Re: PLEASE SHARE YOUR STORY

[Guest guest]

I have read some old posts that other parents have used the Boppy Noggin Nest at

home for their babies with plagio. You could always search the old posts, FYI.

The Boppy website specifies that they are for the stroller, bouncer, or sling -

not for the crib or the carseat. I'm sure this is because of possible

suffocation. It seems to me that the only design that would not cause liability

issues would have to be something actually attached to the baby so he/she

couldn't roll face-first into it and smother- maybe a sleep band that's one size

fits all instead of custom like the plagio bands. I want to be paid if you use

that! Just joking : )

>

> I am with a small engineering company that is dedicated to creating a new

prevention method to be used in the NICU (and hopefully simple enough to use at

home once discharged) and we would like to know more about your experiences.

More specifically, when your child was in the NICU, what plagio prevention

procedures did you observe during your child's stay? What types of devices,

paddings, or cushions were used while they were in incubator? How did that

compare to the devices, paddings, or cushions used while kept in an open crib or

basinet(if any were used)? Your feedback would be very much appreciated!

>

[Guest guest]

Maybe it could be a broader group of babies, not just NICU babies. My twins were both over 7 lbs and luckily never had to be in the NICU. However my little man returned to the peds floor at 2 weeks old and stayed for 19 days on oxygen. If he was the only baby I had with plagio I would be more apt to blame his hospital stay for increasing his risk but unfortunately that is not the case. I would love to see a product out there though that was made available to all babies regardless of a NICU stay!

Jen

Re: PLEASE SHARE YOUR STORY

I have read some old posts that other parents have used the Boppy Noggin Nest at home for their babies with plagio. You could always search the old posts, FYI. The Boppy website specifies that they are for the stroller, bouncer, or sling - not for the crib or the carseat. I'm sure this is because of possible suffocation. It seems to me that the only design that would not cause liability issues would have to be something actually attached to the baby so he/she couldn't roll face-first into it and smother- maybe a sleep band that's one size fits all instead of custom like the plagio bands. I want to be paid if you use that! Just joking : )

>

> I am with a small engineering company that is dedicated to creating a new prevention method to be used in the NICU (and hopefully simple enough to use at home once discharged) and we would like to know more about your experiences. More specifically, when your child was in the NICU, what plagio prevention procedures did you observe during your child's stay? What types of devices, paddings, or cushions were used while they were in incubator? How did that compare to the devices, paddings, or cushions used while kept in an open crib or basinet(if any were used)? Your feedback would be very much appreciated!

>

[Guest guest]

We realized our son had plagiocephaly very early on, at about 3 weeks. Our

physical therapist recommended that we buy a Mimos pillow for him. The pillow

was expensive around $80.00; however, I think it has helped some. Our son is

now 4 months and growing out of the pillow but for the first 3 months it was

great. I used it in the cradle, swing, bouncy chair, and while he was laying

under the jungle gym. There are other products out there similar to the Mimos

pillow that are cheaper.

> >

> > I am with a small engineering company that is dedicated to creating a new

prevention method to be used in the NICU (and hopefully simple enough to use at

home once discharged) and we would like to know more about your experiences.

More specifically, when your child was in the NICU, what plagio prevention

procedures did you observe during your child's stay? What types of devices,

paddings, or cushions were used while they were in incubator? How did that

compare to the devices, paddings, or cushions used while kept in an open crib or

basinet(if any were used)? Your feedback would be very much appreciated!

> >

>

[Guest guest]

My daughter was born with mild torticollis which then caused mild plagio by 6

weeks old, no NICU at any time for us but we did use an incline positioner for

reflux. At the point of noticing her plagio I elevated the entire mattress and

started repositioning while she slept.

I did everything I could repositioning-wise to get her off the flat side of her

head. What worked the best for sleeping was to create a half pipe out of

blankets. Wedging up one shoulder/side was the common recommendation I got and

that would roll the babies off their flat spots...but my daughter would wiggle

off the blanket as soon as I put her down. So by creating the half pipe shape

her flat side was elevated and gravity pulled her head on to the non-flat side

AND she couldn't wiggle past the other side of the half pipe and lay flat again.

This worked great until about 5.5 months old when she just became too mobile to

stay in the half pipe and would wiggle over the side. Even when she began

wiggling in her sleep, I had made the half pipe the length of the crib so she

just wiggled up and down the hollow space so it really lasted quite awhile in

terms of effectiveness for us. My daughter's head improved from egg shaped

plagio to an oval shaped plagio and we now have the DOC Band to further improve

her head shape.

>

> I am with a small engineering company that is dedicated to creating a new

prevention method to be used in the NICU (and hopefully simple enough to use at

home once discharged) and we would like to know more about your experiences.

More specifically, when your child was in the NICU, what plagio prevention

procedures did you observe during your child's stay? What types of devices,

paddings, or cushions were used while they were in incubator? How did that

compare to the devices, paddings, or cushions used while kept in an open crib or

basinet(if any were used)? Your feedback would be very much appreciated!

