Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 I'd suggest seeing another ortho and oral surgeon to see what they recommend. It's an awful lot to go through if there isn't a functional need for it. > I had consulted with an Oral surgeon for jaw surgery. I have a long > face , slightly gummy smile and recessed chin, and lip incompetence > abut 5mm over bite. Functionaly I am bothered by the effort to keep > my mouth closed, constant compensation and neck pain when I bring my > jay foward to meet the upper. > > I am in Floirda with BCBS. I have already been preapproved for the > full cost of surgery. The only thing left was for the orthodontist > consult. My teeth are straight for the most part. The orthodontist I > consulted with said he did not recommend surgery. He said ther would > not be that big of a difference. Where te surgeon said there would. > > I ave forever hated my long face and awful smile. I hate being in > pictures. Any advice or input. > > mar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 See another orthodontist! Ask your OS for the name of someone he/she frequently works with. That way you know they're accustomed to dealing with surgical cases. Hang in there until you find the right docs for you. > I had consulted with an Oral surgeon for jaw surgery. I have a long > face , slightly gummy smile and recessed chin, and lip incompetence > abut 5mm over bite. Functionaly I am bothered by the effort to keep > my mouth closed, constant compensation and neck pain when I bring my > jay foward to meet the upper. > > I am in Floirda with BCBS. I have already been preapproved for the > full cost of surgery. The only thing left was for the orthodontist > consult. My teeth are straight for the most part. The orthodontist I > consulted with said he did not recommend surgery. He said ther would > not be that big of a difference. Where te surgeon said there would. > > I ave forever hated my long face and awful smile. I hate being in > pictures. Any advice or input. > > mar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Lori, You're the first that I've heard of on these sites with diabetes undergoing this surgery, but that doesn't mean there hasn't been anyone in the same boat. > > Hi everyone. I haven't posted in a while since there isn't much to > report, I'm going on month 3 with braces and will be having my surgery > around Nov of next year. I'm hoping I get lucky and go a little > earlier, even if it's by a month or so but I'm not holding my breath. > I wanted to ask the group if any of you or know of someone who has > diabetes and has had Orthognathic surgery. I'm 23 and was diagnosed > when I was 16. I've had an insulin pump for 3 years and before that I > did injections. By no means will my diabetes stop me from having the > surgery and I've talked with my Surgeon and Endocrinologist about it > and they said it will be okay as long as my blood sugars are under > control. I'm more curious then worried, just wondering if anyone is in > the same boat. Thanks/Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Lori im having lower jaw surgery in jan. I was diagnosed 7 years ago with type 2 i am familar with the disease. Without boring you with my diabities story i have had a few surgerys since being diagnosed. Make sure EVERYONE knows your unique situation. Surgeries are done all the time with people with diabities just make sure your ansteologist and all staff is aware of your situation. when i had surgery i told my doc to make sure we had glucose on board so i would not get any lows had no problem. i dont think it should be any concern as long as everyone is on the same page. My fatherinlaw had bypass surgery and neck surgery and he has diabities and hes still up and around. Good luck i hope this put your mine a little at ease Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Lori, I just had my surgery on Sept. 28th and am 5 weeks post op. I am also Diabetic and on an Insulin pump. Everything went well on my surgery. My blood sugars were a little high after the surgery, which my Endocrinologist said was to be expected. Just make sure that you check your blood sugar often after the surgery. My Endocrinologist said to lower my Basal rate on my pump the night before my surgery so that I won't get low blood sugar. Remember that you will not be eating and will be on a liquid diet for a while, so your calorie intake is much lower than normal. Just Bolus for the carb. intake for what you are going to drink. My blood sugars are just now getting back to normal because of the surgery. Your body is going to be under a lot of stress, which will make your blood sugar elevate. Actually, the day I had my surgery, the Dr's and nurses were asking me about my insulin pump and how it worked. I found out that I knew more than they knew about an Insulin pump and educated them. You might find that they will be asking you more about the Insulin pump. Don't worry so much about the surgery, as long as your blood sugars are in control before the surgery. You will be fine. Let me know if I can help you more. Thanks Heidi > > Hi everyone. I haven't posted in a while since there isn't much to > report, I'm going on month 3 with braces and will be having my surgery > around Nov of next year. I'm hoping I get lucky and go a little > earlier, even if it's by a month or so but I'm not holding