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Re: Re: crappy news

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Thanks Leah

I am not pleased by this, and I am frustrated that I can't get to speak to

anyone live, Adam won't be on it for much longer; he'll be 13 in a couple of

weeks!! I noticed this week when school started, there is one boy in his

class that is shorter, but now that boy is WAY shorter than Adam. But he's

athletic when Adam isn't, and so this boy is " popular " when Adam isn't. But

he's kind of getting slightly closer to some of his smaller class mates. We

were on the track that I had been guaranteed he'd reach 5 feet.........now

who knows??? It's been hell (and you know the other stuff I have been

dealing with) and add to that returning to work?? I am at my wits end.

So thanks for the concern, I appreciate it. I still am remembering your endo

visit at the beginning of October. WE may BOTH be fighting for GH at the

same time!!!!

Debby

Re: crappy news

> Oh Debby,

>

> That's just insane after all you've been through! I still think

> it's crazy that have to re apply at all but for them not to give you

> any notice is just horrible. Hopefully Eli Lilly will be able to

> help you out!

>

> Leah

>

>

>

>> Hey all

>>

>> This week I returned to work, as a teacher, after a hectic summer.

> I went down to the Pharmacy to pick up a new patch of Adam's GH,

> only to discover my insurance is NOT COVERING IT.

>> My insurance company has yet to contact me either in writing or by

> phone to tell me this. My pharmacist called them to find out why

> they denied my coverage and he was told to TELL ME that I have to

> reapply again! We have been getting it for almost 5 years now.

>>

>> So I have emailed and faxed forms to the endo (who was on

> vacation; and is back now but he's not sure how long it will take

> him to get to the forms); I have emailed and phoned and voice mailed

> people at my insurance company to say this isn't fair, why wouldn't

> you give me ADVANCE notice and I would have gotten all this paper

> work done over the summer when I was sitting at HOME every day!

>>

>> Finally I have called, left voice mail and emailed Eli Lilly to

> see how soon (and if) they will put us back on their compassionate

> program (just in case my coverage is firmly denied this time or it

> takes several months to get the coverage back).

>> But Adam had his last needle last night and it wasn't even a full

> dose..............and as of right this minute I have no idea if or

> when he will get the GH again!!!!

>>

>> What a frustration!!

>>

>> Debby

>>

>>

>>

>>

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I wonder if anyone at MAGIC might be able to give some helpful advice for

this situation. Maybe you could give them a call sometime?

Inga

At 10:39 PM 9/9/2005 -0400, you wrote:

>Thanks Leah

>I am not pleased by this, and I am frustrated that I can't get to speak to

>anyone live, Adam won't be on it for much longer; he'll be 13 in a couple of

>weeks!! I noticed this week when school started, there is one boy in his

>class that is shorter, but now that boy is WAY shorter than Adam. But he's

>athletic when Adam isn't, and so this boy is " popular " when Adam isn't. But

>he's kind of getting slightly closer to some of his smaller class mates. We

>were on the track that I had been guaranteed he'd reach 5 feet.........now

>who knows??? It's been hell (and you know the other stuff I have been

>dealing with) and add to that returning to work?? I am at my wits end.

>

>So thanks for the concern, I appreciate it. I still am remembering your endo

>visit at the beginning of October. WE may BOTH be fighting for GH at the

>same time!!!!

>

>Debby

>

>

> Re: crappy news

>

>

>> Oh Debby,

>>

>> That's just insane after all you've been through! I still think

>> it's crazy that have to re apply at all but for them not to give you

>> any notice is just horrible. Hopefully Eli Lilly will be able to

>> help you out!

>>

>> Leah

>>

>>

>>

>>> Hey all

>>>

>>> This week I returned to work, as a teacher, after a hectic summer.

>> I went down to the Pharmacy to pick up a new patch of Adam's GH,

>> only to discover my insurance is NOT COVERING IT.

>>> My insurance company has yet to contact me either in writing or by

>> phone to tell me this. My pharmacist called them to find out why

>> they denied my coverage and he was told to TELL ME that I have to

>> reapply again! We have been getting it for almost 5 years now.

>>>

>>> So I have emailed and faxed forms to the endo (who was on

>> vacation; and is back now but he's not sure how long it will take

>> him to get to the forms); I have emailed and phoned and voice mailed

>> people at my insurance company to say this isn't fair, why wouldn't

>> you give me ADVANCE notice and I would have gotten all this paper

>> work done over the summer when I was sitting at HOME every day!

