(No subject)

[Guest guest]

raharris@... writes:

> So I wonder -- how many people

> have switched doctors, and for what reasons?

I've had a bunch of them over the last 20 years. I didn't have a problem

with any of them, although an HMO that I was a member of had me treated by

doctor that wasn't a rheumatologist... and that bastard ought to be in jail.

Here's my history:

Rheumy 1: He diagnosed my PA on an emergency basis. My PA came on VERY

quickly (within a couple months). As soon as he saw me, he sent me to the

hospital. He was an excellent doctor. Unfortunately, within a few months I

moved to another city to attend a 9-month rehabilitation program sponsored by

the state department of rehabilitation.

Rheumy 2: I saw him for 9 months while attending the rehabilitation program.

I don't remember too much about him, but I don't remember any complaints.

Basically, I continued taking drugs and he monitored my condition. After the

rehab program ended, I got a job in another city and moved.

Rheumy 3: I saw him for about 8 - 9 years until he retired. He was OK,

although in retrospect I wish that he had been a little more aggressive in

treating my PA. I think the quality of my life would have improved greatly

with only slightly more aggressive treatment.

Rheumy 4: I saw her for 1 - 2 years after Rheumy 3 retired. She seemed to be

OK, but I don't think I had enough experience with her to really judge. At

one point, I decided to move to a warmer climate, because of progressive

deterioration of my condition from year to year.

Bastard 1: I became a member of a well-known HMO and was assigned to a

'doctor' that I thought was a rheumatologist (the bastard had some kind of

certificate on his wall, written in Latin, that had a word that began with

'rheum..'), but it turned out that he wasn't. Due to physical injuries and

this bastard's incompetant treatment I developed fibromyalgia. When I was

eventually able to see through the fibrofog and realize that something was

wrong, I wrote a letter to the HMO demanding to be seen by a rheumatologist,

and to have a complete review of my medical condition. Consequently...

Rheumy 5: This guy has been pretty good. It's hard to judge, since he isn't

very talkative (he's definately not a " people person " ), but I'm back to

normal now. Indeed, I'm practically in remission. He's not perfect, but I

like him.

So....

I've had lots of rheumatologist, and I realy don't have any complaints about

any of them. I never changed any of them voluntarily. It was just a matter

of circumstances. Some were better than others. And a couple may have been

better than I got a chance to know. Based on what I've heard other people

say, I've guess I've been pretty lucky... except for that one bastard (who

wasn't a rheumatologist)!!!

Rick G

[Guest guest]

On Thu, 24 Jun 1999 14:13:08 -0700 (PDT), robert harris

<raharris@...> wrote:

>From: robert harris <raharris@...>

>

>All -- Hi --

>

>'s comment (copied below) got me to thinking --

>I have heard many PA and RA patients talking about

>their " original rheumy " or their " second rheumy " etc.,

>making me think that they, like her, decided at some

>point to switch docs. So I wonder -- how many people

>have switched doctors, and for what reasons? I am not

>incredibly happy w/ mine right now and am interested

>in hearing the experiences of others on the list --

>

I went for years before being diagnosed. I didn't have any insurance

at that time, and none of the doctors seemed to want to pursue it.

After I got insurance, I finally got a referral to a rheumatologist.

He diagnosed it right off. He was a really nice doc, the first doctor

that ever called me himself to ask how I was doing, but I think he had

just graduated, he exploded a syringe in my finger joint when he tried

to inject it. When he finally stopped the NSAIDS, after trying one

after the other for almost a year, he started me on asulfidine. My

liver levels went up, and I think he panicked, he sent me to another

doc for all kinds of blood tests and a Cat Scan. Cost a fortune, even

with insurance, and found nothing wrong. Then when I went in for my

next appointment, the people at the office he shared with other

doctors told me he had moved out of the state. LOL, hope I didn't

scare him off or anything. At that point I was pretty well fed up, and

I was in remission again anyway, so I just pretended I didn't have

arthritis.

About a year later, I found out that you ignore PA at your peril! It

hit in my fingers really bad, and the damage is permanent, short of

surgery, I'll never open or close those fingers again. I also had to

scramble to find another RD, and that's when I learned that it can

take a *long* time to get an appointment with a rheumatologist. That's

another reason why think my first RD was new, I got in to see him

right away. This one looked at all the tests and x rays the other guy

had ordered and said, " What were all these tests for? " He said that he

knew within 5 minutes of looking at me that I had PA. He also said

that the liver levels the other guy worried so much about weren't high

enough to justify all the fuss.

Anyway, he started me on MTX, increased it gradually until I'm up to

17.5 per week now. I've also recently added Imuran. Right now I'm

doing really well, but because I've had long periods of remission

before, I'm not sure how much of it is due to the medication.