my breath. > I wanted to ask the group if any of you or know of someone who has > diabetes and has had Orthognathic surgery. I'm 23 and was diagnosed > when I was 16. I've had an insulin pump for 3 years and before that I > did injections. By no means will my diabetes stop me from having the > surgery and I've talked with my Surgeon and Endocrinologist about it > and they said it will be okay as long as my blood sugars are under > control. I'm more curious then worried, just wondering if anyone is in > the same boat. Thanks/Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Thanks. I know I'm not the only one, but there's comfort in knowing that there are others out there. I'm confident that they're won't be any problems. Good luck with your surgery... it will be here before you know it. > > > Hi Lori > > im having lower jaw surgery in jan. I was diagnosed 7 years > ago with type 2 i am familar with the disease. Without boring > you with my diabities story i have had a few surgerys since > being diagnosed. Make sure EVERYONE knows your unique situation. > Surgeries are done all the time with people with diabities > just make sure your ansteologist and all staff is aware of > your situation. when i had surgery i told my doc to make > sure we had glucose on board so i would not get any lows > had no problem. i dont think it should be any concern as > long as everyone is on the same page. My fatherinlaw had bypass > surgery and neck surgery and he has diabities and hes still > up and around. Good luck i hope this put your mine a little > at ease > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 According to the March of Dimes site (http://www.marchofdimes.com/professionals/681_1211.asp), the chance is about 3% " Generally, if a child has an isolated clubfoot (no other birth defects present), the recurrence risks in another pregnancy are low (about 3 percent). " There is a wonderful post in the links section written by one of the members about this topic. Ultimately it is a decision only you and your husband can make, but I think her comments are very helpful. Please check it out: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749 I hope that is of some help to you. Best of luck to you! kaci > > Can anyone tell me a % of what the chances are to have another baby born with CF? Here is my reasoning. I would love to have another child, but my husband isn't with me on this. He doesn't know if he can do the CF thing again. Don't know why this would matter to him, yes we have had a hard go at this one, but know what to do now. He isn't the one that puts the brace on or off. He isn't the one that has stayed up night after night when he has had sores or slipping from the brace. I will admit that Karter has been more difficult to deal with then our daughter who is six. We have had several trips to the ER, tubes in, adenoids out, reaction to shots which ended up with a 6 day hospital stay, several castings, now ST and OT. I love both my children dearly and would like just one more. > > He does have a concern about my health. With each child it seems to be worse. First one on bed rest for 1.5 months, second on bed rest for 3 months, extremely high blood pressure to the point I would pass out. Both children have been induced the first on my due date and Karter 20 days before. had to stay in the hospital longer with the second, because my blood pressure would not go down. Was on meds to stop siezures, then on BP meds for 14 months after until it finally came down. I am planning on talking with my OB Dr. before I try to get pg, to make sure my body can handle it, but I don't want Karter haveing CF the only reason we don't have any more. > > Well thanks > Tabitha > > > --------------------------------- > Celebrate Earth Day everyday! Discover 10 things you can do to help slow climate change. Yahoo! Earth Day > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 If your husband is wanting another child but just fearful of dealing with clubfeet again, there is always the choice to adopt as a way of having more children. Each of our 6 children have come to us through adoption and we're in the midst of adopting for the 7th time. This baby is the one with clubfeet. When you adopt, you choose if you want a special needs child (and what special needs you'll accept) or not. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Kaci, Thanks will show my husband both of these. He is thinking the % is higher than 65, so 3% is very good on my part. It took us 4 years to get pg last time so if we start now it will better our chances. LOL Tabitha nokitty00 wrote: According to the March of Dimes site (http://www.marchofdimes.com/professionals/681_1211.asp), the chance is about 3% " Generally, if a child has an isolated clubfoot (no other birth defects present), the recurrence risks in another pregnancy are low (about 3 percent). " There is a wonderful post in the links section written by one of the members about this topic. Ultimately it is a decision only you and your husband can make, but I think her comments are very helpful. Please check it out: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749 I hope that is of some help to you. Best of luck to you! kaci > > Can anyone tell me a % of what the chances are to have another baby born with CF? Here is my reasoning. I would love to have another child, but