Re: Visit with Dr.Harbison

July 12, 2005

hey jamie!!

glad you had a very informative visit!!! now you know that tori is

most definitely rss and what your next steps will be!! great job on

your fundraising too!! see you next week!! when do you arrive?

jodie c

July 12, 2005

-that is awesome, i am glad dr h is into her patients and will spend

5 hours with you!! me personally think we need that!! and to only

get annoyed a few times is great!! i can't wait until we meet her

next week, i am sad it is only 20 minutes!! kyla has 2 boils on her

butt now, so i am kind of anxious to know what they are on tori, if

you will let me know please?!?! anyway, congrats on the visit, i hope

you learned everythin you needed, and tell tori i am with her, i

would ne grumpy too walking that much, i am not that big on it my

self! (hence, for all of us that have sent emails, the weight!!) see

ya next week!! stephanei kyla 4 rss

-- In RSS-Support , " jamtorrss " <dolphingirls@e...>

wrote:

> We had our 5 hour long visit with Dr.H yesterday. I was surprised,

I

> expected in my mind some one different she is a wonderful person, a

> little offending she got on to me a couple of times for trying to

> help Tori with the toys. Tori's was a little grumpy, on sunday we

> walked from 42nd st to 102st back down to 98 crossed central park

to

> the west side and back up to 102nd where our hotel was.We took a

> taxi to the office on monday.

> Well she confrimed RSS

> SGA/IUGR

> She also siad to have tori tested for PDD and we have to start

> checking her Ketones in the mornings. Her blood prerseure was high

> 142/78 and 141/77 so we have to get that cked. She has to go back

to

> a gastro DR for malabsorbtion If she does not have that then DR.H

> will start her on cyproheptadine.

> She also said she may need feeding therapy. And can not get GH yet

> cuase of her weight. So she belives she has had a problem with

> hypergacemia for a while she said we may or may not get hat under

> control with it being so long that we did not know. She alsosent

out

> a culture of a boil that Tori has on her hip to see what it is.She

> really did not talk to us just asked questions and looked at tori

> then typed up a 7 pg paper and told us that we would get alot of

> info from the convention and when we come back to see her in 3

> months.

> So I think that is all. We got home late last night we had a

> fundraisnig party at tori's aunt work for the convention we got

> about$600.00 in cash and $300.00 to send to the Magic Foundation.

> Talk to you all later

> I did not go back on line before we left to havwe your #

> next time.

> mom to Tori RSS and everything eles now! nonrss ny

July 13, 2005

,

I've been waiting to see your post from your visit.

I'm glad you got a lot of answers, information and

help from Dr. H. She is wonderful. I know what you

mean about helping and get reprimanded by Dr. H. She

was all over the first visit and then at me.

during our first 3 hour visit must have said I

love you at least 20 times (literally) and after about

the 10th time Dr. H told her to knock it off and then

at me that I need to curb it. She thinks that it is

an anxiety thing which part probably is but at home we

say it to each other alot.

B

5 1/2 and Kelli 2 3/4

--- jamtorrss wrote:

> We had our 5 hour long visit with Dr.H yesterday. I

> was surprised, I

> expected in my mind some one different she is a

> wonderful person, a

> little offending she got on to me a couple of times

> for trying to

> help Tori with the toys. Tori's was a little

> grumpy, on sunday we

> walked from 42nd st to 102st back down to 98 crossed

> central park to

> the west side and back up to 102nd where our hotel

> was.We took a

> taxi to the office on monday.

> Well she confrimed RSS

> SGA/IUGR

> She also siad to have tori tested for PDD and we

> have to start

> checking her Ketones in the mornings. Her blood

> prerseure was high

> 142/78 and 141/77 so we have to get that cked. She

> has to go back to

> a gastro DR for malabsorbtion If she does not have

> that then DR.H

> will start her on cyproheptadine.

> She also said she may need feeding therapy. And can

> not get GH yet

> cuase of her weight. So she belives she has had a

> problem with

> hypergacemia for a while she said we may or may not

> get hat under

> control with it being so long that we did not know.

> She alsosent out

> a culture of a boil that Tori has on her hip to see

> what it is.She

> really did not talk to us just asked questions and

> looked at tori

> then typed up a 7 pg paper and told us that we would

> get alot of

> info from the convention and when we come back to

> see her in 3

> months.

> So I think that is all. We got home late last night

> we had a

> fundraisnig party at tori's aunt work for the

> convention we got

> about$600.00 in cash and $300.00 to send to the

> Magic Foundation.

