local children's hospital where the phlebotomists

are well-trained on babies and children so they know how to do it

with as little discomfort as possible. didn't cry even a

bit. I was amazed! Most babies don't have to have the blood work

repeated, though. None of my other babies did, of course, just

who already had enough to deal with, in my opinion. But it

all worked out fine.

>

> I delayed 's two month vaccinations for a week or so in

order for her to be out of the casts. This was not a problem. I

refused to have her shots given with casts on. These issues

generally work out just fine, although I know they are nerve

wracking when you are dealing with them. I was a nervous wreck

about all the blood draws but they really went just fine. All the

best to you,

>

> Carol

> Pediatric check up right after

baby's birth

>

>

> Hi, I am expecting a baby girl in about a month and a half. I

guess

> I know I will have lot more time NOW, compared to the time when

> actually baby comes, so doing lots of research on clubfeet!

>

> I was browsing someone's website which detailed their child's

> clubfoot treatment process from the beginning up until now and

have

> a question on one thing.

> According to the website, they said they started treatment from

day

> 4 of the baby's birth and had to go through a routine

pediatrician

> check up for the baby. And it included bloodtest for infants--

and

> there were some problems between her cast and blood test.

> Here is the link which explains their story;

>

>

http://hometown.aol.com/vc11/warning.htm<http://hometown.aol.com/vc11

/warning.htm>

>

> I am thinking about taking my baby to the clubfoot clinic within

a

> week to ten days after the birth and I am not sure what to do

with

> mandatory baby check up with a peds--which thing should come

first?

> Cast or ped check up? Any experiences or thoughts? Our hospital

> recommends to bring our baby in two weeks for ped check up.

> I am a first time mama and just full of questions...

>

> Also, when you see the website on the above, the parents also

> mentioned hip problem and she wore a harness to create a

depression

> in her hip.

> Is this common to have when the baby has clubfeet?

>

> I am a first time mama and just have full of questions...

>

> Jane

>

>

>

>

>

>

>

>

>

[Guest guest]

Our pediatrician and orthopedist did check Lily's hips repeatedly, with

manual exams, ultrasounds, & xrays, for dysplasia (sp?) until she

was 9 months old. I think her clubfoot was a factor in their concern,

but so was the fact that she was female & breech.

Kim

Carol Shelton wrote:

Pediatric check up right after baby's birth

Hi, I am expecting a baby girl in about a month and a half. I guess

I know I will have lot more time NOW, compared to the time when

actually baby comes, so doing lots of research on clubfeet!

I was browsing someone's website which detailed their child's

clubfoot treatment process from the beginning up until now and have

a question on one thing.

According to the website, they said they started treatment from day

4 of the baby's birth and had to go through a routine pediatrician

check up for the baby. And it included bloodtest for infants--and

there were some problems between her cast and blood test.

Here is the link which explains their story;

http://hometown.aol.com/vc11/warning.htm<http://hometown.aol.com/vc11/warning.ht\

m>

I am thinking about taking my baby to the clubfoot clinic within a

week to ten days after the birth and I am not sure what to do with

mandatory baby check up with a peds--which thing should come first?

Cast or ped check up? Any experiences or thoughts? Our hospital

recommends to bring our baby in two weeks for ped check up.

I am a first time mama and just full of questions...

Also, when you see the website on the above, the parents also

mentioned hip problem and she wore a harness to create a depression

in her hip.

Is this common to have when the baby has clubfeet?

I am a first time mama and just have full of questions...

Jane

[Guest guest]

You know, the nurses at Aleksander's ped's office were really

uptight about the shots. When he first came in with the casts on

(he didn't need shots at that appointment), they got all freaked out

about where they would give him his shots. I just asked that when

his next set of casts were put on that they put them just a tiny bit

lower. So instead of going fully up his leg, they left about 1/4 to

1/2 inch room for the shots. It didn't compromise the casts at all,

and the nurses were able to give him the shots without any trouble.

Oh, they weren't too happy when I came in with him in the casts, but

they figured it out. But then again, I wasn't in any mood to take

any crap about it. : ) I usually tried to get his appointments on

the same day, usually with casts first, then the ped. Then I could

get his weight without the casts on for his doctor too.

I guess that is another thing to check into. See if you can have

your baby weighed at the clubfoot clinic without the casts on. And

if they measure your baby too, it will give you more accurate info

for both your doctor, and your baby book.

>

> > The biggest obstacle we had was figuring out the shots with the

> > casts. Never problems with drawing blood. But then again, I

don't

> > remember them needing to get blood from Aleksander while he was

in

> > casts.

