Re: Stirling Update

[Guest guest]

,

You know you are always welcome and in fact are

encouraged to stay with us. After reading the article

I was very happy to read that you had just taken the

CPR course and did everything you could do so that you

have that peace. I remember when was a few

months old and I insisted that my husand and I take a

CPR course which we did. In fact, I think it's time

to review my book for a refresher. I think the thing

for me is to remember how many breaths to how many

pumps but otherwise I know what to do. You are so

right that every parent should take the course.

God Bless You and your family

Love

B

5 1/2 and Kelli 2 3/4

--- sickybear wrote:

> Hi, Haven't had much of a chance to come on here

> lately.

>

> Thanks for posting details of our newpaper article.

> the local paper

> approached us, as they look for stories following

> the death of the

> very young or old. It has had a positive impact

> where we live, with

> many people telling me they will sign up for first

> aid courses.

> I'm glad I was able to do something that meant he

> arrived at the

> hospital alive, even though they couldn't ultimately

> save him. It

> is a fitting memorial to a little boy who has

> touched so many people

> everywhere.

>

> Hopefully it has raised a tiny bit of RSS awareness

> as well! We

> currently have a complaint in against one of the

> Health Visitors

> Nurses, who is incredibly ignorant about growth

> disorders, and kept

> insisting on weighing him and making comments about

> his size when he

> was alive.

>

> We had the service on 29 June, it was very beautiful

> and was the

> perfect send-off for him. I wore a white suit and

> read a piece I had

> written for him. We were also lucky to have the

> obstetrician who

> delivered him attend, which was great because she is

> very kind, and

> was the only person who stuck up for me when we were

> battling to get

> Stirling diagnosed.

>

> We have heard from the gentics guys at Addenbrookes,

> they will see

> us when the test results (UPD7) come in and have

> compiled reports.

> This is positive as it looks like we will finally

> get a confirmation

> of RSS even after he died.

>

> Thank you for your love and support, I will get

> around to replying

> to the emails at some point! I will still have a

> look on here and

> interfere where necessary(if thats ok with you

> guys?)

>

> Cheers

> T

>

>

>

__________________________________________________

[Guest guest]

,

I'm sure I speak for everyone when I say that you are most welcome to

hang around here, on this listserve. There was and is so much love

for your little guy in this group. Those of us who were able to read

the article were so touched and encouraged by your strength and

determination. And I, for one, still am.

I'm glad that you are at peace and know that you did everything you

could to help Stirling. He was a beautiful baby and little boy.

Jodi Z