trip to the metabolic & genetics clinic update

[Guest guest]

Hello everyone-

We took Isaac to the metabolic clinic at Children's hospital in Dallas

this morning. The genetics specialist was wonderful and Art and I

actually left with smiles on our faces. He really felt that Isaac's

MCAD is very well controlled and we just need to worry about it when

he isn't eating well or sick. He said that all of the recommendations

he would make are things we are already doing because of RSS (frequent

feedings, cornstarch at night). He told us not to worry about diet too

much since Isaac's main priority is to get those calories in. We spoke

with a metabolic nutritionist who suggested that we use milk w/

carnation instant breakfast instead of Pediasure since Isaac can't

break down the MCT in Pediasure. We have already been incorporating

the instant breakfast mix/ milk into a couple of feedings a day so I

think the transition will be smooth. It is certainly a small world-the

gentleman we met with knows Dr. H and actually was at s Hopkins

with her!

What a big relief! :>)