> Talk to you all later

> I did not go back on line before we left

> to havwe your #

> next time.

> mom to Tori RSS and everything eles now!

> nonrss ny

>

__________________________________________________

July 13, 2005

I'm glad you got so much information! Yes, every since Dr. H went

electronic, it is such a pain!!! Before, she would spend hours

talking with you -- but everyone complained that she never gave you

a " visit summary " and they complained that she forgot data and lost

stuff. So she went and got computerized, but now it takes her so

long to enter everything into the computer, that you don't get to

talk to her as much -- but you get a visit summary!!!

Hmmm, I am not sure which is better.... Jenn

> We had our 5 hour long visit with Dr.H yesterday. I was surprised,

I

> expected in my mind some one different she is a wonderful person,

a

> little offending she got on to me a couple of times for trying to

> help Tori with the toys. Tori's was a little grumpy, on sunday we

> walked from 42nd st to 102st back down to 98 crossed central park

to

> the west side and back up to 102nd where our hotel was.We took a

> taxi to the office on monday.

> Well she confrimed RSS

> SGA/IUGR

> She also siad to have tori tested for PDD and we have to start

> checking her Ketones in the mornings. Her blood prerseure was high

> 142/78 and 141/77 so we have to get that cked. She has to go back

to

> a gastro DR for malabsorbtion If she does not have that then DR.H

> will start her on cyproheptadine.

> She also said she may need feeding therapy. And can not get GH yet

> cuase of her weight. So she belives she has had a problem with

> hypergacemia for a while she said we may or may not get hat under

> control with it being so long that we did not know. She alsosent

out

> a culture of a boil that Tori has on her hip to see what it is.She

> really did not talk to us just asked questions and looked at tori

> then typed up a 7 pg paper and told us that we would get alot of

> info from the convention and when we come back to see her in 3

> months.

> So I think that is all. We got home late last night we had a

> fundraisnig party at tori's aunt work for the convention we got

> about$600.00 in cash and $300.00 to send to the Magic Foundation.

> Talk to you all later

> I did not go back on line before we left to havwe your #

> next time.

> mom to Tori RSS and everything eles now! nonrss ny

July 13, 2005

Yea we had a good visit, can not wait to get more info from the convention.

[Norton AntiSpam] Re: Visit with Dr.Harbison

,

I've been waiting to see your post from your visit.

I'm glad you got a lot of answers, information and

help from Dr. H. She is wonderful. I know what you

mean about helping and get reprimanded by Dr. H. She

was all over the first visit and then at me.

during our first 3 hour visit must have said I

love you at least 20 times (literally) and after about

the 10th time Dr. H told her to knock it off and then

at me that I need to curb it. She thinks that it is

an anxiety thing which part probably is but at home we

say it to each other alot.

B

5 1/2 and Kelli 2 3/4

--- jamtorrss wrote:

> We had our 5 hour long visit with Dr.H yesterday. I

> was surprised, I

> expected in my mind some one different she is a

> wonderful person, a

> little offending she got on to me a couple of times

> for trying to

> help Tori with the toys. Tori's was a little

> grumpy, on sunday we

> walked from 42nd st to 102st back down to 98 crossed

> central park to

> the west side and back up to 102nd where our hotel

> was.We took a

> taxi to the office on monday.

> Well she confrimed RSS

> SGA/IUGR

> She also siad to have tori tested for PDD and we

> have to start

> checking her Ketones in the mornings. Her blood

> prerseure was high

> 142/78 and 141/77 so we have to get that cked. She

> has to go back to

> a gastro DR for malabsorbtion If she does not have

> that then DR.H

> will start her on cyproheptadine.

> She also said she may need feeding therapy. And can

> not get GH yet

> cuase of her weight. So she belives she has had a

> problem with

> hypergacemia for a while she said we may or may not

> get hat under

> control with it being so long that we did not know.

> She alsosent out

> a culture of a boil that Tori has on her hip to see

> what it is.She

> really did not talk to us just asked questions and

> looked at tori

> then typed up a 7 pg paper and told us that we would

> get alot of

> info from the convention and when we come back to

> see her in 3

> months.

> So I think that is all. We got home late last night

> we had a

> fundraisnig party at tori's aunt work for the

> convention we got

> about$600.00 in cash and $300.00 to send to the

> Magic Foundation.

> Talk to you all later

> I did not go back on line before we left

> to havwe your #

> next time.

> mom to Tori RSS and everything eles now!

> nonrss ny

>

__________________________________________________

July 13, 2005

She has boils please bring that up to Dr. H next week. We will be there Thursday

morning.