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Re: Regression -- good news and bad

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Hi,

Are you sure it is not too late to band for the brachy/plagio again?

It might be better than regretting it in a few years. looks like

he is still slowly improving in his helmet at almost 22 months. I'm

not surprised regression is possible in the second year. has

improved. It seems if improvement is possible, regression must be

possible also.

You could also try alternative treatments.

Best,

Kathy, mom to almost 22 months

R wrote:

I just want to make a quick post about post-helmet regression.

My son, , wore a helmet from 6-9 months, during which time he

went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be

honest, although hand measurements said 0mm, there was still some

asymmetry in his head, but not flatness, and it did not bother me.

There are probably pictures in the N section--he is Pratt-- if

you want to look.

When he was 15 months I freaked out and took in and he was

measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as

you can imagine, that he was up at 89%, but the orthotist said he

looked great and it was too late for another band anyway. I have always

assumed that the 86% was a measurement error.

However, a couple weeks ago my son got a haircut and to my horror his

flat spot on the left seems to be back. There is no question about it.

I'd be surprised if his measurement was less than 5mm. This happened

only in the last few months (he is 20 mos now)!!! sleeps (when

he does) on a bed with a soft pillow and he sleeps completely on his

side---sometimes right and sometimes left. So I can't understand how

this could have happened. I feel like I'm going crazy.

Anyway, this is not supposed to be a counseling forum, so never mind my

psychological state. My point is just that change CAN happen in the

second year---no question about it. Not only should you be very careful

about how your post-band baby sleeps, but you should go as far as you

can with the band before quitting. You want room for a little

regression and the longer they're in the band the safer they are from

it.

Let me clarify one thing here: I do not think an asymmetry of 5mm is

anything to feel bad about, per se. I would not band starting at that.

I'm just bummed out that I could have been banding for brachy

this year and there probably would have been a change, but instead

believed everyone that it was too late and have to sit here watching

the plagio return.

That's it for now. Thanks for listening and I hope it is helpful to

someone!

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Kathy,

I really don't know. I did try to get a prescription from the cranial surgeon

back at 15 months, but he said my son's head was " perfect " and bands don't work

past 9 months (!!!!) The nearest place does Starbands and isn't it too late for

one now? The orthotist there said it was too late at 15 months and he also

thinks 's head is perfect.

The nearest CT is in Dallas, which would require flying. I don't really want to

make a trip without a script in hand but I can't get one! I could try our ped.

again. I would be blown away if he'd agree to it though. He always thought it

was crazy--you know, " it'll round out on its own " . Yeah, I've seen LOTS of kids

in that waiting room at 6, 8 years old with totally messed up heads.

We tried CST with a chiro, but my husband though it a waste of time. I don't

know what I thought. Maybe I'll try it again.

Thanks for your input, Kathy. Do you have pics of your boys posted?

> >

> >

> > I just want to make a quick post about post-helmet regression.

> >

> > My son, , wore a helmet from 6-9 months, during which time he

> > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be

> > honest, although hand measurements said 0mm, there was still some

> > asymmetry in his head, but not flatness, and it did not bother me.

> > There are probably pictures in the N section--he is Pratt-- if

> > you want to look.

> >

> > When he was 15 months I freaked out and took in and he was

> > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as

> > you can imagine, that he was up at 89%, but the orthotist said he

> > looked great and it was too late for another band anyway. I have

> > always assumed that the 86% was a measurement error.

> >

> > However, a couple weeks ago my son got a haircut and to my horror his

> > flat spot on the left seems to be back. There is no question about it.

> > I'd be surprised if his measurement was less than 5mm. This happened

> > only in the last few months (he is 20 mos now)!!! sleeps (when

> > he does) on a bed with a soft pillow and he sleeps completely on his

> > side---sometimes right and sometimes left. So I can't understand how

> > this could have happened. I feel like I'm going crazy.

> >

> > Anyway, this is not supposed to be a counseling forum, so never mind

> > my psychological state. My point is just that change CAN happen in the

> > second year---no question about it. Not only should you be very

> > careful about how your post-band baby sleeps, but you should go as far

> > as you can with the band before quitting. You want room for a little

> > regression and the longer they're in the band the safer they are from it.

> >

> > Let me clarify one thing here: I do not think an asymmetry of 5mm is

> > anything to feel bad about, per se. I would not band starting at that.

