Re: CHAT - Amber - help with the g-tube??

[Guest guest]

Thanks for the input. I am trying to attend the convention through the

scholarship program so hopefully i will be there I really would like to met up

with you there. I am nervous about the convention ,because I am going to be by

myself with Grayson in a big city. So it would be great if we could meet up with

eachother so you can show me the ropes. thanks again. Amber- Austin7 non-rss,

Grayson 21 months rss,g-tube,meds

pcpets wrote:Hi Amber,

My name is Pat, and I am g-ma to . has been on continuous

g-tube feeds since he was 8.5 months of age, and he's an active sleeper like

your Grayson.

Are you coming to the convention??? I would love to show you ways to secure

his tubing so that he cannot pull out his button, or wrap the tubing around

his neck, while sleeping. There are tons of little things I've learned

(necessity being the mother of invention, or so I've heard! LOL) over the

last 3 yrs, that might be of help.

I'll be at the Parent Networking Table, by Dr H's appt site both Friday and

Saturday nights from 8-9pm, just in case we don't meet by chance. Please

stop by!

Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT)

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[Guest guest]

Hey Amber,

I'm always around at the convention. I'm a very friendly person! LOL I'll be

looking for you!

The first time at the convention can be rather intimidating. I felt like I

had to learn everything as it was lectured about, and I was trying to meet

everyone, and went home feeling really overwhelmed.

Last year, our second convention, everything went MUCH better! I think I

actually learned more, and met more people then I did the first year because

I knew what to expect. I took detailed notes during the lectures, and

researched all I had learned when I got home, instead of trying to

understand everything thoroughly before I left. I also made more time for

meeting people, and socializing, and that improved my experience 110%!!!

Now, I couldn't imagine a summer without the convention. This year I'm going

to try to help out all the other wonderful MAGIC volunteers. New experience,

so I guess we'll see how it goes! LOL

Feel free to email me anytime at pcpets @adelphia.net (no space, of course)

I'd love to help out any way that I can!

HUGS!!

Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT)