Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 CONGRATULATIONS!!! THAT IS SO TERRIFIC!!!! =) I am very proud of you!!! milestone Hey, Hey, Hey, Just wanted to let everyone know that I hit a milestone today. I hit the 300's today!!!!!!!!!!!!!!!! I weighed this am 399. That's a total of 85 pounds since 9/20, just a few days short of 3 months. I just had to let you guys know. I haven't seen 300's since I got my driver's license renewed!!!!!!!! WWWWWOOOOOOOOOOOHHHHHHHHHHHOOOOOOOOOOOOO for me. May God be Praised. And Dr. Hess was afraid I wouldn't make it off the table. It is amazing what prayers will do. Later n Lighter Life by God Body by Hess ---------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 , Congratulations!!! That is fantastic! Please continue to share each and every milestone...it encourages me so much! Huge hugs, Theresa > Hey, Hey, Hey, > Just wanted to let everyone know that I hit a milestone today. > I hit the 300's today!!!!!!!!!!!!!!!! > I weighed this am 399. That's a total of 85 pounds since 9/20, just a few > days short of 3 months. I just had to let you guys know. I haven't seen > 300's since I got my driver's license renewed!!!!!!!! > WWWWWOOOOOOOOOOOHHHHHHHHHHHOOOOOOOOOOOOO for me. May God be Praised. > And Dr. Hess was afraid I wouldn't make it off the table. It is amazing what > prayers will do. > Later n Lighter > > Life by God > Body by Hess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Just wanted to let everyone know that I hit a milestone today. I hit the 300's today!!!!!!!!!!!!!!!! Congratulations Val!!! That is terrific news. It is great to see you posting here. Praise God for your new lease on life! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 MamaSher; IPF 2006, NSIP, PH 2009, OR.Don't fret about tomorrow, God is already there! From: Bob Dopher Sent: Saturday, December 12, 2009 9:27 AM To: Breathe-Support Subject: Milestone For the past 3-4 months I’ve noticed that my O2 sats have been dropping lower when I exercised or otherwise exerted myself, and found that I was having trouble negotiating inclines when I was at the get together in Chattanooga back in Oct. I had had two six min walks in the previous three months, one of which showed that I didn’t drop below 90 percent and the other I failed because of my pulse rate going sky high. After explaining all this to my new Pulmo here in Melbourne, he scheduled another 6 min walk. The results were as I expected, dropping to 84 percent before being stopped and put on oxygen, and it looks as though I will now be on O2 for exertion. At one point the 6 min walk generated a little personal amusement. After I was hooked up to oxygen, I took off and started walking as I normally do. Glancing at the oximeter, I saw that the sats were dropping like a rock again. I’m going “Oh No! O2 isn’t helping!” At about this point the young lady who was administering the test tells me to breathe in deeply through my nose and out slowly through my mouth. Big DUH moment. How could I possibly get oxygen if I’m breathing in through my mouth? Looks like I’m going to have to retrain myself to breathe right, as I found that very difficult to do. Not sure how I feel about having personally met this milestone. On the one hand it’s nice to have finally convinced someone that I needed help, but it is a tad depressing knowing that I need it. But life goes on. I now have a new learning opportunity and will go back and review everything written here re oxygen equipment, providers, etc. I know the info is here ‘cause I’ve seen it. It’s just that this severe case of CRS that I have forces me to constantly review. J Bob Dopher 67 IPF 04/07 No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.716 / Virus Database: 270.14.103/2558 - Release Date: 12/11/09 02:06:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 makes some very valid points. I would drink 8 ounces of water BEFORE starting exercise and have water available DURING exercise. Yes, the breathing technique makes a big difference too. That is what they attributed my marked improvement in distance on my final six minute walk test as opposed to my " incoming " 6 minute walk test. Stefani 61 year old Utahn ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009 > > > > Subject: Milestone > To: Breathe-Support > Date: Saturday, December 12, 2009, 12:27 PM > > >  > > > > > > For the past 3-4 months I’ve noticed that my O2 sats have been dropping lower when I exercised or otherwise exerted myself, and found that I was having trouble negotiating inclines when I was at the get together in Chattanooga back in Oct. I had had two six min walks in the previous three months, one of  which showed that I didn’t drop below 90 percent and the other I failed because of my pulse rate going sky high. After explaining all this to my new Pulmo here in Melbourne, he scheduled another 6 min walk. The results were as I expected, dropping to 84 percent before being stopped and put on oxygen, and it looks as though I will now be on O2 for exertion. >  > At one point the 6 min walk generated a little personal amusement. After I was hooked up to oxygen, I took off and started walking as I normally do. Glancing at the oximeter, I saw that the sats were dropping like a rock again. I’m going “Oh No! O2 isn’t helping!