> > I'm just bummed out that I could have been banding for brachy

> > this year and there probably would have been a change, but instead

> > believed everyone that it was too late and have to sit here watching

> > the plagio return.

> >

> > That's it for now. Thanks for listening and I hope it is helpful to

> > someone!

> >

> >

> >

> >

>

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Hi,

No, we haven't posted pictures. I was too depressed about the plagio,

and I was scared everyone would tell me they could see 's plagio.

I'm still scared people will tell me they see it in my boys. Although

it is improving in , and people who have seen 's head don't see

it like they used to.

We didn't realize my older son, , still had a little flattening

until was diagnosed, so his head cannot be that bad. My husband

knew 's left eye was smaller. We still aren't convinced that is

from the plagio since the eye was smaller at birth and the flat spot

came afterwards. The eye could be connected to the neck tilt and

preference to turn right, also present at birth.

We're also trying a highly qualified osteopath. Something crazy

happened a couple weeks ago. I thought I had become way too sensitive

to plagio and was seeing things. I swear 's head looked much

worse and I got extremely upset. Then I was thinking how could I have

been so blind and not realized how bad 's head was all along.

It turned out we had an osteopath appointment scheduled for him

anyway. The osteopath told my husband had been whip lashed and

it was affecting his head and he was in worse shape than the last

appointment in Dec. This would probably be from falling, which he does

all the time. After the appointment 's head looked improved

again, but still not as good as a few months ago. Even my husband

thinks 's head looked better after the last osteopath

appointment. This is all too confusing for me. I have decided that in

some cases these alternative treatments may truly help even in older

children.

Best,

Kathy, mom to 22 months, and 5.5 years

R wrote:

Kathy,

I really don't know. I did try to get a prescription from the cranial

surgeon back at 15 months, but he said my son's head was "perfect" and

bands don't work past 9 months (!!!!) The nearest place does Starbands

and isn't it too late for one now? The orthotist there said it was too

late at 15 months and he also thinks 's head is perfect.

The nearest CT is in Dallas, which would require flying. I don't really

want to make a trip without a script in hand but I can't get one! I

could try our ped. again. I would be blown away if he'd agree to it

though. He always thought it was crazy--you know, "it'll round out on

its own". Yeah, I've seen LOTS of kids in that waiting room at 6, 8

years old with totally messed up heads.

We tried CST with a chiro, but my husband though it a waste of time. I

don't know what I thought. Maybe I'll try it again.

Thanks for your input, Kathy. Do you have pics of your boys posted?

> >

> >

> > I just want to make a quick post about post-helmet regression.

> >

> > My son, , wore a helmet from 6-9 months, during which

time he

> > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm

plagio. To be

> > honest, although hand measurements said 0mm, there was still

some

> > asymmetry in his head, but not flatness, and it did not

bother me.

> > There are probably pictures in the N section--he is

Pratt-- if

> > you want to look.

> >

> > When he was 15 months I freaked out and took in and he

was

> > measured at 89% C.I. and still 0mm plagio. I was super-bummed

out, as

> > you can imagine, that he was up at 89%, but the orthotist

said he

> > looked great and it was too late for another band anyway. I

have

> > always assumed that the 86% was a measurement error.

> >

> > However, a couple weeks ago my son got a haircut and to my

horror his

> > flat spot on the left seems to be back. There is no question

about it.

> > I'd be surprised if his measurement was less than 5mm. This

happened

> > only in the last few months (he is 20 mos now)!!!

sleeps (when

> > he does) on a bed with a soft pillow and he sleeps completely

on his

> > side---sometimes right and sometimes left. So I can't

understand how

> > this could have happened. I feel like I'm going crazy.

> >

> > Anyway, this is not supposed to be a counseling forum, so

never mind

> > my psychological state. My point is just that change CAN

happen in the

> > second year---no question about it. Not only should you be

very

> > careful about how your post-band baby sleeps, but you should

go as far

> > as you can with the band before quitting. You want room for a

little

> > regression and the longer they're in the band the safer they

are from it.

> >

> > Let me clarify one thing here: I do not think an asymmetry of

5mm is

> > anything to feel bad about, per se. I would not band starting

at that.

> > I'm just bummed out that I could have been banding for

brachy

> > this year and there probably would have been a change, but

instead

> > believed everyone that it was too late and have to sit here

watching

> > the plagio return.

> >

> > That's it for now. Thanks for listening and I hope it is

helpful to

> > someone!