>>>

>>> Finally I have called, left voice mail and emailed Eli Lilly to

>> see how soon (and if) they will put us back on their compassionate

>> program (just in case my coverage is firmly denied this time or it

>> takes several months to get the coverage back).

>>> But Adam had his last needle last night and it wasn't even a full

>> dose..............and as of right this minute I have no idea if or

>> when he will get the GH again!!!!

>>>

>>> What a frustration!!

>>>

>>> Debby

>>>

>>>

>>>

>>>

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Thanks

I still think the company should notify people; there have been no changes

to contracts etc. UGH

I teach special ed in the elementary system. Oh it's a load of fun! LOL

Deb

Re: crappy news

> Debby - that's the problem with insurance companies. When their

> contracts expire or they change - the timing of getting the notice

> of change in insurance doesn't always get to the employer in a

> timely fashion. I'm not even sure where lines of communication fall

> with respect to letting individual insurers know of their changes.

> Sorry to hear of your news....it's great to know that Eli has a

> compasionate program though.

> What do you teach? You are looking at an admirer of teachers :).

>

> - H

>

>

>> Hey all

>>

>> This week I returned to work, as a teacher, after a hectic summer.

> I went down to the Pharmacy to pick up a new patch of Adam's GH,

> only to discover my insurance is NOT COVERING IT.

>> My insurance company has yet to contact me either in writing or by

> phone to tell me this. My pharmacist called them to find out why

> they denied my coverage and he was told to TELL ME that I have to

> reapply again! We have been getting it for almost 5 years now.

>>

>> So I have emailed and faxed forms to the endo (who was on

> vacation; and is back now but he's not sure how long it will take

> him to get to the forms); I have emailed and phoned and voice mailed

> people at my insurance company to say this isn't fair, why wouldn't

> you give me ADVANCE notice and I would have gotten all this paper

> work done over the summer when I was sitting at HOME every day!

>>

>> Finally I have called, left voice mail and emailed Eli Lilly to

> see how soon (and if) they will put us back on their compassionate

> program (just in case my coverage is firmly denied this time or it

> takes several months to get the coverage back).

>> But Adam had his last needle last night and it wasn't even a full

> dose..............and as of right this minute I have no idea if or

> when he will get the GH again!!!!

>>

>> What a frustration!!

>>

>> Debby

>>

>>

>>

>>

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Thanks for the idea Inga but I live in Canada, so our systems are so

different, I don't think Magic could be of much assistance. I just have to

keep my fingers crossed that at least one of the million people I have

emailed or left voice messages with; will call me back!

Deb

Re: crappy news

>>

>>

>>> Oh Debby,

>>>

>>> That's just insane after all you've been through! I still think

>>> it's crazy that have to re apply at all but for them not to give you

>>> any notice is just horrible. Hopefully Eli Lilly will be able to

>>> help you out!

>>>

>>> Leah

>>>

>>>

>>>

>>>> Hey all

>>>>

>>>> This week I returned to work, as a teacher, after a hectic summer.

>>> I went down to the Pharmacy to pick up a new patch of Adam's GH,

>>> only to discover my insurance is NOT COVERING IT.

>>>> My insurance company has yet to contact me either in writing or by

>>> phone to tell me this. My pharmacist called them to find out why

>>> they denied my coverage and he was told to TELL ME that I have to

>>> reapply again! We have been getting it for almost 5 years now.

>>>>

>>>> So I have emailed and faxed forms to the endo (who was on

>>> vacation; and is back now but he's not sure how long it will take

>>> him to get to the forms); I have emailed and phoned and voice mailed

>>> people at my insurance company to say this isn't fair, why wouldn't

>>> you give me ADVANCE notice and I would have gotten all this paper

>>> work done over the summer when I was sitting at HOME every day!

>>>>

>>>> Finally I have called, left voice mail and emailed Eli Lilly to

>>> see how soon (and if) they will put us back on their compassionate

>>> program (just in case my coverage is firmly denied this time or it

>>> takes several months to get the coverage back).

>>>> But Adam had his last needle last night and it wasn't even a full

>>> dose..............and as of right this minute I have no idea if or

>>> when he will get the GH again!!!!

>>>>

>>>> What a frustration!!

>>>>

>>>> Debby

>>>>

>>>>

>>>>

>>>>

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