Re: My son - no longer 23/7!!

[Guest guest]

Hi all,

Philip, that would be lovely - we're in Cookstown, but I'm still off

work so I can get out and about.

We were in Musgrave yesterday and is now in reduced hours

in the FAB - yippee!! His consultant is very pleased with his

progress and he had a hip x-ray as well yesterday which was

perfect. It's great to reach this point - it all seems like various

milestones we set ourselves. I said to Miss Duffy about

staying in the boots until he is 3 1/2 or 4 and she said that if we

could do it then good for us! I'll try not to cross that bridge

before we come to it (honestly, I will try!).

Take care,

Ruth

> >

> > Ruth

> >

> > Good to see you found this site. Our son Josh was born 4 years

ago

> with

> > bilateral talipes and we live in Northern Ireland.

Unfortunately

> for us at

> > that time there were no trained Ponsetti practitioners within

> Northern

> > Ireland. A couple of consultants were considering it at the

time,

>

> > Duffy (RVH) and Mr Laverick (Ulster) but had never actually

> treated any

> > kids. We took the decision to go and see Gavin De Kiewiet

> (Sunderland) who

> > was one of only two Consultants in UK recommended by Dr Ponsetti

> on his web

> > site. We travelled weekly for castings to Sunderland for 4

> months, he then

> > had a tenotomy, needed an Achilles lengthening procedure and was

> wearing

> > boots and bar for 3 years. He is now out of the boots and bar

and

> we now

> > travel for reviews every 3-6 months. Josh is doing very well

and

> it is

> > unlikely you could tell that there was ever anything wrong with

> his feet.

> > We were fortunate enough to attend a Ponsetti Conference in

> Manchester last

> > year were Fred Dietz (Iowa) was speaking, he examined Josh's

feet

> and was

> > very encouraging in his assessment of how Josh was doing.

> >

> > I would say it was probably nearer 10 months or so before we had

> Josh out

> > most of the day. We started off letting him out of the brace

for

> 1 or 2

> > hours, then he only wore it at nights and sleeps when he was

> commencing to

> > try and walk. If I could give you any advice it would be to

> ensure that the

> > bar is the correct length as we had some problems at the

beginning

> but once

> > we had the bar at the correct length Josh was more than hapy and

> didn't

> > cause many problems even when crawling around. He did have

really

> strong

> > tummy muscles and big strong legs due to the casts and bar.

> >

> > More than happy to answer any other questions, we know how hard

it

> can be.

> >

> > Philip & a-Anne

> >

> > My son

> >

> > My son was born on 04 November 2005 with bilateral

> > talipes. He started treatment at 10 days old in Musgrave Park

> > Hospital in Belfast as we live in Northern Ireland. We are very

> > lucky in that the hospital uses the Ponseti method as we would

> > really have had no alternative if it hadn't been this. The

> talipes

> > was not picked up during my pregnancy, so I have only been able

to

> > do all my research on the topic after was born. We

have

> > now reached the stage of reducing the hours from 23/24 and I

have

> > read with interest the messages that recommend that you don't

> reduce

> > too quickly as our doctor has said that we can now go to just

> night

> > time and nap time.

> >

> > I would appreciate any advice from more experienced parents and

> > would also ask if anyone has had problems with their babies'

> > toenails, particularly the big toe.

> >

> > My son is gorgeous & like everyone his dad & I want to do the

best

> > we can.

> >

> > I look forward to some good advice!

> >

> > Ruth

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Ruth

Glad to hear everything went well at your appointment and that

's hips are fine.

The kids are off for the next two weeks so maybe if it suits we

could meet up for a cup of coffee and have a chat. I was thinking

of Starbucks at Junction one, Antrim as it would be mid way; or can

you think or anywhere more suitable?

Best wishes

a-Anne

- In nosurgery4clubfoot , " rdadej2 "

wrote:

>

> Hi all,

>

> Philip, that would be lovely - we're in Cookstown, but I'm still

off

> work so I can get out and about.

>

> We were in Musgrave yesterday and is now in reduced hours

> in the FAB - yippee!! His consultant is very pleased with his

> progress and he had a hip x-ray as well yesterday which was

> perfect. It's great to reach this point - it all seems like

various

> milestones we set ourselves. I said to Miss Duffy about

> staying in the boots until he is 3 1/2 or 4 and she said that if

we

> could do it then good for us! I'll try not to cross that bridge

> before we come to it (honestly, I will try!).

>

> Take care,

>

> Ruth

>

>

>

> > >

> > > Ruth

> > >

> > > Good to see you found this site. Our son Josh was born 4 years

> ago

> > with

> > > bilateral talipes and we live in Northern Ireland.

> Unfortunately

> > for us at

> > > that time there were no trained Ponsetti practitioners within

> > Northern

> > > Ireland. A couple of consultants were considering it at the

> time,

> >

> > > Duffy (RVH) and Mr Laverick (Ulster) but had never actually

> > treated any

> > > kids. We took the decision to go and see Gavin De Kiewiet

> > (Sunderland) who

> > > was one of only two Consultants in UK recommended by Dr

Ponsetti

> > on his web

> > > site. We travelled weekly for castings to Sunderland for 4

> > months, he then

> > > had a tenotomy, needed an Achilles lengthening procedure and

was

> > wearing

> > > boots and bar for 3 years. He is now out of the boots and bar

> and

> > we now

> > > travel for reviews every 3-6 months. Josh is doing very well

> and

> > it is

> > > unlikely you could tell that there was ever anything wrong

with

> > his feet.

> > > We were fortunate enough to attend a Ponsetti Conference in

> > Manchester last

> > > year were Fred Dietz (Iowa) was speaking, he examined Josh's

> feet

> > and was

> > > very encouraging in his assessment of how Josh was doing.

> > >

> > > I would say it was probably nearer 10 months or so before we

had

> > Josh out

> > > most of the day. We started off letting him out of the brace

> for

> > 1 or 2

> > > hours, then he only wore it at nights and sleeps when he was

> > commencing to

> > > try and walk. If I could give you any advice it would be to

> > ensure that the

> > > bar is the correct length as we had some problems at the

> beginning

> > but once

> > > we had the bar at the correct length Josh was more than hapy

and

> > didn't

> > > cause many problems even when crawling around. He did have

> really

> > strong

> > > tummy muscles and big strong legs due to the casts and bar.

> > >

> > > More than happy to answer any other questions, we know how

hard

> it

> > can be.

> > >

> > > Philip & a-Anne

> > >

> > > My son

> > >

> > > My son was born on 04 November 2005 with bilateral

> > > talipes. He started treatment at 10 days old in Musgrave Park

> > > Hospital in Belfast as we live in Northern Ireland. We are

very

> > > lucky in that the hospital uses the Ponseti method as we would

> > > really have had no alternative if it hadn't been this. The

> > talipes

> > > was not picked up during my pregnancy, so I have only been

able

> to

> > > do all my research on the topic after was born. We

> have

> > > now reached the stage of reducing the hours from 23/24 and I

> have

> > > read with interest the messages that recommend that you don't

> > reduce

> > > too quickly as our doctor has said that we can now go to just

> > night

> > > time and nap time.

> > >

> > > I would appreciate any advice from more experienced parents

and

> > > would also ask if anyone has had problems with their babies'

> > > toenails, particularly the big toe.

> > >

> > > My son is gorgeous & like everyone his dad & I want to do the

> best

> > > we can.

> > >

> > > I look forward to some good advice!

> > >

> > > Ruth

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >