Re: Dennis Brown Bar Problems

[Guest guest]

Faun,

There is a tip/tricks doc in the files section that you could look at and see

if any of it helps. Also check the width of the bar it should be about the same

as her shoulders. Sometimes extra padding under the strap of the shoe will help

with the red marks. We also had a extra piece added to the heal so it could not

slip out.

I'm sure some of the more experienced mothers will help more. I don't think

AFO's is the way to go, some parents have had some problems with them not

holding the correction, again I hope some one that has used them will jump in

here. Good Luck!

Tabitha

Brittanie 6 years

Karter 19 months blcf

Faun Try wrote:

Hello, I am new to this group. I have a 2 month old daughter who was

born with a right club foot. SHe just finished her 6 weeks of

casting on thurday. She goes to UC Children's hospital in

Sacramento. We were given the Dennis Brown bar for her to wear 24hrs

a day. It is impossible to keep them on. We tried it with no socks,

1 sock, 2 socks, etc. We cinched it so tight that now her L foot

(her non club foot) has these terrible marks on it from the

friction. So we took of the brace and I called and left a message

for Hanger Orthodics and hope to speak with someone there tomorrow.

And I am sure I don't even need to mention the fact that we slept a

total of 2 hours a night. She is absolutely miserable with them on.

I've done some research and would like to switch her to the AFO

brace but I was wondering if anyone knows if she is too young to

have the AFO brace. Everything I've read it seems children with the

AFO brace are older.

It seems to me that since she has 1 club foot and her case is a 5

out of 10 on the severity scale, that the AFO brace would be fine to

keep the correction that the casts did.

If I can't get the AFO brace does anyone have any suggestions on how

to keep them on, what to do to keep her poor feet from blistering

and skin breaking.

Please Help! This is so awful!

Thank you! Faun

[Guest guest]

I had the same problem with my son, until the third time he went back in the

cast I decided to check out shriners hospital in st. louis to see dr. dobbs. He

is wonderful the first time ever he fell asleep during the casting period, he is

just great. We went last week we will go this coming weekend to get the cast

off for good and to get his new braces.

Larissa and 7-15-05

Faun Try wrote:

Hello, I am new to this group. I have a 2 month old daughter who was

born with a right club foot. SHe just finished her 6 weeks of

casting on thurday. She goes to UC Children's hospital in

Sacramento. We were given the Dennis Brown bar for her to wear 24hrs

a day. It is impossible to keep them on. We tried it with no socks,

1 sock, 2 socks, etc. We cinched it so tight that now her L foot

(her non club foot) has these terrible marks on it from the

friction. So we took of the brace and I called and left a message

for Hanger Orthodics and hope to speak with someone there tomorrow.

And I am sure I don't even need to mention the fact that we slept a

total of 2 hours a night. She is absolutely miserable with them on.

I've done some research and would like to switch her to the AFO

brace but I was wondering if anyone knows if she is too young to

have the AFO brace. Everything I've read it seems children with the

AFO brace are older.

It seems to me that since she has 1 club foot and her case is a 5

out of 10 on the severity scale, that the AFO brace would be fine to

keep the correction that the casts did.

If I can't get the AFO brace does anyone have any suggestions on how

to keep them on, what to do to keep her poor feet from blistering

and skin breaking.

Please Help! This is so awful!

Thank you! Faun

[Guest guest]

Hello Faun,

Welcome to the group. As you will come to know, this is such a helpful place.

There are so many knowledgable people here - they can pretty much answer

anything for you!

I just wanted to chime in on the use of the AFO's. We used them for about

4-5 months on (05/12/05 BCF) and I am honestly sorry that we did. I

tried the DBB right out of the casts and it was horrible. After a week of

nonstop crying from all of us our Shriners DR suggested the AFO's. We jumped at

the chance for a peaceful baby and home life. Looking back now that we are in

the s, I can clearly see that we made the wrong decision. They are hard

plastic, sweaty, and we couldn't see where his feet were. His feet look OK, but

if we would have just stuck with it and worked harder with some of the moms

here, I am positive that his feet would look better.

We switched back to the DBB, then went to the PM's and his feet already look

better.

It is tough, I know, but you all will get through it fine. has

adjusted great to his new lifestyle of the bar - no problems at all!

Definitely look at the tips document - what a lifesaver.

I hope that our experience helps you.

Hunter 07/31/03

05/12/05 PM's 20/7

Faun Try wrote:

Hello, I am new to this group. I have a 2 month old daughter who was

born with a right club foot. SHe just finished her 6 weeks of

casting on thurday. She goes to UC Children's hospital in

Sacramento. We were given the Dennis Brown bar for her to wear 24hrs

a day. It is impossible to keep them on. We tried it with no socks,

1 sock, 2 socks, etc. We cinched it so tight that now her L foot

(her non club foot) has these terrible marks on it from the

friction. So we took of the brace and I called and left a message

for Hanger Orthodics and hope to speak with someone there tomorrow.

And I am sure I don't even need to mention the fact that we slept a

total of 2 hours a night. She is absolutely miserable with them on.

