Re: Soft spots on recasts

April 3, 2006

one of my daughters casts did this. it was from the banging around with it. our

1st drs office did the same thing with recasting without the dr there. and YES

it is a no,no! i made them change lilee's when hers did that. even though they

told me it was ok. i still didnt trust them. so follow your gut instinct. if she

is being able to move her foot aorund, other than her toes, then yes, i would

get it rather reinforced, or changed! i would also mention to dr. ponseti when

you go to see him, and he'll send you home with an extra roll of plater, just in

case. he did this with us, as we live in oregon, but never had to use

it...almost did though. hope t his makes you feel a bit better!

Christee

Mother of...

*Josh~Learning/Speech Delays (9)

**Aspen~ Bilateral Metatarsus Adductus (6)

***Dylan~PTSD/Anxiety (4)

****Lilee~A-Typical UCF w/Plantaris ® & Metatarsus Adductus (L)

*P/M Brace 16-18/24.Struggling w/pressure sores (8 months)

Concidering Dobbs bar & braces

---------------------------------

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April 4, 2006

laura,

If they're half casts, to the knee they won't do jack sh*t to either

hold or correct your daughter's feet.

half casts do not work. knee high should never be used, even in

relapse or holding. She should have PROPER Ponseti full leg casts

like she (hopefully) did before. I'm sorry but... WHAT are they

thinking? how do they expect to hold abduction in a cast she can

turn her foot and leg around in? no way. Those casts should come off

and you need to DEMAND that she be casted per Ponseti. to the

groin, bent at knee 90 degrees and foot abducted to 70 degrees. thse

are the kind of casts you want.

you're loosing time here... sorry... really late for me here and

I'm not mincing words or playing PC tonight. Get those casts off,

and get her into proper relapse casts. They're messing with your

daughter's feet and that's wrong.

if they're casting her for relapse, the casts should be just like

they started with. What they think they're saving you or them with

these shoddy casts is beyond me. Just say NO to half/knee casts!

If the doc won't do it, let us find you one who knows what the heck

they're doing. jeez!!

Kori

apologies if this sounds strange.... I'm just frustrate seeing this

and I simply cannot hold my tongue.

At 08:54 PM 4/3/2006, you wrote:

>Hi all. We are still waiting to find out our appointment date with

>Dr. Ponseti. In the meantime, we continue with our local ortho.

>

>This weekend I discovered that Lily's casts, who was recast last week

>in knee high casts for relapse, were entirely soft on the heels and

>about half of the bottom of the foot. I couldn't get ahold of my

>ortho today and the casting people said it was no big deal and put

>fiberglass casting around the plaster to hold it. The casting people

>at Lily's ortho's office are sort of mavericks (they've cast her

>without the doctor present--I think that's a no-no). I believe it

>became soft from her banging them around (I am still nursing her and

>I may need a helmet to protect my face from her swinging cast while

>she nurses. smile. she just never stops moving). The casts are

>disintegrating from the top also--very pliable the first inch and a

>half or so.

>

>My questions are can they still be holding her in the correct

>position if they were soft enough for her to move her feet around?

>Has anyone had experience with fiberglass casting for reinforcement?

>Should I even pursue this with my ortho since I am leaving as soon as

>I can to Iowa City (ok this one is just opinion I know) or should I

>just wait through his possibly ineffective treatment? I just don't

>know if I am helping her at all with her relapse with these half

>casts anyway.

>

>I would appreciate any advice...

>

>, mother of Lily (4/15/05)

>

April 4, 2006

oh, sorry. told you it was late.. I see you're going to Iowa. that's good.

saw them off., soak them off. they won't do you any good and could

cause harm. better to let her relapse and get fixed by Dr. P than to

leave bad casts on. seriously... get them off.

Kori

At 01:07 AM 4/4/2006, you wrote:

>laura,

>

>If they're half casts, to the knee they won't do jack sh*t to either

>hold or correct your daughter's feet.

>

>half casts do not work. knee high should never be used, even in

>relapse or holding. She should have PROPER Ponseti full leg casts

>like she (hopefully) did before. I'm sorry but... WHAT are they

>thinking? how do they expect to hold abduction in a cast she can

>turn her foot and leg around in? no way. Those casts should come off

>and you need to DEMAND that she be casted per Ponseti. to the

>groin, bent at knee 90 degrees and foot abducted to 70 degrees. thse

>are the kind of casts you want.

>

>you're loosing time here... sorry... really late for me here and

>I'm not mincing words or playing PC tonight. Get those casts off,

>and get her into proper relapse casts. They're messing with your

>daughter's feet and that's wrong.

>

>if they're casting her for relapse, the casts should be just like

>they started with. What they think they're saving you or them with

>these shoddy casts is beyond me. Just say NO to half/knee casts!

>

>If the doc won't do it, let us find you one who knows what the heck

>they're doing. jeez!!

>

>Kori

>

>apologies if this sounds strange.... I'm just frustrate seeing this

>and I simply cannot hold my tongue.

>

> At 08:54 PM 4/3/2006, you wrote:

> >Hi all. We are still waiting to find out our appointment date with

> >Dr. Ponseti. In the meantime, we continue with our local ortho.

> >

> >This weekend I discovered that Lily's casts, who was recast last week

> >in knee high casts for relapse, were entirely soft on the heels and

> >about half of the bottom of the foot. I couldn't get ahold of my

> >ortho today and the casting people said it was no big deal and put

> >fiberglass casting around the plaster to hold it. The casting people

> >at Lily's ortho's office are sort of mavericks (they've cast her

> >without the doctor present--I think that's a no-no). I believe it

> >became soft from her banging them around (I am still nursing her and

> >I may need a helmet to protect my face from her swinging cast while

> >she nurses. smile. she just never stops moving). The casts are

> >disintegrating from the top also--very pliable the first inch and a

> >half or so.

