Re: Digest Number 3115

[Guest guest]

Hi Ellen,

I have been there...done that with . For quite awhile, we

were giving him his Lupron shots every 21 days instead of every 28

days for the same reasons you described. I never heard of anyone

else who did the same. However, we are back on a 28 day schedule

now. We took off Lupron for a few months, because Dr. H &

my local endo were arguing back & forth about whether was in

true puberty based on the LHRH stimulation test. When they both

concluded that he was in puberty, started back up again and

has been taking it every 28 days. He is on 11.25 mg though, and has

been for about 2 years. has been on Lupron for almost 4 years

with a few months off here and there. I am not sure the Lupron is

working the way it should with him, but that seems to be the case

with all medicines & treatments we try. There were many issues Dr. H

couldn't explain either the last time we saw her. You might want to

talk to the doctor about going up to 11.25 mg. I don't know if this

dosage is based on weight or not, but increased to 11.25 mg

when he was 50 " and 48 lbs. He is now 52.5 " and 59 lbs. & will be

12 years old in a few weeks.

Kim C.

On Oct 3, 2005, at 6:32 PM, RSS-Support wrote:

> Kim,

> Mikey has had 3 Lupron shots - is beginning her 3rd month on it.

> The dosage

> doesn't seem to last the full 28 days. She has had some " breakthrough "

> discharge towards the end of the 28 days. Her endo did a blood

> test to look for

> hormonal activity (on the 28th day - before her last Lupron shot.

> I don't know

> the results yet. Dr. seemed to think it would be better to

> increase by giving

> her shot every 21 days instead if increasing dosage in each 28 day

> shot.Is

> that how your Dr. does it? Seems strange to me.

> Meanwhile Mikey's emotions are all over the map. I just want my

> happy little

> girl back!

> Mikey is 50 " 56 lbs. She is getting 7.5mg every 28 days.

> Her bone age advanced 2 years this past year. Before that it was

> even with

> her chronological age.

> How long have you been on it - how did you know the dosage wasn't

> right?

> Thanks, Ellen

>