my husband isn't with me on this. He doesn't know if he can do the CF thing again. Don't know why this would matter to him, yes we have had a hard go at this one, but know what to do now. He isn't the one that puts the brace on or off. He isn't the one that has stayed up night after night when he has had sores or slipping from the brace. I will admit that Karter has been more difficult to deal with then our daughter who is six. We have had several trips to the ER, tubes in, adenoids out, reaction to shots which ended up with a 6 day hospital stay, several castings, now ST and OT. I love both my children dearly and would like just one more. > > He does have a concern about my health. With each child it seems to be worse. First one on bed rest for 1.5 months, second on bed rest for 3 months, extremely high blood pressure to the point I would pass out. Both children have been induced the first on my due date and Karter 20 days before. had to stay in the hospital longer with the second, because my blood pressure would not go down. Was on meds to stop siezures, then on BP meds for 14 months after until it finally came down. I am planning on talking with my OB Dr. before I try to get pg, to make sure my body can handle it, but I don't want Karter haveing CF the only reason we don't have any more. > > Well thanks > Tabitha > > > --------------------------------- > Celebrate Earth Day everyday! Discover 10 things you can do to help slow climate change. Yahoo! Earth Day > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Donna WOW 7 kids, that is just amazing. You are truely a wonderful person to take in and love all those children. We have talked about adoption. Even older children. There are so many kids that need a loving home. If I could I would take in every kid that is out there without a home. Tabitha Donna Casady wrote: If your husband is wanting another child but just fearful of dealing with clubfeet again, there is always the choice to adopt as a way of having more children. Each of our 6 children have come to us through adoption and we're in the midst of adopting for the 7th time. This baby is the one with clubfeet. When you adopt, you choose if you want a special needs child (and what special needs you'll accept) or not. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 It was 100% for me. hahahah s. Re: Question According to the March of Dimes site (http://www.marchofdimes.com/professionals/681_1211.asp), the chance is about 3% " Generally, if a child has an isolated clubfoot (no other birth defects present), the recurrence risks in another pregnancy are low (about 3 percent). " There is a wonderful post in the links section written by one of the members about this topic. Ultimately it is a decision only you and your husband can make, but I think her comments are very helpful. Please check it out: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749 I hope that is of some help to you. Best of luck to you! kaci > > Can anyone tell me a % of what the chances are to have another baby born with CF? Here is my reasoning. I would love to have another child, but my husband isn't with me on this. He doesn't know if he can do the CF thing again. Don't know why this would matter to him, yes we have had a hard go at this one, but know what to do now. He isn't the one that puts the brace on or off. He isn't the one that has stayed up night after night when he has had sores or slipping from the brace. I will admit that Karter has been more difficult to deal with then our daughter who is six. We have had several trips to the ER, tubes in, adenoids out, reaction to shots which ended up with a 6 day hospital stay, several castings, now ST and OT. I love both my children dearly and would like just one more. > > He does have a concern about my health. With each child it seems to be worse. First one on bed rest for 1.5 months, second on bed rest for 3 months, extremely high blood pressure to the point I would pass out. Both children have been induced the first on my due date and Karter 20 days before. had to stay in the hospital longer with the second, because my blood pressure would not go down. Was on meds to stop siezures, then on BP meds for 14 months after until it finally came down. I am planning on talking with my OB Dr. before I try to get pg, to make sure my body can handle it, but I don't want Karter haveing CF the only reason we don't have any more. > > Well thanks > Tabitha > > > --------------------------------- > Celebrate Earth Day everyday! Discover 10 things you can do to help slow climate change. Yahoo! Earth Day > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 If not for your health I'd strongly urge you not to let the risk of cf sway you - but with your health, yes, make sure YOU are healthy enough before you try again! s. Question Can anyone tell me a % of what the chances are to have another baby born with CF? Here is my reasoning. I would love to have another child, but my husband isn't with me on this. He doesn't know if he can do the CF thing again. Don't know why this would matter to him, yes we have had a hard go at this one, but know what to do now. He isn't the one that puts the brace on or off. He isn't the one that has stayed up night after night when he has had sores or slipping from the brace. I will admit that Karter has been more difficult to deal with