Question

[Guest guest]

Hang in there Rose, maybe then can do some surgery, so you won't have to take so many meds, and won't have so much pain. I hate pain, there is nothing I can take that won't make me sicker then a dog, and I hate that feeling.  I just use Advil, and heat, and pray I'll just fall asleep.  Now then staying asleep that's another issue I am struggling with. 

Some Great info from Tracie, I am so glad she is doing better, so glad, I was really worried about her for awhile.   Well take care, and ya I would have to agree that all those years of work is hard work, not easy.  Hang in there, your in my prayers.

Marla " Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours. " - Irish Proverb  

 

Marla, I really don't think my back & leg problems are sarc-related.  Nearly all of my discs have degenerative changes, but the lumbar are the worst.  I think it was all those years of bad body mechanics, stressing my back lifting & moving patients, etc.  When you are young & strong, you just think you're invincible (or at least I did!).  And you know how it is in the hospital--if you had to wait for help every time you needed it, you'd never get anything done.  I just think all that physical stress, coupled with crappy nutrition & exercise habits eventually caught up with me.  I got teary talking to Theresa (daughter) today because I'm having so much pain even with the fentanyl patch, Flexeril & 1-2 Percocet a day.  I told her it really scares me to think that maybe this time the symptoms won't resolve & I'll be like this all the time, and having to increase pain meds.  I don't think I'd ever get into the addiction issue like Ginny, but it still scares me.  My dad's side of the family was chockful of all kinds of addicts.  But tonight I'm more optimistic.  I got in the hot tub & did some calf stretches, so my calf isn't nearly as tight as it was.  I'm going to do my mindfulness meditation here in a bit & see if that will be enough to let me sleep.  I didn't see anything about the chat, so I'm going to gather up my meds, rice sox, water, etc. & get settled.

Ramblin' RoseModerator

  " I child-proofed my home and they STILL get in! "      (Bumper sticker)

 

To: Neurosarcoidosis From: mebramer@...Date: Fri, 18 Mar 2011 09:47:28 -0600

Subject: Re: Question

Rose, Do you think the stress of the family, made the other worse?  I always feel that way, the more stress I'm trying to handle the worse it is.  I talked with our Our School Superintendent, as I've talked to her before, and because I called the Dean of students at the High School with NO response.  She said she would look into the issues, and also talk to na's counselor, she is having an issue with a couple teachers, and some days kids.  We talk about it, doesn't mean I know everything.  Her brothers talk to her too,

So we are working on things.  Thanks for the suggestions. It's been a little harder for me too this year, too many changes, and you how hard that is, even though usually that doesn't bother me, this year is seem to.

How are you doing today now that your home, I hope better, do you think that what you have is related to the Sarc?  or many years of being on feet much of the day?  I'm sorry you are not feeling well, hopefully with warmer weather finally coming about, we'll all feel better:)

Marla " Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours. " - Irish Proverb  

 

Marla, I'm so sorry that you have all this stress from your kids.  I honestly would pick my physical problems over kid/grandkid problems, if I had a choice.  Unfortunately, I hit the lottery & got both.  Could there be something else going on with your daughter?  Somebody messing with her, or even some questions in her mind about her heritage?  My 2 granddaughters in San were raised mostly by their dad & were very involved in Mexican culture.  The two up here in Indiana have had almost no exposure to their dad's culture.  They haven't expressed much interest, although I had what I called a " Hoosier Quinceneria " for them when they turned 15.  Just a family party & some of the traditional quinceneria gifts.  They seemed to enjoy it, but haven't really talked about it since.  It's so hard to guess what's in their minds, but it really may be more than just laziness or disinterest.

 I don't know if it's just in Indiana, or the entire country, but once I was approved for SS disability, I had to wait 2 years for Medicare to kick in.  So I went all that time without insurance coverage & got myself in a pretty deep hole.  Lost my house, a good chunk of my retirement money, etc.  But at least I had some retirement money to use when I needed it, so can't complain too much about that.

Ramblin' RoseModerator

  " I child-proofed my home and they STILL get in! "      (Bumper sticker)

 

To: neurosarcoidosis From: mebramer@...Date: Thu, 17 Mar 2011 13:59:43 -0600

Subject: Question

Connie, I know your not around a lot with working and all, I sure hope your doing OK.  I've decided to move forward with Disability, somehow I thought I was on the SS web, and filled in some info, just to have an attorney call me.  

Anyway, that doesn't mean I have to use him, that's for sure.  I do have a question for anyone,  They talk about a supplement amount, and another amount, for me that's the difference of $200.  Don't completely understand that.

And with either one of these, do you automatically get medicare?  My biggest fear, and I think it will come, is what to do when the Remicade no longer helps, and I need to go to another drug.  With our health Insurance we had to fight for a year for the Remicade,

What if I have to fight again. When I go in and get my Remicade, there are plenty of young people, OK young as in my age (50's) and they are getting there Remicade NO problem because they have Medicare benefits with their disability.  So do you just get it too??? 

