Autumn is home from hospital

[Guest guest]

,

I am so glad Autumn is home. I really know how you felt about taking care of

two kids in the hospital. It is really hard and exhausting. I did it with my

two when was in the hospital twice in a 2 week period. Take care and my

prayers are with you.

Tammy

anderkat3 wrote:

Hi all. thanks for all the thoughts and prayers for Autumn. She

came home yesterday and is doing better. She is breathing much

better and is on home treatments of steroids and albuterol for a

little while. It was a pretty scary and exhausting time. She is down

a pound now, back to 16.5 and it takes forever to get her to gain,

she's still not eating well, but is eating some and drinking.

Periactin doen't work for her so no luck there, but thank goodness

for cheese puffs! Summer got to stay with me in the hospital room

and between her crying and Autumn being miserable and comforting them

and having nurses give her treatments, oxygen and monitors beeping

etc, i don't think I ever slept! I'm sure you all know what that is

like. We are now catching up. Autumn slept 14 hours at night, 5 hour

nap, and 2 hours later back in bed, She also finally has the full

blown cold that caused this athsma attack when it started. I am soooo

tired of hospitals, between her stay and Summer's 2 stays since

birth, I have been there 2 combined weeks out of the last 8 weeks. I

never want to see it again....here's for hoping!

mom to Autumn RSS athsma 19.5 mos 16.5 lbs, Summer IUGR 8

weeks 7.5 lbs, Ocean 3 yrs 31 lbs, Skye Aspergers, OCD, anxiety 7 yrs

41 lbs thanks to periactin!

[Guest guest]

Hi. Thanks you everyone for your e-mails and for your thoughts and

prayers for Autumn, it means a lot to me. She came home last night

after being admitted the night before for dehydration, and she only

has a plain viral cold. She couldn't even fight or scream from the

iv, she just layed there with a hoarse cry. She keeps coughing hard

and throwing up from the gag reflex, do any of your kids have that

problem? It turns a basic cough into a nightmare, and now the cough

is getting worse. Anyways, she was given fluids till yesterday, then

we cut her off to see how she would do, I took her home at 8 p.m. and

she was drinking enough then, not a lot but good enough, and acting

better...being playful and not lethargic and I was hoping she would

do better getting sleep here at home. She took 6 oz of peptamin this

morning but now is refusing any and all drinks/food after. For some

reason when she tries to eat (only a couple of times), it triggers

coughing fits which lead to gagging/vomiting, then she cries and

wants no more of anything. She is not dehydrated and her blood sugar

was 88 when we went in the night before last, so she doesn't get

severe drops in them, but she is still not doing good, I really don't

want to go back, but if she doesnt pick up soon, she will. She just

needs fluids with calories now. She is losing weight fast.

She just gets so overwhelmed at the hospital that it counteracts her

getting better. Most of the time we were there, she just cried and

sat in the stroller I had in her room whimpering " bye bye, bye bye " .

I am so ready for this g-tube. she is getting one in 1.5 weeks and I

need to get her better by then. She just got over a stomach virus

last week and ironically enough, she drinks and tries to eat some

then, but not with a reg. virus/cold. Any and all doubts about the g-

tube are gone.

Thanks for listening.

mom to Autumn 21 mos, Skye, Ocean, Summer

[Guest guest]

Hi. I have tried and tried syringe feeding, and so did the nurses in

the hospital, the problem is that she doesn't want it. She is so

against any food or drink that if she decided no, and we try any way,

she will throw it up, I don't know how she does it. I have never

seen anyone like that..it is extrememly frustrating and the hospital

is the last resort. She just didn't drink from anything, cup,

straw, bottle, can, water bottle, anything....

>

> Hi ,

> My husband, and a little girl I babysit both had exactly what

you described, coughing hard and vomiting during the fits. This was

just a week ago, then Dasia hasn't been having any big coughing fits,

just flu symptoms, and some congestion from the cold she just got

over. Strange. I have been talking to the nurses at our Dr.'s office

about dehydration, and they thought unless she wasn't making tears or

saliva, and having a wet diaper, at least one every 8 hours that she

would be okay. That they don't like seeing them admitted, unless

there is true risk of dehydration, because of the trauma of the

i.v.'s and being in the hospital while being sick. I kind of thought

that would be waiting too long, I certainly wouldn't want to wait

until dehydration set in! A good tip they gave me though, was to fill

a syringe with pedialyte and give her that little bit every 15

minutes on a bad day, that she's not holding anything down. That

these small amounts would absorb into the stomach lining

> very quickly, before having a chance to come up. It's also easier

to give them when they're refusing a cup. I didn't think of this

until now, but since the g-tube goes to the stomach, will they still

vomit what goes in, when they have the flu? Not to be negative about

the g-tube, because I am still sitting on the fence about it,

wondering if Dasia should have one, just to be sure she's got her

catch-up weight, come time for GH. Still scared. I'll track your

progress! Dasia is more like Autumn than any of the other kids, when

it comes to age, weight, and height. So PLEASE! Keep me very well

posted!