†At about this point the young lady who was administering the test tells me to breathe in deeply through my nose and out slowly through my mouth. Big DUH moment. How could I possibly get oxygen if I’m breathing in through my mouth? Looks like I’m going to have to retrain myself to breathe right, as I found that very difficult to do. >  > Not sure how I feel about having personally met this milestone. On the one hand it’s nice to have finally convinced someone that I needed help, but it is a tad depressing knowing that I need it. But life goes on. I now have a new learning opportunity and will go back and review everything written here re oxygen equipment, providers, etc. I know the info is here ‘cause I’ve seen it. It’s just that this severe case of CRS that I have forces me to constantly review. J >  > Bob Dopher  67 IPF 04/07 >  >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 "Smell the roses, Blow out the candles" is a good way to remember pursed lip breathing Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: MilestoneTo: Breathe-Support Date: Sunday, December 13, 2009, 4:14 PM Friend: My memory is shot and I sometimes can not spell or remember medical terms. I have two very good solutions for you. 1. Use lip-sink breathing techniques when you exercise. It will bring your oxygen level fast . I forgot to use it every minute of my last six walk and mine dropped to 86. I was walking fast. 2. Drink water or fluids often and before(during if possible) you exercise. It doesn't take much water to bring improvement. This too will bring up your oxygen level fast. Burns From: Bob Dopher <rdopher (AT) gmail (DOT) com>Subject: MilestoneTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 12, 2009, 12:27 PM For the past 3-4 months I’ve noticed that my O2 sats have been dropping lower when I exercised or otherwise exerted myself, and found that I was having trouble negotiating inclines when I was at the get together in Chattanooga back in Oct. I had had two six min walks in the previous three months, one of which showed that I didn’t drop below 90 percent and the other I failed because of my pulse rate going sky high. After explaining all this to my new Pulmo here in Melbourne, he scheduled another 6 min walk. The results were as I expected, dropping to 84 percent before being stopped and put on oxygen, and it looks as though I will now be on O2 for exertion. At one point the 6 min walk generated a little personal amusement. After I was hooked up to oxygen, I took off and started walking as I normally do. Glancing at the oximeter, I saw that the sats were dropping like a rock again. I’m going “Oh No! O2 isn’t helping!†At about this point the young lady who was administering the test tells me to breathe in deeply through my nose and out slowly through my mouth. Big DUH moment. How could I possibly get oxygen if I’m breathing in through my mouth? Looks like I’m going to have to retrain myself to breathe right, as I found that very difficult to do. Not sure how I feel about having personally met this milestone. On the one hand it’s nice to have finally convinced someone that I needed help, but it is a tad depressing knowing that I need it. But life goes on. I now have a new learning opportunity and will go back and review everything written here re oxygen equipment, providers, etc. I know the info is here ‘cause I’ve seen it. It’s just that this severe case of CRS that I have forces me to constantly review. J Bob Dopher 67 IPF 04/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 Thanks Joyce!!!!!!!!! From: Bob Dopher <rdopher (AT) gmail (DOT) com>Subject: MilestoneTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 12, 2009, 12:27 PM For the past 3-4 months I’ve noticed that my O2 sats have been dropping lower when I exercised or otherwise exerted myself, and found that I was having trouble negotiating inclines when I was at the get together in Chattanooga back in Oct. I had had two six min walks in the previous three months, one of which showed that I didn’t drop below 90 percent and the other I failed because of my pulse rate going sky high. After explaining all this to my new Pulmo here in Melbourne, he scheduled another 6 min walk. The results were as I expected, dropping to 84 percent before being stopped and put on oxygen, and it looks as though I will now be on O2 for exertion. At one point the 6 min walk generated a little personal amusement. After I was hooked up to oxygen, I took off and started walking as I normally do. Glancing at the oximeter, I saw that the sats were dropping like a rock again. I’m going “Oh No! O2 isn’t helping!