Re: Mommy needs to vent - LACE66666

[Guest guest]

Lace - first, take a deep breath. We are all here for you. Second,

we all may be frustrated by the many things we need to do for our

RSS children - and, if by reading the posts you feel overwhelmed -

my apologies. There are many varying degrees of RSS, and

fortunately, most of their issues can be dealt with - not that there

aren't alot of them at times - but, rest assured - you have MAGIC

and this support group to come to during those more demanding

times. My son Ian, 2 with RSS, is an amazing boy. He's bright,

sweet, friendly, outgoing, stubborn, shy, obstinate.....gosh the

list goes on. But, I wouldn't change his diagnosis for the life of

me. He and his syndrome are teaching me so much about myself and

life itself. Do I sometimes feel in denial of my son's situation

and wish he didn't have it? You bet. But, in some way, I feel

almost privileged to have a son like Ian. Why? Because he reminds

me of how precious life is, how unimportant being perfect is, and

how there is always room to be a better person.

You will be fine. The best thing I can suggest is to stay on-line

here when you can, and definately go to the convention next Summer.

I've noticed a very interesting thing about these moms - there is

such a connection here. Not just because we have similar issues -

but, we all have the same drive to help our children have the best

life possible, we are all caring individuals and will do whatever it

takes to keep our children as healthy as possible. Aren't all moms

like that? Well, usually. But, for some reason, I see a beautiful

group of woman that put their best foot forward for their children

and their families. I can not emphasize how much it helped going to

the convention - and belonging to MAGIC was the other wonderful

thing I could do for my son, but also for me.

Keep us posted.

- H

> > I have just been to the genetics dr with my son brayden and they

are

> as

> > sure as can be that he has RSS. So now trying to find an endo

in my

> > area to deal with. I feel like I still dont know whats going

on. I

> > have no clue whats coming next. Could someone please give me a

> little

> > insight on whats coming for my boy.

[Guest guest]

Beautifully said, . It brought tears to my eyes. And you

speak the truth.

Jodi Z

> > > I have just been to the genetics dr with my son brayden and

they

> are

> > as

> > > sure as can be that he has RSS. So now trying to find an endo

> in my

> > > area to deal with. I feel like I still dont know whats going

> on. I

> > > have no clue whats coming next. Could someone please give me

a

> > little

> > > insight on whats coming for my boy.