> >

> >

> >

> >

>

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Guest guest

Hi ,

sorry to hear about the regression. Still it sounds relatively minor (meaning

the numbers might not be high enough for banding), but it is depressing. I would

at least ask your ortho to evaluate and measure his head again. Does your ortho

have a star scanner? My daughter wore a starband for brachy too, and graduated

at 10 mo with 85%. I had her remeasured at 14 mo and her head was the same.

She's 4 yrs old now and I think her head is the same (of course bigger). My

ortho told me it is really hard to know which babies will regress and why. He

said from his experience he hasn't found anything to correlate it to in terms of

age, sleeping etc. Of course that isn't very scientific, but he's been banding

for something like 20+ yrs. Some days I would still like to have her head

remeasured just to see, but I usually suppress the urge.

If you do get your ortho to do an eval please let us know what he says.

thanks. -christine

sydney, 4 yrs, starband grad

> > >

> > >

> > > I just want to make a quick post about post-helmet regression.

> > >

> > > My son, , wore a helmet from 6-9 months, during which time he

> > > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be

> > > honest, although hand measurements said 0mm, there was still some

> > > asymmetry in his head, but not flatness, and it did not bother me.

> > > There are probably pictures in the N section--he is Pratt-- if

> > > you want to look.

> > >

> > > When he was 15 months I freaked out and took in and he was

> > > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as

> > > you can imagine, that he was up at 89%, but the orthotist said he

> > > looked great and it was too late for another band anyway. I have

> > > always assumed that the 86% was a measurement error.

> > >

> > > However, a couple weeks ago my son got a haircut and to my horror his

> > > flat spot on the left seems to be back. There is no question about it.

> > > I'd be surprised if his measurement was less than 5mm. This happened

> > > only in the last few months (he is 20 mos now)!!! sleeps (when

> > > he does) on a bed with a soft pillow and he sleeps completely on his

> > > side---sometimes right and sometimes left. So I can't understand how

> > > this could have happened. I feel like I'm going crazy.

> > >

> > > Anyway, this is not supposed to be a counseling forum, so never mind

> > > my psychological state. My point is just that change CAN happen in the

> > > second year---no question about it. Not only should you be very

> > > careful about how your post-band baby sleeps, but you should go as far

> > > as you can with the band before quitting. You want room for a little

> > > regression and the longer they're in the band the safer they are from it.

> > >

> > > Let me clarify one thing here: I do not think an asymmetry of 5mm is

> > > anything to feel bad about, per se. I would not band starting at that.

> > > I'm just bummed out that I could have been banding for brachy

> > > this year and there probably would have been a change, but instead

> > > believed everyone that it was too late and have to sit here watching

> > > the plagio return.

> > >

> > > That's it for now. Thanks for listening and I hope it is helpful to

> > > someone!

> > >

> > >

> > >

> > >

> >

>

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,

Thanks for your response. I don't know if I'll have measured again. The

ortho is in Kansas City and we are 2.5 hours away. The ortho already seemed

kind of annoyed (and he's a very nice guy) that we were back last Fall. He

really believed that looked great. Maybe I should probably take a hint

from the fact that everyone else (husband, grandma, peds) thinks he's fine and

drop it. But actually, that makes me feel more like I am wholly responsible for

taking car of things. My DH is supportive of me but does not see a problem.

Plus I feel like the whole thing was my fault since was pretty much

attached to me for his first year.

Very interesting what your ortho said. I would have thought the regression

would only come with unresolved tort. did have tort. but it mostly went

away and the physio, the ped. and even the orthotist say he doesn't have it any

more. But I think he may still prefer to look left and maybe if he's doing this

at every chance while leaning on things it has affected his head. Still, he has

few chances, what with running all over the place all the time and having only a

3-minute commute in the car seat (and fascinating big bro is to the right).

I tried to take some pictures tonight but they weren't too good. I will get

some in the bath tomorrow and post them if I can.

I would definitely vote for you not to get your daughter remeasured if you have

the slightest tendency to obsess like I do! 85% is really good. If you were to

calculate the difference in width between an adult head at 85% and one at 78% it

would not be a lot.

Thanks again.

> > > >

> > > >

> > > > I just want to make a quick post about post-helmet regression.

> > > >

> > > > My son, , wore a helmet from 6-9 months, during which time he

> > > > went from 94% C.I. and 11mm plagio to 86% C.I. and 0mm plagio. To be

> > > > honest, although hand measurements said 0mm, there was still some

> > > > asymmetry in his head, but not flatness, and it did not bother me.