Right now I am overwhelmed with life. My son has managed to get $500 in overdraft fees, was over $600, but the were willing to take $100 off, I think they should take off more, and I'm fighting for him, as he works 8-5, and they are not listening to him anyway.  blowing him off as a dumb kid, it's really sad.

My daughter is flunking 1/2 her classes,  missing papers, being lazy, she's grounded, and can't get her driving permit until she has all C's and better, boy that would  motivate me, but so far not her.

I think I've been holding up for my husband, lot's of stress with work, and he's finally coping better, so I guess that I let my dam break.  Sorry for all the whining but I do feel better:) Thanks for listening, and  hopefully someone will know about the SS questions.

Or I may be calling you Connie.  OK it's 2pm I'm still in my Robe, I guess I better do the shower and dress thing! Rose I hope your doing better, did you get the epidural?  Marla

" Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours. " - Irish Proverb  

[Guest guest]

The ssi is contingent on your assets, the ssa office will tell you if you do. To apply for disability go to SSA.gov. The applications, and answers to questions are there. Ditch the atty, as i have said before they do not affect my decision in any way in the intial (beginning) stage or in a recon (2nd application if one is needed). Just like in any other situation, you only need an attorney if you are going to court. Myth:No we do not deny everybody the first time they apply - I got a case last week, it took my 15 minutes to approve it once I read the medical evidence. SSI comes with medicaid gold - pays for everything, but you have to qualify for SSI. The one based on your work SSD has medicare 2 years from the approved date of onset. In

other words if your symptoms met the criteria in 2008, you would get back paypay for that time and immediately have medicare. If it was determined that you didn't become disabled by the illness until say, 2010, you would have a few months before you would get medicare. There is one other thing, SSD is not retirement, it is an insurance that only last about 4 years after you stop working, the only way around that is if you were disabled prior to the time it ran out. You can also apply under your husbands work credits-It is called a DWB case. Ask the SSA interviewer about it if they mention that you have a DLI date, ask them point blank what your DLI is if they don't say. When you apply list everything little thing that is wrong with you, ie my hair hurts if it does. (hypertension, back pain, osteoarthritis, eye issues, memory problems, cognitive problems, CHF, neuropathy, diabetes -This is an example, but you get my

drift. when they send you function reports to fill out, be brutally honest-paint the picture for the adjudicator so they can see just how difficult your life it. If you don't sleep much at night because your up and down cramps and pain put that in, if you get winded walking across the house-tell them. They don't know you, teach them who you are-we do take such things into consideration. If you need me email me at conaugusta@... and I will send you my number and help you any way I can. If you are 55 or old that is helpful. Also when you fill out your job history, sit down and write down all the physical and mental aspects of the job. Alot of people give me info on a job like it was easy, and I will wonder and call them and find out that job required lifting, carrying, dust, fumes, heat, etc.) Now, I'll shut up, sorry////connie

To: NS <neurosarcoidosis >Sent: Thu, March 17, 2011 3:59:43 PMSubject: Question

Connie, I know your not around a lot with working and all, I sure hope your doing OK. I've decided to move forward with Disability, somehow I thought I was on the SS web, and filled in some info, just to have an attorney call me. Anyway, that doesn't mean I have to use him, that's for sure. I do have a question for anyone, They talk about a supplement amount, and another amount, for me that's the difference of $200. Don't completely understand that. And with either one of these, do you automatically get medicare? My biggest fear, and I think it will come, is what to do when the Remicade no longer helps, and I need to go to another drug. With our health Insurance we had to fight for a year for the Remicade, What if I have to fight again. When I go in and get my Remicade, there are plenty of young people, OK young as in my age (50's) and they are getting

there Remicade NO problem because they have Medicare benefits with their disability. So do you just get it too??? Right now I am overwhelmed with life. My son has managed to get $500 in overdraft fees, was over $600, but the were willing to take $100 off, I think they should take off more, and I'm fighting for him, as he works 8-5, and they are not listening to him anyway. blowing him off as a dumb kid, it's really sad. My daughter is flunking 1/2 her classes, missing papers, being lazy, she's grounded, and can't get her driving permit until she has all C's and better, boy that would motivate me, but so far not her.I think I've been holding up for my husband, lot's of stress with work, and he's finally coping better, so I guess that I let my dam break. Sorry for all the whining but I do feel better:) Thanks for listening, and hopefully someone will know about the SS questions. Or

I may be calling you Connie. OK it's 2pm I'm still in my Robe, I guess I better do the shower and dress thing! Rose I hope your doing better, did you get the epidural? Marla "Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours." - Irish Proverb