Re: Clothing Question

January 29, 2004

Potty training?? At almost 2??

Don't do that to him! Don't do that to you! Diapers are nice, enjoy

them. Once they are potty trained, they usually want to go every ten

minutes if you are at a store, restaurant, etc. He is too young...

You will know when it is time...A woman once told me her child was

potty trained at 12 months old, guess what? The potty trained one

was her!

mom of a 10 wcf, Venanzio 7 nocf, Pepe 4 nocf(potty trained

this past summer)

> Hi everyone,

> This is a non cf question, but as a first time mom of a very skinny

> toddler I need some ideas for buying clothes for him. The 12

months

> pants he wears are too small but his 18 months pants fall off of

> him. I put him in one piece clothes which work the best but do not

> work well for potty training. Zach is almost 2 and weighs 23

pounds

> but is 34 inches tall. Besides the obvious, which would be to

> fatten him up enough to wear the bigger clothes (we are trying) I

> can't think of what else he can wear. Any suggestions?

> Sara

January 29, 2004

Two of my three children were potty trained by age two. They were

ready. My child with cf was almost three before he was completely

potty trained. Children are individuals, some are ready earlier

than others. Parents know their own children best and can judge

when the time is right.

My suggestion for getting clothes to fit is to purchase some elastic

and sew it inside the sides of the pants. A few inches of elastic

on each side can do wonders to make pants fit while keeping the

length to cover those skinny ankles. It is very easy to do, even if

you are no expert seamstress... takes about five minutes with a

sewing machine set on zig-zag stitch. If you don't have a sewing

machine, ask a grandparent or friend with one to do it for you. It

will only take them a few minutes and will save you tons of time

searching stores for a size 2T-slim.

One other idea you might try is to take the smaller sized clothing

that you already have and sew a contrasting fabric to the bottoms of

the pantslegs. This is a really cute thing, especially on girls'

jeans. I've a friend who does this and her (very thin, but tall)

girls look just adorable with the added fabric cuffs on their

jeans. She also adds matching fabric designs to t-shirts so that

the outfit is a matched set. I just thought they were trendy

clothes from the mall, until she told me her secret. This is a good

trick to save some money, too, since it extends the life of the

clothes you already have.

~

mommy to 3, one with cf

> Potty training?? At almost 2??

January 29, 2004

A pitty you are not rearing him in Berkeley, California, when Osh-Kosh

overalls, with the bib and buckles were all the rage for little kids! Love

to you and to your growing boy; maybe Petamin shakes in the morning?

n Rojas

clothing question

Hi everyone,

This is a non cf question, but as a first time mom of a very skinny

toddler I need some ideas for buying clothes for him. The 12 months

pants he wears are too small but his 18 months pants fall off of

him. I put him in one piece clothes which work the best but do not

work well for potty training. Zach is almost 2 and weighs 23 pounds

but is 34 inches tall. Besides the obvious, which would be to

fatten him up enough to wear the bigger clothes (we are trying) I

can't think of what else he can wear. Any suggestions?

Sara

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

January 29, 2004

Hmmm ... we always found the metal buttons on the sides and the big buckles

on the bibs of Osh Kosh were a nuisance to move out of the way to do CPT. We

looked for elasticized waists, also because he felt more comfortable in

elastic waists whenever he felt bloated. That means my son pretty much lived

in comfy sweat pants for many years. He now is a teen and still prefers the

comfort of elastic waistbands ... tough to find now since sweat pants aren't

cool for his age group and dressier pants are seldom made with the elastic

waistbands. We look hard and find a few that will do.

karen m

clothing question

>

> Hi everyone,

> This is a non cf question, but as a first time mom of a very skinny

> toddler I need some ideas for buying clothes for him. The 12 months

> pants he wears are too small but his 18 months pants fall off of

> him. I put him in one piece clothes which work the best but do not

> work well for potty training. Zach is almost 2 and weighs 23 pounds

> but is 34 inches tall. Besides the obvious, which would be to

> fatten him up enough to wear the bigger clothes (we are trying) I

> can't think of what else he can wear. Any suggestions?

> Sara

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

January 30, 2004

,

Eilish has no waist and can fit into a size 5 but needs a 6 for her long

legs. We try to buy things with elastic so that I can tighten the

elastic. With her school uniform we have put darts in 5 places to keep

is up. What about overall type things. You can get them in Jeans short

or long.

(Australia)

clothing question

Hi everyone,

This is a non cf question, but as a first time mom of a very skinny

toddler I need some ideas for buying clothes for him. The 12 months

pants he wears are too small but his 18 months pants fall off of

him. I put him in one piece clothes which work the best but do not

work well for potty training. Zach is almost 2 and weighs 23 pounds

but is 34 inches tall. Besides the obvious, which would be to

fatten him up enough to wear the bigger clothes (we are trying) I

can't think of what else he can wear. Any suggestions?