then our daughter who is six. We have had several trips to the ER, tubes in, adenoids out, reaction to shots which ended up with a 6 day hospital stay, several castings, now ST and OT. I love both my children dearly and would like just one more. He does have a concern about my health. With each child it seems to be worse. First one on bed rest for 1.5 months, second on bed rest for 3 months, extremely high blood pressure to the point I would pass out. Both children have been induced the first on my due date and Karter 20 days before. had to stay in the hospital longer with the second, because my blood pressure would not go down. Was on meds to stop siezures, then on BP meds for 14 months after until it finally came down. I am planning on talking with my OB Dr. before I try to get pg, to make sure my body can handle it, but I don't want Karter haveing CF the only reason we don't have any more. Well thanks Tabitha --------------------------------- Celebrate Earth Day everyday! Discover 10 things you can do to help slow climate change. Yahoo! Earth Day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 haha... shhhhhh.... you don't count, you're special lol At 11:41 AM 4/21/2006, you wrote: >It was 100% for me. hahahah > >s. > > Re: Question > > > According to the March of Dimes site > (http://www.marchofdimes.com/professionals/681_1211.asp), the chance > is about 3% " Generally, if a child has an isolated clubfoot (no > other birth defects present), the recurrence risks in another > pregnancy are low (about 3 percent). " > > There is a wonderful post in the links section written by one of the > members about this topic. Ultimately it is a decision only you and > your husband can make, but I think her comments are very helpful. > Please check it out: > > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749 > > I hope that is of some help to you. Best of luck to you! > > kaci > > > > > > Can anyone tell me a % of what the chances are to have another > baby born with CF? Here is my reasoning. I would love to have > another child, but my husband isn't with me on this. He doesn't > know if he can do the CF thing again. Don't know why this would > matter to him, yes we have had a hard go at this one, but know what > to do now. He isn't the one that puts the brace on or off. He > isn't the one that has stayed up night after night when he has had > sores or slipping from the brace. I will admit that Karter has been > more difficult to deal with then our daughter who is six. We have > had several trips to the ER, tubes in, adenoids out, reaction to > shots which ended up with a 6 day hospital stay, several castings, > now ST and OT. I love both my children dearly and would like just > one more. > > > > He does have a concern about my health. With each child it > seems to be worse. First one on bed rest for 1.5 months, second on > bed rest for 3 months, extremely high blood pressure to the point I > would pass out. Both children have been induced the first on my due > date and Karter 20 days before. had to stay in the hospital longer > with the second, because my blood pressure would not go down. Was > on meds to stop siezures, then on BP meds for 14 months after until > it finally came down. I am planning on talking with my OB Dr. > before I try to get pg, to make sure my body can handle it, but I > don't want Karter haveing CF the only reason we don't have any more. > > > > Well thanks > > Tabitha > > > > > > --------------------------------- > > Celebrate Earth Day everyday! Discover 10 things you can do to > help slow climate change. Yahoo! Earth Day > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 LOL, thanks. I gotta half dozen clubbed feet! s. Re: Question > > > According to the March of Dimes site > (http://www.marchofdimes.com/professionals/681_1211.asp), the chance > is about 3% " Generally, if a child has an isolated clubfoot (no > other birth defects present), the recurrence risks in another > pregnancy are low (about 3 percent). " > > There is a wonderful post in the links section written by one of the > members about this topic. Ultimately it is a decision only you and > your husband can make, but I think her comments are very helpful. > Please check it out: > > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749 > > I hope that is of some help to you. Best of luck to you! > > kaci > > > > > > Can anyone tell me a % of what the chances are to have another > baby born with CF? Here is my reasoning. I would love to have > another child, but my husband isn't with me on this. He doesn't > know if he can do the CF thing again. Don't know why this would > matter to him, yes we have had a hard go at this one, but know what > to do now. He isn't the one that puts the brace on or off. He > isn't the one that has stayed up night after night when he has had > sores or slipping from the brace. I will admit that Karter has been > more difficult to deal with then our daughter who is six. We have > had several trips to the ER, tubes in, adenoids out, reaction to > shots which ended up with a 6 day hospital stay, several castings, > now ST and OT. I love both my children dearly and would like just > one more. > > > > He does have a concern about my health. With each child it > seems to be worse. First one on bed rest for 1.5 months, second on > bed rest for 3 months, extremely high blood