FW: SF Bay Area Celiac News - March 2004

[Guest guest]

Check out all the great events coming up in the next two months throughout

the bay area. Be sure to put the date for the Stanford conference on your

calendar for next October (see the announcement at the bottom of the

Stanford group's events). Also check out the info on the NIH and GIG

conferences at the end.

Pam Newbury

SAN FRANCISCO BAY AREA NEWS....March 2004

OAKLAND

Contact: Ellen Switkes

ellen.switkes@..., 510-655-0215 (eves)

The Oakland group will meet on Saturday, April 17, from 10:30AM

to 12:30PM, 1950 lin Street in Oakland. Please bring a gluten

free brunch item with recipe or ingredient list. Everyone is welcome.

Our speaker will be Helen Nienow from Harvest House in Concord,

a large health food store on Monument Blvd opposite Costco.

(They carry lots of brands of gluten free products, including

Kinnikinnick products in their freezer.) Helen will talk about

shopping for gluten free foods.

Save June 5 for the final meeting of the year.

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STANFORD

Contact: Rohlfs

kellyr@..., 650-725-4771

The next Stanford event is a gluten free bake sale on Sunday,

April 18 at Global Blends Coffee Shop in Mountain View.

Sale begins at 10AM and will last until all products are sold.

Global Blends is located at 650 Castro Street in Mountain View

(not far from Starbucks), phone 650-254-1110, map found at

http://www.mountainviewca.net/.

Stop by for some freshly baked gluten free muffins, carrot cake,

cheesecake, chocolate desserts, cookies, and a cup of the excellent

coffee served at Global Blends. If you wish to pre-order something

special from our great volunteer bakers then let know and

we'll reserve it for you.

Proceeds from the bake sale and 20% of all the day's proceeds at

Global Blends will be donated to Celiac Sprue Research Foundation.

Global Blends is owned by Patsy Price, a celiac, who has carefully

chosen gluten free products to serve where possible. The following

items are GF at Global Blends: coffee, tea, chai, elixir tonic, milk, soy

milk, smoothies, whipping cream, all sauces and syrups, chocolate

sprinkles for topping the coffees. All of the blended coffee drinks

and espresso drinks are also gluten free.

The Mountain View Farmers Market is also on Sunday morning

9AM-1PM, just off Castro near the railroad tracks, at the corner

of Hope and in the parking lot across from the train station.

Natasha from Sweet Temptations, baker of healthy GF cookies,

will be selling her products on April 18 and every other Sunday.

Her cookies are made with nut flour. You can find her in the

baked goods section of the market. If you get lost, call her on

her cell at 650-207-3470.

SAVE THE DATE FOR CELIAC WALK:

On Saturday, May 15 the second annual walk-a-thon is planned

at Stanford. Strollers, roller blades and dogs are welcome.

Enjoy a gluten free breakfast and a pleasant stroll through

campus and also stop by for a tour of the newly relocated

research lab off Page Mill Rd. More information will be sent

out in April.

ANNUAL STANFORD CELIAC CONFERENCE

Planning has begun for the next celiac conference at Stanford.

The date is Saturday, Oct. 30. Speakers include Gray MD,

Chaitan Khosla PhD, M. Pietzak MD, Danna Korn

R.O.C.K. founder, Kupper, RD CD and Executive

Director Gluten Intolerance Group, Carol Fenster PhD

cookbook author. The moderator will be Sibley MD.

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SPECIAL INVITATION IN SAN JOSE

Gluten free potluck dinner, Friday April 23, 6:30PM .

Home of Elyse Walter, 2428 Westgate Ave, San ,

in Willow Glen. (cross streets are Curtner and Cottle)

RSVP to Elyse at fitlizzy@... (please put " celiac "

in subject line), or call 408-448-7218. Everyone is

welcome. Elyse is newly diagnosed and looks forward

to meeting other celiacs.

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SANTA CRUZ

Contact: Pam Newbury

pknewbury@..., 831-423-6904

The next meeting of the Santa Cruz Celiac Support group

meeting will be on Saturday, May 8, at 11AM in room 1

at Dominican Hospital, 1555 Soquel Drive , Santa Cruz.

We will have a gluten-free potluck lunch (bring a list of

the ingredients or the recipe). Everyone is invited,

whether you have been diagnosed for a few weeks or

a few years. At our last meeting we had several newly

diagnosed celiacs, and it was great to have lots of

information and support from the more experienced

celiacs attending. For directions or more information

please call Pam.

