Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Hi, Are you sure it is not too late to band for the brachy/plagio again? It might be better than regretting it in a few years. looks like he is still slowly improving in his helmet at almost 22 months. I'm not surprised regression is possible in the second year. has improved. It seems if improvement is possible, regression must be possible also. You could also try alternative treatments. Best, Kathy, mom to almost 22 months R wrote: I just want to make a quick post about post-helmet regression. My son, , wore a helmet from 6-9 months, during which time he went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be honest, although hand measurements said 0mm, there was still some asymmetry in his head, but not flatness, and it did not bother me. There are probably pictures in the N section--he is Pratt-- if you want to look. When he was 15 months I freaked out and took in and he was measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as you can imagine, that he was up at 89%, but the orthotist said he looked great and it was too late for another band anyway. I have always assumed that the 86% was a measurement error. However, a couple weeks ago my son got a haircut and to my horror his flat spot on the left seems to be back. There is no question about it. I'd be surprised if his measurement was less than 5mm. This happened only in the last few months (he is 20 mos now)!!! sleeps (when he does) on a bed with a soft pillow and he sleeps completely on his side---sometimes right and sometimes left. So I can't understand how this could have happened. I feel like I'm going crazy. Anyway, this is not supposed to be a counseling forum, so never mind my psychological state. My point is just that change CAN happen in the second year---no question about it. Not only should you be very careful about how your post-band baby sleeps, but you should go as far as you can with the band before quitting. You want room for a little regression and the longer they're in the band the safer they are from it. Let me clarify one thing here: I do not think an asymmetry of 5mm is anything to feel bad about, per se. I would not band starting at that. I'm just bummed out that I could have been banding for brachy this year and there probably would have been a change, but instead believed everyone that it was too late and have to sit here watching the plagio return. That's it for now. Thanks for listening and I hope it is helpful to someone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Kathy, I really don't know. I did try to get a prescription from the cranial surgeon back at 15 months, but he said my son's head was " perfect " and bands don't work past 9 months (!!!!) The nearest place does Starbands and isn't it too late for one now? The orthotist there said it was too late at 15 months and he also thinks 's head is perfect. The nearest CT is in Dallas, which would require flying. I don't really want to make a trip without a script in hand but I can't get one! I could try our ped. again. I would be blown away if he'd agree to it though. He always thought it was crazy--you know, " it'll round out on its own " . Yeah, I've seen LOTS of kids in that waiting room at 6, 8 years old with totally messed up heads. We tried CST with a chiro, but my husband though it a waste of time. I don't know what I thought. Maybe I'll try it again. Thanks for your input, Kathy. Do you have pics of your boys posted? > > > > > > I just want to make a quick post about post-helmet regression. > > > > My son, , wore a helmet from 6-9 months, during which time he > > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be > > honest, although hand measurements said 0mm, there was still some > > asymmetry in his head, but not flatness, and it did not bother me. > > There are probably pictures in the N section--he is Pratt-- if > > you want to look. > > > > When he was 15 months I freaked out and took in and he was > > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as > > you can imagine, that he was up at 89%, but the orthotist said he > > looked great and it was too late for another band anyway. I have > > always assumed that the 86% was a measurement error. > > > > However, a couple weeks ago my son got a haircut and to my horror his > > flat spot on the left seems to be back. There is no question about it. > > I'd be surprised if his measurement was less than 5mm. This happened > > only in the last few months (he is 20 mos now)!!! sleeps (when > > he does) on a bed with a soft pillow and he sleeps completely on his > > side---sometimes right and sometimes left. So I can't understand how > > this could have happened. I feel like I'm going crazy. > > > > Anyway, this is not supposed to be a counseling forum, so never mind > > my psychological state. My point is just that change CAN happen in the > > second year---no question about it. Not only should you be very > > careful about how your post-band baby sleeps, but you should go as far > > as you can with the band before quitting. You want room for a little > > regression and the longer they're in the band the safer they are from it. > > > > Let me clarify one thing here: I do not think an asymmetry of 5mm is > > anything to feel bad about, per se. I would not band starting at that. > > I'm just bummed out that I could have been banding for brachy > > this year and there probably would have been a change, but instead > > believed everyone that it was too late and have to sit here watching > > the plagio return. > > > > That's it for now. Thanks for listening and I hope it is helpful to > > someone! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Hi, No, we haven't posted pictures. I was too depressed about the plagio, and I was scared everyone would tell me they could see 's plagio. I'm still scared people will tell me they see it in my boys. Although it is improving in , and people who have seen 's head don't see it like they used to. We didn't realize my older son, , still had a little flattening until was diagnosed, so his head cannot be that bad. My husband knew 's left eye was smaller. We still aren't convinced that is from the plagio since the eye was smaller at birth and the flat spot came afterwards. The eye could be connected to the neck tilt and preference to turn right, also present at birth. We're also trying a highly qualified osteopath. Something crazy happened a couple weeks ago. I thought I had become way too sensitive to plagio and was seeing things. I swear 's head looked much worse and I got extremely upset. Then I was thinking how could I have been so blind and not realized how bad 's head was all along. It turned out we had an osteopath appointment scheduled for him anyway. The osteopath told my husband had been whip lashed and it was affecting his head and he was in worse shape than the last appointment in Dec. This would probably be from falling, which he does all the time. After the appointment 's head looked improved again, but still not as good as a few months ago. Even my husband thinks 's head looked better after the last osteopath appointment. This is all too confusing for me. I have decided that in some cases these alternative treatments may truly help even in older children. Best, Kathy, mom to 22 months, and 5.5 years R wrote: Kathy, I really don't know. I did try to get a prescription from the cranial surgeon back at 15 months, but he said my son's head was "perfect" and bands don't work past 9 months (!!!!) The nearest place does Starbands and isn't it too late for one now? The orthotist there said it was too late at 15 months and he also thinks 's head is perfect. The nearest CT is in Dallas, which would require flying. I don't really want to make a trip without a script in hand but I can't get one! I could try our ped. again. I would be blown away if he'd agree to it though. He always thought it was crazy--you know, "it'll round out on its own". Yeah, I've seen LOTS of kids in that waiting room at 6, 8 years old with totally messed up heads. We tried CST with a chiro, but my husband though it a waste of time. I don't know what I thought. Maybe I'll try it again. Thanks for your input, Kathy. Do you have pics of your boys posted? > > > > > > I just want to make a quick post about post-helmet regression. > > > > My son, , wore a helmet from 6-9 months, during which time he > > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be > > honest, although hand measurements said 0mm, there was still some > > asymmetry in his head, but not flatness, and it did not bother me. > > There are probably pictures in the N section--he is Pratt-- if > > you want to look. > > > > When he was 15 months I freaked out and took in and he was > > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as > > you can imagine, that he was up at 89%, but the orthotist said he > > looked great and it was too late for another band anyway. I have > > always assumed that the 86% was a measurement error. > > > > However, a couple weeks ago my son got a haircut and to my horror his > > flat spot on the left seems to be back. There is no question about it. > > I'd be surprised if his measurement was less than 5mm. This happened > > only in the last few months (he is 20 mos now)!!! sleeps (when > > he does) on a bed with a soft pillow and he sleeps completely on his > > side---sometimes right and sometimes left. So I can't understand how > > this could have happened. I feel like I'm going crazy. > > > > Anyway, this is not supposed to be a counseling forum, so never mind > > my psychological state. My point is just that change CAN happen in the > > second year---no question about it. Not only should you be very > > careful about how your post-band baby sleeps, but you should go as far > > as you can with the band before quitting. You want room for a little > > regression and the longer they're in the band the safer they are from it. > > > > Let me clarify one thing here: I do not think an asymmetry of 5mm is > > anything to feel bad about, per se. I would not band starting at that. > > I'm just bummed out that I could have been banding for brachy > > this year and there probably would have been a change, but instead > > believed everyone that it was too late and have to sit here watching > > the plagio return. > > > > That's it for now. Thanks for listening and I hope it is helpful to > > someone! