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Re: sugeons?

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Hi, ,

I can't help you with any recommendations for surgeons in the Twin

Cities area, but hopefully some of the other folks here can. I would

recommend that you check out the Yahoo group, The Feet Club- it's at

http://groups.yahoo.com/group/thefeetclub It's comprised of mainly

adults with clubfoot and they will definitely be able to tell you

their experiences with different surgical approaches, which might be

very useful to you as you're discussing options with surgeons. They

also talk about pain management strategies.

I'm sorry that you're suffering right now- I hope that you can find a

really good doctor who can get you back on track very soon. Thanks

for joining us here and offering to share your experiences!

Regards,

& (3-16-00, left cf)

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Were you able to get any suggestions from the doctors at Shriners?

If they didn't help you, perhaps you could try contacting Gillette in

St. . I know they deal with children too, but perhaps they would

have some ideas of who you could contact.

I'd also look into the U of M. We've used several of their

physicians for other things and have had good experiences. Although

I'd definitely suggest getting second and third opinions no matter

who you talk to!

I can't really offer any other suggestions. I believe there is an

adult clubfoot site too. I can't remember what it is, but I'm sure

someone else will chime in with it.

Good luck!

Aleksander, 11/24/04 bcf

>

> I am a 20 yr old who has a severe case of bilateral talipes

> equinovarus. I have had multiple surgeries, casting, braces,

> inserts,and physical therapy. My feet are getting to the point

where I

> will soon need surgery again. My last few surgeries were done

through

> Shriner's Hospital for Children in the Twin Cities. Since I can no

> longer be a patient there due to age, I was wondering if anyone had

> surgeons that they could give me the information for. I am

currently

> trying to find a surgeon who would look into performing a surgery

one

> me because at the rate my feet are moving I am expected to be in a

> wheelchair by the age of 30 and I am not someone who will or would

> handle that well.

> Thank you very much,

> Wellner

> P.S. if anyone has any questions about being a teenage girl who has

> dealt with this and such I am open to talking to people about what

it

> has meant in my life.

>

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