Steve

http://www.zoomnet.net/~steve

[Guest guest]

,

I'm not happy with my rheumy right now myself. I've been having numbness and

painful tingling in my hands and feet for days. In additon, I have what

appears to be a boil-like sore on my lower gums, I went to the dentist, he is

perplexed. I also had to go to my OB because I had pain in my chest and

breasts and arm pits. Turns out to be swollen lymphnodes. I called my

rheumy at my pharacist's request, it took her three days to get back to me

and she said to give it another 3-4 weeks on my new dosages.

My first rheumy was here in town and he was BAD. He diagnosed me right off

the bat, said I was a classic case of PA. Then he got chicken on the dosages

and took me off of everything cold turkey, spinning me into a terrible mess!

I have never been so bad. So, they sent me to Stanford, where up until

today, I've been happy. I will be seeing a different doctor next month, and

I'm hoping with better results.

Amy

[Guest guest]

Hello everyone

I have had PA for 14 years and 3 Rds. When my present RD spent 1 hour

examining every nook and cranny of my body on the initial visit I realized I

had hit the Jackpot. In my case, this female RD has been the most thorough

and caring.

Gold injections worked great for my fingers and toes for a few years.

Then the PA started in my wrists and other joints and the Gold became

ineffective. I am now on Methotrexate 7.5mg starting dose and in 2months time

have reduced my sed rate from 43 to 23. Resting more while out of work most

likely is helping as STRESS is a big trigger for me.

I am extremely photosensitive on the Metho therefore need to cover-up

when in the sun. I picked up a booklet yesterday at the Rds on sun

precautions and products. The clothing is a bit costly but if needed worth

it. They also have the sunscreen containing the titanium dioxide that was

mentioned in a previous post. The web address is www.sunprecautions.com. I

have not visited this site yet as I have the booklet. I hope this helps

someone. Thanks for all your info.

Catja

[Guest guest]

Would you think it is better to replace the soy with something else?

[Guest guest]

i'd be tempted to start with zyme prime. www.houstonni.com

the soy may be a problem as its not very digestible.

is he not eating meat?

> Hi, I sent an email a few days ago, but did not get too many

responses. I

> want to start the enzymes on my son, but not sure which ones to

start with, His

> diet consists of bananas, cantaloupe, peanut butter cookies, Quaker

apple

> cereal bars, apples, and Mc/s French fries, juice, and soy

infant formula.

> Thanks and have a great weekend!

>

>

>

>

[Guest guest]

houstonni peptizyde may help with meat, eggs and milk.

it also sounds like there are yeast issues and disordered metals

transport.

as you get one improvement then you shoudl find that other things

like a larger diet improve.

with risperdal you will run into long term side effects sooner or

later that can create a future burden of care, fortunatley with

persistence and experiment things like enzymes and gse/oregano oil

etc for yeast work and selenium etc for minerals transport...

> Would you think it is better to replace the soy with something else?

>

>

>

>

[Guest guest]

We've found the almond drinks at Trader Joes to have equal amounts of vitamins,

and not the issues drinking soy has. We do allow soy in parts, but it is not

usually the main ingredient.

Re: Re: (no subject)

Would you think it is better to replace the soy with something else?

[Guest guest]

>>>> I read 's book and we ordered Peptizyde,HN Zymeprime and

No Fenol, ...Ok, How much Peptizyde, HN Zymeprime and No Fenol

should we start him in 2 wks from now? 3 times a day w/ each meal?

Start with one (I like Zyme Prime for starters) and give about 1/2

capsule with before meals, 2 meals the first day or so. Then give 1

capsule at all meals. After about 4-5 days if your child adjusts

fine, do the same with the Peptizyde going slowly. Peptizyde may

bring more withdrawal/adjustments than the Zyme Prime. After a week

of the Zyme plus Peptizyde and if all is going well, then do the

same with the No-Fenol. Since you have yeast, better start with

about 1/4 capsule of that. These are very general guidelines.

Post again when you are ready to start and note any changes. That is

helpful in determining how quickly to proceed. The first couple

weeks of adjustment is the squirrel-iest of all.

>>> We haven't tested him for yeast, but he definetely has it.

Should we start yeast treatment with the enzym or in 6mos?

The Peptizyde and No-Fenol may have a bigger impact in killing off

yeast than the Zyme Prime. Are you doing anything for yeast at the

moment? Any over-the-counter things or prescription? How were you

planning on treating yeast? The No-Fenol plus GSE is really

effective on yeast. You could start those at the same time.

>>>> We've read 'Heal thyself' by Dr.Jordan Rubin, and some parents

started using Goateen Milk (Grass Feed) with good result. Have you

read it? It's a good one.

I have this book. We started on the Garden of Life products and I

like them so far so good. The first part basically says why whole-

foods and nutrients are better for you than highly processed and

synthetic ones. The latter part is a rundown on which dozen herbs

are good for which conditions. But I have seen similar lists in

other books. They sell the Goatein here too. The naturopath said

that just about everyone who was intolerant of cow milk didn't have

a problem with the Goatein, and some on a GFCF diet used that too. I

haven't used it personally though.

.

