Re: CHAT To Deb B. -- Thanks

[Guest guest]

Hi Deb,

Thanks for the kind words. I truely appreciate everything you have

done.

Ken M

> > >

> > > Hi Everyone,

> > >

> > > One of the things I do when new parents write me or

contact MAGIC

> > is

> > > to very strongly suggest they join this listserve. I'm

attaching

> > the

> > > top 10 questions they seem to have when they contact me.

Everyone

> > > here is so great at getting new parents on board. (Ken,

maybe

> > these

> > > questions could be some sort of FAQ--any volunteers!?)

> > >

> > > Also, just a friendly suggestion (and I know Ken has

brought this

> > up

> > > before, so sorry if I sound like a broken record!): I would

> > suggest

> > > that subject lines very clearly deliniate chat versus other

> > > discussion, or maybe even keep one-to-one chat offline.

With the

> > > Yahoo-groups search function being much more limiting

than the

> > past

> > > (you have to keep hitting Previous to search new ranges), I

think

> > we

> > > need to make it very inviting for new parents who " lurk " . If

they

> > > don't immediately see discussion topics related to specific

RSS

> > > issues, they may not immediately join.

> > >

> > > (I'll share my " Info all parents of RSS children should know "

> > letter

> > > in another posting).

> > >

> > > Thanks! -

> > > Katy

> > > MAGIC RSS Division Co-Consultant

> > > Mom to , age 8, GHT since age 3

> > >

> > > 1. How do I know my child really has RSS?

> > > 2. Feeding/appetite enhancement tips?

> > > 3. Where can I find a doctor in _______? Which

specialists?

> > > 4. Is GHT really safe? Can it be given if a child has normal

GH

> > > levels?

> > > 5. Is there a blood test for RSS?

> > > 6. I'd like to talk with other RSS parents.

> > > 7. I'm an adult with RSS. Can I have children? Is RSS

hereditary?

> > > 8. Doctors are accusing me of not feeding my child.

Where can

> > get

> > > info on RSS? What are my legal options? (THIS IS THE

TOUGHEST Q

> > of

> > > ALL!)

> > > 9. What should I be doing and when?

> > > 10. What are the developmental risks of RSS?

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Your most welcome Ken, everything said is 100% true

Deb

Re: CHAT To Deb B. -- Thanks

> Hi Deb,

>

> Thanks for the kind words. I truely appreciate everything you have

> done.

>

>

> Ken M

>

>

>

>

>

> > > >

> > > > Hi Everyone,

> > > >

> > > > One of the things I do when new parents write me or

> contact MAGIC

> > > is

> > > > to very strongly suggest they join this listserve. I'm

> attaching

> > > the

> > > > top 10 questions they seem to have when they contact me.

> Everyone

> > > > here is so great at getting new parents on board. (Ken,

> maybe

> > > these

> > > > questions could be some sort of FAQ--any volunteers!?)

> > > >

> > > > Also, just a friendly suggestion (and I know Ken has

> brought this

> > > up

> > > > before, so sorry if I sound like a broken record!): I would

> > > suggest

> > > > that subject lines very clearly deliniate chat versus other

> > > > discussion, or maybe even keep one-to-one chat offline.

> With the

> > > > Yahoo-groups search function being much more limiting

> than the

> > > past

> > > > (you have to keep hitting Previous to search new ranges), I

> think

> > > we

> > > > need to make it very inviting for new parents who " lurk " . If

> they

> > > > don't immediately see discussion topics related to specific

> RSS

> > > > issues, they may not immediately join.

> > > >

> > > > (I'll share my " Info all parents of RSS children should know "

> > > letter

> > > > in another posting).

> > > >

> > > > Thanks! -

> > > > Katy

> > > > MAGIC RSS Division Co-Consultant

> > > > Mom to , age 8, GHT since age 3

> > > >

> > > > 1. How do I know my child really has RSS?

> > > > 2. Feeding/appetite enhancement tips?

> > > > 3. Where can I find a doctor in _______? Which

> specialists?

> > > > 4. Is GHT really safe? Can it be given if a child has normal

> GH

> > > > levels?

> > > > 5. Is there a blood test for RSS?

> > > > 6. I'd like to talk with other RSS parents.

> > > > 7. I'm an adult with RSS. Can I have children? Is RSS

> hereditary?

> > > > 8. Doctors are accusing me of not feeding my child.

> Where can

> > > get

> > > > info on RSS? What are my legal options? (THIS IS THE

> TOUGHEST Q

> > > of

> > > > ALL!)

> > > > 9. What should I be doing and when?

> > > > 10. What are the developmental risks of RSS?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >