Re: Josiah's Surgery and Endo appointment

[Guest guest]

,

I am so glad that your appointments went so well! That's great that

it seems the donperidon is working already. I think it is very

normal to be nervous but glad that is happening at the same time ...

it is exactly how I've been feeling. It sounds like your endo is

right on track about the weight thing too! At our appointment when

the (newbie) doctor weighed Noah he only had his diaper on ... but it

was one of those stand on scales that had the weights (or whatever

they are) that they move across the top. When they weighed him the

next day on a digital stand on scale he had his clothes on. If they

are going back and forth from clothes to no clothes and I think even

from one scale to another it can mean differences. As long as he

weighs him again on the same scale with his clothes on it might be

ok?????.... Good luck with the blood sugar issue ... had he just

eaten something?? something sugary? I don't know if that is still

too high even if he just had, but hopefully they will figure that

out. I know it does go up awfully quick though cause Noah's went

from 3.9 to 5.9 with a few ounces of apple juice in 15 mins. (I'm not

exactly sure how that works .... if it was just the apple juice or

the minigo and crackers that he had too which didn't take effect the

first time they checked when it had gone from 3.4 to 3.9) Good luck

and keep us posted!

Dawna

>

> Josiah's test went very well on Tuesday....he was very cooperative

> during the whole test for delayed gastric emptying. I talked to the

> GI doc and even without results she has decided to put him on

> donperidon to empty his stomach faster, which he started taking

last

> night and I did notice today that he was a bit more interested in

> eating so that is a good sign that we are moving in the right

> direction. She did some looking and found that donperidon does go

> into the breast milk so Josiah was getting that drug through me

until

> I weaned him 3 weeks ago....who knew how much it was helping him.

>

> Josiah saw the surgeon in the afternoon and they have decided to go

> ahead with the G-Tube placement surgery. They have it tentatively

> booked for next friday the 28th, so a week today. I am glad they

were

> able to get him in so quickly but now I am nervous about the whole

> thing....I guess that is normal. We are busy now making plans and

> rearranging appointments so that nothing will be missed.

>

> We saw the endocrinologist on Thursday and he is pleased with the

> growth Josiah has had since he had his feeding tube placed (even

> though he has had a loss in the last couple of weeks) so has

decided

> to put the growth hormone issue aside for now until he stops

growing

> as much on his own, we will revisit the idea in 4 months depending

on

> his growth between now and then. My one concern is that he weighed

> Josiah fully clothed and with a diaper on....he weighed 1 1/2

pounds

> more than he did 24 hours before....Josiah has always been weighed

> without clothes.....do all the endocrinologists do it that way????

let

> me know all you guys out there. He was very concerned that Josiah

> has been showing signs of hypoglycemia (low blood sugar) and he is

> wanting to get that sorted out right away. He set us up with a

> glucose monitor and we are to randomly test his levels to get a

> clearer picture of what is going on. I have tested it a few times

> today and it has ranged from 13.1 to 4.8 (Normal in Canada is 4 -

> 7.9) I called the endocrinologist on call because this seemed odd

to

> me, she was very concerned and if it continues to be high I am to

> call her and she will do some further investigating. What more can

we

> throw in here???

>

> Next week will be busy with pre-op on either Tuesday or Wednesday

and

> then he will be admitted on Thursday for his surgery Friday at 11

am.

> The surgeon is expecting him to stay for 4 days, because we are

> familiar with the feeding tube already we won't have as much to

learn

> when he gets the new one. It will be good to have this done and

over

> with.

>

> Just wanted to give an update....sorry it is so long

>

> R

> Mom to Josiah 29 months RSS NG Tube

>

[Guest guest]

,

Hi. Do you mind me asking what is donperidon? I was just wandering if

it is something that could also help my daughter, thanks

Reah and Chloe:)

Dawna wrote:

,

I am so glad that your appointments went so well! That's great that

it seems the donperidon is working already. I think it is very

normal to be nervous but glad that is happening at the same time ...

it is exactly how I've been feeling. It sounds like your endo is

right on track about the weight thing too! At our appointment when

the (newbie) doctor weighed Noah he only had his diaper on ... but it

was one of those stand on scales that had the weights (or whatever

they are) that they move across the top. When they weighed him the

next day on a digital stand on scale he had his clothes on. If they

are going back and forth from clothes to no clothes and I think even

from one scale to another it can mean differences. As long as he

weighs him again on the same scale with his clothes on it might be

ok?????.... Good luck with the blood sugar issue ... had he just

eaten something?? something sugary? I don't know if that is still

too high even if he just had, but hopefully they will figure that

out. I know it does go up awfully quick though cause Noah's went

from 3.9 to 5.9 with a few ounces of apple juice in 15 mins. (I'm not

exactly sure how that works .... if it was just the apple juice or

the minigo and crackers that he had too which didn't take effect the

first time they checked when it had gone from 3.4 to 3.9) Good luck

and keep us posted!

Dawna

>

> Josiah's test went very well on Tuesday....he was very cooperative

> during the whole test for delayed gastric emptying. I talked to the

> GI doc and even without results she has decided to put him on

> donperidon to empty his stomach faster, which he started taking

last

> night and I did notice today that he was a bit more interested in

> eating so that is a good sign that we are moving in the right

> direction. She did some looking and found that donperidon does go

> into the breast milk so Josiah was getting that drug through me

until

> I weaned him 3 weeks ago....who knew how much it was helping him.

>

> Josiah saw the surgeon in the afternoon and they have decided to go

> ahead with the G-Tube placement surgery. They have it tentatively

> booked for next friday the 28th, so a week today. I am glad they

were

> able to get him in so quickly but now I am nervous about the whole

> thing....I guess that is normal. We are busy now making plans and

> rearranging appointments so that nothing will be missed.

>

> We saw the endocrinologist on Thursday and he is pleased with the

> growth Josiah has had since he had his feeding tube placed (even

> though he has had a loss in the last couple of weeks) so has

decided

> to put the growth hormone issue aside for now until he stops

growing

> as much on his own, we will revisit the idea in 4 months depending

on

> his growth between now and then. My one concern is that he weighed

> Josiah fully clothed and with a diaper on....he weighed 1 1/2

pounds

> more than he did 24 hours before....Josiah has always been weighed

> without clothes.....do all the endocrinologists do it that way????

let

> me know all you guys out there. He was very concerned that Josiah

> has been showing signs of hypoglycemia (low blood sugar) and he is

> wanting to get that sorted out right away. He set us up with a

> glucose monitor and we are to randomly test his levels to get a

> clearer picture of what is going on. I have tested it a few times

> today and it has ranged from 13.1 to 4.8 (Normal in Canada is 4 -

> 7.9) I called the endocrinologist on call because this seemed odd

to

> me, she was very concerned and if it continues to be high I am to

> call her and she will do some further investigating. What more can

we

> throw in here???

>

> Next week will be busy with pre-op on either Tuesday or Wednesday

and

> then he will be admitted on Thursday for his surgery Friday at 11

am.

> The surgeon is expecting him to stay for 4 days, because we are

> familiar with the feeding tube already we won't have as much to

learn

> when he gets the new one. It will be good to have this done and

over

> with.

>

> Just wanted to give an update....sorry it is so long

>

> R

> Mom to Josiah 29 months RSS NG Tube

>