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Hi , sorry to hear about the regression. Still it sounds relatively minor (meaning the numbers might not be high enough for banding), but it is depressing. I would at least ask your ortho to evaluate and measure his head again. Does your ortho have a star scanner? My daughter wore a starband for brachy too, and graduated at 10 mo with 85%. I had her remeasured at 14 mo and her head was the same. She's 4 yrs old now and I think her head is the same (of course bigger). My ortho told me it is really hard to know which babies will regress and why. He said from his experience he hasn't found anything to correlate it to in terms of age, sleeping etc. Of course that isn't very scientific, but he's been banding for something like 20+ yrs. Some days I would still like to have her head remeasured just to see, but I usually suppress the urge. If you do get your ortho to do an eval please let us know what he says. thanks. -christine sydney, 4 yrs, starband grad > > > > > > > > > I just want to make a quick post about post-helmet regression. > > > > > > My son, , wore a helmet from 6-9 months, during which time he > > > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be > > > honest, although hand measurements said 0mm, there was still some > > > asymmetry in his head, but not flatness, and it did not bother me. > > > There are probably pictures in the N section--he is Pratt-- if > > > you want to look. > > > > > > When he was 15 months I freaked out and took in and he was > > > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as > > > you can imagine, that he was up at 89%, but the orthotist said he > > > looked great and it was too late for another band anyway. I have > > > always assumed that the 86% was a measurement error. > > > > > > However, a couple weeks ago my son got a haircut and to my horror his > > > flat spot on the left seems to be back. There is no question about it. > > > I'd be surprised if his measurement was less than 5mm. This happened > > > only in the last few months (he is 20 mos now)!!! sleeps (when > > > he does) on a bed with a soft pillow and he sleeps completely on his > > > side---sometimes right and sometimes left. So I can't understand how > > > this could have happened. I feel like I'm going crazy. > > > > > > Anyway, this is not supposed to be a counseling forum, so never mind > > > my psychological state. My point is just that change CAN happen in the > > > second year---no question about it. Not only should you be very > > > careful about how your post-band baby sleeps, but you should go as far > > > as you can with the band before quitting. You want room for a little > > > regression and the longer they're in the band the safer they are from it. > > > > > > Let me clarify one thing here: I do not think an asymmetry of 5mm is > > > anything to feel bad about, per se. I would not band starting at that. > > > I'm just bummed out that I could have been banding for brachy > > > this year and there probably would have been a change, but instead > > > believed everyone that it was too late and have to sit here watching > > > the plagio return. > > > > > > That's it for now. Thanks for listening and I hope it is helpful to > > > someone! > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 , Thanks for your response. I don't know if I'll have measured again. The ortho is in Kansas City and we are 2.5 hours away. The ortho already seemed kind of annoyed (and he's a very nice guy) that we were back last Fall. He really believed that looked great. Maybe I should probably take a hint from the fact that everyone else (husband, grandma, peds) thinks he's fine and drop it. But actually, that makes me feel more like I am wholly responsible for taking car of things. My DH is supportive of me but does not see a problem. Plus I feel like the whole thing was my fault since was pretty much attached to me for his first year. Very interesting what your ortho said. I would have thought the regression would only come with unresolved tort. did have tort. but it mostly went away and the physio, the ped. and even the orthotist say he doesn't have it any more. But I think he may still prefer to look left and maybe if he's doing this at every chance while leaning on things it has affected his head. Still, he has few chances, what with running all over the place all the time and having only a 3-minute commute in the car seat (and fascinating big bro is to the right). I tried to take some pictures tonight but they weren't too good. I will get some in the bath tomorrow and post them if I can. I would definitely vote for you not to get your daughter remeasured if you have the slightest tendency to