>

>

> Hi. Thanks you everyone for your e-mails and for your thoughts and

> prayers for Autumn, it means a lot to me. She came home last night

> after being admitted the night before for dehydration, and she only

> has a plain viral cold. She couldn't even fight or scream from the

> iv, she just layed there with a hoarse cry. She keeps coughing

hard

> and throwing up from the gag reflex, do any of your kids have that

> problem? It turns a basic cough into a nightmare, and now the

cough

> is getting worse. Anyways, she was given fluids till yesterday,

then

> we cut her off to see how she would do, I took her home at 8 p.m.

and

> she was drinking enough then, not a lot but good enough, and acting

> better...being playful and not lethargic and I was hoping she would

> do better getting sleep here at home. She took 6 oz of peptamin

this

> morning but now is refusing any and all drinks/food after. For

some

> reason when she tries to eat (only a couple of times), it triggers

> coughing fits which lead to gagging/vomiting, then she cries and

> wants no more of anything. She is not dehydrated and her blood

sugar

> was 88 when we went in the night before last, so she doesn't get

> severe drops in them, but she is still not doing good, I really

don't

> want to go back, but if she doesnt pick up soon, she will. She just

> needs fluids with calories now. She is losing weight fast.

> She just gets so overwhelmed at the hospital that it counteracts

her

> getting better. Most of the time we were there, she just cried and

> sat in the stroller I had in her room whimpering " bye bye, bye

bye " .

> I am so ready for this g-tube. she is getting one in 1.5 weeks and

I

> need to get her better by then. She just got over a stomach virus

> last week and ironically enough, she drinks and tries to eat some

> then, but not with a reg. virus/cold. Any and all doubts about the

g-

> tube are gone.

> Thanks for listening.

>

> mom to Autumn 21 mos, Skye, Ocean, Summer

>

>

>

>

>

>

[Guest guest]

,

I am glad that Autumn is home from the hospital, but I am worried

that it might have been too soon. Do you recall what I have posted

about keeping your child in the hospital until she is

eating " normally " and is stable? Sometimes it takes 5 days or

more. Often the doctors think that simple rehydration is sufficient

and send our kids home after a day or two. But the kids, once they

are home, do not eat as they were before and do not thrive. In

fact, they get sicker and things get more complicated and

frustrating. Look at what just went through with Ian.

I hope I am totally wrong about this. I just want you to keep a

good eye on Autumn and make sure she is getting enough nutrition.

It is possible and probable that they sent you home too soon and you

are going to have to go back. I know those signs all too well. It

may seem " silly " that she gags and throws up from a cold, but Max

was the same way. He still is. Something about that post nasal

drip, the cold, the congestion....They trigger that gag reflex and

food just does not want to stay in.

As time goes on, you will learn to really speak up to the doctors

and tell them that you are not ready to take your child home. She

MUST be stable and eating and doing well for at least a day before

this can happen. This is true even once she has the g-tube. Rarely

does rehydration do the trick for our kids. It takes time for their

little bodies to recover. They have so little to fall back on - no

reserves, really. Once the little they have is used up, it must be

built back up again. And that takes time. Lots of time,

unfortunately.

Jodi Z

[Guest guest]

You couldn't be more right. Thanks...i read this before i took her

back in

>

> ,

>

> I am glad that Autumn is home from the hospital, but I am worried

> that it might have been too soon. Do you recall what I have

posted

> about keeping your child in the hospital until she is

> eating " normally " and is stable? Sometimes it takes 5 days or

> more. Often the doctors think that simple rehydration is

sufficient

> and send our kids home after a day or two. But the kids, once

they

> are home, do not eat as they were before and do not thrive. In

> fact, they get sicker and things get more complicated and

> frustrating. Look at what just went through with Ian.

>

> I hope I am totally wrong about this. I just want you to keep a

> good eye on Autumn and make sure she is getting enough nutrition.

> It is possible and probable that they sent you home too soon and

you

> are going to have to go back. I know those signs all too well.

It

> may seem " silly " that she gags and throws up from a cold, but Max

> was the same way. He still is. Something about that post nasal

> drip, the cold, the congestion....They trigger that gag reflex and

> food just does not want to stay in.

>

> As time goes on, you will learn to really speak up to the doctors

> and tell them that you are not ready to take your child home. She

> MUST be stable and eating and doing well for at least a day before

> this can happen. This is true even once she has the g-tube.

Rarely

> does rehydration do the trick for our kids. It takes time for

their

> little bodies to recover. They have so little to fall back on -

no

> reserves, really. Once the little they have is used up, it must

be

> built back up again. And that takes time. Lots of time,

> unfortunately.

>

> Jodi Z

>