> >

> > I only remember one blood test, and he was much older. I think

it

> > was to check lead levels in his blood. They just pricked his

finger

> > and got what they needed that way. No big deal.

> >

> > Also, Aleksander didn't get his first cast until he was nearly 1

> > month old. He was a little older when casting was done as a

result,

> > but again, no big deal.

>

>

>

> Rose (1-99)

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> Iris (2-01)

> Spencer (3-03)

> Grant (9-05) http://www.caringbridge.org/visit/grantphilip

>

> __________________________________________________

>

[Guest guest]

Aleksander had two ultrasounds on his hips. He was breech, and

early. No problems, but our pediatrician always asks about his hips

instead of his feet. Cracks me up every time.

I finally corrected her at his 1 year check-up. We'll see what she

says next week at his 18 months appointment...

> Pediatric check up right after

baby's birth

>

>

> Hi, I am expecting a baby girl in about a month and a half. I

guess

> I know I will have lot more time NOW, compared to the time when

> actually baby comes, so doing lots of research on clubfeet!

>

> I was browsing someone's website which detailed their child's

> clubfoot treatment process from the beginning up until now and

have

> a question on one thing.

> According to the website, they said they started treatment from

day

> 4 of the baby's birth and had to go through a routine

pediatrician

> check up for the baby. And it included bloodtest for infants--

and

> there were some problems between her cast and blood test.

> Here is the link which explains their story;

>

>

http://hometown.aol.com/vc11/warning.htm<http://hometown.aol.com/vc11

/warning.htm>

>

> I am thinking about taking my baby to the clubfoot clinic within

a

> week to ten days after the birth and I am not sure what to do

with

> mandatory baby check up with a peds--which thing should come

first?

> Cast or ped check up? Any experiences or thoughts? Our hospital

> recommends to bring our baby in two weeks for ped check up.

> I am a first time mama and just full of questions...

>

> Also, when you see the website on the above, the parents also

> mentioned hip problem and she wore a harness to create a

depression

> in her hip.

> Is this common to have when the baby has clubfeet?

>

> I am a first time mama and just have full of questions...

>

> Jane

>

>

>

>

>

>

>

>

>

[Guest guest]

Both of my sons were transverse and it's routine to have an

ultrasound to check for hip displasia. My first son had no problems

and hoping my new baby doesn't either. I have a heart shaped uterus

so it's common for babies to be transverse.

I think it's really great to be able to research everything before

the baby is born. I found out by ultrasound that my now 5-week old

son, Dylan, had a club foot. I am so relieved that I was able to

find the one dr in the country I live in (The Netherlands) that does

the full Ponseti Method treatment. Otherwise, it would have been

extremely likely that we would have ended up with surgery for Dylan.

We had his first cast on within a week although in the hospital

where he was born they wanted to cast immediately after his birth.

Good luck!

Joyce

> > Pediatric check up right after

> baby's birth

> >

> >

> > Hi, I am expecting a baby girl in about a month and a half. I

> guess

> > I know I will have lot more time NOW, compared to the time

when

> > actually baby comes, so doing lots of research on clubfeet!

> >

> > I was browsing someone's website which detailed their child's

> > clubfoot treatment process from the beginning up until now and

> have

> > a question on one thing.

> > According to the website, they said they started treatment

from

> day

> > 4 of the baby's birth and had to go through a routine

> pediatrician

> > check up for the baby. And it included bloodtest for infants--

> and

> > there were some problems between her cast and blood test.

> > Here is the link which explains their story;

> >

> >

>

http://hometown.aol.com/vc11/warning.htm<http://hometown.aol.com/vc11

> /warning.htm>

> >

> > I am thinking about taking my baby to the clubfoot clinic

within

> a

> > week to ten days after the birth and I am not sure what to do

> with

> > mandatory baby check up with a peds--which thing should come

> first?

> > Cast or ped check up? Any experiences or thoughts? Our

hospital

> > recommends to bring our baby in two weeks for ped check up.

> > I am a first time mama and just full of questions...

> >

> > Also, when you see the website on the above, the parents also

> > mentioned hip problem and she wore a harness to create a

> depression

> > in her hip.

> > Is this common to have when the baby has clubfeet?

> >

> > I am a first time mama and just have full of questions...

> >

> > Jane

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

You know that's interesting because one of the docs in our Pediatric

group did the same thing, although not quite to that extent.

Everytime we see this doc (not Sammy's primary care), he says

something about his hips. Even though I've told him and the Primary

care doc that we've had it checked; Dr. Dobbs checked his hips when he

first evaluated Sam, and again when this doc first mentioned it. He

was also the one who saw Sammy at the hospital when he was born and

gave me the " what do you know? " look when I told him we had the CF

well in hand and No, we wouldn't be going to St. 's for treatment.

Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace, 12-14hrs/day)

> > Pediatric check up right after

> baby's birth

> >

> >

> > Hi, I am expecting a baby girl in about a month and a half. I

> guess

> > I know I will have lot more time NOW, compared to the time when

> > actually baby comes, so doing lots of research on clubfeet!

> >

> > I was browsing someone's website which detailed their child's

> > clubfoot treatment process from the beginning up until now and

> have

> > a question on one thing.

> > According to the website, they said they started treatment from

> day

> > 4 of the baby's birth and had to go through a routine

> pediatrician

> > check up for the baby. And it included bloodtest for infants--

> and

> > there were some problems between her cast and blood test.

> > Here is the link which explains their story;

> >

> >

> http://hometown.aol.com/vc11/warning.htm<http://hometown.aol.com/vc11

> /warning.htm>

> >

> > I am thinking about taking my baby to the clubfoot clinic within

> a

> > week to ten days after the birth and I am not sure what to do

> with

> > mandatory baby check up with a peds--which thing should come

> first?

> > Cast or ped check up? Any experiences or thoughts? Our hospital

> > recommends to bring our baby in two weeks for ped check up.

> > I am a first time mama and just full of questions...

> >

> > Also, when you see the website on the above, the parents also

> > mentioned hip problem and she wore a harness to create a

> depression

> > in her hip.

> > Is this common to have when the baby has clubfeet?

> >

> > I am a first time mama and just have full of questions...

> >

> > Jane

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

It's funny, I have noticed this with some doc's too....he must have

written something in Sammy's chart some time ago and now just

can't 'get past it' lol.

And about the 'not getting it' in regards to how vastly different

club foot treatment is with a Ponseti trained doc, yup been there

done that too. I Have been able to somewhat educate Gracies Ped which

is a great thing, gave him a copy of the Global Help booklet. He

say's if he has any future patients with cf, he will recommend Dr.

Pirani most highly

& Grace 22mos

> > > Pediatric check up right after

> > baby's birth

> > >

> > >

> > > Hi, I am expecting a baby girl in about a month and a half. I

> > guess

> > > I know I will have lot more time NOW, compared to the time

when

> > > actually baby comes, so doing lots of research on clubfeet!

> > >

> > > I was browsing someone's website which detailed their child's

> > > clubfoot treatment process from the beginning up until now

and

> > have

> > > a question on one thing.

> > > According to the website, they said they started treatment

from

> > day

> > > 4 of the baby's birth and had to go through a routine

> > pediatrician

> > > check up for the baby. And it included bloodtest for infants--

> > and

> > > there were some problems between her cast and blood test.

> > > Here is the link which explains their story;

> > >

> > >

> >

http://hometown.aol.com/vc11/warning.htm<http://hometown.aol.com/vc11

> > /warning.htm>

> > >

> > > I am thinking about taking my baby to the clubfoot clinic

within

> > a

> > > week to ten days after the birth and I am not sure what to do

> > with

> > > mandatory baby check up with a peds--which thing should come

> > first?

> > > Cast or ped check up? Any experiences or thoughts? Our

hospital

> > > recommends to bring our baby in two weeks for ped check up.

> > > I am a first time mama and just full of questions...

> > >

> > > Also, when you see the website on the above, the parents also

> > > mentioned hip problem and she wore a harness to create a

> > depression

> > > in her hip.

> > > Is this common to have when the baby has clubfeet?

> > >

> > > I am a first time mama and just have full of questions...

> > >

> > > Jane

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Ahh Jane,

We have ALL been right where you are and THAT is just what we are all

here for!! (((( )))) big hugs to you and don't you worry one bit

about the severity of her/his feet! As long as you have a good

Ponseti trained doctor, he/she will be able to fix your baby's feet

with relative ease!

Really, try to enjoy the rest of your pregnancy, hard to believe it

now but you will miss it when it's over.

As far as the casting/brace wear go, we will help you get through all

of that!

Smiles,

& Grace 22 mos

urcf FAB 13 hrs

> > >

> > > > A note on PKU my widwife taught me - she used a tool that

made a

> >small

> > >slice

> > > > rather than the tool that just makes a round needle poke.

I

> >actually

> > >ordered

> > > > the thing on line per her instruction and had it shipped to

my

> >house.