> > > > There are probably pictures in the N section--he is Pratt-- if

> > > > you want to look.

> > > >

> > > > When he was 15 months I freaked out and took in and he was

> > > > measured at 89% C.I. and still 0mm plagio. I was super-bummed out, as

> > > > you can imagine, that he was up at 89%, but the orthotist said he

> > > > looked great and it was too late for another band anyway. I have

> > > > always assumed that the 86% was a measurement error.

> > > >

> > > > However, a couple weeks ago my son got a haircut and to my horror his

> > > > flat spot on the left seems to be back. There is no question about it.

> > > > I'd be surprised if his measurement was less than 5mm. This happened

> > > > only in the last few months (he is 20 mos now)!!! sleeps (when

> > > > he does) on a bed with a soft pillow and he sleeps completely on his

> > > > side---sometimes right and sometimes left. So I can't understand how

> > > > this could have happened. I feel like I'm going crazy.

> > > >

> > > > Anyway, this is not supposed to be a counseling forum, so never mind

> > > > my psychological state. My point is just that change CAN happen in the

> > > > second year---no question about it. Not only should you be very

> > > > careful about how your post-band baby sleeps, but you should go as far

> > > > as you can with the band before quitting. You want room for a little

> > > > regression and the longer they're in the band the safer they are from

it.

> > > >

> > > > Let me clarify one thing here: I do not think an asymmetry of 5mm is

> > > > anything to feel bad about, per se. I would not band starting at that.

> > > > I'm just bummed out that I could have been banding for brachy

> > > > this year and there probably would have been a change, but instead

> > > > believed everyone that it was too late and have to sit here watching

> > > > the plagio return.

> > > >

> > > > That's it for now. Thanks for listening and I hope it is helpful to

> > > > someone!

> > > >

> > > >

> > > >

> > > >

> > >

> >

>

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Guest guest

Hi,

Everyone said didn't have tort too, but he still prefers to turn

right. We finally had him evaluated by a PT, and she diagnosed him has

having mild muscle/posture imbalances present since birth. It sounds

like it is more in the back than the neck. My husband knows the

details more since he took to the first two appointments. I'm

going Wed, so it should become more clear to me. She has recommended

have therapy three times per week. So far, she hasn't had enough

openings that do not coincide with 's eating and nap, so we are

only starting with once per week.

In hindsight, I noticed a couple awkward things with 's body

positioning other than just preferring to turn right. 's osteopath

said he believes had internal skull-base asymmetries present at

birth.

If the same issues that caused the original plagio have not been

resolved, perhaps regression is more likely.

-Kathy, mom to turning 22 months

R wrote:

,

Thanks for your response. I don't know if I'll have measured

again. The ortho is in Kansas City and we are 2.5 hours away. The ortho

already seemed kind of annoyed (and he's a very nice guy) that we were

back last Fall. He really believed that looked great. Maybe I

should probably take a hint from the fact that everyone else (husband,

grandma, peds) thinks he's fine and drop it. But actually, that makes

me feel more like I am wholly responsible for taking car of things. My

DH is supportive of me but does not see a problem. Plus I feel like the

whole thing was my fault since was pretty much attached to me

for his first year.

Very interesting what your ortho said. I would have thought the

regression would only come with unresolved tort. did have tort.

but it mostly went away and the physio, the ped. and even the orthotist

say he doesn't have it any more. But I think he may still prefer to

look left and maybe if he's doing this at every chance while leaning on

things it has affected his head. Still, he has few chances, what with

running all over the place all the time and having only a 3-minute

commute in the car seat (and fascinating big bro is to the right).

I tried to take some pictures tonight but they weren't too good. I will

get some in the bath tomorrow and post them if I can.

I would definitely vote for you not to get your daughter remeasured if

you have the slightest tendency to obsess like I do! 85% is really

good. If you were to calculate the difference in width between an adult

head at 85% and one at 78% it would not be a lot.

Thanks again.

> > > >

> > > >

> > > > I just want to make a quick post about post-helmet

regression.

> > > >

> > > > My son, , wore a helmet from 6-9 months,

during which time he

> > > > went from 94% C.I. and 11mm plagio to 86% C.I. and

0mm plagio. To be

> > > > honest, although hand measurements said 0mm, there

was still some

> > > > asymmetry in his head, but not flatness, and it did

not bother me.