†At about this point the young lady who was administering the test tells me to breathe in deeply through my nose and out slowly through my mouth. Big DUH moment. How could I possibly get oxygen if I’m breathing in through my mouth? Looks like I’m going to have to retrain myself to breathe right, as I found that very difficult to do. Not sure how I feel about having personally met this milestone. On the one hand it’s nice to have finally convinced someone that I needed help, but it is a tad depressing knowing that I need it. But life goes on. I now have a new learning opportunity and will go back and review everything written here re oxygen equipment, providers, etc. I know the info is here ‘cause I’ve seen it. It’s just that this severe case of CRS that I have forces me to constantly review. J Bob Dopher 67 IPF 04/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 Sharon, It's really difficult to comment on this when I don't know the type of inhaler you were using and how much you were using it. I can say that it's never good to over use any type of respiratory medication. They are all best used according to the directions given to you by your doctor. Sometimes medications can have what's called a "rebound effect" if they are used to excess. This means that they can make your symptoms worse instead of better. This may have been what the nurse was trying to communicate to you. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Mon, December 14, 2009 9:35:55 AMSubject: Re: Re: Milestone Thanks Beth , Your always there when needed. Now another question. While at the hospital visiting my brother in law whose ALS is now progressing rapidly,. He is down to a ventilator, cannot move at all and has tubes everywhere . It was very sad and it started to make my breathing difficult . I had to leave the room and a nurse in the hallway told me to get using my inhaler so much that it can make my breathing worse. By being so upset I thought it would help. Do you know why she said that? I feel blessed that I am not him and I wish he would pass to end his suffering Sharon asthma ph 2008 From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: MilestoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, December 13, 2009, 5:59 PM makes some very valid points. I would drink 8 ounces of water BEFORE starting exercise and have water available DURING exercise. Yes, the breathing technique makes a big difference too. That is what they attributed my marked improvement in distance on my final six minute walk test as opposed to my "incoming" 6 minute walk test.Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> > > From: Bob Dopher <rdopher@... >> Subject: Milestone> To: Breathe-Support@ yahoogroups. com> Date: Saturday, December 12, 2009, 12:27 PM> > > > > > > > > For the past 3-4 months I’ve noticed that my O2 sats have been dropping lower when I exercised or otherwise exerted myself, and found that I was having trouble negotiating inclines when I was at the get together in Chattanooga back in Oct. I had had two six min walks in the previous three months, one of which showed that I didn’t drop below 90 percent and the other I failed because of my pulse rate going sky high. After explaining all this to my new Pulmo here in Melbourne, he scheduled another 6 min walk. The results were as I expected, dropping to 84 percent before being stopped and put on oxygen, and it looks as though I will now be on O2 for exertion. > > At one point the 6 min walk generated a little personal amusement. After I was hooked up to oxygen, I took off and started walking as I normally do. Glancing at the oximeter, I saw that the sats were dropping like a rock again. I’m going “Oh No! O2 isn’t helping!†At about this point the young lady who was administering the test tells me to breathe in deeply through my nose and out slowly through my mouth. Big DUH moment. How could I possibly get oxygen if I’m breathing in through my mouth? Looks like I’m going to have to retrain myself to breathe right, as I found that very difficult to do. > > Not sure how I feel about having personally met this milestone. On the one hand it’s nice to have finally convinced someone that I needed help, but it is a tad depressing knowing that I need it. But life goes on. I now have a new learning opportunity and will go back and review everything written here re oxygen equipment, providers, etc. I know the info is here ‘cause I’ve seen it. It’s just that this severe case of CRS that I have forces me to constantly review. J> > Bob Dopher 67 IPF 04/07> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 Sharon the nurse probably does not understand your disease and