> > > >

> > > > The blood flows more easily so they don't have to squeeze

the foot

> >so

> > >badly

> > > > to get the blood out. She used a small heat pack, warmed

the heel,

> > >then

> > > > poked him with that gadget adn it was so easy. Everett's

PKU in the

> > >hospital

> > > > was so friggen horrible I nearly threw up with them

squeezing his

> >foot

> > >blue

> > > > to get blood and him screaming until he nearly passed out.

Garrison

> > >never

> > > > made a wimper.

> > >

> > >My daughter Iris (a homebirth, also!) had hers done twice, and

they

> >just

> > >did

> > >the foot poke after warming the heel thoroughly with the gel

heat pack.

> > I

> > >kid

> > >you not, the child did not cry at all. Iris and Spencer, at

their one

> >year

> > >finger pokes (anemia and lead test) didn't cry. The woman

who did

> >Iris's

> > >PKU

> > >seemed so nervous to have us in there, but Iris just lay there

as

> >calmly as

> > >could be. Isn't it interesting how different kids react?

Rose

> >screamed

> > >like

> > >they were trying to kill her almost every casting session,

even with

> >Dr.

> > >Ponseti.

> > >

> > >Joy

> > >

> > >Rose (1-99)

>

>http://www.geocities.com/joybelle15/rosesclubfootpage.html<http://www

..geocities.com/joybelle15/rosesclubfootpage.html>

> > >Iris (2-01)

> > >Spencer (3-03)

> > >Grant (9-05)

>

>http://www.caringbridge.org/visit/grantphilip<http://www.caringbridge

..org/visit/grantphilip>

> > >

> > >__________________________________________________

> > >

[Guest guest]

Jane,

I will tell you what I know about Dr. son at CHOP, and I

hope no one minds my being frank about it. I'm also sure others have

some opinions because his name is one I have heard here on the board,

and they can tell you what they think. Also let me say that my

opinion is based not on personal experience, only what I have gleaned

from others on this group.

But I digress, here are a few messages from the archives that sort of

documents the history of one couple's experience with him. Messages:

14180, 14188, 14454, 15079,15087, & 15094. In case you're wondering

how I know this right off-hand, I guess you could say it is because he

is sort of a " red flag " doc. If you take a look through these

messages you will see a family that was very satisfied with their

child's casting treatment w/ Dr. son; so in answer to your

question about someone closer to you who could help with a problem

cast, this may be okay. Although it does mention that he uses

fiberglass instead of plaster, but there are definitely some very good

Ponseti docs who use fiberglass, so this in itself would not be a

reason not to use him in case of emergency. The rest of the messages

will lead you through the rest of this same child's treatment with Dr.

son showing exactly how he deviates from the Ponseti method when

it comes to surgery. Yes, the tenotomy is " technically " surgery, but

that's where the similarity between what a true Ponseti doc does when

he snips the achilles tendon and what Dr. son does when he " gets

inside " the foot. So anyway, what I am saying in essence is that it

might be okay to see him if you needed to for a casting emergency

(which is pretty unlikely to happen w/ Dr. H anyway), but I personally

would not let him touch my child for ANYTHING else.

Hope this helps,

Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace, 12-14hrs/day)

> >

> > > A note on PKU my widwife taught me - she used a tool that made a

small

> >slice

> > > rather than the tool that just makes a round needle poke. I

actually

> >ordered

> > > the thing on line per her instruction and had it shipped to my

house.

> > >

> > > The blood flows more easily so they don't have to squeeze the

foot so

> >badly

> > > to get the blood out. She used a small heat pack, warmed the

heel,

> >then

> > > poked him with that gadget adn it was so easy. Everett's PKU in

the

> >hospital

> > > was so friggen horrible I nearly threw up with them squeezing

his foot

> >blue

> > > to get blood and him screaming until he nearly passed out.

Garrison

> >never

> > > made a wimper.

> >

> >My daughter Iris (a homebirth, also!) had hers done twice, and they

just

> >did

> >the foot poke after warming the heel thoroughly with the gel heat

pack. I

> >kid

> >you not, the child did not cry at all. Iris and Spencer, at their

one year

> >finger pokes (anemia and lead test) didn't cry. The woman who did

Iris's

> >PKU

> >seemed so nervous to have us in there, but Iris just lay there as

calmly as

> >could be. Isn't it interesting how different kids react? Rose

screamed

> >like

> >they were trying to kill her almost every casting session, even

with Dr.

> >Ponseti.

