Re: : Mommy needs to vent - LACE66666

[Guest guest]

What a wonderful answer! You should save this one to send out once in awhile

FOR ALL OF US to read. Once we feel like we can't take ONE MORE THING, we

need to read a message like this.

Thanks!

Debby

Re: Mommy needs to vent - LACE66666

> Lace - first, take a deep breath. We are all here for you. Second,

> we all may be frustrated by the many things we need to do for our

> RSS children - and, if by reading the posts you feel overwhelmed -

> my apologies. There are many varying degrees of RSS, and

> fortunately, most of their issues can be dealt with - not that there

> aren't alot of them at times - but, rest assured - you have MAGIC

> and this support group to come to during those more demanding

> times. My son Ian, 2 with RSS, is an amazing boy. He's bright,

> sweet, friendly, outgoing, stubborn, shy, obstinate.....gosh the

> list goes on. But, I wouldn't change his diagnosis for the life of

> me. He and his syndrome are teaching me so much about myself and

> life itself. Do I sometimes feel in denial of my son's situation

> and wish he didn't have it? You bet. But, in some way, I feel

> almost privileged to have a son like Ian. Why? Because he reminds

> me of how precious life is, how unimportant being perfect is, and

> how there is always room to be a better person.

>

> You will be fine. The best thing I can suggest is to stay on-line

> here when you can, and definately go to the convention next Summer.

> I've noticed a very interesting thing about these moms - there is

> such a connection here. Not just because we have similar issues -

> but, we all have the same drive to help our children have the best

> life possible, we are all caring individuals and will do whatever it

> takes to keep our children as healthy as possible. Aren't all moms

> like that? Well, usually. But, for some reason, I see a beautiful

> group of woman that put their best foot forward for their children

> and their families. I can not emphasize how much it helped going to

> the convention - and belonging to MAGIC was the other wonderful

> thing I could do for my son, but also for me.

>

> Keep us posted.

>

> - H

>

>

>

> > > I have just been to the genetics dr with my son brayden and they

> are

> > as

> > > sure as can be that he has RSS. So now trying to find an endo

> in my

> > > area to deal with. I feel like I still dont know whats going

> on. I

> > > have no clue whats coming next. Could someone please give me a

> > little

> > > insight on whats coming for my boy.

>

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