pressure to the point I > would pass out. Both children have been induced the first on my due > date and Karter 20 days before. had to stay in the hospital longer > with the second, because my blood pressure would not go down. Was > on meds to stop siezures, then on BP meds for 14 months after until > it finally came down. I am planning on talking with my OB Dr. > before I try to get pg, to make sure my body can handle it, but I > don't want Karter haveing CF the only reason we don't have any more. > > > > Well thanks > > Tabitha > > > > > > --------------------------------- > > Celebrate Earth Day everyday! Discover 10 things you can do to > help slow climate change. Yahoo! Earth Day > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 You defy the odds! I hope you didn't mind me sharing the link to your post...I have asked myself that question too and your insight helped me get over that! > > > > Can anyone tell me a % of what the chances are to have another > baby born with CF? Here is my reasoning. I would love to have > another child, but my husband isn't with me on this. He doesn't > know if he can do the CF thing again. Don't know why this would > matter to him, yes we have had a hard go at this one, but know what > to do now. He isn't the one that puts the brace on or off. He > isn't the one that has stayed up night after night when he has had > sores or slipping from the brace. I will admit that Karter has been > more difficult to deal with then our daughter who is six. We have > had several trips to the ER, tubes in, adenoids out, reaction to > shots which ended up with a 6 day hospital stay, several castings, > now ST and OT. I love both my children dearly and would like just > one more. > > > > He does have a concern about my health. With each child it > seems to be worse. First one on bed rest for 1.5 months, second on > bed rest for 3 months, extremely high blood pressure to the point I > would pass out. Both children have been induced the first on my due > date and Karter 20 days before. had to stay in the hospital longer > with the second, because my blood pressure would not go down. Was > on meds to stop siezures, then on BP meds for 14 months after until > it finally came down. I am planning on talking with my OB Dr. > before I try to get pg, to make sure my body can handle it, but I > don't want Karter haveing CF the only reason we don't have any more. > > > > Well thanks > > Tabitha > > > > > > --------------------------------- > > Celebrate Earth Day everyday! Discover 10 things you can do to > help slow climate change. Yahoo! Earth Day > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 No I don't mind. I'm happy I can help, as writing it helped me a lot too. I guess I should has a Post Script to that as I am just so completely in love with Garrison here. He's so big and stout and dark skinned (OK, as dark as my family can get anyway). He has 's stoic eyes yet a smile that lights up a room that neither of the other two can match at all. Then there is still and Everett who have been building a new bond between them since Garrison's arrival that is wonderful to watch - and the two of them so affectionate to their baby brother. So again I say - what IF you had another with Clubbed Feet??? Would you trade in the previous club footed child? Never in a million years. I'm glad this came up again because it reminds me I DO love my kids! hahaha (like when they are all three crying at once and I want to trade them in for hamsters) s. You defy the odds! I hope you didn't mind me sharing the link to your post...I have asked myself that question too and your insight helped me get over that! > > > > Can anyone tell me a % of what the chances are to have another > baby born with CF? Here is my reasoning. I would love to have > another child, but my husband isn't with me on this. He doesn't > know if he can do the CF thing again. Don't know why this would > matter to him, yes we have had a hard go at this one, but know what > to do now. He isn't the one that puts the brace on or off. He > isn't the one that has stayed up night after night when he has had > sores or slipping from the brace. I will admit that Karter has been > more difficult to deal with then our daughter who is six. We have > had several trips to the ER, tubes in, adenoids out, reaction to > shots which ended up with a 6 day hospital stay, several castings, > now ST and OT. I love both my children dearly and would like just > one more. > > > > He does have a concern about my health. With each child it > seems to be worse. First one on bed rest for 1.5 months, second on > bed rest for 3 months, extremely high blood pressure to the point I > would pass out. Both children have been induced the first on my due > date and Karter 20 days before. had to stay in the hospital longer > with the second, because my blood pressure would not go down. Was > on meds to stop siezures, then on BP meds for 14 months after until > it finally came down. I am planning on talking with my OB Dr. > before I try to get pg, to make sure my body can handle it, but I > don't want Karter haveing CF the only reason we don't have any more. > > > > Well thanks > > Tabitha > > > > > > --------------------------------- > > Celebrate Earth Day everyday! Discover 10 things you can do to > help slow climate change. Yahoo! Earth Day > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 When I got pregnant, my doctor told me there was a 4-6% chance that I would pass cf on (no previous family history prior to myself) and that the chances of having a 2nd child with cf would be 10%. Higher than 3% from the March of Dimes, but much lower than 65%... I too have battled with this question, I don't want the chance of passing cf on to be the reason we don't have another child. For what it's worth, I'm definitely happy to be here! > > Can anyone tell me a % of what the chances are to have another baby born with CF? Here is my reasoning. I would love to have another child, but my husband isn't with me on this. He doesn't know if he can do the CF thing again. Don't know why this would matter to him, yes we have had a hard go at this one, but know what to do now. He isn't the one that puts the brace on or off. He isn't the one that has stayed up night after night when he has had sores or slipping from the brace. I will admit that Karter has been more difficult to deal with then our daughter who is six. We have had several trips to the ER, tubes in, adenoids out, reaction to shots which ended up with a 6 day hospital stay, several castings, now ST and OT. I love both my children dearly and would like just one more. > > He does have a concern about my health. With each child it seems to be worse. First one on bed rest for 1.5 months, second on bed rest for 3 months, extremely high blood pressure to the point I would pass out. Both children have been induced the first on my due date and Karter 20 days before. had to stay in the hospital longer with the second, because my blood pressure would not go down. Was on meds to stop siezures, then on BP meds for 14 months after until it finally came down. I am planning on talking with my OB Dr. before I try to get pg, to make sure my body can handle it, but I don't want Karter haveing CF the only reason we don't have any more. > > Well thanks > Tabitha > > > --------------------------------- > Celebrate Earth Day everyday! Discover 10 things you can do to help slow climate change. Yahoo! Earth Day > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Oh ee you do defy the odds. I wouldn't care if I had to do casts over or even the brace. We would start with Dr. Ponseti and know what to do. I do have to say I love my kids and would like one more. it took us over 3 years to have the last one and just thinking we should start trying now. I lost two sets of twins and two others between the two. That would be harder than having the club foot. Just listening to you talk about Garrison and how the boys are interacting, just makes me want it more. I have to say my husband is concerned that there is 2 sets of triplets in his family (brothers and sister, and grandpa) and 3 sets of twins in mine.(father, aunts, and grandma) But who cares if we get two or three! lol Tabitha number23 wrote: No I don't mind. I'm happy I can help, as writing it helped me a lot too. I guess I should has a Post Script to that as I am just so completely in love with Garrison here. He's so big and stout and dark skinned (OK, as dark as my family can get anyway). He has 's stoic eyes yet a smile that lights up a room that neither of the other two can match at all. Then there is still and Everett who have been building a new bond between them since Garrison's arrival that is wonderful to watch - and the two of them so affectionate to their baby brother. So again I say - what IF you had another with Clubbed Feet??? Would you trade in the previous club footed child? Never in a million years. I'm glad this came up again because it reminds me I DO love my kids! hahaha (like when they are all three crying at once and I want to trade them in for hamsters) s. You defy the odds! I hope you didn't mind me sharing the link to your post...I have asked myself that question too and your insight helped me get over that! > > > > Can anyone tell me a % of what the chances are to have another > baby born with CF? Here is my reasoning. I would love to have > another child, but my husband isn't with me on this. He doesn't > know if he can do the CF thing again. Don't know why this would > matter to him, yes we have had a hard go at this one, but know what > to do now. He isn't the one that puts the brace on or off. He > isn't the one that has stayed up night after night when he has had > sores or slipping from the brace. I will admit that Karter has been > more difficult to deal with then our daughter who is six. We have > had several trips to the ER, tubes in, adenoids out, reaction to > shots which ended up with a 6 day hospital stay, several castings, > now ST and OT. I love both my children dearly and would like just > one more. > > > > He does have a concern about my health. With each child it > seems to be worse. First one on bed rest for 1.5 months, second on > bed rest for 3 months, extremely high blood pressure to the point I > would pass out. Both children have been induced the first on my due > date and Karter 20 days before. had to stay in the hospital longer > with the second, because my blood pressure would not go down. Was > on meds to stop siezures, then on BP meds for 14 months after until > it finally came down. I am planning on talking with my OB Dr. > before I try to get pg, to make sure my body can handle it, but I > don't want Karter haveing