From bad to worse

[Guest guest]

I take back what I posted earlier. Things are worse now than they

have been in the 4 weeks Max has been sick and hiccuping.

Now Max cannot keep any food down. He tried to eat lunch, it came

back up, so we had him sleep for the rest of the afternoon. At 7 I

called him down to dinner and he began to eat. He suddenly ran away

from the table and vomited up everything. We had him wait a little

while and he tried again. Everything came up again.

Now we have told him to take a break for a longer period of time.

He checked his ketones and they are negative so far. But if this

continues, then by the morning he will start to spill them. I know

the drill. If it continues, then he will be in the hospital and on

gut rest. This has been going on for so long that they may even put

in a picc line so he can just go home and take things more slowly.

I am so frustrated and upset. I just knew it was going to get to

this point. And I'm scared. No one can tell us why this is

happening. I know that it is psychogenic at this point. There has

to be a component to it now.

Doesn't this family ever get a break? And who in the world is going

to help us? No one seems to want to at this point, or no one has

answers or a plan.

Jodi Z