> >

> >My questions are can they still be holding her in the correct

> >position if they were soft enough for her to move her feet around?

> >Has anyone had experience with fiberglass casting for reinforcement?

> >Should I even pursue this with my ortho since I am leaving as soon as

> >I can to Iowa City (ok this one is just opinion I know) or should I

> >just wait through his possibly ineffective treatment? I just don't

> >know if I am helping her at all with her relapse with these half

> >casts anyway.

> >

> >I would appreciate any advice...

> >

> >, mother of Lily (4/15/05)

> >

April 4, 2006

My daughter Kelsey was in her Ponseti method casts when she was 1 year old.

She had one going soft from banging it around and this is exactly what they did

for her as well. They wrapped the soft fiberglass around it and it worked

well. They did this with subsequent casts automatically so she could not

damage them.

Jenni

wrote: Hi all. We are still waiting to find

out our appointment date with

Dr. Ponseti. In the meantime, we continue with our local ortho.

This weekend I discovered that Lily's casts, who was recast last week

in knee high casts for relapse, were entirely soft on the heels and

about half of the bottom of the foot. I couldn't get ahold of my

ortho today and the casting people said it was no big deal and put

fiberglass casting around the plaster to hold it. The casting people

at Lily's ortho's office are sort of mavericks (they've cast her

without the doctor present--I think that's a no-no). I believe it

became soft from her banging them around (I am still nursing her and

I may need a helmet to protect my face from her swinging cast while

she nurses. smile. she just never stops moving). The casts are

disintegrating from the top also--very pliable the first inch and a

half or so.

My questions are can they still be holding her in the correct

position if they were soft enough for her to move her feet around?

Has anyone had experience with fiberglass casting for reinforcement?

Should I even pursue this with my ortho since I am leaving as soon as

I can to Iowa City (ok this one is just opinion I know) or should I

just wait through his possibly ineffective treatment? I just don't

know if I am helping her at all with her relapse with these half

casts anyway.

I would appreciate any advice...

, mother of Lily (4/15/05)

April 4, 2006

I missed the part about the half casts. UNfortunately, these will hot

really help with the relapse so personally, I would just take them off

until I could get to Iowa. I would be afraid that they would do more

harm than good.

Jenni

Hi all. We are still waiting to

find out our appointment date with

> Dr. Ponseti. In the meantime, we continue with our local ortho.

>

> This weekend I discovered that Lily's casts, who was recast last week

> in knee high casts for relapse, were entirely soft on the heels and

> about half of the bottom of the foot. I couldn't get ahold of my

> ortho today and the casting people said it was no big deal and put

> fiberglass casting around the plaster to hold it. The casting people

> at Lily's ortho's office are sort of mavericks (they've cast her

> without the doctor present--I think that's a no-no). I believe it

> became soft from her banging them around (I am still nursing her and

> I may need a helmet to protect my face from her swinging cast while

> she nurses. smile. she just never stops moving). The casts are

> disintegrating from the top also--very pliable the first inch and a

> half or so.

>

> My questions are can they still be holding her in the correct

> position if they were soft enough for her to move her feet around?

> Has anyone had experience with fiberglass casting for reinforcement?

> Should I even pursue this with my ortho since I am leaving as soon as

> I can to Iowa City (ok this one is just opinion I know) or should I

> just wait through his possibly ineffective treatment? I just don't

> know if I am helping her at all with her relapse with these half

> casts anyway.

>

> I would appreciate any advice...

>

> , mother of Lily (4/15/05)

>

April 4, 2006

Hi just wanted to add our experiences.

We too ended up changing doctors half way through our treatment to a fully

certified Ponseti doctor and had to wait a while to start treatment. On the

advice of our Ponseti certified doctor we took our son's casts off as we were

told bad casts are worse than no casts.

We ended up with 3 weeks out of casts as we were off on holiday and couldn't see

the doctor earier. I actually think time out helped us all. For me it gave me a

holiday with our little boy where we could treat him like any other 4 month old

and forget about the casts etc. Which I think helped me not mind at all when we

got back to the casting again. For him it gave his feet chance to relax and get

his skin back into tiptop condition and to let the slight swelling he had from

casting go down.

Anyhow as you can imagine after 3 weeks his feet had relapse quite a lot but I

felt happier knowing that when we started treatment again it would be the right

treatment and we'd already had 16 weeks of casts so with the proper treatment

his feet were fully corrected in a further 6/7 and this felt so quick. Also

every week was so exciting as I could see his feet improving so much that they

really whizzed by. I really urge you not to worry about taking those casts off

and letting your daughter's feet relapse if your going to see Dr Ponseti it will

all be OK in the end and by leaving them on you risk causing damage that might

not be fixable where as relapses are!

Also wanted to add on the soft cast part we had this as our son was that bit

older when he went back into casts. The plaster breaks quickly when they bash

their feet on the ground. Our casts were always covered in soft fibreglass but

this did nothing. We were also given extra soft fibreglass rolls to add if he

started to weaken them but this didn't really do anything once they started to

soften. The only way his casts would last a week (and I really needed them to as

our doctor was a 4 hour train ride away!) was to 'force' them to add about a

large pad of 6+ layers of plaster on the bottom of his foot especially around

his heel. I had to remind them every week as our doctor would do the Ponseti

casts and then let a nurse finish off with the soft fibreglass covering and this

is when I'd get the nurse to add the plaster pad. Although this isn't any help

with the casts you have now it might help when you get your proper casts as the

same thing is likely to happen if your

daughter is a feet basher!

Hope this helps

Kathy

wrote: Hi all. We are still waiting to find out

our appointment date with