CF the only reason we don't have any more. > > > > Well thanks > > Tabitha > > > > > > --------------------------------- > > Celebrate Earth Day everyday! Discover 10 things you can do to > help slow climate change. Yahoo! Earth Day > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 I can see where there is a concern with your health and getting pregnant again. However, in my opinion, clubfoot is correctable and one day all of this will just be a memory. Maybe your husband is just using the clubfoot issue as a reason but maybe there is more to it such as a concern for you. I may be way off here and I apologize if I am. However, I must add that my son has clubfoot and it's one of many, many medical issues. To me the clubfeet are a very minor issue and I almost never worry about it or think much about it. My son has microcephaly which is a small brain so he does have mental retardation, he has bilateral ptosis (droopy eyelids which needed surgery to correct and he will need more), he has kidney problems and the list goes on and on. Please don't get me wrong, I am by no means trying to make it sound like clubfoot is nothing. I realize how devistating it is to know that your child has a medical issue. I must add that my hubby and I are trying to decide if we should have another as we don't know if what our son has is genetic or not since the doctors cannot find the cause. I guess what I'm trying to say is that in my opinion, the possiblity of clubfoot should not be an issue when trying to decide if you should have another. Good Luck Proud Mom to > > If not for your health I'd strongly urge you not to let the risk of cf sway you - but with your health, yes, make sure YOU are healthy enough before you try again! > > s. > > Question > > > Can anyone tell me a % of what the chances are to have another baby born with CF? Here is my reasoning. I would love to have another child, but my husband isn't with me on this. He doesn't know if he can do the CF thing again. Don't know why this would matter to him, yes we have had a hard go at this one, but know what to do now. He isn't the one that puts the brace on or off. He isn't the one that has stayed up night after night when he has had sores or slipping from the brace. I will admit that Karter has been more difficult to deal with then our daughter who is six. We have had several trips to the ER, tubes in, adenoids out, reaction to shots which ended up with a 6 day hospital stay, several castings, now ST and OT. I love both my children dearly and would like just one more. > > He does have a concern about my health. With each child it seems to be worse. First one on bed rest for 1.5 months, second on bed rest for 3 months, extremely high blood pressure to the point I would pass out. Both children have been induced the first on my due date and Karter 20 days before. had to stay in the hospital longer with the second, because my blood pressure would not go down. Was on meds to stop siezures, then on BP meds for 14 months after until it finally came down. I am planning on talking with my OB Dr. before I try to get pg, to make sure my body can handle it, but I don't want Karter haveing CF the only reason we don't have any more. > > Well thanks > Tabitha > > > --------------------------------- > Celebrate Earth Day everyday! Discover 10 things you can do to help slow climate change. Yahoo! Earth Day > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hi, Michele, You're getting great suggestions. I'm sure Maddie will be back to normal soon. Just one note. I too had read about the karo syrup cure. Asked my daughter's ped about this & he said not to give it to her until she was over 1 year old (he said the concern w/the syrup is the same concern they have with giving honey to infants under a year old). Anyway, your ped might have a different opinion. Doesn't hurt to ask. If it's safe, it might just do the trick. All the best, Kim leenernd wrote: Poor baby and momma! When david is stopped up, we do not let him eat cheese. We load him up on pears, apple juice(pure not watered down as he usually gets), reduce his milk intake, and add baked beans(which he loves) as well as green beans. I have heard karo syrup(and i believe its the dark one) can be given to help this situation but check with Maddi'e ped. My niece still can have a terrible time with bm's and she is five-when she was little, they would push her legs to her chest(knees bent) to kind of help massage/move her bowels. HTH! kathleen > > I don't know if any of your kids have had this problem before, but > Maddie is terribly constipated due mostly to lack of moving around > with the boots and bar. I've given her prune juice, sugar water, > omitted binding foods like rice and bananas, but she is still having > problems. She just got her hours reduced to 14 per day, but in the > meantime, any suggestions. What foods, other than prunes, do you know > of that " inspires pooping " . i just feel awful for her because she's > straining all the time, and when she does manage to go, it's small and > hard as a rock. Any advice would be greatly appreciated. > - Michele > 5/18/02 and Maddie 9/6/05 bcf s 14/7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Pears are also good. Make sure she's drinking plenty of water, maybe replace some of her milk w/water. Anything high in fiber is good. Marcia Question I