Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Chrissy, we haven't stopped thinking of Maddy and we are so glad to know she is in the medical care of Dr. H. Wish I could be there for you. Hugs to you both. - H > we really don't have any answers yet since we haven't seen a doc however i > thing the fluids helped alot. She still retching and gaging but she hasn't > vomitted. thanks for all the letters i just finished going through them and they > made me feel sooooo much better, i appreciated all the support. i will try to > post tomorrow once i get the results from her MRI. > thanks for everything > chrissy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Chrissy, I've been trying to call you and now I know why your line is busy again. You are on the computer!!! That really is terrible about Maddy's esophagus being so irritated and all. And not being able to eat even longer.... I'm so sorry. Please know that Jodie and I will make another trip in to see you next week. I was hoping that you would be home, but I guess that won't come to be just yet. I am going to call you this weekend and again ask you what you need. You better tell me and be specific! Even if you need clothes, I will bring them. Just let me know. Whatever you need, we will bring it. Hang in there, friend. We are all pulling for you. And eventually I will get through on the phone. I assume your husband cannot make it in this weekend? If that is the case, let me know. Maybe I'll go in on Sunday to keep you company. I don't mind at all. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 Chrissy, I don't know if you know me, but I have been reading about Maddy and just wanted to let you know that we are thinking of you. I live about 1.5 from NY and know that both Jodi's have been in to see you, but if there is anything we can do, please let us know. My husband works in the city. Hang in there. , Gene and Jonah maddy update > Today Dr. H came in and gave us the results to her gastric emtying delay > study, The delay was really good a big improvement from 2 years ago. However she > had really bad reflux worse than she had origanally before she had the sugery > in 2002. It appears that she is burning the crap out of her asphagus. This is > why she was unable to eat. So now we won't be comming home this weekend. She > has to have the endoscopy to see the damage the reflux has caused and to make > sure that is all thats goin on (as tho reflux wasn't enough ). > So she is still not able to eat which is making her very angry. She said that > Maddy deffidently needs the nissan repaired which we figured anyway. Well > i'll keep you posted. > Chrissy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Fantastic news Chrissy!! Give Maddy a huge kiss from the RSS family! And I hope she enjoys her dinner tonight! You'll have to tell us how she does! Debby Maddy update > So last night Dr. H dropped in and at this time maddy was hysterical over the > pain in her arm. Since maddy loves Dr. H she showed her the arm and right > away she said theres a problem here. So at 8am today they took her back to the > cath lab and pulled out the picc and replaced it in the left arm. It turns out > the vein was inflammed. > Then around 12pm they took her for her endoscopy. Everything looked pretty > good her asophagus looked to be healing. They took a few biopsys but gave her > the ok to eat, HURRAYYYYYYY!!!!!!!!!!! > Don't ya know as soon as they order her dinner she throws up all over > herself. We all agree tho it's probably from all the meds she recieved since she was > put to sleep twice today. > she only had a small reaction this time to the anastia. No rash just a really > hot body. > Dr. H said maddy has to be able to hold down food and gain weight so she can > go home. We'll see how this goes. > keep ya posted, > Chrissy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Yay for you both! I hope it is all easy from here on out , mom to and Emerence > So last night Dr. H dropped in and at this time maddy was hysterical over the > pain in her arm. Since maddy loves Dr. H she showed her the arm and right > away she said theres a problem here. So at 8am today they took her back to the > cath lab and pulled out the picc and replaced it in the left arm. It turns out > the vein was inflammed. > Then around 12pm they took her for her endoscopy. Everything looked pretty > good her asophagus looked to be healing. They took a few biopsys but gave her > the ok to eat, HURRAYYYYYYY!!!!!!!!!!! > Don't ya know as soon as they order her dinner she throws up all over > herself. We all agree tho it's probably from all the meds she recieved since she was > put to sleep twice today. > she only had a small reaction this time to the anastia. No rash just a really > hot body. > Dr. H said maddy has to be able to hold down food and gain weight so she can > go home. We'll see how this goes. > keep ya posted, > Chrissy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 I hope you both enjoy dinner tonight. Is there anything I can send in for you or Maddy with the Jodi(e)s tomorrow? Toys, clothes for Maddy, books for her or you anything? B 5 1/2 and Kelli 3 --- chrissynlou@... wrote: > So last night Dr. H dropped in and at this time > maddy was hysterical over the > pain in her arm. Since maddy loves Dr. H she showed > her the arm and right > away she said theres a problem here. So at 8am today > they took her back to the > cath lab and pulled out the picc and replaced it in > the left arm. It turns out > the vein was inflammed. > Then around 12pm they took her for her endoscopy. > Everything looked pretty > good her asophagus looked to be healing. They took a > few biopsys but gave her > the ok to eat, HURRAYYYYYYY!!!!!!!!!!! > Don't ya know as soon as they order her dinner she > throws up all over > herself. We all agree tho it's probably from all > the meds she recieved since she was > put to sleep twice today. > she only had a small reaction this time to the > anastia. No rash just a really > hot body. > Dr. H said maddy has to be able to hold down food > and gain weight so she can > go home. We'll see how this goes. > keep ya posted, > Chrissy > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2005 Report Share Posted October 25, 2005 We got a new accu check and it's amazing how fast her sugar was normal. Her needle fell out again today after it was just put in on Sunday. I can't wait till this TPN thing is over. No word on surgery yet. Chrissy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.