[Guest guest]

Thank you for all the information, curently we are waiting for the shipment to

arrive.

Btw we haven't use anything for the yeast except Probiotics (Kirkman's

Pro-BioGold). Thanks Again.

--------- Original Message ---------

DATE: Sat, 14 Jun 2003 23:43:23

From: " jornmatt " <kjorn@...>

Cc:

The Peptizyde and No-Fenol may have a bigger impact in killing off

yeast than the Zyme Prime. Are you doing anything for yeast at the

moment? Any over-the-counter things or prescription? How were you

planning on treating yeast? The No-Fenol plus GSE is really

effective on yeast. You could start those at the same time.

.

[Guest guest]

Hello, my son is a mildly affected child. We started on all the Pep and

PrimeZyme first. We started with one cap from each for each meal. Really no

reaction there. I upped his dosaged to two caps and added the nophenol (2

caps). His reactions were mild. He exhibited some drunken walking, red cheeks,

and odd speech patterns. This lasted about a week for us. Now he seems fine.

He has been on these for a couple of months now and is making progress.

(no subject)

If the enzymes are going to work you will most likely have a reaction.

I started my son on Pep on Saturday and have not seen any type of reaction.

I only started him on 1/4 capsule and he has been gf/cf for 7 months. Does

this mean it won't work?

[Guest guest]

If you feel you must leave our group then hit Edit My Membership in

the upper right hand corner and choose the leave group option.

> My email address is ARNOLDFPS@a... I would like to cancel my

> subscription to this mailing list...could you please let me know

how I can do this?

>

> Thank you... Arnold

>

>

>

[Guest guest]

Fw: (no subject)

All drugs containing PHENYLPROPANOLAMINE

All drugs containing PHENYLPROPANOLAMINE are being

recalled. You may want to try calling the 800 number

listed on most drug boxes and inquire about a REFUND.

Please read this CAREFULLY. Also, please pass this on

to everyone you know.

STOP TAKING anything containing this ingredient. It

has been linked to increased hemorrhagic stroke

(bleeding in brain) among women ages 18-49 in the

three days after starting use of medication. Problems

were not found in men, but the FDA recommended that

everyone (even children) seek alternative medicine.

The following medications contain Phenylpropanolamine:

Acutrim Diet Gum Appetite Suppressant

Acutrim Plus Dietary Supplements

Acutrim Maximum Strength Appetite Control

Alka-Seltzer Plus Children's Cold Medicine

Effervescent

Alka-Seltzer Plus Cold medicine (cherry or orange)

Alka-Seltzer Plus Cold Medicine Original

Alka-Seltzer Plus Cold & Cough Medicine Effervescent

Alka-Seltzer Plus Cold & Flu Medicine

Alka-Seltzer Plus Cold & Sinus Effervescent

Alka Seltzer Plus Night-Time Cold Medicine

BC Allergy Sinus Cold Powder

BC Sinus Cold Powder

Comtrex Flu Therapy & Fever Relief

Day & Night Contac 12-Hour Cold Capsules

Contac 12 Hour Caplets

Coricidin D Cold, Flu & Sinus

Dexatrim Caffeine Free

Dexatrim Extended Duration

Dexatrim Gelcaps

Dexatrim Vitamin C/Caffeine Free

Dimetapp Cold & Allergy Chewable Tablets

Dimetapp Cold & Cough Liqui-Gels

Dimetapp DM Cold & Cough Elixir

Dimetapp Elixir

Dimetapp 4 Hour Liquid Gels

Dimetapp 4 Hour Tablets

Dimetapp 12 Hour Extentabs Tablets

Naldecon DX Pediatric Drops

Permathene Mega-16

Robitussin CF

Tavist-D 12 Hour Relief of Sinus & Nasal Congestion

Triaminic DM Cough Relief

Triaminic Expectorant Chest & Head

Triaminic Syrup Cold & Allergy

Triaminic Triaminicol Cold & Cough ....

I just found out and called the 800# on the container

for Triaminic and they informed me that they are

voluntarily recalling the following medicines because

of a certain ingredient that is causing strokes and

seizures in children:

Orange 3D Cold & Allergy Cherry (Pink)

3D Cold & Cough Berry

3D Cough Relief Yellow 3D Expectorant

They are asking you to call them at 800-548-3708 with

the lot number on the box so they can send you postage

for you to send it back to them, and they will also

issue you a refund.

If you know of anyone else with small children, PLEASE

PASS THIS ON. THIS IS SERIOUS STUFF!

DO PASS ALONG TO ALL ON YOUR MAILING LIST so people

are informed. They can then pass it along to their

families.

To confirm these findings please take time to check

the following:

URL: Phenylpropanolamine Information Page

http://www.fda.gov/cder/drug/infopage/ppa/default.htm

[Guest guest]

ROTFL! I think you just describes my house. lol.

It sounds like you are staying busy! Hope it calms down. Or that you

atleast continue to feel energized. I get like that too. I'll have a

million things to do on a regular basis yet I can thrive in that

environment for short periods of time. It's easy to burn out though.