> >

> >Joy

> >

> >Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html

> >Iris (2-01)

> >Spencer (3-03)

> >Grant (9-05) http://www.caringbridge.org/visit/grantphilip

> >

> >__________________________________________________

> >

[Guest guest]

Hi Jane,

We live in South Jersey about 10-15 minutes outside of Philadelphia,

I'm just catching up on posts so I have't read your origianl posts

yet and don't know your families " story " or about your child. But

wanted to say that you can feel free to e-mail me if you need someone

to talk to. We used Shriners in Philadelphia (who DO NOT use the

ponseti method 100%)as our back up hospital just incase we needed to

check on something quickly with out driving 2 hours, etc to Collin's

doctor's. The people at Shriners are very nice and knew that was

what we were doing and were very helpful about it and worked with us,

they even removed his last cast from his surgery in September, rather

then us flying back to Iowa just for a cast removal. My son is 4

years old and was born with unilateral right clubfoot and see's Dr.

Ponseti and Dr. Morcunde currently at the University of Iowa. He is

doing great and doesn't go back now for about 1 year for a check up.

We also just welcomed our new daughter into the world on May 7th,

Lindsey Grace!

Michele

Collin's story at

http://www.geocities.com/chele323232

[Guest guest]

Jane,

I remember feeling the same way - worrying about doing everything

right with the casts, then thinking I would never figure out how to

get the shoes and brace on. Honestly it is no different than

anything else...you just learn it and it becomes second nature. And

when you have doubts & questions, you have a great resource in the

mommies & daddies here! They have saved my sanity a time or two!

Carol - I also prayed the ultrasound was " wrong " and would

be born without club feet. There was some family history that made

me think he would be fine, so I was also surprised! Glad I'm not

the only one, but like you, I wouldn't change a moment!

Kaci

>

> Jane,

>

> I recall during most of my pg praying that would be whole

and healthy and without club feet even. Because of this, it was

actually a " surprise " to me when she was born with club feet.

>

> The world of club feet treatment is a new world to navigate but

there are good road maps and you meet so many wonderful and

interesting people along the way. All the things you are afraid of

now will soon become second nature. The terms which are " Greek " now

will be falling off of your tongue soon. You will be holding your

precious baby and be grateful for her, as you are now, even with

clubbed feet.

>

> Now that we are past the hard part of things, I truly don't wish

on most days that had been born any differently. As a mom,

there are always opportunities for worry, but club feet are not that

huge in the scheme of things and, when all of our little clubfooted

babies are in kindergarten running around the playground on fully

functional feet, it should be just a memory.

>

> I am always available to email privately, as well. Feel free to

contact me any time.

>

> Carol

> Re: Re: Pediatric check up right

after baby's birth

>

>

>

> Carol

>

> Thanks again..this board gives me such comfort and I am so glad

I found one

> like this!

> I just keep praying that our child will be born healthy and

won't have any

> complications or problems other than her twisted feet. As I

approach to the

> final month of my pregnancy, I am still a bit afraid sometimes --

what if

> it's so severe, how can I handle putting her shoes properly

every day and

> night, when I am notoriously famous for not being a handy woman

(very

> clumsy!!), but I know I will be forever thankful to have her as

my child!

>

> Jane

>

[Guest guest]

Hi Jane,

We actually didn't worry much about the casts with anything. She

had them on during her well baby checkups; she got weighed and

measured and got her shots with them on. She received the shots in

her upper outside thighs. And, while the weight and length

measurements may have been a little off during the first couple of

months, it was probably only slightly and didn't concern us. Our

concern was mostly with her health. Plus, our pediatrician knew of

the condition and casting so she just worked right around them. In

other words, no problem!!

Good luck with everything!

and -J'nee, bcf, born 01.07.06, DBB 23/7

>

> Hi, I am expecting a baby girl in about a month and a half. I

guess

> I know I will have lot more time NOW, compared to the time when

> actually baby comes, so doing lots of research on clubfeet!

>

> I was browsing someone's website which detailed their child's

> clubfoot treatment process from the beginning up until now and

have

> a question on one thing.

> According to the website, they said they started treatment from

day

> 4 of the baby's birth and had to go through a routine pediatrician

> check up for the baby. And it included bloodtest for infants--and

> there were some problems between her cast and blood test.

> Here is the link which explains their story;

>

> http://hometown.aol.com/vc11/warning.htm

>

> I am thinking about taking my baby to the clubfoot clinic within a

> week to ten days after the birth and I am not sure what to do with

> mandatory baby check up with a peds--which thing should come

first?

> Cast or ped check up? Any experiences or thoughts? Our hospital

> recommends to bring our baby in two weeks for ped check up.

> I am a first time mama and just full of questions...

>

> Also, when you see the website on the above, the parents also

> mentioned hip problem and she wore a harness to create a

depression

> in her hip.

> Is this common to have when the baby has clubfeet?

>

> I am a first time mama and just have full of questions...

>

> Jane

>