Re: Periactin holiday

[Guest guest]

We also tried the Periactin holiday and it did not work for us

either. It makes sense, in one vein, but on the flip side, the fact

is that once a child has made " catch-up growth " you probably will

NOT see the child eating that much more on Periactin. Because they

will eat what they need to maintain that new curve. So what may

happen is that we think the Periactin isn't working anymore. We go

off of it; the child eats slightly less, not enough that most

parents would notice but over time, it adds up to weight (50 less

calories a day than what he needs is the equivalent of NOT gaining

1/2 pound per month or so.)

Our daughter went off Periactin, and we thought she was eating so

so. She was gaining weight each month. Then we saw Dr. H after

about, I think it was 7-8 months. She charted 's weight

growth for us over the past 2 years. WOW. Her velocity (meaning

the rate at which she gained in weight) completely fell off when we

took her off Periactin. She was still gaining, but not enough to

keep her weight-for-height proportion the same.

So.... that is our story. Jenn

> Hi. I have a question about my son non RSS, don't know where else

to

> ask, but he is on periactin for low appetite. Anyways, he got put

on

> it in June and has gained about 7 or so lbs since then. Now 7 yrs

and

> 42 lbs. His gi doc is not much for experimenting but his

geneticist

> said to try the periactin holiday, go off for about 1 mos then

back on.

> (Periactin didn't work for Autumn ) that way maybe we can step up

his

> weight even more to see if it is affecting his stature and see if

we

> will get another weight jump. I took him off a few days ago and he

is

> now barely eating. He brings home his lunchbox full except for

1/2

> sandwich which he took a couple bites from and threw out the

rest. He

> also complains of his belly hurting all the time...let me

elaborate on

> this...he was put on it for low appetite and he always has stomach

pain

> to which no cause has been found but suspected sensory issues have

been

> thought to be the culprit. Like stomach hunger...hurts so won't

eat,

> stomach beginning to get full...hurts so won't eat more...etc, he

feels

> it all as the same pain " we think " . I am wondering if the

periactin

> has affected that by making him hungry therefore his sensory

issues

> aren't so strong and he eats more.

>

> Any insight? Should I continue this periactin holiday when he is

> barely eating anymore or just get back on it?

>

> thanks.

>

> mom to Autumn RSS 20 mos 16 lbs 29.5 inches, Summer 3

mos 8

> 3/4 lbs 21 inches I think, Ocean 32 lbs 37 3/4 inches, Skye 7

44.25

> inches 42 lbs anxiety, ocd, aspergers, sensory issues

[Guest guest]

Thanks, it makes sense. He doesn't even want to eat his favorite

snack anymore, maybe he should just stay on it, it has worked wonders

for him and it is more noticable how much it helped now he is off.

> > Hi. I have a question about my son non RSS, don't know where

else

> to

> > ask, but he is on periactin for low appetite. Anyways, he got

put

> on

> > it in June and has gained about 7 or so lbs since then. Now 7

yrs

> and

> > 42 lbs. His gi doc is not much for experimenting but his

> geneticist

> > said to try the periactin holiday, go off for about 1 mos then

> back on.

> > (Periactin didn't work for Autumn ) that way maybe we can step up

> his

> > weight even more to see if it is affecting his stature and see if

> we

> > will get another weight jump. I took him off a few days ago and

he

> is

> > now barely eating. He brings home his lunchbox full except for

> 1/2

> > sandwich which he took a couple bites from and threw out the

> rest. He

> > also complains of his belly hurting all the time...let me

> elaborate on

> > this...he was put on it for low appetite and he always has

stomach

> pain

> > to which no cause has been found but suspected sensory issues

have

> been

> > thought to be the culprit. Like stomach hunger...hurts so won't

> eat,

> > stomach beginning to get full...hurts so won't eat more...etc, he

> feels

> > it all as the same pain " we think " . I am wondering if the

> periactin

> > has affected that by making him hungry therefore his sensory

> issues

> > aren't so strong and he eats more.

> >

> > Any insight? Should I continue this periactin holiday when he is

> > barely eating anymore or just get back on it?

> >

> > thanks.

> >

> > mom to Autumn RSS 20 mos 16 lbs 29.5 inches, Summer 3

> mos 8

> > 3/4 lbs 21 inches I think, Ocean 32 lbs 37 3/4 inches, Skye 7

> 44.25

> > inches 42 lbs anxiety, ocd, aspergers, sensory issues