So watch out!

a

> Hi all,

>

> Just got finished deleting 999 emails--I read 3 of them first. Oh

what a

> difference 2 weeks offline can make in the accumulation of

unanswered mail.

> Don't know if I will be able to keep up. But I really need to hear

what everyone

> has to say about what is going on because it helps me. So thanks

in advance.

>

> To all suffering from losses and setbacks, my sympathies and hugs.

I have

> typed 3 different messages just now trying to figure out what will

help. None

> seemed appropriate except that I'll keep you in my prayers.

>

> I am juggling way too much right now and yet I feel energized by

it. I am

> teaching school full time and working part time selling cars at

Carmax. They

> seem to balance each other out, with school being very stressful

and Carmax, a

> lot of fun. Carmax would be stressful if it was all I had, and I

love teaching

> too much to give it up. The biggest problem is not having time for

the

> family. They seem to be doing better without me right now. My

younger ones miss me

> the most.

>

> Now for my house.....I never realized how resourceful they would

become,

> decorating and applying interesting interior design techniques. My

beautiful wood

> floors have a new low luster glaze consisting of--oh--spilled milk

with

> highlights of Fruit Loops and last nights spaghetti sauce. My

rugs, once beige,

> currently have become two-toned. That is, those popular colors--

Dusty Dirt and

> Dripped Drink. Oh, and while I've been busy, they accessorized the

family

> room in Early 2003-2004 Paper with a touch of assorted Pokemon,

Beanie and

> Nintendo nick-nacks. The bedrooms are much the same, but I noticed

that most of

> the kids have new Late Mattress bedding. They have added unusual,

yet very

> natural end-product scented products in every bathroom and

redecorated in

> scum-toned tile. It's amazing what can be accomplished when I'm not

around.

>

> Hope all is well with the rest of you.

>

> Debbie in NC

[Guest guest]

Yes, as a matter of fact I DID have the antibiotic drip with both of my

children. And yes, I had a lot of Pitocin (18 hours' worth with my son -- turned

up

to the limit because it wasn't working -- while I was on the MAG as well as

the antibiotic; 15 hours of Pitocin, antibiotics but no MAG with my full-term

daughter; both have developmental problems). We then did the HEP B

innoculations for both children.

On top of that, my daughter had THREE shots at her six-week checkup. I

resisted but was brought nearly to tears by an insistant pediatrician who said

I'd

be exposing her to HORRIBLE THINGS if I didn't vaccinate her. The next day, she

developed a golf ball-sized lump on her forehead, the cause of which the

chief neurosurgeon at a major hospital could not diagnose and recommended a

ghastly cut-and-pull-her-face-down surgery. We opted against the surgery and the

lump has gone down -- or appeared to go down -- as she's grown and her head has

grown. She is very bright and a wonderful visual learner, but you can't have a

conversation with her. She repeats back entire books and episodes of TV shows,

but at nearly 4, has just begun to respond to simple questions.

My son is 6-1/2, very bright but suffers from sensory integration disorder,

major sensitivity to artificial dyes and flavorings and some preservatives, low

frustration tolerance, difficulty with transitions and some other social

problems.

I wonder if any other list members have had any similar experiences as with

either of my children? And if they have had any success with enzymes or other

therapies?

I'm so hopeful of straightening my son's system out. He's a wonderful, sweet

and bright child and I so want the best for him.

Thanks --

--Peggy

[Guest guest]

Hi:

The pre-eclampsia connection is one that has interested me a lot too. I

don't have any answers but I do think there are other factors in an

induction situation like yours that can be problematic for some kids. For

example, did you also have rounds of antibiotic drip w/the mag due to GBS

positive or any other condition? The antibiotic strips the child's gut of

the good bacteria of course and starts them off ready for the gut damage

that goes along w/spectrum conditions. If you then went on to give your

child the Hep B vaccine at birth.more trouble right there. I have also read

that pitocin at high levels is linked to neurological damage (cant find the

site right now). It is on my " list " to learn what other ingredients are in

pitocin other than the pitocin, if you catch my drift. Thing is the mag

drip SLOWS labor so anyone in an induction situation (especially such an

early one) w/the mag - is usally starting off from totally closed cervix and

in need of LOTS of pitocin to get things going.

It's an interesting subject to be sure!

Josie

And do you think there's any connection at all between the fact that I had

pre-eclampsia, delivered him at only eight months and was treated for 18

hours with IV magnesium sulfate just before giving birth?