I've done some research and would like to switch her to the AFO

brace but I was wondering if anyone knows if she is too young to

have the AFO brace. Everything I've read it seems children with the

AFO brace are older.

It seems to me that since she has 1 club foot and her case is a 5

out of 10 on the severity scale, that the AFO brace would be fine to

keep the correction that the casts did.

If I can't get the AFO brace does anyone have any suggestions on how

to keep them on, what to do to keep her poor feet from blistering

and skin breaking.

Please Help! This is so awful!

Thank you! Faun

[Guest guest]

Faun, I hope others beat me to the punch on here but let me say AFO's are not

the answer UNLESS it is what is called the shoe, or

Ponseti/ shoe. This is still the " boots and bar " but the shoe is

designed differently.

The bar is absolutely necessary, even for one club foot. There are documents on

file with this group to help you find how to best get the shoes on comfortably -

and other advice. Let us know more how it goes so we can continue to help you

towards a successful road to recovery here. I know it stinks right now bu I

promise it can get better and eventually will but let us help you too so that

better will come quicker, OK? That's what we hang around here for.

ee

Mother of 3 clubfooted boys

Dennis Brown Bar Problems

Hello, I am new to this group. I have a 2 month old daughter who was

born with a right club foot. SHe just finished her 6 weeks of

casting on thurday. She goes to UC Children's hospital in

Sacramento. We were given the Dennis Brown bar for her to wear 24hrs

a day. It is impossible to keep them on. We tried it with no socks,

1 sock, 2 socks, etc. We cinched it so tight that now her L foot

(her non club foot) has these terrible marks on it from the

friction. So we took of the brace and I called and left a message

for Hanger Orthodics and hope to speak with someone there tomorrow.

And I am sure I don't even need to mention the fact that we slept a

total of 2 hours a night. She is absolutely miserable with them on.

I've done some research and would like to switch her to the AFO

brace but I was wondering if anyone knows if she is too young to

have the AFO brace. Everything I've read it seems children with the

AFO brace are older.

It seems to me that since she has 1 club foot and her case is a 5

out of 10 on the severity scale, that the AFO brace would be fine to

keep the correction that the casts did.

If I can't get the AFO brace does anyone have any suggestions on how

to keep them on, what to do to keep her poor feet from blistering

and skin breaking.

Please Help! This is so awful!

Thank you! Faun

[Guest guest]

Quick update. My daughter Brooklyn's foot was really messed up from the Markell

shoes, which were too small. Anyhow, we went back into the orthotics place, they

ordered bigger shoes and I told them I wanted the Ponsetti AFO bar with velcro

shoes. He is going to try to get it approved thru my doctor and the insurance.

Her left foot had a blood blister on the heel and bruising on the foot in line

with the big toe and on the pad of her foot under the big toe. It is getting

better now, but, I was pretty mad that they did not give me the right size shoe

to begin with. So now her foot has been out of brace and cast for almost a week

and her shoe won't be in till thur.

On another note, I now have a pair of size 000 Markell shoes that have BARELY

been worn. I would love to give them or donate them to someone. If anyone needs

them or knows where I can donate, please let me know.

Thanks for all your help, I will update again soon!

Faun

number23 wrote:

Faun, I hope others beat me to the punch on here but let me say AFO's are not

the answer UNLESS it is what is called the shoe, or

Ponseti/ shoe. This is still the " boots and bar " but the shoe is

designed differently.

The bar is absolutely necessary, even for one club foot. There are documents on

file with this group to help you find how to best get the shoes on comfortably -

and other advice. Let us know more how it goes so we can continue to help you

towards a successful road to recovery here. I know it stinks right now bu I

promise it can get better and eventually will but let us help you too so that

better will come quicker, OK? That's what we hang around here for.

ee

Mother of 3 clubfooted boys

Dennis Brown Bar Problems

Hello, I am new to this group. I have a 2 month old daughter who was

born with a right club foot. SHe just finished her 6 weeks of

casting on thurday. She goes to UC Children's hospital in

Sacramento. We were given the Dennis Brown bar for her to wear 24hrs

a day. It is impossible to keep them on. We tried it with no socks,

1 sock, 2 socks, etc. We cinched it so tight that now her L foot

(her non club foot) has these terrible marks on it from the

friction. So we took of the brace and I called and left a message

for Hanger Orthodics and hope to speak with someone there tomorrow.

And I am sure I don't even need to mention the fact that we slept a

total of 2 hours a night. She is absolutely miserable with them on.

I've done some research and would like to switch her to the AFO

brace but I was wondering if anyone knows if she is too young to

have the AFO brace. Everything I've read it seems children with the

AFO brace are older.

It seems to me that since she has 1 club foot and her case is a 5

out of 10 on the severity scale, that the AFO brace would be fine to

keep the correction that the casts did.

If I can't get the AFO brace does anyone have any suggestions on how

to keep them on, what to do to keep her poor feet from blistering

and skin breaking.

Please Help! This is so awful!

Thank you! Faun