obsess like I do! 85% is really good. If you were to calculate the difference in width between an adult head at 85% and one at 78% it would not be a lot. Thanks again. > > > > > > > > > > > > I just want to make a quick post about post-helmet regression. > > > > > > > > My son, , wore a helmet from 6-9 months, during which time he > > > > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be > > > > honest, although hand measurements said 0mm, there was still some > > > > asymmetry in his head, but not flatness, and it did not bother me. > > > > There are probably pictures in the N section--he is Pratt-- if > > > > you want to look. > > > > > > > > When he was 15 months I freaked out and took in and he was > > > > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as > > > > you can imagine, that he was up at 89%, but the orthotist said he > > > > looked great and it was too late for another band anyway. I have > > > > always assumed that the 86% was a measurement error. > > > > > > > > However, a couple weeks ago my son got a haircut and to my horror his > > > > flat spot on the left seems to be back. There is no question about it. > > > > I'd be surprised if his measurement was less than 5mm. This happened > > > > only in the last few months (he is 20 mos now)!!! sleeps (when > > > > he does) on a bed with a soft pillow and he sleeps completely on his > > > > side---sometimes right and sometimes left. So I can't understand how > > > > this could have happened. I feel like I'm going crazy. > > > > > > > > Anyway, this is not supposed to be a counseling forum, so never mind > > > > my psychological state. My point is just that change CAN happen in the > > > > second year---no question about it. Not only should you be very > > > > careful about how your post-band baby sleeps, but you should go as far > > > > as you can with the band before quitting. You want room for a little > > > > regression and the longer they're in the band the safer they are from it. > > > > > > > > Let me clarify one thing here: I do not think an asymmetry of 5mm is > > > > anything to feel bad about, per se. I would not band starting at that. > > > > I'm just bummed out that I could have been banding for brachy > > > > this year and there probably would have been a change, but instead > > > > believed everyone that it was too late and have to sit here watching > > > > the plagio return. > > > > > > > > That's it for now. Thanks for listening and I hope it is helpful to > > > > someone! > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Hi, Everyone said didn't have tort too, but he still prefers to turn right. We finally had him evaluated by a PT, and she diagnosed him has having mild muscle/posture imbalances present since birth. It sounds like it is more in the back than the neck. My husband knows the details more since he took to the first two appointments. I'm going Wed, so it should become more clear to me. She has recommended have therapy three times per week. So far, she hasn't had enough openings that do not coincide with 's eating and nap, so we are only starting with once per week. In hindsight, I noticed a couple awkward things with 's body positioning other than just preferring to turn right. 's osteopath said he believes had internal skull-base asymmetries present at birth. If the same issues that caused the original plagio have not been resolved, perhaps regression is more likely. -Kathy, mom to turning 22 months R wrote: , Thanks for your response. I don't know if I'll have measured again. The ortho is in Kansas City and we are 2.5 hours away. The ortho already seemed kind of annoyed (and he's a very nice guy) that we were back last Fall. He really believed that looked great. Maybe I should probably take a hint from the fact that everyone else (husband, grandma, peds) thinks he's fine and drop it. But actually, that makes me feel more like I am wholly responsible for taking car of things. My DH is supportive of me but does not see a problem. Plus I feel like the whole thing was my fault since was pretty much attached to me for his first year. Very interesting what your ortho said. I would have thought the regression would only come with unresolved tort. did have tort. but it mostly went away and the physio, the ped. and even the orthotist say he doesn't have it any more. But I think he may still prefer to look left and maybe if he's doing this at every chance while leaning on things it has affected his head. Still, he has few chances, what with running all over the place all the time and having only a 3-minute commute in the car seat (and fascinating big bro is to the right). I tried to take some pictures tonight but they weren't too good. I will get some in the bath tomorrow and post them if I can. I would definitely vote for you not to get your daughter remeasured if you have the slightest tendency to obsess like I do! 85% is really good. If you were to calculate the difference in width between an adult head at 85% and one at 78% it would not be a lot. Thanks again. > > > > > > > > > > > > I