what would have helped you the most -- sounds like a hug, hand holding and a few deep breaths would have helped. sorry to hear about your brother in law my ex has ALS. Every time i see him, i get very upset. very, very sad, but he keeps going on. He has been on a ventilator, feeding tube and unable move for several years he is able to live at home with a wife who takes great care of him, they also have full time help for him, and people to come to the house in the morning and evening to get him in and out of bed he spends the daytime hours in a wheelchair in the living room watching TV, visiting with family and friends. They were also able to get a specially made computer for him that he controls with his eyes. This has helped with his communication Watching Bruce fight this horrible disease has been a motivating force in my battle against pulmonary fibrosis. He was diagnosed in 2000, i was diagnosed in 2006. I can't imagine what our children are going through watching both of us. as Jill says, even though i do need oxygen, at least i can walk and talk, eat and take care of myself. Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: MilestoneTo: Breathe-Support Date: Monday, December 14, 2009, 9:35 AM Thanks Beth , Your always there when needed. Now another question. While at the hospital visiting my brother in law whose ALS is now progressing rapidly,. He is down to a ventilator, cannot move at all and has tubes everywhere . It was very sad and it started to make my breathing difficult . I had to leave the room and a nurse in the hallway told me to get using my inhaler so much that it can make my breathing worse. By being so upset I thought it would help. Do you know why she said that? I feel blessed that I am not him and I wish he would pass to end his suffering Sharon asthma ph 2008 From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: MilestoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, December 13, 2009, 5:59 PM makes some very valid points. I would drink 8 ounces of water BEFORE starting exercise and have water available DURING exercise. Yes, the breathing technique makes a big difference too. That is what they attributed my marked improvement in distance on my final six minute walk test as opposed to my "incoming" 6 minute walk test.Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> > > From: Bob Dopher <rdopher@... >> Subject: Milestone> To: Breathe-Support@ yahoogroups. com> Date: Saturday, December 12, 2009, 12:27 PM> > > > > > > > > For the past 3-4 months I’ve noticed that my O2 sats have been dropping lower when I exercised or otherwise exerted myself, and found that I was having trouble negotiating inclines when I was at the get together in Chattanooga back in Oct. I had had two six min walks in the previous three months, one of which showed that I didn’t drop below 90 percent and the other I failed because of my pulse rate going sky high. After explaining all this to my new Pulmo here in Melbourne, he scheduled another 6 min walk. The results were as I expected, dropping to 84 percent before being stopped and put on oxygen, and it looks as though I will now be on O2 for exertion. > > At one point the 6 min walk generated a little personal amusement. After I was hooked up to oxygen, I took off and started walking as I normally do. Glancing at the oximeter, I saw that the sats were dropping like a rock again. I’m going “Oh No! O2 isn’t helping!†At about this point the young lady who was administering the test tells me to breathe in deeply through my nose and out slowly through my mouth. Big DUH moment. How could I possibly get oxygen if I’m breathing in through my mouth? Looks like I’m going to have to retrain myself to breathe right, as I found that very difficult to do. > > Not sure how I feel about having personally met this milestone. On the one hand it’s nice to have finally convinced someone that I needed help, but it is a tad depressing knowing that I need it. But life goes on. I now have a new learning opportunity and will go back and review everything written here re oxygen equipment, providers, etc. I know the info is here ‘cause I’ve seen it. It’s just that this severe case of CRS that I have forces me to constantly review. J> > Bob Dopher 67 IPF 04/07> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 Thanks Joyce, you understand ALS. sharon asthma ph From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: MilestoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, December 13, 2009, 5:59 PM makes some very valid points. I would drink 8 ounces of water BEFORE starting exercise and have water available DURING exercise. Yes, the breathing technique makes a big difference too. That is what they attributed my marked improvement in distance on my final six minute walk test as opposed to my "incoming" 6 minute walk test.Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> > > From: Bob Dopher <rdopher@... >> Subject: Milestone> To: Breathe-Support@ yahoogroups. com> Date: Saturday, December 12, 2009, 12:27 PM> > > > > > > > > For the past 3-4 months I’ve noticed that my O2 sats have been dropping lower when I exercised or otherwise exerted myself, and found that I was having trouble negotiating inclines when I was at the get together in Chattanooga back in Oct. I had had two six min walks in the previous three months, one of which showed that I didn’t drop below 90 percent and the other I failed because of my pulse rate going sky high. After explaining all this to my new Pulmo here in Melbourne, he scheduled another 6 min walk. The results were as I expected, dropping to 84 percent before being stopped and put on oxygen, and it looks as though I will now be on O2 for exertion. > > At one point the 6 min walk generated a little personal amusement. After I was hooked up to oxygen, I took off and started walking as I normally do. Glancing at the oximeter, I saw that the sats were dropping like a rock again. I’m going “Oh No! O2 isn’t helping!†At about this point the young lady who was administering the test tells me to breathe in deeply through my nose and out slowly through my mouth. Big DUH moment. How could I possibly get oxygen if I’m breathing in through my mouth? Looks like I’m going to have to retrain myself to breathe right, as I found that very difficult to do. > > Not sure how I feel about having personally met this milestone. On the one hand it’s nice to have finally convinced someone that I needed help, but it is a tad depressing knowing that I need it. But life goes on. I now have a new learning opportunity and will go back and review everything written here re oxygen equipment, providers, etc. I know the info is here ‘cause I’ve seen it. It’s just that this severe case of CRS that I have forces me to constantly review. J> > Bob Dopher 67 IPF 04/07> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 unfortunately i do at this point in my life it makes PF look like a piece of cake and we all know it's not Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: MilestoneTo: Breathe-Support Date: Monday, December 14, 2009, 12:37 PM Thanks Joyce, you understand ALS. sharon asthma ph From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: MilestoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, December 13, 2009, 5:59 PM makes some very valid points. I would drink 8 ounces of water BEFORE starting exercise and have water available DURING exercise. Yes, the breathing technique makes a big difference too. That is what they attributed my marked improvement in distance on my final six minute walk test as opposed to my "incoming" 6 minute walk test.Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> > > From: Bob Dopher <rdopher@... >> Subject: Milestone> To: Breathe-Support@ yahoogroups. com> Date: Saturday, December 12, 2009, 12:27 PM> > > > > > > > > For the past 3-4 months I’ve noticed that my O2 sats have been dropping lower when I exercised or otherwise exerted myself, and found that I was having trouble negotiating inclines when I was at the get together in Chattanooga back in Oct. I had had two six min walks in the previous three months, one of which showed that I didn’t drop below 90 percent and the other I failed because of my pulse rate going sky high. After explaining all this to my new Pulmo here in Melbourne, he scheduled another 6 min walk. The results were as I expected, dropping to 84 percent before being stopped and put on oxygen, and it looks as though I will now be on O2 for exertion. > > At one point the 6 min walk generated a little personal amusement. After I was hooked up to oxygen, I took off and started walking as I normally do. Glancing at the oximeter, I saw that the sats were dropping like a rock again. I’m going “Oh No! O2 isn’t helping!†At about this point the young lady who was administering the test tells me to breathe in deeply through my nose and out slowly through my mouth. Big DUH moment. How could I possibly get oxygen if I’m breathing in through my mouth? Looks like I’m going to have to retrain myself to breathe right, as I found that very difficult to do. > > Not sure how I feel about having personally met this milestone. On the one hand it’s nice to have finally convinced someone that I needed help, but it is a tad depressing knowing that I need it. But life goes on. I now have a new learning opportunity and will go back and review everything written here re oxygen equipment, providers, etc. I know the info is here ‘cause I’ve seen it. It’s just that this severe case of CRS that I have forces me to constantly review. J> > Bob Dopher 67 IPF 04/07> > > Quote Link to comment Share on other sites More sharing options...
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