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Hi all,

We got back from our 7 hour trip to Chicago yesterday around 3 pm. I

am so glad to have been able to go and see Dr. H again. She says

that is ready to start GH and we will be seeing her in 3

months in New York to get all the blood work and bone age done. She

did tell me that is too chunky at this point (which I knew she

would say) so we are going to try to reduce his daytime feedings to

try to get him to maintain his weight to prepare him for his GH.

Also, she is hoping this will help him want to eat more orally. She

says no to trying Periactin at this point because she wants to see if

reducing his tube feedings will allow him to be hungry enough to want

to eat more. I always feel so much better after seeing her, as she

is really the only doctor I fully trust to make these major decisions

about .

I was so happy to see everyone that I met last year, and to meet new

people. I am just so overwhelmed at how cute all of our kids are and

it is so fun to watch them all playing and having a great time

together. It amazes me at how similar some of them look to each

other! :o) also missed the Dr. H photo around the pool, so I

would love to see a copy of someone elses. I am sure Jodie got

one!? :o)

And once again, Joe Jovanovich took some wonderful family pictures,

and then seperate photos of some of the kids. He does such a

wonderful job and just absolutely adores him! :o) Thanks Joe!

I hope everyone made it home alright and hope to hear more stories

and updates,

Jodi R.

's mommy

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