Re: Baby Luke - & Sydney....

[Guest guest]

Hi ,

How is it that I have not heard of your inspiring story before now?

It is so important that we share our stories and I would LOVE to hear

yours!!!!! If I missed any posts, please forgive me and post again.

Those of us Far far from Iowa and who see good Ponseti doc's (thus

have no need to make the trek) love to hear from those who get to be

treated by Dr. Ponseti first hand and with your family

history...well, I would really be interested in hearing about your

experience!! Share girl!

Smiles,

& Grace 21mos

urcf FAB 13hrs

>

> Dana,

> I just wanted you to know that the story of my daughter is almost

> identical to yours. My daughter has bilateral atypical clubfoot and

> was treated by different doctors, but they couldn't correct her

feet.

> They finally said my only decision was to wait until she was old

> enough for surgery. I too contacted Dr. Ponseti and he told me not

to

> let them cut her and to come see him. We started seeing Dr. Ponseti

> when Sydney was 9 weeks old. During our first visit we stayed for 3

> weeks at the Mc House. Dr. Ponseti has Sydney's feet

> fully corrected in casts before we went home. It was more than any

Dr.

> here could do. It was amazing. We did go back for visits with him as

> needed and now Sydney is doing so well that we have a 4 month break

> until our next visit. (If everything goes as planned.) She is

wearing

> the Ponseti/ brace 18 hours a day. She has never has a

sore, a

> blister, or even cried because of the brace. She sits patiently

when I

> put it on and does not mind at all. I just wanted to re-assure you

> that you were doing the right thing and that Luke will be in great

> hands in Iowa. Please E-mail me and I will send you my phone number

if

> you have any questions or would just like to talk about it. I will

be

> glad to share my experience or help you in anyway I can. Good Luck

and

> God Bless!

>

> " Tell your family that Little Sydney will be able to run and dance

> without ever knowing that anything was ever wrong. "

> ~Dr. Ponseti

> November 2005

>

> Blanton

> ville, GA

> Sydney: 9 months old, Bilateral Atypical Clubfeet

> ps....Sydney's Aunt also has B/A/C and was treated with surgery and

is

> now extremely disfigured and pending a 9th surgery just to help her

> walk. She is 21 and can not run and is limited on her mobility. It

is

> such a blessing for Sydney and all the other babies to have the

> opportunity for a life without limitations.

>