> > > > There are probably pictures in the N section--he is

Pratt-- if

> > > > you want to look.

> > > >

> > > > When he was 15 months I freaked out and took

in and he was

> > > > measured at 89% C.I. and still 0mm plagio. I was

super-bummed out, as

> > > > you can imagine, that he was up at 89%, but the

orthotist said he

> > > > looked great and it was too late for another band

anyway. I have

> > > > always assumed that the 86% was a measurement error.

> > > >

> > > > However, a couple weeks ago my son got a haircut

and to my horror his

> > > > flat spot on the left seems to be back. There is no

question about it.

> > > > I'd be surprised if his measurement was less than

5mm. This happened

> > > > only in the last few months (he is 20 mos now)!!!

sleeps (when

> > > > he does) on a bed with a soft pillow and he sleeps

completely on his

> > > > side---sometimes right and sometimes left. So I

can't understand how

> > > > this could have happened. I feel like I'm going

crazy.

> > > >

> > > > Anyway, this is not supposed to be a counseling

forum, so never mind

> > > > my psychological state. My point is just that

change CAN happen in the

> > > > second year---no question about it. Not only should

you be very

> > > > careful about how your post-band baby sleeps, but

you should go as far

> > > > as you can with the band before quitting. You want

room for a little

> > > > regression and the longer they're in the band the

safer they are from it.

> > > >

> > > > Let me clarify one thing here: I do not think an

asymmetry of 5mm is

> > > > anything to feel bad about, per se. I would not

band starting at that.

> > > > I'm just bummed out that I could have been banding

for brachy

> > > > this year and there probably would have been a

change, but instead

> > > > believed everyone that it was too late and have to

sit here watching

> > > > the plagio return.

> > > >

> > > > That's it for now. Thanks for listening and I hope

it is helpful to

> > > > someone!

> > > >

> > > >

> > > >

> > > >

> > >

> >

>

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Guest guest

Kathy,

What kind of band is your son in? Do they give Starbands to kids over 18

months?

I actually did e-mail our ortho and send him some new pictures along with one

from October. It's totally depressing to see the regression. I feel especially

horrible because I had been obsessing over 's C.I. the whole time and

forgetting to appreciate the symmetry when we had it. I don't know if I'll post

any here, though.

Thanks again for your input.

>

> Hi,

>

> Everyone said didn't have tort too, but he still prefers to turn

> right. We finally had him evaluated by a PT, and she diagnosed him has

> having mild muscle/posture imbalances present since birth. It sounds

> like it is more in the back than the neck. My husband knows the details

> more since he took to the first two appointments. I'm going Wed,

> so it should become more clear to me. She has recommended have

> therapy three times per week. So far, she hasn't had enough openings

> that do not coincide with 's eating and nap, so we are only starting

> with once per week.

>

> In hindsight, I noticed a couple awkward things with 's body

> positioning other than just preferring to turn right. 's osteopath

> said he believes had internal skull-base asymmetries present at birth.

>

> If the same issues that caused the original plagio have not been

> resolved, perhaps regression is more likely.

>

> -Kathy, mom to turning 22 months

>

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Guest guest

Hi,

My son is in a Starband. We started to band well before 18 months, but

have kept in it. I'm extremely glad of this.

I've heard of orthos banding with a Starband late. I think you would

need to do some convincing and it would depend upon the ortho.

I understand your feelings. I would try repositioning and alternative

therapies. You never know they could help or at least stop the

regression.

Best,

Kathy, mom to 22 months and 5.5 years

R wrote:

Kathy,

What kind of band is your son in? Do they give Starbands to kids over

18 months?

I actually did e-mail our ortho and send him some new pictures along

with one from October. It's totally depressing to see the regression. I

feel especially horrible because I had been obsessing over 's

C.I. the whole time and forgetting to appreciate the symmetry when we

had it. I don't know if I'll post any here, though.

Thanks again for your input.

>

> Hi,

>

> Everyone said didn't have tort too, but he still prefers to

turn

> right. We finally had him evaluated by a PT, and she diagnosed him

has

> having mild muscle/posture imbalances present since birth. It

sounds

> like it is more in the back than the neck. My husband knows the

details

> more since he took to the first two appointments. I'm going

Wed,

> so it should become more clear to me. She has recommended

have

> therapy three times per week. So far, she hasn't had enough

openings

> that do not coincide with 's eating and nap, so we are only

starting

> with once per week.