Sara

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

January 30, 2004

Zach really likes going on his potty chair. We only use it before

bath time and first thing in the morning, but he already understands

how to use it. I am in no hurry for him to be completely trained. I

understand it is a long process. Whenever we start something new we

approach it in baby steps. Zach didn't start sleeping through the

night until he was 20 months old, so I think I can be patient with

achieving this milestone too.

Sara

> > Hi everyone,

> > This is a non cf question, but as a first time mom of a very

skinny

> > toddler I need some ideas for buying clothes for him. The 12

> months

> > pants he wears are too small but his 18 months pants fall off of

> > him. I put him in one piece clothes which work the best but do

not

> > work well for potty training. Zach is almost 2 and weighs 23

> pounds

> > but is 34 inches tall. Besides the obvious, which would be to

> > fatten him up enough to wear the bigger clothes (we are trying)

I

> > can't think of what else he can wear. Any suggestions?

> > Sara

January 30, 2004

Sara,

Well, my point is that, when you are a first time mom, everybody

tries to tell you what to do, how to do it, you know what I mean.

But, they are little for a very short period of time. They grow up

rather quickly, then they don't want mommy to help them and what

not. My three kids slept thru the night when they turn two. All

three of them were terrible sleepers. Now, the oldest two, I can't

get them out of bed in the morning, :-)

I remember when a was two and five months, I remember because it

was Christmas time. I tried to potty train her and she was just

reluctant. I talked to her ped, who is a dear friend of mine, and she

told me to wait she was not ready, that I would know when she was

ready. She also told me that physiologically her body may not be

ready until she is a little older. Bladder control is a developing

issue, if you will. Then around May, two months shy of her third

birthday, she told me " mom I am too old for diapers, that's for

babies " , that was the begining and the end of potty training.

> > > Hi everyone,

> > > This is a non cf question, but as a first time mom of a very

> skinny

> > > toddler I need some ideas for buying clothes for him. The 12

> > months

> > > pants he wears are too small but his 18 months pants fall off

of

> > > him. I put him in one piece clothes which work the best but do

> not

> > > work well for potty training. Zach is almost 2 and weighs 23

> > pounds

> > > but is 34 inches tall. Besides the obvious, which would be to

> > > fatten him up enough to wear the bigger clothes (we are trying)

> I

> > > can't think of what else he can wear. Any suggestions?

> > > Sara

January 30, 2004

You can buy sweat pants and then use a needle and thread to take a tuck in the

back. Then just put him in a longer shirt and no one will ever know. We did

this for years for my skinny son. :-) To make the tuck all you have to do is

fold the back of the waist band onto itself. It will look like a triple layered

square. Then just sew the layers together. You can do the same for elastic

waisted shorts.

Good luck with the potty training. Most of my kids weren't ready until we were

almost three. In fact they didn't wear pants when potty training unless we were

out, and then they wore a pullup. This will be the first summer I don't have

someone running around in only shirt and panties for a long time!

Dawn mom of 4, 8 and under, the youngest wcf

January 30, 2004

started using a potty chair before baths at about 16 months, but we sure

didn't rush her into it. She liked to use it. She wasn't fully trained until

she was 3 & 1/2.

Re: clothing question

Zach really likes going on his potty chair. We only use it before

bath time and first thing in the morning, but he already understands

how to use it. I am in no hurry for him to be completely trained. I

understand it is a long process. Whenever we start something new we

approach it in baby steps. Zach didn't start sleeping through the

night until he was 20 months old, so I think I can be patient with

achieving this milestone too.

Sara

> > Hi everyone,

> > This is a non cf question, but as a first time mom of a very

skinny

> > toddler I need some ideas for buying clothes for him. The 12

> months

> > pants he wears are too small but his 18 months pants fall off of

> > him. I put him in one piece clothes which work the best but do

not

> > work well for potty training. Zach is almost 2 and weighs 23

> pounds

> > but is 34 inches tall. Besides the obvious, which would be to

> > fatten him up enough to wear the bigger clothes (we are trying)

I

> > can't think of what else he can wear. Any suggestions?

> > Sara

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

January 30, 2004

Man- we were READY to have my son out of diapers. If for no other

reason than to save $50/month! He was potty trained around 2, but we

didn't force him into it. He pretty much decided he was ready. He also

spit out his bottle at 11 months and never wanted it back, and slept

through the night at about 2 weeks. I've been told he was just about

the easiest baby ever. I guess we're making up for it with our

daughter- w/CF- plenty of extra work there!

Elias

Re: Re: clothing question

started using a potty chair before baths at about 16 months, but

we sure didn't rush her into it. She liked to use it. She wasn't fully

trained until she was 3 & 1/2.

