Re: trip to the metabolic & genetics clinic update

[Guest guest]

hey mimi!!

i am so glad to hear your consult went so well!! what a huge relief

for you and art!!! how has issac been feeling since the other week?

better i hope!! good luck and keep us posted!! ((HUGS))

jodie c

[Guest guest]

Mimi,

I am so happy that things went as well as they did for you and Art.

That is great that you think the transition to the Instsant Breakfast

will go well. That is the last thing you need right now is a

struggle and an eating strike! I hope Isaac continues to do well.

Keep us posted on how he is and the baby too! :-) Good news is

always a spirit lifter. You guys are great parents, too!

Jodi R.

> Hello everyone-

>

> We took Isaac to the metabolic clinic at Children's hospital in

Dallas

> this morning. The genetics specialist was wonderful and Art and I

> actually left with smiles on our faces. He really felt that Isaac's

> MCAD is very well controlled and we just need to worry about it

when

> he isn't eating well or sick. He said that all of the

recommendations

> he would make are things we are already doing because of RSS

(frequent

> feedings, cornstarch at night). He told us not to worry about diet

too

> much since Isaac's main priority is to get those calories in. We

spoke

> with a metabolic nutritionist who suggested that we use milk w/

> carnation instant breakfast instead of Pediasure since Isaac can't

> break down the MCT in Pediasure. We have already been incorporating

> the instant breakfast mix/ milk into a couple of feedings a day so

I

> think the transition will be smooth. It is certainly a small world-

the

> gentleman we met with knows Dr. H and actually was at s Hopkins

> with her!

>

> What a big relief! :>)

[Guest guest]

Hi -

We are all feeling much better and Isaac's eating like a hog..Thanks

for asking It is only noon here in Texas and it is already almost

90 outside so I am debating on going out being 7 months pregnant in

Texas in July is NOT Fun!!!

Mimi