Re: Advice needed- is it worth it?

[Guest guest]

I say keep them on for as long as possible and make the drive. I

drove 5 hours (10 hour round trip) to CT once a week and it was a

pain, but in retrospect I'm glad we did it. I think most of us feel

that we would much rather err on the side of inconvenience than

regret. Remember....this too shall pass

On 9/15/10, threedewitts <threedewitts@...> wrote:

> My twin boys got their docbands at 12 months. I never knew that was

> considered " late " until I read this board. They were both classified with

> mild to moderate plagio. One twin had more pronounced bossing in the

> forehead, the other had a flatter spot in the back.

> They got their helmets on June 17 and we've had no problems. They started

> on a two week fitting schedule but were switched to three weeks as of the

> last 2 visits.

> My problem is that we moved a 9 hour drive away from Cranial tech. It's a

> 1.5 hour plane ride. We moved due to financial hardship and we can't afford

> to make the trip back till next month. (The 17th of this month would be our

> 3 week appt.)

> My tech gave us the following two options: wear the helmets till the 24th

> of this month(she said that was the safest we could go without a fitting)

> and come in the first week of October for our final appointment and

> measurements. She said that they could wear them another 3 weeks after that

> and save a trip back because they'd be considered " graduated " . Our other

> option is to wear the helmets until the 24th of this month and then just be

> done with them. We wouldn't get the exit appointment and final measurements

> but we would be saved a trip.

> I want the final appointment to get results, but I don't know that it's

> worth it. I don't know how the boys will take being out of the helmets for

> a week to 10 days and then have to put them on again, especially at 15

> months old. I also wonder how much change we could expect in those final

> three weeks.

> Their heads have improved, although not perfect. They weren't very bad in

> the first place. I think one was 6mm assymetry and the other was 8mm at the

> beginning of treatment.

> We are just in a tight bind financially and the trip will cost us quite a

> bit. Even if we drive, it's so hard on the kids for such a length of time.

> I really want those final numbers. I don't know how much difference the

> last 3 weeks would make.

> What would you do? By they way, I haven't even told my husband because he

> would just quit on the 24th. He didn't want the helmets to begin with and

> only attended the first fitting.

> Sorry this in long and thanks in advance.

>

>

>

[Guest guest]

I agree. Otherwise you'll always be wondering if you do the right thing for your kids. Financial hardships put a burden on everyone but you'll get through it even though your husband might be upset for a little bit Sent from my Verizon Wireless BlackBerryFrom: Pullinger <elpullinger@...>Sender: Plagiocephaly Date: Wed, 15 Sep 2010 15:22:43 -0400<Plagiocephaly >Reply Plagiocephaly Subject: Re: Advice needed- is it worth it? I say keep them on for as long as possible and make the drive. Idrove 5 hours (10 hour round trip) to CT once a week and it was apain, but in retrospect I'm glad we did it. I think most of us feelthat we would much rather err on the side of inconvenience thanregret. Remember....this too shall pass :)On 9/15/10, threedewitts <threedewitts@...> wrote:> My twin boys got their docbands at 12 months. I never knew that was> considered " late " until I read this board. They were both classified with> mild to moderate plagio. One twin had more pronounced bossing in the> forehead, the other had a flatter spot in the back.> They got their helmets on June 17 and we've had no problems. They started> on a two week fitting schedule but were switched to three weeks as of the> last 2 visits.> My problem is that we moved a 9 hour drive away from Cranial tech. It's a> 1.5 hour plane ride. We moved due to financial hardship and we can't afford> to make the trip back till next month. (The 17th of this month would be our> 3 week appt.)> My tech gave us the following two options: wear the helmets till the 24th> of this month(she said that was the safest we could go without a fitting)> and come in the first week of October for our final appointment and> measurements. She said that they could wear them another 3 weeks after that> and save a trip back because they'd be considered " graduated " . Our other> option is to wear the helmets until the 24th of this month and then just be> done with them. We wouldn't get the exit appointment and final measurements> but we would be saved a trip.> I want the final appointment to get results, but I don't know that it's> worth it. I don't know how the boys will take being out of the helmets for> a week to 10 days and then have to put them on again, especially at 15> months old. I also wonder how much change we could expect in those final> three weeks.> Their heads have improved, although not perfect. They weren't very bad in> the first place. I think one was 6mm assymetry and the other was 8mm at the> beginning of treatment.> We are just in a tight bind financially and the trip will cost us quite a> bit. Even if we drive, it's so hard on the kids for such a length of time.> I really want those final numbers. I don't know how much difference the> last 3 weeks would make.> What would you do? By they way, I haven't even told my husband because he> would just quit on the 24th. He didn't want the helmets to begin with and> only attended the first fitting.> Sorry this in long and thanks in advance.> >>

[Guest guest]

Also, it is still possible to have a little growth spurt at 15

months. improved more than I thought he would after 16

months. If you can afford it, flying would be easier and better for

the children.