[Guest guest]

I just felt compeled to respond to this post. I have often wondered

if the pitocin during delivery was part of the problem. I too was

on a pitocin drip for 18 hours with my son. We induced labor

because I had a severe case of PUPPS (rash linked to liver trouble

in mom...supposedly doesn't harm baby). We knew my son was big but

we tried to deliver naturally. I was on pitocin starting low and

worked up to the highest possible dose. Twice they had to call the

doctor to see if they could increase it. After 18 hours we ended up

with a c-section anyway along with the antibiotics. He didn't

receive any vaccinations in the hospital (that I am aware of). He

did develop thrush at about 1 week old. I do believe since then, he

has had some yeast and digestive issues. He had blood in stools at

6 weeks from the very small amount of dairy I was eating. After I

stopped nursing him we put him on a soy formula. He vomited so

much. The day we introduced solid foods, rice cereal, he stopped

sleeping through the night. Since we have begun dietary

intervention with my son things have greatly improved. He now is

sleeping much better and his language skills are developing.

Enzymes have begun to heal him. We have also started working with a

DAN Dr. and have begun implementing his suggestions. We started a

good multi-vitamin last week and we actually had 1 whole day with no

stimming. He began to spontaneously play with new toys and babbled

for the first time. I have such hope! By the way, my son is 2.4

months old and a wonderful, loving little boy! I do find this post

very interesting and wonder if others have had similar experiences.

>

> Yes, as a matter of fact I DID have the antibiotic drip with both

of my

> children. And yes, I had a lot of Pitocin (18 hours' worth with my

son -- turned up

> to the limit because it wasn't working -- while I was on the MAG

as well as

> the antibiotic; 15 hours of Pitocin, antibiotics but no MAG with

my full-term

> daughter; both have developmental problems). We then did the HEP B

> innoculations for both children.

>

> On top of that, my daughter had THREE shots at her six-week

checkup. I

> resisted but was brought nearly to tears by an insistant

pediatrician who said I'd

> be exposing her to HORRIBLE THINGS if I didn't vaccinate her. The

next day, she

> developed a golf ball-sized lump on her forehead, the cause of

which the

> chief neurosurgeon at a major hospital could not diagnose and

recommended a

> ghastly cut-and-pull-her-face-down surgery. We opted against the

surgery and the

> lump has gone down -- or appeared to go down -- as she's grown and

her head has

> grown. She is very bright and a wonderful visual learner, but you

can't have a

> conversation with her. She repeats back entire books and episodes

of TV shows,

> but at nearly 4, has just begun to respond to simple questions.

>

> My son is 6-1/2, very bright but suffers from sensory integration

disorder,

> major sensitivity to artificial dyes and flavorings and some

preservatives, low

> frustration tolerance, difficulty with transitions and some other

social

> problems.

>

> I wonder if any other list members have had any similar

experiences as with

> either of my children? And if they have had any success with

enzymes or other

> therapies?

>

> I'm so hopeful of straightening my son's system out. He's a

wonderful, sweet

> and bright child and I so want the best for him.

>

> Thanks --

>

> --Peggy

>

>

>

[Guest guest]

What was the multi-vitamin?

Becky

> >

> > Yes, as a matter of fact I DID have the antibiotic drip with both

> of my

> > children. And yes, I had a lot of Pitocin (18 hours' worth with

my

> son -- turned up

> > to the limit because it wasn't working -- while I was on the MAG

> as well as

> > the antibiotic; 15 hours of Pitocin, antibiotics but no MAG with

> my full-term

> > daughter; both have developmental problems). We then did the HEP

B

> > innoculations for both children.

> >

> > On top of that, my daughter had THREE shots at her six-week

> checkup. I

> > resisted but was brought nearly to tears by an insistant

> pediatrician who said I'd

> > be exposing her to HORRIBLE THINGS if I didn't vaccinate her. The

> next day, she

> > developed a golf ball-sized lump on her forehead, the cause of

> which the

> > chief neurosurgeon at a major hospital could not diagnose and

> recommended a

> > ghastly cut-and-pull-her-face-down surgery. We opted against the

> surgery and the

> > lump has gone down -- or appeared to go down -- as she's grown

and

> her head has

> > grown. She is very bright and a wonderful visual learner, but you

> can't have a

> > conversation with her. She repeats back entire books and episodes

> of TV shows,

> > but at nearly 4, has just begun to respond to simple questions.

> >

> > My son is 6-1/2, very bright but suffers from sensory integration

> disorder,

> > major sensitivity to artificial dyes and flavorings and some

> preservatives, low

> > frustration tolerance, difficulty with transitions and some other

> social

> > problems.

> >

> > I wonder if any other list members have had any similar

> experiences as with

> > either of my children? And if they have had any success with

> enzymes or other

> > therapies?

> >

> > I'm so hopeful of straightening my son's system out. He's a

> wonderful, sweet

> > and bright child and I so want the best for him.

> >

> > Thanks --

> >

> > --Peggy

> >

> >

> >

[Guest guest]

It is Child Essence by Integrative Therapeutics inc. They have a

website integrativeinc.com My son has been very sensitive to

supplements in the past and he seems to be responding well to

these. We have started off very slow and are working up to our

Dr.'s recommended dose of 3 capsules a day.

