Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Hi Lydia, I also am from Calif. I will be having surgery in Delano Calif. With Dr. K. I laughed when I read about the Chitosan. I to am guilty of trying that. I have tried everything and anything. Just like everyone else. I will be having surgery January 9, 2002 so if you get yours on the 4th we could keep in touch afterwards to see how we are doing. Good Luck! Merry Christmas and I hope you have a Happy New Year! M. pre-op 01/09/02 BMI 41/238lbs. AGE 39 Dr. K --- Lydia wrote: > > Hello from California > > My name is Lydia and I live in L.A. I am 50 years of > age, live with myself, and have 3 children and > almost 3 grandchildren. > > Like probably most of you, I've tried everything on > the earth to loose and keep weight off. When my > bariatric surgeon looked at the list, the last thing > he saw was " Chitosan " and he chuckled. That was > after the Zenical. I even tried electro-shock. > Anybody here remember the Shick Centers? It was > kinda like the Pavlo's dog theory of negative > reinforcement, eat a chili dog, get an electroshock > zap on the arm. I still can feel the zap, and I > still love those same Weinershnitzel Chili Dang > Dogs. > > I could use some support, and would hope to give > some at some point. It's interesting to note how > different doctors do things, and to learn of common > ailments and remedy's. I do not know what I'd do > without these forums. I've been depressed lately, > maybe a combination of finances, hormones, and the > holiday thing. > > Mr. Dr is Dr. Anthone at USC Hospital in Los > Angeles. He does the Open DS only, and I'm > comfortable with it's advantages and learned > yesterday that he's only had one " leak " in 650 > surgeries! That was from someone who'd already had 2 > other bariatric procedures. Our 2 hour > " informational " meeting was complete with pictures > of an actual surgery, slides, very professional > presentation. I guess their practice has tripled and > the waiting list is now 4 months for surgery. > > I'm trying to move through the depression and not > isolate. I'll be here, and hopefully I can be of > some assistance to you in the future, as you are to > me now. > > Best Regards, > > Lydia in L.A. > > Dr. Anthone Post OP > > BMI 48 5 feet tall 248 " > > Waiting for a date, possibly 1/4/02 > > > > Sharing makes you bigger than you are. The more > you pour > out, the more life will be able to pour in. > > - Jim Rohn > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 Chantel - Hi. My name is and I have a daughter who is now almost 10 years old. What was your son's birth weight and length? Most RSS children and all SGA children are born what we call with intrauterine growth retardation -- meaning their length and weight are affected while inutero. For RSS children, somehow their head is spared, leaving their head much larger in proportion to their bodies. Children who are SGA usually have heads in similar proportion to their bodies (we call them mini-mes). My daughter was born at 5lb 2oz and 17 inches long, with a head in the 75th percentile (body and length not on the charts). My husband is 6'4 " tall and I am 5'4 " . Our doctor wasn't concerned at all, because although was tiny, she continued to grow along her own curve. We moved to CT when she was 19 months old and she was around 17-18 pounds?? Can't recall. I remember the numbers 19-20 pounds because she got stuck there for about a year!!! OUr FIRST pediatrician visit in CT, he looked at her growth charts, and said " what the heck? " She should be at the 75th percentile in height, why hasn't anyone examined her.... and off we went to Yale Children's Hospital. Had we stayed in LA, I am sure we would still be " watching fail to grow. " I think you need to find a pediatric endocrinologist at a Children's Hospital and ask for his or her opinion. If your son's weight and length are not on the charts but his head circumference is -- that is GREAT because it indicates that his brain is not suffering right now. However, it also shows about where his length SHOULD be at.... Clearly, your son's growth is being limited. By what? I can't say. If he has a food allergy that is limiting his absorption or something else, it can also limit his length growth. So it may not even be RSS. Definitely take others' advice and go to the www.magicfoundation.org website. Read about RSS. You can call them tollfree 800-3MAGIC3 and they can mail you some hard copy information. And keep writing! Do you have a photo of your son you can email me? I am one of the volunteers for MAGIC right now, and have now seen probably 250 children with RSS through the years at our conventions. There is a certain " look " to these kids, in about 95% of the cases -- although photos are much harder to discern than seeing a child in person. Stay here and keep writing. You will learn a lot no matter what. Salem magicrss@ mindspring.com > Hello. My name is Chantel. I am the mom of 3 and I found this group > this morning. I am looking for some help for my son as my Dr. is not > concerned about his. He is 17 months old and only weighs 20 lbs. He > is 30 1/4 in tall. He is below all the growth curves, except for his > head. It is in the 90th percentil for his age. My other children are > average sized and so are my husband and myself. Why isn't my Dr. > concerned? Where do I begin to start finding out what is going on > with my son? He eats when he wants to, he is not a big eater, but he > eats fairly well. I try to feed him high calorie food too, but > nothing is helping. He refuses the pedisure I try to give him. I > don't know anything about RSS, and he probably doesn't have the > syndrome, but I figured you all are experienced with growth issues and > you can lead me in the right direction. Thank you! > > Chantel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 hi chantel!! sometimes it harder for other people to accept that their is something more going on!! i still have family members that think one day christopher is going to just start to grow and be 6ft like his brothers are going to be. jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 We are new to the group. My husband and I gave birth to a son with bilateral club feet in January of 2006 in Toronto, Canada. We had never heard of club feet before. He had his first set of casts when he was 2 weeks old. We are almost finished the serial casting process now. He's had his achilles tendon nicked and those casts are on for 3 weeks. This coming Thursday he is fitted for the Dennis Brown Bar that he will wear full-time for 3 months. We are just beginning our lengthy journey. Quote Link to comment Share on other sites More sharing options...
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