-Kathy

On 9/15/2010 12:22 PM, Pullinger wrote:

I say keep them on for as long as possible and make the

drive. I

drove 5 hours (10 hour round trip) to CT once a week and

it was a

pain, but in retrospect I'm glad we did it. I think most

of us feel

that we would much rather err on the side of inconvenience

than

regret. Remember....this too shall pass

On 9/15/10, threedewitts <threedewitts@...>

wrote:

> My twin boys got their docbands at 12 months. I never

knew that was

> considered "late" until I read this board. They were

both classified with

> mild to moderate plagio. One twin had more pronounced

bossing in the

> forehead, the other had a flatter spot in the back.

> They got their helmets on June 17 and we've had no

problems. They started

> on a two week fitting schedule but were switched to

three weeks as of the

> last 2 visits.

> My problem is that we moved a 9 hour drive away from

Cranial tech. It's a

> 1.5 hour plane ride. We moved due to financial

hardship and we can't afford

> to make the trip back till next month. (The 17th of

this month would be our

> 3 week appt.)

> My tech gave us the following two options: wear the

helmets till the 24th

> of this month(she said that was the safest we could

go without a fitting)

> and come in the first week of October for our final

appointment and

> measurements. She said that they could wear them

another 3 weeks after that

> and save a trip back because they'd be considered

"graduated". Our other

> option is to wear the helmets until the 24th of this

month and then just be

> done with them. We wouldn't get the exit appointment

and final measurements

> but we would be saved a trip.

> I want the final appointment to get results, but I

don't know that it's

> worth it. I don't know how the boys will take being

out of the helmets for

> a week to 10 days and then have to put them on again,

especially at 15

> months old. I also wonder how much change we could

expect in those final

> three weeks.

> Their heads have improved, although not perfect. They

weren't very bad in

> the first place. I think one was 6mm assymetry and

the other was 8mm at the

> beginning of treatment.

> We are just in a tight bind financially and the trip

will cost us quite a

> bit. Even if we drive, it's so hard on the kids for

such a length of time.

> I really want those final numbers. I don't know how

much difference the

> last 3 weeks would make.

> What would you do? By they way, I haven't even told

my husband because he

> would just quit on the 24th. He didn't want the

helmets to begin with and

> only attended the first fitting.

> Sorry this in long and thanks in advance.

>

>

>

[Guest guest]

I don't like the hiatus before a fitting. If their heads flex back

toward the parallelogram shape during that time, the final fitting

won't be as aggressive as it would have been otherwise, devaluing the

subsequent three weeks of wear. An unlikely scenario, perhaps, but

I've seen it firsthand with Clara.

Have you looked into these so-called " angel flights " ? Some rich dude

might just need you as an excuse to pollute the autumn air. Maybe

you could stick to the original plan.

Thad Launderville

town, VT

Clara age 2, STARband '10

On Sep 15, 2010, at 3:11 PM, threedewitts wrote:

> My problem is that we moved a 9 hour drive away from Cranial tech.

> It's a 1.5 hour plane ride. We moved due to financial hardship and

> we can't afford to make the trip back till next month. (The 17th

> of this month would be our 3 week appt.)

> My tech gave us the following two options: wear the helmets till

> the 24th of this month(she said that was the safest we could go

> without a fitting) and come in the first week of October for our

> final appointment and measurements. She said that they could wear

> them another 3 weeks after that and save a trip back because they'd

> be considered " graduated " . Our other option is to wear the helmets

> until the 24th of this month and then just be done with them.

[Guest guest]

I just wanted to mention that I don't really agree with Thad's theory about the

head flexing so much. I don't see a problem with having the band off. I'm not an

expert, but it doesn't seem to be the case based on my experience.

I would opt for doing the final appt and still keep the band on a few more

weeks. But from what you wrote this won't work for you - right (no $ for flight

till next month?). If that is the case keep it on till the 24th, and do the trip

when you can. They if they can adjust it properly (it still fits okay) you can

wear it a few more weeks.

-christine

sydney, 4.5 yrs, starband grad

>

> > My problem is that we moved a 9 hour drive away from Cranial tech.

> > It's a 1.5 hour plane ride. We moved due to financial hardship and

> > we can't afford to make the trip back till next month. (The 17th

> > of this month would be our 3 week appt.)

> > My tech gave us the following two options: wear the helmets till

> > the 24th of this month(she said that was the safest we could go

> > without a fitting) and come in the first week of October for our

> > final appointment and measurements. She said that they could wear

> > them another 3 weeks after that and save a trip back because they'd

> > be considered " graduated " . Our other option is to wear the helmets

> > until the 24th of this month and then just be done with them.

>