Craig, our daughter from China had bilateral clubfeet too.

[Guest guest]

Congratulations Craig on your little boy! I am proud to say that we

brought our daughter, , home from China on Thanksgiving Day

2004 at 34 months old with bilateral clubfeet. She is absolutely the

most amazing, beautiful, and fun little girl. I am curious if your

son is possibly Sun Ya Kun at the SWI in Inner Mongolia? I made some

phone calls in January to people that work closely with the

orphanages in China and have the connections over there to try to get

him to a Ponseti trained doctor rather than allowing them to take him

to surgery. Even if this little one is not your son, I would love

to talk to you about your son and share the info on the people I

contacted in China so maybe they can help your son. You can contact

me at cjjidaho@... . We feel so blessed that is a

part of our family. She truly is the most precious gift and we are

so thankful for her. She is so fun and full of life and has handled

all the medical treatment incredibly well, especially coming home so

scared after her previous medical experiences in China (all the

ridiculous testing they put these kids through – they did an

unnecessary brain scan which was read wrong over there telling us she

had a problem with her brain a week before we flew out to get her).

I was so thankful she had not received any medical treatment in China

for her clubfeet. And in regard to her brain, there is absolutely

nothing wrong with her although in Utah the neurologist was watching

her for possibly having a mild form of CP, which they do not believe

to be true now. She's sharp as a tack!

It's amazing the wonderful people and new friends we've made in our

journey to treat her clubfeet. Before I tell you a little of our

story please keep in mind our daughter had walked on her clubfeet for

almost two years by the time we went to see Dr. Ponseti. 's

clubfeet we're considered severe and she was also the oldest,

untreated child he has ever treated so her treatment was quite

lengthy and more involved compared to most children. However, he

definitely worked a miracle on her sweet little feet. He is our

hero!

We live in Idaho and first traveled to Salt Lake City for treatment

after bringing home from China. This doctor had successfully

treated an 8 year old boy from Mexico with clubfeet that looked just

like 's. They said she was too old to treat with the Ponseti

casting method and would need to be corrected through a combination

of major surgery first (they had planned to do the postmedial release

and all ) and then a few castings just like they did for the little

Mexican boy and other older children. She would possibly need a few

more surgeries as she grew. Our local Ponseti trained doctor here in

town, who I've heard nothing but great things about, would not even

consider taking her case on because he just works with the babies and

she was too old. (I believe a good doctor knows their boundaries and

I applaud him for that.) could walk, run, jump and all with

her sweet little feet. However, after working with the doc in Utah

for many months they called us to tell us they felt her case was so

severe that she would probably end up being an amputation case, even

after all the surgeries and treatment they had planned for her.

Luckily, we had already begun doing more research and ended up

finding Dr. Ponseti and flying out to begin treatment. After 17 cast

changes and a 2.5 hour surgery (ATTT- a tendon transfer- and tenotomy

on both feet) she got her casts off in January and today she is

walking, running, jumping on straight, beautiful, pain free feet. I

can buy her sandals and light up shoes in the store that I never

could before. Her left foot has turned out perfect however, we still

have a problem with her right foot(which was more severely crippled

to begin with) where we will be returning for one more surgery in the

next few months. This was a little unexpected, however, it's amazing

when you look at how Dr. Ponseti has transformed her feet. He is a

miracle worker!!! I'm just so thankful we didn't stay with the Utah

doctor. Please don't let any doctor do surgery on your child's feet

once you get him home before doing the Ponseti casting method with a

correctly trained doctor. I know you have no control over what takes

place in China before they put your son in your arms. Your son is so

much younger than our daughter and his treatment will most likely be

more simple than 's.

Please feel free to contact me and I will be happy to give you the

contacts I have to hopefully help your son in China. Again

congratulations on your boy! I will be happy to share pictures of

's progress with you if you would like and help you and your

family in any way I can. Take care!

Sincerely,

Joyce

Proud Mommy of Faith – 4 years old

>

>

> We have just recently begun the process of adopting a 1 year old

boy in

> China who has bilateral club feet.

>

> I know this is rather far fetched, but we are looking for

assistance to

> help him receive treatment by the Ponseti method while he is in

China.

> Otherwise, they may proceed with surgery. If any one has any

contacts

> who might help identify a person who could do this, we would greatly

> appreciate it.

>

> We are also looking for the best trained physicians in Southern

> California who will be able to assist once we get him home. Does

any

> one have any recommendations? (He will likely be almost 2 years old

> before we can bring him home. [] )

>

> Thanks for any assistance,

>

> Craig

>

> I suppose because I am new to the group I need the group owner to

> approve my message. However,there is no explaination on how to get

> approval. Hopefully it will get there. Thanks again.

>

>

>

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