Re: Ian's GI update - H

[Guest guest]

Hi H,

Just wanted to let you know that has NEVER tested positive for

reflux, BUT he definitely has it! And he's had every test imaginable!! The

only test that showed the reflux in anyway, was the Endoscopy done by Dr H

in NY right before his g-tube was placed. There they saw some slight burns,

and lots of irritation.

If he's taken off his reflux meds, he will start with spitting up, and move

on to throwing up, if they aren't replaced in his schedule.

Pat (g-ma to , RSS, 3 yrs 8 months old, 24.5#, 34 " , G-tube, GHT)

[Guest guest]

,

I agree with Pat. has pretty severe reflux and had every test

known to man to try to prove this. Every test came back NORMAL!

Typical! Anyway, I just wanted to put some emphasis on what Pat is

saying. Ian can still be having reflux. Just becasue ONE test

didn't show it, doesn't mean anything. They looked for 's for

over two and a half years. NOTHING! We just happened to get lucky

on one of MANY delayed gastric emptying studies. Just happened to

give a big does og his formula while laying down and up it

came. All of it, and thank God they had the camera going right away

because they finally found it and noted it as refluxing, severely!

Just wanted to share with you. When your child tells you that he is

tasting his medicine you just put in his G TUBE, you know that is

reflux!

Jodi R.

> Hi H,

>

> Just wanted to let you know that has NEVER tested positive

for

> reflux, BUT he definitely has it! And he's had every test

imaginable!! The

> only test that showed the reflux in anyway, was the Endoscopy done

by Dr H

> in NY right before his g-tube was placed. There they saw some

slight burns,

> and lots of irritation.

>

> If he's taken off his reflux meds, he will start with spitting up,

and move

> on to throwing up, if they aren't replaced in his schedule.

>

> Pat (g-ma to , RSS, 3 yrs 8 months old, 24.5#, 34 " , G-tube,

GHT)

[Guest guest]

That's very interesting. Thank you for letting me know that - it's

much appreciated. Ian never spits up or has any vomiting of any

kind and I've never noticed anything else. I'll definately talk to

Dr. H about his results next month though.

Thanks again.

- H

> Hi H,

>

> Just wanted to let you know that has NEVER tested positive

for

> reflux, BUT he definitely has it! And he's had every test

imaginable!! The

> only test that showed the reflux in anyway, was the Endoscopy done

by Dr H

> in NY right before his g-tube was placed. There they saw some

slight burns,

> and lots of irritation.

>

> If he's taken off his reflux meds, he will start with spitting up,

and move

> on to throwing up, if they aren't replaced in his schedule.

>

> Pat (g-ma to , RSS, 3 yrs 8 months old, 24.5#, 34 " , G-tube,

GHT)

[Guest guest]

Jodi - thank you too for this information. It is very beneficial.

Although Ian doesn't have any of the signs - it just seems so

prevalent in most of our children - I'm not going to rule it out

just yet. Thank you very much.

- H

> > Hi H,

> >

> > Just wanted to let you know that has NEVER tested

positive

> for

> > reflux, BUT he definitely has it! And he's had every test

> imaginable!! The

> > only test that showed the reflux in anyway, was the Endoscopy

done

> by Dr H

> > in NY right before his g-tube was placed. There they saw some

> slight burns,

> > and lots of irritation.

> >

> > If he's taken off his reflux meds, he will start with spitting

up,

> and move

> > on to throwing up, if they aren't replaced in his schedule.

> >

> > Pat (g-ma to , RSS, 3 yrs 8 months old, 24.5#, 34 " , G-

tube,

> GHT)