Re: clothing question

Zach really likes going on his potty chair. We only use it before

bath time and first thing in the morning, but he already understands

how to use it. I am in no hurry for him to be completely trained. I

understand it is a long process. Whenever we start something new we

approach it in baby steps. Zach didn't start sleeping through the

night until he was 20 months old, so I think I can be patient with

achieving this milestone too.

Sara

> > Hi everyone,

> > This is a non cf question, but as a first time mom of a very

skinny

> > toddler I need some ideas for buying clothes for him. The 12

> months

> > pants he wears are too small but his 18 months pants fall off of

> > him. I put him in one piece clothes which work the best but do

not

> > work well for potty training. Zach is almost 2 and weighs 23

> pounds

> > but is 34 inches tall. Besides the obvious, which would be to

> > fatten him up enough to wear the bigger clothes (we are trying)

I

> > can't think of what else he can wear. Any suggestions?

> > Sara

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

------------------------------------------------------------------------

------

January 30, 2004

Elias,

My daughter a drank a bottle until she was 6 years old. When she

stop the bottle her health went down hill, almost two years later she

was diagnosed with CF.

She was pretty much a healthy child until then.

I am glad that I did not mind convenctinal wisdom of stoping the

bottle at 1 year or switching to low fat milk.

> > > Hi everyone,

> > > This is a non cf question, but as a first time mom of a very

> skinny

> > > toddler I need some ideas for buying clothes for him. The 12

> > months

> > > pants he wears are too small but his 18 months pants fall off

of

> > > him. I put him in one piece clothes which work the best but

do

> not

> > > work well for potty training. Zach is almost 2 and weighs 23

> > pounds

> > > but is 34 inches tall. Besides the obvious, which would be

to

> > > fatten him up enough to wear the bigger clothes (we are

trying)

> I

> > > can't think of what else he can wear. Any suggestions?

> > > Sara

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

> --------------------------------------------------------------------

----

> ------

>

January 30, 2004

,

I wish I had not listened to all of the advice about stopping the

bottle. Zach's ped, nutritionist and developmental therapist were

all up in arms that he still had a bottle at 15 months old. Since

being off the bottle his weight has stayed the same. He gained two

pounds in the two months after his diagnosis and has gained only two

pounds in the 8 months off the bottle. Hindsight is 20/20.

Sara

> Elias,

>

> My daughter a drank a bottle until she was 6 years old. When

she

> stop the bottle her health went down hill, almost two years later

she

> was diagnosed with CF.

> She was pretty much a healthy child until then.

> I am glad that I did not mind convenctinal wisdom of stoping the

> bottle at 1 year or switching to low fat milk.

>

January 30, 2004

Zach is my only child, so I guess I am not in any hurry to move to

the next step. I can't believe he is almost 2. If I am changing

his diapers for a while longer, it will be ok with me. I do look

forward to saving money when he is out of diapers though.

Sara

> Man- we were READY to have my son out of diapers. If for no other

> reason than to save $50/month! He was potty trained around 2, but

we

> didn't force him into it. He pretty much decided he was ready.

He also

> spit out his bottle at 11 months and never wanted it back, and

slept

> through the night at about 2 weeks. I've been told he was just

about

> the easiest baby ever. I guess we're making up for it with our

> daughter- w/CF- plenty of extra work there!

>

> Elias

January 30, 2004

Patti was three in November and she is still on the bottle. It is the only way

we can get the 3-4 cans of pediasure (the cf clinic wants her to have) down her.

Last time we were there the dietician tried to give me heck about it and I asked

her if they were ready to do a g-button, becuase I sure wasn't going to do an ng

tube with her reflux. The dietician waffled around a bit and the RN finally

spoke up and supported our decision to keep her on the bottle. Of course it

really didn't matter what they said, we aren't taking her off until either she

understands that she needs to drink this stuff, or until she doesn't need it.

Dawn mom of 4, 8 and under, the youngest wcf

July 8, 2006

When they are in the casts, everything fits ok. When they are in the DBB, it is

necessary to have open feet, and snaps all around the pants are very helpful if

not necessary. Make sure the snaps go all the way down. I had a few pair that

were snaps, but right at the end, the material was closed, so it wouldn't open.

I used these once, but they were way to hard for diaper changes. Otherwise all

should be well!

11/19/04

babywithclubfoot wrote:

I am registering for my baby shower in the next couple of weeks and

not sure what to do about the clothing situation....Will the baby wear

normal clothes over the casts???What do you buy? What about when they

are in the DBB???

I know it sounds silly, but how do I dress my baby girl?

July 8, 2006

Hi ,

I went through the same thing for my shower. My son is now 4 months

and wearing the DBB. The only restriction I had was no feeties (no

clothes with feet). As long as the pant legs are open you are in good

shape. Same for when she is in the bar. One benefit I found to the

bar is that is it SO easy to change the baby by just having to lift

the bar rather than trying to lift both legs with one hand when

diapering.

