Re: - Still in brace 16 hours!!

[Guest guest]

Jen,

just wanted to let you know Karter, DOB 7-30-04, is still in the brace

16hr/day, per Dr. Ponseti. We have an appt. on Wen and was hoping we could go

to 12 -14 hours. Karter has been walking very well since Dec. and was hoping at

our Dec. appt that he would reduce hours, but no luck.

Tabitha

Brittanie 6 years

Karter almost 20 months blcf still in brace 16 hours

wrote:

My husband took Addie to see Dr. Dobbs 3/21. He was told to continue

with 16 hours, not to reduce at this time. My husband also overheard

Dobbs say the exact same thing to two or three other patients while

he was there. Do you know why he is having some kids stay in the

brace for longer? Addie has been walking great for several months,

and he always says that her feet look great. I don't understand

our " extended sentence " . I don't feel comfortable reducing with out

his " go ahead " . So maybe I just need to vent my frustration. It is

also frustrating when I can't be there for the appointments myself,

and have to send my husband. My husband dosn't bring back all the

info that I need! We have Addie in the brace 12h at night and

daycare puts her in for another 4 h during the day. (we slack and

just do 12 hours on the weekends)

I just feel so bad for her having to crawl around at school while

all the other kids are running and jumping. She drags her left foot

slightly when she walks, but you can tell it is improving. I feel

like more phyisical activity would be better for her to grow out of

her weakness on the one side. Addie also started using the potty

this week (Sat. she peed on the potty 3x- WHOO-HOO!) I think it

would make potty training easier at day care if she could sit and do

it by herself with out having to be lifted up to the potty by her

teachers. How the heck did you get 12-14 hours for Sammy???

Thanks in advance for putting up with all my venting!

Jen

Ava 1-18-02

Addie 8-2-04 (Dobbs Brace still 16h!!)

[Guest guest]

At 01:27 PM 3/27/2006, you wrote:

>How the heck did you get 12-14 hours for Sammy???

I get 12-14 by putting them on at 8pm, and taking off at 9 or

10... or later some days. No extra hours during the day for naps or

otherwise.

8pm-8am is 12 hours. That's when we head off to school for the older

kids, so that's one more hour in the car and then another at home

makes for 14.

Kori

[Guest guest]

He always says " so how many hours are you doing? " And I said the

truth, which is 12-14 hours. He says, " good, just keep doing what you

are doing " . He thinks Sammy's foot looks great as well, he doesn't

have any issues with limping or weakness so I don't know if that could

be part of it. My personal opinion is to talk to him yourself. Send

him an email mattdobbs @ earthlink.net (minus the spaces). Just tell

him your concerns about her needing to be out of the brace more

especially with potty training. I don't know if he is just not

reducing unless people specifically ask about it or if they just do it

on their own or what. This way you get to ask your questions, and he

can tell you if he has a reason for wanting to keep Addie in the brace

longer hours or if he is just being conservative since you guys have

not pursued reducing the hours yourself.

Hope this helps,

>

> My husband took Addie to see Dr. Dobbs 3/21. He was told to continue

> with 16 hours, not to reduce at this time. My husband also overheard

> Dobbs say the exact same thing to two or three other patients while

> he was there. Do you know why he is having some kids stay in the

> brace for longer? Addie has been walking great for several months,

> and he always says that her feet look great. I don't understand

> our " extended sentence " . I don't feel comfortable reducing with out

> his " go ahead " . So maybe I just need to vent my frustration. It is

> also frustrating when I can't be there for the appointments myself,

> and have to send my husband. My husband dosn't bring back all the

> info that I need! We have Addie in the brace 12h at night and

> daycare puts her in for another 4 h during the day. (we slack and

> just do 12 hours on the weekends)

>

> I just feel so bad for her having to crawl around at school while

> all the other kids are running and jumping. She drags her left foot

> slightly when she walks, but you can tell it is improving. I feel

> like more phyisical activity would be better for her to grow out of

> her weakness on the one side. Addie also started using the potty

> this week (Sat. she peed on the potty 3x- WHOO-HOO!) I think it

> would make potty training easier at day care if she could sit and do

> it by herself with out having to be lifted up to the potty by her

> teachers. How the heck did you get 12-14 hours for Sammy???