> > >

> > > Yes, as a matter of fact I DID have the antibiotic drip with

both

> > of my

> > > children. And yes, I had a lot of Pitocin (18 hours' worth

with

> my

> > son -- turned up

> > > to the limit because it wasn't working -- while I was on the

MAG

> > as well as

> > > the antibiotic; 15 hours of Pitocin, antibiotics but no MAG

with

> > my full-term

> > > daughter; both have developmental problems). We then did the

HEP

> B

> > > innoculations for both children.

> > >

> > > On top of that, my daughter had THREE shots at her six-week

> > checkup. I

> > > resisted but was brought nearly to tears by an insistant

> > pediatrician who said I'd

> > > be exposing her to HORRIBLE THINGS if I didn't vaccinate her.

The

> > next day, she

> > > developed a golf ball-sized lump on her forehead, the cause of

> > which the

> > > chief neurosurgeon at a major hospital could not diagnose and

> > recommended a

> > > ghastly cut-and-pull-her-face-down surgery. We opted against

the

> > surgery and the

> > > lump has gone down -- or appeared to go down -- as she's grown

> and

> > her head has

> > > grown. She is very bright and a wonderful visual learner, but

you

> > can't have a

> > > conversation with her. She repeats back entire books and

episodes

> > of TV shows,

> > > but at nearly 4, has just begun to respond to simple

questions.

> > >

> > > My son is 6-1/2, very bright but suffers from sensory

integration

> > disorder,

> > > major sensitivity to artificial dyes and flavorings and some

> > preservatives, low

> > > frustration tolerance, difficulty with transitions and some

other

> > social

> > > problems.

> > >

> > > I wonder if any other list members have had any similar

> > experiences as with

> > > either of my children? And if they have had any success with

> > enzymes or other

> > > therapies?

> > >

> > > I'm so hopeful of straightening my son's system out. He's a

> > wonderful, sweet

> > > and bright child and I so want the best for him.

> > >

> > > Thanks --

> > >

> > > --Peggy

> > >

> > >

> > >

[Guest guest]

Here is a new test that I had done on my children As you know I am a parent

and a researcher. With respect to pre-eclampsia, one of the leading theories

with respect to why it occurs has everything to do with protein metabolism and

the fact that the Mom does not have enough dietary intake or the body loses

its ability to digest the proteins. And indeed the protein in the urine is a

clue. This lab test looks at protein digestion in the kids.

Rich Ferris

ACM Medical Laboratory Offers New GEMTM Test Panel For Identification of

Gastroenterology Markers for Autism, ADD, and ADHD

Pervasive Developmental Disorder Facts:

· Autism is characterized by profound delays in communication and

social interaction and is thought to affect over 1.5 million individuals in

the U.S.

· ADD and ADHD have a prevalence of between 5% and 10% in the

population.

· It is estimated that upwards of 10% of the population is

medicated for some type of attention disorder.

According to U.S. Patent # 6,632,429 entitled Methods for Treating

Pervasive Developmental Disorders awarded to Dr. Joan Fallon, if low levels of

chymotrypsin are present in the stool, the use of digestive and pancreatic

enzymes

can serve as a treatment for children with these disorders.

Chymotrypsin is an enzyme secreted by the pancreas in an inactive form that

becomes active in the presence of protein in the small intestines as well as

a favorable pH. Without sufficient protein digestion, the formation of amino

acids, the building blocks of new proteins, cannot occur. The lack of

protein synthesis can underlie a significant neurological deficit in the child.

Fallon's patent indicates that the administration of digestive and

pancreatic enzymes may produce profound changes in the autistic symptomotology

including increases in social interactions, eye contact and speech and

reductions

in repetitive actions and hyperactivity. It further indicates changes in bowel

habits including an increase in bowel control and formed movements.

In the child with ADD and ADHD, the therapy may allow for a reduction of

medication levels the child is taking. The child may no longer need the

medication, based upon observed increases in attention.

" The patent recognizes a deficiency in the children with ADD, ADHD and

Autism, and offers a biological solution. Digestive and pancreatic enzymes have

been used safely and effectively for children and adults with cystic fibrosis

for many years, " said Dr. Fallon, inventor and patent holder. " I intend to

continue to refine the use of digestive and pancreatic enzymes for these and

other indications. This form of treatment opens new avenues for children and

adults with these debilitating conditions.â€

ACM Medical Laboratory now offers a test panel designed to screen for

intestinal antigens and quantitate fecal chymotrypsin levels.

Here’s how it works:

1. Interested parents or physicians may call (877) 863-5597 to order

the Gastroenterology Marker (GEM) Test Panel and Specimen Collection Kit.

The fee for the kit and test panel is $300 and includes the following:

* Specimen collection kit and instructions

* Return Shipping box and labels (prepaid)

* Fecal Chymotrypsin Test (2 tests)

* Fecal Fat Test (1 test)

* Cryptosporidium Antigen Test (1 test)

* H. Pylori Antigen Test (1 test)

* E. Histolytica Antigen Test (1 test)

* C. Difficile Antigen Test (1 test)

* Giardia Antigen Test (1 test)

* Adenovirus Antigen Test (1 test)

* Rotavirus Antigen Test (1 test)

2. Once the specimen collection kit is received at home, parents:

* Have physician sign the laboratory requisition

* Follow directions for collection and handling of fecal specimens

* Ship the specimens and requisitions in the preaddressed, prepaid

return FedEx shipper.

1. Once the specimens arrive at ACM, they are processed and tested.

1. Test results are faxed to the physician within 2 weeks of specimen

receipt

Call 877-863-5597

to order your Gastroenterology Markers (GEMTM)

Test Panel and Specimen Collection Kit

Look For Health is biotech company focused on the identification of

biomarkers for debilitating biological diseases including Autism, Attention

Deficit

Disorder (ADD), Attention Deficit Hyperactivity Disorder (ADHD) and other

diseases by using a totally new approach that targets gastrointestinal and

pancreatic secretion deficiencies. These deficiencies are thought to play a

role

in the pathology of a variety of diseases by altering the availability and

absorption of key amino acids and other compounds that are required for the

synthesis of neurotransmitters and other agents important for the proper

functioning of various organ systems including the Central Nervous System.

For more Information on identification of Gastroenterology Markers for

Autism, ADD, and

ADHD and patents related to

treating pervasive developmental

disorders, please visit

www.LookForHealth.com

Only a licensed physician or other qualified medical professional is

capable of determining the treatment options that are right for your child.

The

GEM tmTest panel is considered investigational and should not be used for

diagnosis alone. ACM takes no position as to the efficacy of the treatment

proposed in the referenced patents or by Look For Health nor does ACM take a

position as to the medical implications of the results of the GEMtm test panel.

ACM makes no claims regarding possible insurance reimbursement for the

Specimen Collection Kit and Gastroenterology Marker (GEM) Test Panel. It is

possible that your insurance company may deny claims submitted for these

tests.

ACM Medical Laboratory, Inc. 160 Elmgrove Park Rochester, NY 14624

_www.acmlab.com_ (http://www.acmlab.com/)

[Guest guest]

Very interesting indeed as one of the main factors in preeclampsia

prevention is eating TONS of protein. I came up borderline last time after

following the Bradley regimen where they suggest up to 85 grams/day and

ingesting what I thought was AMPLE protein.

Re: (no subject)

Here is a new test that I had done on my children As you know I am a parent

and a researcher. With respect to pre-eclampsia, one of the leading theories

with respect to why it occurs has everything to do with protein metabolism

and

the fact that the Mom does not have enough dietary intake or the body loses

its ability to digest the proteins. And indeed the protein in the urine is

a

clue. This lab test looks at protein digestion in the kids.

Rich Ferris

ACM Medical Laboratory Offers New GEMTM Test Panel For Identification of

Gastroenterology Markers for Autism, ADD, and ADHD

Pervasive Developmental Disorder Facts:

.. Autism is characterized by profound delays in communication and

social interaction and is thought to affect over 1.5 million individuals in

the U.S.

.. ADD and ADHD have a prevalence of between 5% and 10% in the

population.

.. It is estimated that upwards of 10% of the population is

medicated for some type of attention disorder.

According to U.S. Patent # 6,632,429 entitled Methods for Treating

Pervasive Developmental Disorders awarded to Dr. Joan Fallon, if low levels

of

chymotrypsin are present in the stool, the use of digestive and pancreatic

enzymes

can serve as a treatment for children with these disorders.

Chymotrypsin is an enzyme secreted by the pancreas in an inactive form that

becomes active in the presence of protein in the small intestines as well

as

a favorable pH. Without sufficient protein digestion, the formation of

amino

acids, the building blocks of new proteins, cannot occur. The lack of

protein synthesis can underlie a significant neurological deficit in the

child.

Fallon's patent indicates that the administration of digestive and

pancreatic enzymes may produce profound changes in the autistic

symptomotology

including increases in social interactions, eye contact and speech and

reductions

in repetitive actions and hyperactivity. It further indicates changes in

bowel

habits including an increase in bowel control and formed movements.

In the child with ADD and ADHD, the therapy may allow for a reduction of

medication levels the child is taking. The child may no longer need the

medication, based upon observed increases in attention.

" The patent recognizes a deficiency in the children with ADD, ADHD and

Autism, and offers a biological solution. Digestive and pancreatic enzymes

have

been used safely and effectively for children and adults with cystic

fibrosis

for many years, " said Dr. Fallon, inventor and patent holder. " I intend to

continue to refine the use of digestive and pancreatic enzymes for these

and

other indications. This form of treatment opens new avenues for children

and

adults with these debilitating conditions. "

ACM Medical Laboratory now offers a test panel designed to screen for

intestinal antigens and quantitate fecal chymotrypsin levels.

Here's how it works:

1. Interested parents or physicians may call (877) 863-5597 to order

the Gastroenterology Marker (GEM) Test Panel and Specimen Collection Kit.

