Re: In memory of Janelle Jovanovich~ and Joe

[Guest guest]

and Joe,

I am thinking about you guys. I also want to thank you for all that

you do for RSS and us families. You have inspired and supported

beyond anything anyone could ever imagine, and that you do it in

honor of your beautiful daughter is so wonderful and amazing. I will

never forget meeting you two and the wonderful people that you guys

are. , we tried to meet up last year at the Convention but only

got to talk for a few minutes. Hopefully this year we can talk some

more. And, it was great to work with Joe for a little while last

year when we were trying to do the RSS Christmas cards. You are so

talented, Joe, and I love those pictures you took of .

Janelle was such a beauty and her memory will continue on with the

RSS families and MAGIC for a very long time. What a blessing she

was.

Take care Jovanovich family,

Jodi R.

's mommy

> Many of you newcomers never knew Janelle, although some of you know

> her mom, , or dad Joe from the listserve or the MAGIC

convention.

>

> Janelle passed away two years ago tomorrow. She was an angel while

on

> Earth, and I have no doubt she continues to watch over her parents

and

> her big brother n, every day and night.

>

> Her parents have continued in their efforts to educate parents and

> physicians about -Silver Syndrome. Joe took incredible

photos

> of most of the kids at last year's convention, which will be

featured

> in the upcoming Guidebook, and he will be at the convention again,

> taking photos. has been an incredibly source of information

and

> support for many, many parents. Our RSS/SGA division at MAGIC

would

> not be the same without them.

>

> Their email addresses are laura@b... and joe@b...,

> if you want to drop them a note.

>

> and Joe - I love you guys!