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BAY AREA R.O.C.K.

Contact: Fowell Velez

kfowell00@..., 650-216-6405

The Bay Area Celiac ROCK (formerly called Palo Alto ROCK)

will be meeting next on Sunday, April 25th at Rinconada Park

in Palo Alto for a pot luck. For more information, time, and

directions please contact .

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CONTACTS FOR OTHER LOCAL GROUPS

Sebastopol: Leilani

lsmith@..., 707-829-9105

Napa: Marie Dell'Isola

707-255-4027 (no meetings planned but welcomes phone calls)

SF ROCK: Jackie Corley

__Corley@...

415-885-5171

East Bay Area ROCK: Dana Sylvester-Doscher

ddoscher11@..., 925-648-3217

********************************************

CELIAC EVENTS IN NEWS

From the American Celiac Task Force on March 9, 2004:

The U.S. Senate has unanimously passed S. 741, which includes

the FOOD ALLERGAN LABELING AND PROTECTION ACT.

The key labeling provisions:

1) Require that food ingredient statements identify in plain

English that an ingredient is itself, or derived from, one of the

top 8 food allergens -- peanuts, tree nuts, fish, Crustacean shellfish,

eggs, milk, soy, and wheat.

2) Require food ingredient statements to identify food allergens

used in spices, natural or artificial flavorings, additives, colorings.

3) Require all foods to be re-labeled by January 1, 2006.

4) Require the Secretary of Health & Human Services to issue a

rule defining the term 'gluten-free' and permitting use of the term

on food labeling.

5) Require a final rule regarding the voluntary use of 'gluten-free'

on food labels be issued not later than 4 years after this bill

becomes law.

This historic, bipartisan vote sends a LOUD and clear message

to the House of Representatives: it's time to fix food labels.

(Task Force: http://capwiz.com/celiac/home)

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The GLUTEN INTOLERANCE GROUP will host its annual

educational conference June 4-6 at the Doubletree Hotel-Lloyd

Center in Portland, Oregon. Registration deadline is May 22.

($290 for GIG members, $345 nonmembers. Register by May 1

and pay $210/$250.) GIG has reserved a block of rooms at the

hotel until May 8. (Hotel reservations call 800-996-0150; ask

for the GIG special rate.) For additional information contact:

GIG, 15110 10th Ave.SW, Suite A, Seattle, WA, 98166-1820

Tel 206-246-6652, Fax 206-246-6531, http://www.gluten.net/

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The National Institutes of Health will hold a Consensus

Development Conference June 28-30 at the Natcher Conf. Center,

NIH, Bethesda, land, to explore and assess the current

scientific knowledge regarding celiac disease. The meeting

will bring together biomedical investigators, practicing

physicians, consumers, and representatives of public interest

groups to evaluate state-of-the-art scientific information and

resolve controversial issues in clinical practice. The conference

will address the following key questions:

*How is celiac disease diagnosed?

*How prevalent is celiac disease?

*What are the manifestations and long-term consequences of

celiac disease?

*Who should be tested for celiac disease?

*What is the management of celiac disease?

*What are the recommendations for future research on celiac

disease and related conditions?

There is no cost to attend the conference. Registration deadline

is June 1, 2004. For additional information contact:

National Institutes of Health Telephone: 1-888-644-2667

Natcher Conference Center Fax: 301-593-5791

Building 45, 45 Center Drive E-mail: celiac@...

Bethesda, MD 20892

http://consensus.nih.gov/cons/118/celiacbackground.html

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NOTE:

Support group meetings are held in Oakland, Santa Cruz, and near

Stanford University. R.O.C.K. (Raising Our Celiac Kids) meetings

are in Palo Alto, Danville and San Francisco. Meeting notices are

sent out monthly announcing upcoming events. You can receive

an e-mail or snail mail notice. To subscribe or report address

changes, please send your name, address, phone number and

e-mail address to your local support group leader or to

Martha Deutsch, 341 Central Ave, Half Moon Bay 94019,

650-726-9562, deutschm@....

This list is confidential and will be used only to keep you informed

of local celiac activities and important celiac concerns the group

leaders wish to share. Even if you do not participate in a group,

all of the leaders are happy to answer questions and refer you to

other resources. No dues are collected at this time, but mailing

expenses are covered by funds collected in support of the annual

celiac conference held at Stanford University. There are currently

684 celiacs on our mailing list.

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SF Bay Area Celiacs

Martha Deutsch

341 Central Avenue

Half Moon Bay, CA 94019

deutschm@...

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