just want to make a quick post about post-helmet regression. > > > > > > > > My son, , wore a helmet from 6-9 months, during which time he > > > > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be > > > > honest, although hand measurements said 0mm, there was still some > > > > asymmetry in his head, but not flatness, and it did not bother me. > > > > There are probably pictures in the N section--he is Pratt-- if > > > > you want to look. > > > > > > > > When he was 15 months I freaked out and took in and he was > > > > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as > > > > you can imagine, that he was up at 89%, but the orthotist said he > > > > looked great and it was too late for another band anyway. I have > > > > always assumed that the 86% was a measurement error. > > > > > > > > However, a couple weeks ago my son got a haircut and to my horror his > > > > flat spot on the left seems to be back. There is no question about it. > > > > I'd be surprised if his measurement was less than 5mm. This happened > > > > only in the last few months (he is 20 mos now)!!! sleeps (when > > > > he does) on a bed with a soft pillow and he sleeps completely on his > > > > side---sometimes right and sometimes left. So I can't understand how > > > > this could have happened. I feel like I'm going crazy. > > > > > > > > Anyway, this is not supposed to be a counseling forum, so never mind > > > > my psychological state. My point is just that change CAN happen in the > > > > second year---no question about it. Not only should you be very > > > > careful about how your post-band baby sleeps, but you should go as far > > > > as you can with the band before quitting. You want room for a little > > > > regression and the longer they're in the band the safer they are from it. > > > > > > > > Let me clarify one thing here: I do not think an asymmetry of 5mm is > > > > anything to feel bad about, per se. I would not band starting at that. > > > > I'm just bummed out that I could have been banding for brachy > > > > this year and there probably would have been a change, but instead > > > > believed everyone that it was too late and have to sit here watching > > > > the plagio return. > > > > > > > > That's it for now. Thanks for listening and I hope it is helpful to > > > > someone! > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 Kathy, What kind of band is your son in? Do they give Starbands to kids over 18 months? I actually did e-mail our ortho and send him some new pictures along with one from October. It's totally depressing to see the regression. I feel especially horrible because I had been obsessing over 's C.I. the whole time and forgetting to appreciate the symmetry when we had it. I don't know if I'll post any here, though. Thanks again for your input. > > Hi, > > Everyone said didn't have tort too, but he still prefers to turn > right. We finally had him evaluated by a PT, and she diagnosed him has > having mild muscle/posture imbalances present since birth. It sounds > like it is more in the back than the neck. My husband knows the details > more since he took to the first two appointments. I'm going Wed, > so it should become more clear to me. She has recommended have > therapy three times per week. So far, she hasn't had enough openings > that do not coincide with 's eating and nap, so we are only starting > with once per week. > > In hindsight, I noticed a couple awkward things with 's body > positioning other than just preferring to turn right. 's osteopath > said he believes had internal skull-base asymmetries present at birth. > > If the same issues that caused the original plagio have not been > resolved, perhaps regression is more likely. > > -Kathy, mom to turning 22 months > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2010 Report Share Posted March 31, 2010 Hi, My son is in a Starband. We started to band well before 18 months, but have kept in it. I'm extremely glad of this. I've heard of orthos banding with a Starband late. I think you would need to do some convincing and it would depend upon the ortho. I understand your feelings. I would try repositioning and alternative therapies. You never know they could help or at least stop the regression. Best, Kathy, mom to 22 months and 5.5 years R wrote: Kathy, What kind of band is your son in? Do they give Starbands to kids over 18 months? I actually did e-mail our ortho and send him some new pictures along with one from October. It's totally depressing to see the regression. I feel especially horrible because I had been obsessing over 's C.I. the whole time and forgetting to appreciate the symmetry when we had it. I don't know if I'll post any here, though. Thanks again for your input. > > Hi, > > Everyone said didn't have tort too, but he still prefers to turn > right. We finally had him evaluated by a PT, and she diagnosed him has > having mild muscle/posture imbalances present since birth. It sounds > like it is more in the back than the neck. My husband knows the details > more since he took to the first two appointments. I'm going Wed, > so it should become more clear to me. She has recommended have > therapy three times per week. So far, she hasn't had enough openings > that do not coincide with 's eating and nap, so we are only starting > with once per week. > > In hindsight, I noticed a couple awkward things with 's body > positioning other than just preferring to turn right. 