>

> Thanks in advance for putting up with all my venting!

>

> Jen

> Ava 1-18-02

> Addie 8-2-04 (Dobbs Brace still 16h!!)

>

[Guest guest]

I decided to email him on your advice instead of just sitting here

ranting and raving! I had a different email address for him. I will

use yours if this one dosn't go through. The one I have is:

dobbsm @msnotes . wustl .edu

I am guessing it is the one he uses at Children's? Maybe I will

just go ahead and forward to other adress too. I want to make sure

he gets it! haha

Thanks again,

Jen

> >

> > My husband took Addie to see Dr. Dobbs 3/21. He was told to

continue

> > with 16 hours, not to reduce at this time. My husband also

overheard

> > Dobbs say the exact same thing to two or three other patients

while

> > he was there. Do you know why he is having some kids stay in the

> > brace for longer? Addie has been walking great for several

months,

> > and he always says that her feet look great. I don't understand

> > our " extended sentence " . I don't feel comfortable reducing with

out

> > his " go ahead " . So maybe I just need to vent my frustration. It

is

> > also frustrating when I can't be there for the appointments

myself,

> > and have to send my husband. My husband dosn't bring back all

the

> > info that I need! We have Addie in the brace 12h at night and

> > daycare puts her in for another 4 h during the day. (we slack

and

> > just do 12 hours on the weekends)

> >

> > I just feel so bad for her having to crawl around at school

while

> > all the other kids are running and jumping. She drags her left

foot

> > slightly when she walks, but you can tell it is improving. I

feel

> > like more phyisical activity would be better for her to grow out

of

> > her weakness on the one side. Addie also started using the potty

> > this week (Sat. she peed on the potty 3x- WHOO-HOO!) I think it

> > would make potty training easier at day care if she could sit

and do

> > it by herself with out having to be lifted up to the potty by

her

> > teachers. How the heck did you get 12-14 hours for Sammy???

> >

> > Thanks in advance for putting up with all my venting!

> >

> > Jen

> > Ava 1-18-02

> > Addie 8-2-04 (Dobbs Brace still 16h!!)

> >

>

[Guest guest]

Jen,

The msnotes address is good too - I think he tries to reserve that one

for " work " and the earthlink one for patients, but I know he gets

messages in both all the time. Although he gives the msnotes one to

patients who are participating in the study I think. He'll get it

either way, I use both!

> > >

> > > My husband took Addie to see Dr. Dobbs 3/21. He was told to

> continue

> > > with 16 hours, not to reduce at this time. My husband also

> overheard

> > > Dobbs say the exact same thing to two or three other patients

> while

> > > he was there. Do you know why he is having some kids stay in the

> > > brace for longer? Addie has been walking great for several

> months,

> > > and he always says that her feet look great. I don't understand

> > > our " extended sentence " . I don't feel comfortable reducing with

> out

> > > his " go ahead " . So maybe I just need to vent my frustration. It

> is

> > > also frustrating when I can't be there for the appointments

> myself,

> > > and have to send my husband. My husband dosn't bring back all

> the

> > > info that I need! We have Addie in the brace 12h at night and

> > > daycare puts her in for another 4 h during the day. (we slack

> and

> > > just do 12 hours on the weekends)

> > >

> > > I just feel so bad for her having to crawl around at school

> while

> > > all the other kids are running and jumping. She drags her left

> foot

> > > slightly when she walks, but you can tell it is improving. I

> feel

> > > like more phyisical activity would be better for her to grow out

> of

> > > her weakness on the one side. Addie also started using the potty

> > > this week (Sat. she peed on the potty 3x- WHOO-HOO!) I think it

> > > would make potty training easier at day care if she could sit

> and do

> > > it by herself with out having to be lifted up to the potty by

> her

> > > teachers. How the heck did you get 12-14 hours for Sammy???

> > >

> > > Thanks in advance for putting up with all my venting!

> > >

> > > Jen

> > > Ava 1-18-02

> > > Addie 8-2-04 (Dobbs Brace still 16h!!)