Hope you have a wonderful baby shower.

Kim

>

> I am registering for my baby shower in the next couple of weeks and

> not sure what to do about the clothing situation....Will the baby

wear

> normal clothes over the casts???What do you buy? What about when

they

> are in the DBB???

>

> I know it sounds silly, but how do I dress my baby girl?

>

July 8, 2006

I found that the outifts with feet could be difficult with the casts.

I would highly recommend the little newborn gowns with the elastic at

the bottom and sleep sacks. My son lived in these the first 2 months

and then he outgrew the gowns. (I'd still have him in them if they

made them in sizes larger than newborn!) The sleep sacks you can find

in a variety of sizes and materials and they are great. They work

with the casts as well as the FAB and are really the only " pajamas " we

have for .

As others have mentioned, once you are in the FAB you'll need open

legs (no feet). The snaps up and down the legs are really helpful, but

are often easier said than done in terms of finding them. (I've had

better luck in Marshalls than in Babies R Us, if you can believe that!)

I would say that the snaps are an absolute necessity when you first go

into the FAB. It took me a few weeks to get really proficient at

putting the FAB on and if you don't have the snaps in the crotch, one

leaky diaper and the shoes have to come off to change the baby. I can

speak for myself when I say that at the beginning, I didn't want to

take the shoes off any more than I had to.

In terms of clothes, the other thing I would recommend registering for

is socks - lots of socks. I don't know if the washer eats them or if

we just lose them because they are so damn small, but I've never seen

anything like it!

If you can find a breatheable bumper, register for that. It helps to

pad the thumping noise that is inevitable as your daughter gets more

mobile and it can keep the baby from getting the FAB caught in the

bars of the crib.

Have fun registering and enjoy your pregnancy. When are you due?

Anne

>

> I am registering for my baby shower in the next couple of weeks and

> not sure what to do about the clothing situation....Will the baby

wear

> normal clothes over the casts???What do you buy? What about when

they

> are in the DBB???

>

> I know it sounds silly, but how do I dress my baby girl?

>

July 9, 2006

You know the sleep sacks? Those are great for sleeping with the casts

on - I didn't really like them though for when he was in the DBB.

Since their legs are so spread out, it seemed the sacks kept creeping

way up - maybe others think differently, I just didn't like them then.

No footed outfits - which can be tricky to find for those early days.

Outfits with snaps (but no feet) were the best. If you're

registering for socks, choose thinner ones and ones made out of as

close to 100% cotton as you can find, not synthetic - (just thinking

DBB days).

Good luck!

Holly

Zachary 7/27/02

Unilateral Right C/F

Treated by Dr. Ponseti

DBB Nights Only

>

> I am registering for my baby shower in the next couple of weeks and

> not sure what to do about the clothing situation....Will the baby wear

> normal clothes over the casts???What do you buy? What about when they

> are in the DBB???

>

> I know it sounds silly, but how do I dress my baby girl?

>

July 9, 2006

The regular sleepers (we used 's brand) worked well when my daughter

(bilateral clubfeet) was a baby. Generally, regular clothes worked well while

she was in the casts, as they are cut roomy in the legs and created no issues.

Once your daughter is in the DBB, you will need to look for snap crotch clothes.

is living in those little 's one-piece outfits which are adorable

and can be found at Wal Mart for under 6 bucks each. With dresses, which work

fine, we just leave off the diaper cover. No big deal. As long as you look for

snap crotch clothing, you will be just fine. It struck me the other day that I

am glad my clubfoot baby is a girl and not a boy since I think girls have more

options with clothing! (I have two boys and another girl, all without

clubfeet.)

BTW, your questions are not silly. I had the same ones when I was at the stage

you are. is now 8 months old and the DBB is basically a non-issue since

it is just part of our routine and we have lots of clothing which is

DBB-friendly. You will, too!

Carol

Clothing Question

I am registering for my baby shower in the next couple of weeks and

not sure what to do about the clothing situation....Will the baby wear

normal clothes over the casts???What do you buy? What about when they

are in the DBB???

I know it sounds silly, but how do I dress my baby girl?

July 9, 2006

As Anne mentioned, sleep sacks are great. When the baby is little, they have

the ones which act as the whole pajamas. Once the baby gets older, I highly

recommend the Halo sleep sacks. Register for some of those, as they are pricey.

Get the larger ones, since they will last longer. They look huge but the baby

grows quickly! Get the lightweight ones, since you can always dress the baby in

something warm under it and use them year round. is in a size large Halo

sleep sack and we love them! I put her in a onesie or a shortie pajama with a

snap crotch and then put the sleep sack on her. She still sleeps with me in bed

so this is more for my comfort (not getting banged by the shoes in the middle of

the night) than for her warmth.