's osteopath > said he believes had internal skull-base asymmetries present at birth. > > If the same issues that caused the original plagio have not been > resolved, perhaps regression is more likely. > > -Kathy, mom to turning 22 months > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Kathy, I still haven't heard back from my ortho. Hopefully that means he didn't see much regression in the pics and thinks I'm crazy. I made an appointment for chiro too. We saw someone for a few months that specializes in kids and cranial. She was great with . He also used to like to nurse during the visits, which helped. Hopefully that trick will still work. I'm thinking that since there wasn't regression for nine months and then there suddenly was it's possible that got out of alignment somehow. He does seem less willing than he used to to sleep on his right side (flattening is on left). My husband thinks the chiro is bogus and it's a waste of an afternoon (2-hour drive each way) but I think it's the thing to do. I hope your little guys are doing well! > > > > > > Hi, > > > > > > Everyone said didn't have tort too, but he still prefers to turn > > > right. We finally had him evaluated by a PT, and she diagnosed him has > > > having mild muscle/posture imbalances present since birth. It sounds > > > like it is more in the back than the neck. My husband knows the details > > > more since he took to the first two appointments. I'm going Wed, > > > so it should become more clear to me. She has recommended have > > > therapy three times per week. So far, she hasn't had enough openings > > > that do not coincide with 's eating and nap, so we are only > > starting > > > with once per week. > > > > > > In hindsight, I noticed a couple awkward things with 's body > > > positioning other than just preferring to turn right. 's osteopath > > > said he believes had internal skull-base asymmetries present at > > birth. > > > > > > If the same issues that caused the original plagio have not been > > > resolved, perhaps regression is more likely. > > > > > > -Kathy, mom to turning 22 months > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Hi , I truly believe our chiro helped . I don't think chiro works for all cases though. Hopefully, it will for you. The chiro should be able to tell you what she thinks about 's head. Our chiro always gives me honest opinions, and I really appreciate it. I would be a little worried about the long drive being tough on 's head. We drive 50mins each way. Sometimes falls asleep and turns his head right. That drives me nuts! Good luck, Kathy R wrote: Kathy, I still haven't heard back from my ortho. Hopefully that means he didn't see much regression in the pics and thinks I'm crazy. I made an appointment for chiro too. We saw someone for a few months that specializes in kids and cranial. She was great with . He also used to like to nurse during the visits, which helped. Hopefully that trick will still work. I'm thinking that since there wasn't regression for nine months and then there suddenly was it's possible that got out of alignment somehow. He does seem less willing than he used to to sleep on his right side (flattening is on left). My husband thinks the chiro is bogus and it's a waste of an afternoon (2-hour drive each way) but I think it's the thing to do. I hope your little guys are doing well! > > > > > > Hi, > > > > > > Everyone said didn't have tort too, but he still prefers to turn > > > right. We finally had him evaluated by a PT, and she diagnosed him has > > > having mild muscle/posture imbalances present since birth. It sounds > > > like it is more in the back than the neck. My husband knows the details > > > more since he took to the first two appointments. I'm going Wed, > > > so it should become more clear to me. She has recommended have > > > therapy three times per week. So far, she hasn't had enough openings > > > that do not coincide with 's eating and nap, so we are only > > starting > > > with once per week. > > > > > > In hindsight, I noticed a couple awkward things with 's body > > > positioning other than just preferring to turn right. 's osteopath > > > said he believes had internal skull-base asymmetries present at > > birth. > > > > > > If the same issues that caused the original plagio have not been > > > resolved, perhaps regression is more likely. > > > > > > -Kathy, mom to turning 22 months > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Hi all,I asked my ortho today about regression. She said she sees a lot of folks returning a long time after graduation for reevaluation and that the only time she ever saw regression was in cases of unresolved tort.Sent from my iPhoneOn Mar 29, 2010, at 10:13 PM, Kathy Lora Jensen <kathylorajensen@...