> > >

> >

>

[Guest guest]

Dobbs emailed me back, Addie is reduced to 12h! Whoo-hoo! Thanks

for prodding me to get in touch with him. I am so excited.

Jen

> > > >

> > > > My husband took Addie to see Dr. Dobbs 3/21. He was told to

> > continue

> > > > with 16 hours, not to reduce at this time. My husband also

> > overheard

> > > > Dobbs say the exact same thing to two or three other

patients

> > while

> > > > he was there. Do you know why he is having some kids stay in

the

> > > > brace for longer? Addie has been walking great for several

> > months,

> > > > and he always says that her feet look great. I don't

understand

> > > > our " extended sentence " . I don't feel comfortable reducing

with

> > out

> > > > his " go ahead " . So maybe I just need to vent my

frustration. It

> > is

> > > > also frustrating when I can't be there for the appointments

> > myself,

> > > > and have to send my husband. My husband dosn't bring back

all

> > the

> > > > info that I need! We have Addie in the brace 12h at night

and

> > > > daycare puts her in for another 4 h during the day. (we

slack

> > and

> > > > just do 12 hours on the weekends)

> > > >

> > > > I just feel so bad for her having to crawl around at school

> > while

> > > > all the other kids are running and jumping. She drags her

left

> > foot

> > > > slightly when she walks, but you can tell it is improving. I

> > feel

> > > > like more phyisical activity would be better for her to grow

out

> > of

> > > > her weakness on the one side. Addie also started using the

potty

> > > > this week (Sat. she peed on the potty 3x- WHOO-HOO!) I think

it

> > > > would make potty training easier at day care if she could

sit

> > and do

> > > > it by herself with out having to be lifted up to the potty

by

> > her

> > > > teachers. How the heck did you get 12-14 hours for Sammy???

> > > >

> > > > Thanks in advance for putting up with all my venting!

> > > >

> > > > Jen

> > > > Ava 1-18-02

> > > > Addie 8-2-04 (Dobbs Brace still 16h!!)

> > > >

> > >

> >

>

[Guest guest]

Yeah! I knew it!

> > > > >

> > > > > My husband took Addie to see Dr. Dobbs 3/21. He was told to

> > > continue

> > > > > with 16 hours, not to reduce at this time. My husband also

> > > overheard

> > > > > Dobbs say the exact same thing to two or three other

> patients

> > > while

> > > > > he was there. Do you know why he is having some kids stay in

> the

> > > > > brace for longer? Addie has been walking great for several

> > > months,

> > > > > and he always says that her feet look great. I don't

> understand

> > > > > our " extended sentence " . I don't feel comfortable reducing

> with

> > > out

> > > > > his " go ahead " . So maybe I just need to vent my

> frustration. It

> > > is

> > > > > also frustrating when I can't be there for the appointments

> > > myself,

> > > > > and have to send my husband. My husband dosn't bring back

> all

> > > the

> > > > > info that I need! We have Addie in the brace 12h at night

> and

> > > > > daycare puts her in for another 4 h during the day. (we

> slack

> > > and

> > > > > just do 12 hours on the weekends)

> > > > >

> > > > > I just feel so bad for her having to crawl around at school

> > > while

> > > > > all the other kids are running and jumping. She drags her

> left

> > > foot

> > > > > slightly when she walks, but you can tell it is improving. I

> > > feel

> > > > > like more phyisical activity would be better for her to grow

> out

> > > of

> > > > > her weakness on the one side. Addie also started using the

> potty

> > > > > this week (Sat. she peed on the potty 3x- WHOO-HOO!) I think

> it

> > > > > would make potty training easier at day care if she could

> sit

> > > and do

> > > > > it by herself with out having to be lifted up to the potty

> by

> > > her

> > > > > teachers. How the heck did you get 12-14 hours for Sammy???

> > > > >

> > > > > Thanks in advance for putting up with all my venting!

> > > > >

> > > > > Jen

> > > > > Ava 1-18-02

> > > > > Addie 8-2-04 (Dobbs Brace still 16h!!)

> > > > >

> > > >

> > >

> >

>