>

> In hindsight, I noticed a couple awkward things with 's body

> positioning other than just preferring to turn right. 's

osteopath

> said he believes had internal skull-base asymmetries present

at birth.

>

> If the same issues that caused the original plagio have not been

> resolved, perhaps regression is more likely.

>

> -Kathy, mom to turning 22 months

>

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Guest guest

Kathy, I still haven't heard back from my ortho. Hopefully that means he

didn't see much regression in the pics and thinks I'm crazy.

I made an appointment for chiro too. We saw someone for a few months that

specializes in kids and cranial. She was great with . He also used to

like to nurse during the visits, which helped. Hopefully that trick will still

work. I'm thinking that since there wasn't regression for nine months and then

there suddenly was it's possible that got out of alignment somehow. He

does seem less willing than he used to to sleep on his right side (flattening is

on left).

My husband thinks the chiro is bogus and it's a waste of an afternoon (2-hour

drive each way) but I think it's the thing to do.

I hope your little guys are doing well!

> > >

> > > Hi,

> > >

> > > Everyone said didn't have tort too, but he still prefers to turn

> > > right. We finally had him evaluated by a PT, and she diagnosed him has

> > > having mild muscle/posture imbalances present since birth. It sounds

> > > like it is more in the back than the neck. My husband knows the details

> > > more since he took to the first two appointments. I'm going Wed,

> > > so it should become more clear to me. She has recommended have

> > > therapy three times per week. So far, she hasn't had enough openings

> > > that do not coincide with 's eating and nap, so we are only

> > starting

> > > with once per week.

> > >

> > > In hindsight, I noticed a couple awkward things with 's body

> > > positioning other than just preferring to turn right. 's osteopath

> > > said he believes had internal skull-base asymmetries present at

> > birth.

> > >

> > > If the same issues that caused the original plagio have not been

> > > resolved, perhaps regression is more likely.

> > >

> > > -Kathy, mom to turning 22 months

> > >

> >

> >

> >

>

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Hi ,

I truly believe our chiro helped . I don't think chiro works for

all cases though. Hopefully, it will for you. The chiro should be

able to tell you what she thinks about 's head. Our chiro always

gives me honest opinions, and I really appreciate it. I would be a

little worried about the long drive being tough on 's head. We

drive 50mins each way. Sometimes falls asleep and turns his head

right. That drives me nuts!

Good luck,

Kathy

R wrote:

Kathy, I still haven't heard back from my ortho. Hopefully that

means he didn't see much regression in the pics and thinks I'm crazy.

I made an appointment for chiro too. We saw someone for a few months

that specializes in kids and cranial. She was great with . He

also used to like to nurse during the visits, which helped. Hopefully

that trick will still work. I'm thinking that since there wasn't

regression for nine months and then there suddenly was it's possible

that got out of alignment somehow. He does seem less willing

than he used to to sleep on his right side (flattening is on left).

My husband thinks the chiro is bogus and it's a waste of an afternoon

(2-hour drive each way) but I think it's the thing to do.

I hope your little guys are doing well!

> > >

> > > Hi,

> > >

> > > Everyone said didn't have tort too, but he still

prefers to turn

> > > right. We finally had him evaluated by a PT, and she

diagnosed him has

> > > having mild muscle/posture imbalances present since

birth. It sounds

> > > like it is more in the back than the neck. My husband

knows the details

> > > more since he took to the first two appointments.

I'm going Wed,

> > > so it should become more clear to me. She has

recommended have

> > > therapy three times per week. So far, she hasn't had

enough openings

> > > that do not coincide with 's eating and nap, so we

are only

> > starting

> > > with once per week.

> > >

> > > In hindsight, I noticed a couple awkward things with

's body

> > > positioning other than just preferring to turn right.

's osteopath

> > > said he believes had internal skull-base

asymmetries present at

> > birth.

> > >

> > > If the same issues that caused the original plagio have

not been

> > > resolved, perhaps regression is more likely.

