Re: G-Tube Decision and Questions

[Guest guest]

,

Max has had the g-j tube and it is really easy to handle. His was

first a g-tube placed surgically, not via endoscope. Then he had

the g-j conversion which was done in interventional

radiology/special procedures. It needs to be done there because

they need to use special instruments to make sure the j part goes

into the jejunum. There is no more discomfort or cutting than when

you place a g-tube.

Let me explain this better: The hole for the g-tube needs to be

made first. That I understand is now done via endoscope. I'm sure

it is less invasive than a regular surgical procedure. After that

hole/stoma is made, then interventional radiologists would need to

place the j part. It can all be done eventually with the same

button, but at first he will need a tube that will extend from his

stomach until the site heals. In fact, I'm not sure if they can do

the j part right away, or if you have to have just the g part

first. You will have to ask.

The care is basically the same. It just depends on which port you

use for which purpose. Medication is NEVER placed in the j port.

NEVER. Only formula. And the g port can be used for venting if

there is a build-up of air. Other than that, the rest is the same

no matter what you are using.

I hope this clears things up a little bit. I don't really

understand why the j tube feedings would be better than the g tube.

I'm not clear on the metabolics of it all. But if Josiah is keeping

food down, not really refluxing a lot, then why the j tube? I'm

curious to find out.

Jodi Z

[Guest guest]

Hey Jodi,

Thanks for your reply, that gives a lot of new information which is

helping to make it clearer for me....there is just so much to learn.

Just when you think you have everything settled...something new, but

I guess I don't have to tell you that....you are the queen of dealing

with the unexpected.

I don't fully understand the reasoning for the J-tube, but when I was

on the phone with the endo who was on call she said something about

bypassing the stomach so that it didn't increase his sugar so much,

does the sugar only get into the blood from the stomach and not the

intestines????I have no idea. I will let you know how things go

tomorrow....Thanks again for your input.....It is great to have such

RSS experts at my fingertips.

I hope all is well at your end.

R

Mom to Josiah, 29 months RSS, Ng tube

>

> ,

>

> Max has had the g-j tube and it is really easy to handle. His was

> first a g-tube placed surgically, not via endoscope. Then he had

> the g-j conversion which was done in interventional

> radiology/special procedures. It needs to be done there because

> they need to use special instruments to make sure the j part goes

> into the jejunum. There is no more discomfort or cutting than when

> you place a g-tube.

>

> Let me explain this better: The hole for the g-tube needs to be

> made first. That I understand is now done via endoscope. I'm sure

> it is less invasive than a regular surgical procedure. After that

> hole/stoma is made, then interventional radiologists would need to

> place the j part. It can all be done eventually with the same

> button, but at first he will need a tube that will extend from his

> stomach until the site heals. In fact, I'm not sure if they can do

> the j part right away, or if you have to have just the g part

> first. You will have to ask.

>

> The care is basically the same. It just depends on which port you

> use for which purpose. Medication is NEVER placed in the j port.

> NEVER. Only formula. And the g port can be used for venting if

> there is a build-up of air. Other than that, the rest is the same

> no matter what you are using.

>

> I hope this clears things up a little bit. I don't really

> understand why the j tube feedings would be better than the g

tube.

> I'm not clear on the metabolics of it all. But if Josiah is

keeping

> food down, not really refluxing a lot, then why the j tube? I'm

> curious to find out.

>

> Jodi Z

>

[Guest guest]

Hi Reah!

WElcome to the group! If we got our daughters togehter it sounds

like we would be exhausted from chasing them and have hurting ears

from hearing them chatter all day! My daugher is also very

energentic and loves loves l oves to talk too!

If your endo is giving GH he is at least thinking correctly on this

matter. Many endo shrug off " small girls " and say they will just

be " petite " .

Someoen here will explain caloric catchup better than I can.

BAsically it means your daughter's body has to have been ready to

start GH by acheiving maximum growth of height beforehand (but still

gaining weight) and that she can now eat enough to support the

growth GH will stimulate.

Take care,

, mom to and Emerence 32 mo, 22lb, 32 "

> >

> > ,

> >

> > Max has had the g-j tube and it is really easy to handle. His

was

> > first a g-tube placed surgically, not via endoscope. Then he

had

> > the g-j conversion which was done in interventional

> > radiology/special procedures. It needs to be done there because

> > they need to use special instruments to make sure the j part

goes

> > into the jejunum. There is no more discomfort or cutting than

when

> > you place a g-tube.

> >

> > Let me explain this better: The hole for the g-tube needs to be

> > made first. That I understand is now done via endoscope. I'm

sure

> > it is less invasive than a regular surgical procedure. After

that

> > hole/stoma is made, then interventional radiologists would need

to

> > place the j part. It can all be done eventually with the same

> > button, but at first he will need a tube that will extend from

his

> > stomach until the site heals. In fact, I'm not sure if they can

do

> > the j part right away, or if you have to have just the g part

> > first. You will have to ask.

> >

> > The care is basically the same. It just depends on which port

you

> > use for which purpose. Medication is NEVER placed in the j

port.

> > NEVER. Only formula. And the g port can be used for venting if

> > there is a build-up of air. Other than that, the rest is the

same

> > no matter what you are using.

> >

> > I hope this clears things up a little bit. I don't really

> > understand why the j tube feedings would be better than the g

> tube.

> > I'm not clear on the metabolics of it all. But if Josiah is

> keeping

> > food down, not really refluxing a lot, then why the j tube? I'm

> > curious to find out.

> >

> > Jodi Z

> >

>

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>

>

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