>

[Guest guest]

I too have twins that had next to no NICU time (mere hours only) but both have

plagio. I would have loved to have something that may have helped their head

shape.

>

> I am with a small engineering company that is dedicated to creating a new

prevention method to be used in the NICU (and hopefully simple enough to use at

home once discharged) and we would like to know more about your experiences.

More specifically, when your child was in the NICU, what plagio prevention

procedures did you observe during your child's stay? What types of devices,

paddings, or cushions were used while they were in incubator? How did that

compare to the devices, paddings, or cushions used while kept in an open crib or

basinet(if any were used)? Your feedback would be very much appreciated!

>

[Guest guest]

Hi ! Believe it or not, that is in a nut shell what my team and I have

been working on for the past year! I honestly was not aware of this problem

(plagio) a year ago, and my fiance was the one who told me about it. She is a

NICU nurse and told me about the problem, so I started asking questions. From

her experience, she told me that there are devices used to prevent plagio while

they are in the incubator, but while they are moved into an open crib nothing is

used because of the guidelines in place for SIDS prevention. She said the main

procedure in place is position changing. With the help of a pediatric

development specialist, we got the idea to create a device that will attach to

the head so that it is not a SIDS risk while still allowing the head to move

freely. We plan to have different sizes for different ranges in circumference,

and they will be adjustable to ensure a snug fit. From our consultations, we

were led to believe that this was mainly a problem for pre-term infants. After

joining this group, I see that this is also a problem for full terms as well!

This is something we are definitely taking into consideration now!

> >

> > I am with a small engineering company that is dedicated to creating a new

prevention method to be used in the NICU (and hopefully simple enough to use at

home once discharged) and we would like to know more about your experiences.

More specifically, when your child was in the NICU, what plagio prevention

procedures did you observe during your child's stay? What types of devices,

paddings, or cushions were used while they were in incubator? How did that

compare to the devices, paddings, or cushions used while kept in an open crib or

basinet(if any were used)? Your feedback would be very much appreciated!

> >

>

[Guest guest]

Great minds think alike, lol! It's definately not just preemies. Very big babies

and multiples are at risk due to not having enough room to grow in the uterus.

Babies with difficult births can also be at risk. These situations can cause

torticollis (damaged/ short neck muscle on one side), which then causes the

plagiocephaly because the baby is most comfortable in one position with the ear

down on the side with the damaged/short neck muscle. Or, uterine packing can

cause the head to mold into an abnormal shape in the uterus even without the

neck muscle being damaged, and the abnormal shape can continue to worsen if the

baby is allowed to favor the flat spot after birth. The majority of cases are

found after the child leaves the hospital, so there is a big market for families

who want to prevent worsening of plagiocephaly in addition to prevention in the

hospital.

> > >

> > > I am with a small engineering company that is dedicated to creating a new

prevention method to be used in the NICU (and hopefully simple enough to use at

home once discharged) and we would like to know more about your experiences.

More specifically, when your child was in the NICU, what plagio prevention

procedures did you observe during your child's stay? What types of devices,

paddings, or cushions were used while they were in incubator? How did that

compare to the devices, paddings, or cushions used while kept in an open crib or

basinet(if any were used)? Your feedback would be very much appreciated!

> > >

> >

>

[Guest guest]

Hi,

It is wonderful that you are working on this! My boys were also

full term with a preference to turn right. I think big babies can

also be more at risk. For my boys, I think their neck problems

started before or during birth. We used a special pillow in the

crib with our older son since when we noticed the flat spot around 2

months. We used the same pillow with our second son since he came

home. This pillow obviously did not do enough. I threw it away, so

I cannot tell you the name.

Best,

Kathy

On 9/16/2010 10:48 PM, invictus.engineering wrote:

Hi ! Believe it or not, that is in a nut shell

what my team and I have been working on for the past year!

I honestly was not aware of this problem (plagio) a year

ago, and my fiance was the one who told me about it. She

is a NICU nurse and told me about the problem, so I

started asking questions. From her experience, she told me

that there are devices used to prevent plagio while they

are in the incubator, but while they are moved into an

open crib nothing is used because of the guidelines in

place for SIDS prevention. She said the main procedure in

place is position changing. With the help of a pediatric

development specialist, we got the idea to create a device

that will attach to the head so that it is not a SIDS risk

while still allowing the head to move freely. We plan to

have different sizes for different ranges in

circumference, and they will be adjustable to ensure a

snug fit. From our consultations, we were led to believe

that this was mainly a problem for pre-term infants. After

joining this group, I see that this is also a problem for

full terms as well! This is something we are definitely

taking into consideration now!

> >

> > I am with a small engineering company that is

dedicated to creating a new prevention method to be used

in the NICU (and hopefully simple enough to use at home

once discharged) and we would like to know more about your

experiences. More specifically, when your child was in the

NICU, what plagio prevention procedures did you observe

during your child's stay? What types of devices, paddings,

or cushions were used while they were in incubator? How

did that compare to the devices, paddings, or cushions

used while kept in an open crib or basinet(if any were

used)? Your feedback would be very much appreciated!

> >

>