don't know if any of your kids have had this problem before, but Maddie is terribly constipated due mostly to lack of moving around with the boots and bar. I've given her prune juice, sugar water, omitted binding foods like rice and bananas, but she is still having problems. She just got her hours reduced to 14 per day, but in the meantime, any suggestions. What foods, other than prunes, do you know of that " inspires pooping " . i just feel awful for her because she's straining all the time, and when she does manage to go, it's small and hard as a rock. Any advice would be greatly appreciated. - Michele 5/18/02 and Maddie 9/6/05 bcf s 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Michele, Is she breast or bottle fed? Could be something in your diet or the formula you are using. We have used Carnation Good Start with both kids, I swear it makes them less gassy than other formulas. You might also check with the Pediatrician about trying a soy formula. > > I don't know if any of your kids have had this problem before, but > Maddie is terribly constipated due mostly to lack of moving around > with the boots and bar. I've given her prune juice, sugar water, > omitted binding foods like rice and bananas, but she is still having > problems. She just got her hours reduced to 14 per day, but in the > meantime, any suggestions. What foods, other than prunes, do you know > of that " inspires pooping " . i just feel awful for her because she's > straining all the time, and when she does manage to go, it's small and > hard as a rock. Any advice would be greatly appreciated. > - Michele > 5/18/02 and Maddie 9/6/05 bcf s 14/7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 My son has the same problem. I found that baby foods such as the jarred squash and sweet potatoes actually help him quite a bit. mdfrye1 wrote: I don't know if any of your kids have had this problem before, but Maddie is terribly constipated due mostly to lack of moving around with the boots and bar. I've given her prune juice, sugar water, omitted binding foods like rice and bananas, but she is still having problems. She just got her hours reduced to 14 per day, but in the meantime, any suggestions. What foods, other than prunes, do you know of that " inspires pooping " . i just feel awful for her because she's straining all the time, and when she does manage to go, it's small and hard as a rock. Any advice would be greatly appreciated. - Michele 5/18/02 and Maddie 9/6/05 bcf s 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 I'm not convinced the constipation is FAB related, but I guess it could be. How old is she? If she's getting plenty of floor time and tummy time she ought to be kicking her legs around plenty to keep her system moving adequately. You might want to lay her on her back and move her legs by holding her bar - lift them high to her head up and down, and rock from side to side as you lift up and set down; also belly rubs can help. s. Question I don't know if any of your kids have had this problem before, but Maddie is terribly constipated due mostly to lack of moving around with the boots and bar. I've given her prune juice, sugar water, omitted binding foods like rice and bananas, but she is still having problems. She just got her hours reduced to 14 per day, but in the meantime, any suggestions. What foods, other than prunes, do you know of that " inspires pooping " . i just feel awful for her because she's straining all the time, and when she does manage to go, it's small and hard as a rock. Any advice would be greatly appreciated. - Michele 5/18/02 and Maddie 9/6/05 bcf s 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 We do use the Good Start Formula, which has been wonderful for her gas problems. the poor kid used to have a lot of spit up and gas issues. Those are gone now, only to be replaced with constipation and reflux. She takes baby zantac for the reflux, but I'm hoping the constipation can be cured with some of the great tips I've been getting from all of you. My older daughter is allergic to dairy products, so we initially started Maddie on soy, but that caused a lot of problems. So far, the Good Start is the best formula we've tried. Thanks for all the help and advice. You guys are great. - Michele 5/18/02 and Maddie 9/6/05 wrote: Michele, Is she breast or bottle fed? Could be something in your diet or the formula you are using. We have used Carnation Good Start with both kids, I swear it makes them less gassy than other formulas. You might also check with the Pediatrician about trying a soy formula. > > I don't know if any of your kids have had this problem before, but > Maddie is terribly constipated due mostly to lack of moving around > with the boots and bar. I've given her prune juice, sugar water, > omitted binding foods like rice and bananas, but she is still having > problems. She just got her hours reduced to 14 per day, but in the > meantime, any suggestions. What foods, other than prunes, do you know > of that " inspires pooping " . i just feel awful for her because she's > straining all the time, and when she does manage to go, it's small and > hard as a rock. Any advice would be greatly appreciated. > - Michele > 5/18/02 and Maddie 9/6/05 bcf s 14/7 > Quote Link to comment Share on other sites More sharing options...
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