> wrote: Hi, Everyone said didn't have tort too, but he still prefers to turn right. We finally had him evaluated by a PT, and she diagnosed him has having mild muscle/posture imbalances present since birth. It sounds like it is more in the back than the neck. My husband knows the details more since he took to the first two appointments. I'm going Wed, so it should become more clear to me. She has recommended have therapy three times per week. So far, she hasn't had enough openings that do not coincide with 's eating and nap, so we are only starting with once per week. In hindsight, I noticed a couple awkward things with 's body positioning other than just preferring to turn right. 's osteopath said he believes had internal skull-base asymmetries present at birth. If the same issues that caused the original plagio have not been resolved, perhaps regression is more likely. -Kathy, mom to turning 22 months R wrote: , Thanks for your response. I don't know if I'll have measured again. The ortho is in Kansas City and we are 2.5 hours away. The ortho already seemed kind of annoyed (and he's a very nice guy) that we were back last Fall. He really believed that looked great. Maybe I should probably take a hint from the fact that everyone else (husband, grandma, peds) thinks he's fine and drop it. But actually, that makes me feel more like I am wholly responsible for taking car of things. My DH is supportive of me but does not see a problem. Plus I feel like the whole thing was my fault since was pretty much attached to me for his first year. Very interesting what your ortho said. I would have thought the regression would only come with unresolved tort. did have tort. but it mostly went away and the physio, the ped. and even the orthotist say he doesn't have it any more. But I think he may still prefer to look left and maybe if he's doing this at every chance while leaning on things it has affected his head. Still, he has few chances, what with running all over the place all the time and having only a 3-minute commute in the car seat (and fascinating big bro is to the right). I tried to take some pictures tonight but they weren't too good. I will get some in the bath tomorrow and post them if I can. I would definitely vote for you not to get your daughter remeasured if you have the slightest tendency to obsess like I do! 85% is really good. If you were to calculate the difference in width between an adult head at 85% and one at 78% it would not be a lot. Thanks again. > > > > > > > > > > > > I just want to make a quick post about post-helmet regression. > > > > > > > > My son, , wore a helmet from 6-9 months, during which time he > > > > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be > > > > honest, although hand measurements said 0mm, there was still some > > > > asymmetry in his head, but not flatness, and it did not bother me. > > > > There are probably pictures in the N section--he is Pratt-- if > > > > you want to look. > > > > > > > > When he was 15 months I freaked out and took in and he was > > > > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as > > > > you can imagine, that he was up at 89%, but the orthotist said he > > > > looked great and it was too late for another band anyway. I have > > > > always assumed that the 86% was a measurement error. > > > > > > > > However, a couple weeks ago my son got a haircut and to my horror his > > > > flat spot on the left seems to be back. There is no question about it. > > > > I'd be surprised if his measurement was less than 5mm. This happened > > > > only in the last few months (he is 20 mos now)!!! sleeps (when > > > > he does) on a bed with a soft pillow and he sleeps completely on his > > > > side---sometimes right and sometimes left. So I can't understand how > > > > this could have happened. I feel like I'm going crazy. > > > > > > > > Anyway, this is not supposed to be a counseling forum, so never mind > > > > my psychological state. My point is just that change CAN happen in the > > > > second year---no question about it. Not only should you be very > > > > careful about how your post-band baby sleeps, but you should go as far > > > > as you can with the band before quitting. You want room for a little > > > > regression and the longer they're in the band the safer they are from it. > > > > > > > > Let me clarify one thing here: I do not think an asymmetry of 5mm is > > > > anything to feel bad about, per se. I would not band starting at that. > > > > I'm just bummed out that I could have been banding for brachy > > > > this year and there probably would have been a change, but instead > > > > believed everyone that it was too late and have to sit here watching > > > > the plagio return. > > > > > > > > That's it for now. Thanks for listening and I hope it is helpful to > > > > someone! > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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