Re: Re: Questions regarding tubes -

[Guest guest]

Dawna

And how about closer to me??? that would be the best of the bonuses.

Debby {who has lost my cut and paste of exclamation marks

AGAIN.....?????}

Re: Questions regarding tubes -

> ... what kind of supplemental drink do you give him? Geese

> I'm thinking I need to move to southern Ontario to get closer to Dr.

> H. and New York... or at least closer to the specialists down there

> in Ontario. You know it wouldn't be so bad being closer to my family

> too!

>

> Dawna

>

>

>

> > > > > Hi all,

> > > > > I have a few questions about feeding tubes. It seems that

> > most

> > > of

> > > > > the kids have them. Can you tell me at what point they seem

> > to

> > > > need

> > > > > them? Our Ped wasn't following Noah that closely (will be

> now

> > > and

> > > > > I'm considering changing ... took me 3 mos to get the

> > chomosome 7

> > > > > results that I'm sure were sitting there that long).

> > > > >

> > > > > Noah has never been sick and in hospital, he seems to eat but

> > > it's

> > > > > not much at a time, I'm getting really worried that we aren't

> > > > doing

> > > > > enough except at the same time I'm worried that he will need

> a

> > > > tube.

> > > > > Do you know what I mean? We were worried lately about

> > > > hypoglycemia

> > > > > he's always been a sweaty little guy (but then my others are

> > too)

> > > > and

> > > > > lately he started waking in the night ... we've been giving

> > him

> > > > milk

> > > > > not knowing if it was his sugars or if it was just

> > behavoural.

> > > > Also

> > > > > since finding more info about RSS from here and Magic, I

> > started

> > > > > putting a little corn starch in his milk before bed.

> > > > >

> > > > > I'm hoping the endocrinologist will shed some light next week

> > > when

> > > > we

> > > > > go cause we don't see the ped until november. I'm also going

> > to

> > > > ask

> > > > > about that drug that starts with P for appetite. Sorry not

> up

> > on

> > > > all

> > > > > the names yet. I'm going to see if he'll check Noah's sugar

> > when

> > > > he

> > > > > does the other testing. We haven't been to the ped since the

> > > > spring

> > > > > so I don't even know if NOah has gained weight or not.

> > > > >

> > > > > Do the kids eat too when they have tubes?

> > > > >

> > > > > Dawna

>

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