adrenarche/puberty??

[Guest guest]

Hi all,

Quick question for those of you with older RSS kids and/or older non-

RSS kids... We have been giving Lupron Depot for several

years & Aromasin (aromatase inhibitor) for quite some time as well.

He is almost 12. He started adrenarche just before his 4th birthday,

but we didn't know he had RSS until just over 2 years ago, and

doctors here didn't know why he was having all these problems. Dr. H

said that giving an aromatase inhibitor and Lupron does not stop the

symptoms of adrenarche such as underarm odor, acne, pubic hair, etc,

but should stop the bone age from advancing. Like I said,

started with the underarm odor many years ago, but recently it has

gotten much worse. Despite wearing deodorant & showering daily, to

put it quite bluntly, reeks. He started middle school this

week & I can barely stand to be around him by the time he gets home

from school. It is very hot here in S. Florida, & I don't think the

school bus he rides is air conditioned. So what I want to know is if

this is a RSS thing or normal for any pre-adolescent kid close to

puberty (since both my other kids are younger). Deodorant isn't

cutting it, and has sensory issues, so he gags at the smell

of colognes & perfumes. Can anybody recommend something else to keep

him smelling like a rose - lol?

Kim C.

[Guest guest]

Kim,

I think this is one thing you can't blame on RSS. I think it's a

teenage boy smell. I used to teach 3rd through 8th grades and by

the time the kids were in 8th grade (mostly boys in every class),

the room would have that smell. Ugh. It was just awful. The boys

didn't seem to mind, but I sure did! My friend and I used to call

it that " manly man smell. " If I had that class right after gym,

there was no hope but to open the windows and try not to breathe too

deeply.

If you are concerned about being ostracized socially,

perhaps you could buy those disposable washcloths they make now?

They are already moistened, so he can just keep them in his backpack

and go into a stall in the boys' room and " wash up. "

Max used to have a problem like this, but as he has gotten older, it

has gotten better. I don't know if it's the surge in hormones or

what. I'm so glad it is better for him. I hope it gets better for

in time, too.

By the way, how in the world can FLORIDA not have air conditioned

buses? Those kids must be quite uncomfortable.

Jodi Z

[Guest guest]

Jodi,

So you mean I get to look forward to this stink with too?

Oh joy!

It does seem ridiculous that the buses wouldn't be air conditioned

down here. I know the buses for special education students are air

conditioned. is eligible to ride one of those buses, but he

doesn't want to. He says it is so hot, all the window are open on

the bus, and he basically sits with his head near he open window.

Therefore, I am assuming there is no air conditioner. I think I'm

going to call the transportation department tomorrow & find out.

Kim C.

On Aug 14, 2005, at 4:25 AM, RSS-Support wrote:

> Message: 9

> Date: Sun, 14 Aug 2005 02:05:20 -0000

>

> Subject: Re: adrenarche/puberty??

>

> Kim,

>

> I think this is one thing you can't blame on RSS. I think it's a

> teenage boy smell. I used to teach 3rd through 8th grades and by

> the time the kids were in 8th grade (mostly boys in every class),

> the room would have that smell. Ugh. It was just awful. The boys

> didn't seem to mind, but I sure did! My friend and I used to call

> it that " manly man smell. " If I had that class right after gym,

> there was no hope but to open the windows and try not to breathe too

> deeply.

>

> If you are concerned about being ostracized socially,

> perhaps you could buy those disposable washcloths they make now?

> They are already moistened, so he can just keep them in his backpack

> and go into a stall in the boys' room and " wash up. "

>

> Max used to have a problem like this, but as he has gotten older, it

> has gotten better. I don't know if it's the surge in hormones or

> what. I'm so glad it is better for him. I hope it gets better for

> in time, too.

>

> By the way, how in the world can FLORIDA not have air conditioned

> buses? Those kids must be quite uncomfortable.

>

> Jodi Z

>

[Guest guest]

We live in Orlando and some of the buses are air conditioned. I need to ask

Jed and see if his bus this year is....

My friends son's bus is.. The problem in middle school is that the kids like

to open the window's even if there is A/C...

Mom to Jed and Liam

Orlando Fl

Family and Breeding Website

[Guest guest]

I do know that there is a percription that keeps your from sweating.

I believe it lasts for about a week beause it plugs up your pores.

I'm sorry I don't know what the actual name of it is.

~

> Hi all,

>

> Quick question for those of you with older RSS kids and/or older non-

> RSS kids... We have been giving Lupron Depot for several

> years & Aromasin (aromatase inhibitor) for quite some time as well.

> He is almost 12. He started adrenarche just before his 4th birthday,

> but we didn't know he had RSS until just over 2 years ago, and

> doctors here didn't know why he was having all these problems. Dr. H

> said that giving an aromatase inhibitor and Lupron does not stop the

> symptoms of adrenarche such as underarm odor, acne, pubic hair, etc,

> but should stop the bone age from advancing. Like I said,

> started with the underarm odor many years ago, but recently it has

> gotten much worse. Despite wearing deodorant & showering daily, to

> put it quite bluntly, reeks. He started middle school this

> week & I can barely stand to be around him by the time he gets home

> from school. It is very hot here in S. Florida, & I don't think the

> school bus he rides is air conditioned. So what I want to know is if

> this is a RSS thing or normal for any pre-adolescent kid close to

> puberty (since both my other kids are younger). Deodorant isn't

> cutting it, and has sensory issues, so he gags at the smell

> of colognes & perfumes. Can anybody recommend something else to keep

> him smelling like a rose - lol?

>

> Kim C.

[Guest guest]

Kim - is using an anti-perspirant/deodorant or just a

deodorant. With the heat being so high there, he undoubtedly needs

an anti-perspirant and deodorant.

The only other hint I would give is one I learned from our neighbor

with a 5th grade son. She packs an extra t-shirt in his backpack

each day. After lunch and recess, he changes his tshirt....

The 5th grade teacher joked with me that she has to keep all the

classroom windows open after lunch, because of the horrendous smell

after these kids have been running around at recess....

> Hi all,

>

> Quick question for those of you with older RSS kids and/or older

non-

> RSS kids... We have been giving Lupron Depot for several

> years & Aromasin (aromatase inhibitor) for quite some time as

well.

> He is almost 12. He started adrenarche just before his 4th

birthday,

> but we didn't know he had RSS until just over 2 years ago, and

> doctors here didn't know why he was having all these problems.

Dr. H

> said that giving an aromatase inhibitor and Lupron does not stop

the

> symptoms of adrenarche such as underarm odor, acne, pubic hair,

etc,

> but should stop the bone age from advancing. Like I said,

> started with the underarm odor many years ago, but recently it

has

> gotten much worse. Despite wearing deodorant & showering daily,

to

> put it quite bluntly, reeks. He started middle school

this

> week & I can barely stand to be around him by the time he gets

home

> from school. It is very hot here in S. Florida, & I don't think

the

> school bus he rides is air conditioned. So what I want to know is

if

> this is a RSS thing or normal for any pre-adolescent kid close to

> puberty (since both my other kids are younger). Deodorant isn't

> cutting it, and has sensory issues, so he gags at the

smell

> of colognes & perfumes. Can anybody recommend something else to

keep

> him smelling like a rose - lol?

>

> Kim C.