> > >

> > > -Kathy, mom to turning 22 months

> > >

> >

> >

> >

>

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Hi all,I asked my ortho today about regression. She said she sees a lot of folks returning a long time after graduation for reevaluation and that the only time she ever saw regression was in cases of unresolved tort.Sent from my iPhoneOn Mar 29, 2010, at 10:13 PM, Kathy Lora Jensen <kathylorajensen@...> wrote:

Hi,

Everyone said didn't have tort too, but he still prefers to turn

right. We finally had him evaluated by a PT, and she diagnosed him has

having mild muscle/posture imbalances present since birth. It sounds

like it is more in the back than the neck. My husband knows the

details more since he took to the first two appointments. I'm

going Wed, so it should become more clear to me. She has recommended

have therapy three times per week. So far, she hasn't had enough

openings that do not coincide with 's eating and nap, so we are

only starting with once per week.

In hindsight, I noticed a couple awkward things with 's body

positioning other than just preferring to turn right. 's osteopath

said he believes had internal skull-base asymmetries present at

birth.

If the same issues that caused the original plagio have not been

resolved, perhaps regression is more likely.

-Kathy, mom to turning 22 months

R wrote:

,

Thanks for your response. I don't know if I'll have measured

again. The ortho is in Kansas City and we are 2.5 hours away. The ortho

already seemed kind of annoyed (and he's a very nice guy) that we were

back last Fall. He really believed that looked great. Maybe I

should probably take a hint from the fact that everyone else (husband,

grandma, peds) thinks he's fine and drop it. But actually, that makes

me feel more like I am wholly responsible for taking car of things. My

DH is supportive of me but does not see a problem. Plus I feel like the

whole thing was my fault since was pretty much attached to me

for his first year.

Very interesting what your ortho said. I would have thought the

regression would only come with unresolved tort. did have tort.

but it mostly went away and the physio, the ped. and even the orthotist

say he doesn't have it any more. But I think he may still prefer to

look left and maybe if he's doing this at every chance while leaning on

things it has affected his head. Still, he has few chances, what with

running all over the place all the time and having only a 3-minute

commute in the car seat (and fascinating big bro is to the right).

I tried to take some pictures tonight but they weren't too good. I will

get some in the bath tomorrow and post them if I can.

I would definitely vote for you not to get your daughter remeasured if

you have the slightest tendency to obsess like I do! 85% is really

good. If you were to calculate the difference in width between an adult

head at 85% and one at 78% it would not be a lot.

Thanks again.

> > > >

> > > >

> > > > I just want to make a quick post about post-helmet

regression.

> > > >

> > > > My son, , wore a helmet from 6-9 months,

during which time he

> > > > went from 94% C.I. and 11mm plagio to 86% C.I. and

0mm plagio. To be

> > > > honest, although hand measurements said 0mm, there

was still some

> > > > asymmetry in his head, but not flatness, and it did

not bother me.

> > > > There are probably pictures in the N section--he is

Pratt-- if

> > > > you want to look.

> > > >

> > > > When he was 15 months I freaked out and took

in and he was

> > > > measured at 89% C.I. and still 0mm plagio. I was

super-bummed out, as

> > > > you can imagine, that he was up at 89%, but the

orthotist said he

> > > > looked great and it was too late for another band

anyway. I have

> > > > always assumed that the 86% was a measurement error.

> > > >

> > > > However, a couple weeks ago my son got a haircut

and to my horror his

> > > > flat spot on the left seems to be back. There is no

question about it.

> > > > I'd be surprised if his measurement was less than

5mm. This happened

> > > > only in the last few months (he is 20 mos now)!!!

sleeps (when

> > > > he does) on a bed with a soft pillow and he sleeps

completely on his

> > > > side---sometimes right and sometimes left. So I

can't understand how

> > > > this could have happened. I feel like I'm going

crazy.

> > > >

> > > > Anyway, this is not supposed to be a counseling

forum, so never mind

> > > > my psychological state. My point is just that

change CAN happen in the

> > > > second year---no question about it. Not only should

you be very

> > > > careful about how your post-band baby sleeps, but

you should go as far

> > > > as you can with the band before quitting. You want

room for a little

> > > > regression and the longer they're in the band the

safer they are from it.

> > > >

> > > > Let me clarify one thing here: I do not think an

asymmetry of 5mm is

> > > > anything to feel bad about, per se. I would not

band starting at that.

> > > > I'm just bummed out that I could have been banding

for brachy

> > > > this year and there probably would have been a

change, but instead

> > > > believed everyone that it was too late and have to

sit here watching

> > > > the plagio return.

> > > >

> > > > That's it for now. Thanks for listening and I hope

it is helpful to

> > > > someone!

> > > >

> > > >

> > > >

> > > >

> > >

> >

>

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