The fee for the kit and test panel is $300 and includes the following:

* Specimen collection kit and instructions

* Return Shipping box and labels (prepaid)

* Fecal Chymotrypsin Test (2 tests)

* Fecal Fat Test (1 test)

* Cryptosporidium Antigen Test (1 test)

* H. Pylori Antigen Test (1 test)

* E. Histolytica Antigen Test (1 test)

* C. Difficile Antigen Test (1 test)

* Giardia Antigen Test (1 test)

* Adenovirus Antigen Test (1 test)

* Rotavirus Antigen Test (1 test)

2. Once the specimen collection kit is received at home, parents:

* Have physician sign the laboratory requisition

* Follow directions for collection and handling of fecal specimens

* Ship the specimens and requisitions in the preaddressed, prepaid

return FedEx shipper.

1. Once the specimens arrive at ACM, they are processed and tested.

1. Test results are faxed to the physician within 2 weeks of specimen

receipt

Call 877-863-5597

to order your Gastroenterology Markers (GEMTM)

Test Panel and Specimen Collection Kit

Look For Health is biotech company focused on the identification of

biomarkers for debilitating biological diseases including Autism, Attention

Deficit

Disorder (ADD), Attention Deficit Hyperactivity Disorder (ADHD) and other

diseases by using a totally new approach that targets gastrointestinal and

pancreatic secretion deficiencies. These deficiencies are thought to play a

role

in the pathology of a variety of diseases by altering the availability and

absorption of key amino acids and other compounds that are required for the

synthesis of neurotransmitters and other agents important for the proper

functioning of various organ systems including the Central Nervous System.

For more Information on identification of Gastroenterology Markers for

Autism, ADD, and

ADHD and patents related to

treating pervasive developmental

disorders, please visit

www.LookForHealth.com

Only a licensed physician or other qualified medical professional is

capable of determining the treatment options that are right for your child.

The

GEM tmTest panel is considered investigational and should not be used for

diagnosis alone. ACM takes no position as to the efficacy of the treatment

proposed in the referenced patents or by Look For Health nor does ACM take

a

position as to the medical implications of the results of the GEMtm test

panel.

ACM makes no claims regarding possible insurance reimbursement for the

Specimen Collection Kit and Gastroenterology Marker (GEM) Test Panel. It

is

possible that your insurance company may deny claims submitted for these

tests.

ACM Medical Laboratory, Inc. 160 Elmgrove Park Rochester, NY 14624

_www.acmlab.com_ (http://www.acmlab.com/)

[Guest guest]

me too, but my arms are sore. i am going to work tomorrow but gonna take

friday off. i need to rest my arms

kathy in il

[Guest guest]

Kathy,....glad you made you doc's visit today. I will keep you in my

prayers, Tawny

> well i just had my visit to my rheumi, i am tight and have tennis

elbow

> again. i opted to try physical therapy before an injection in my

elbow. i wrote my

> dad and told him to quit being a copycat. first he gets glaucoma, 4

yrs after

> me, now plantar fascitis and he had the cortisone injection in his

heel

>

>

> kathy in il

>

>

>

[Guest guest]

Tawny, when is your appointment with your rheumy? You've waited such a

long time. Hope it doesn't get postponed by snow this time. Sue

On Wednesday, January 19, 2005, at 04:27 PM, tdianaok wrote:

>

> Kathy,....glad you made you doc's visit today. I will keep you in my

> prayers, Tawny

[Guest guest]

Shirley:

I am so sorry that you have been having such severe

problems with your RA. I am sending prayers and hugs

your way.

Kathe in CA

--- Edmis3@... wrote:

> Dear Friends in the RA group:

>

> Just a note to all of you as I need your prayers,

> the ole RA is affecting my

> heart and lungs and has been for over a year now. I

> just had the pleural

> space of my left lung drained while in a CT scanner

> and a CT of my heart

> yesterday at the hospital. I have pericarditis and

> rheumatoid lung. The fluid gives

> me pain in my upper back and I cough and am short

> of air and the pericarditis

> gives me chest pains and I have had it for several

> months now. I know this

> to will pass as it hasn't been continuous. I had

> sepsis infection in January

> and was in the Poudre Valley hospital in Ft.

> Colorado for nine days in

> ICU, I almost didn't make it my blood pressure was

> 53/32 and they told my

> family if I had waited until morning I would not

> have made it. Please pray for me

> and my problems. Also my RA is out of control and I

> have really been hurting

> as I have been on high doses of prednisone because

> of the fluid and heart

> problem and they are now bumping me down and when I

> dropped to 30 on Monday I got

> really bad. I would appreciate hearing from anyone

> in the group about these

> current problems I am having. I love this group and

> I don't get to post to

> often but I read most all of the posts daily.

>

> Hoping to hear from anyone in the group.

>

> Love and Prayers

> Shirley

> Edmis3@...

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe in CA

____________________________________________________

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