To Yadira

[Guest guest]

Yadira,

What a small world this is!!! My husband is from Jersey City and my

father-in-law still lives there. He is in College Towers, near New

Jersey City University and the Miss America Diner. Do you know

where they are? You are only about 35 minutes from me!

Hey, next Saturday, the 13th, Briggs and Jodie Cals are

coming over for a barbecue with their kids and husbands. Oops -

won't bring her husband because he has to work. Would you

like to join us? We can all hang out on our deck and the kids can

run around in the backyard. I may get my daughter (almost 20) to do

some sort of craft with them just to give them more to do. She is

very good at that stuff. Please email me through this listserve or

privately at magicrss@ hotmail.com. (no space - the listserve won't

show the address if we don't put in a space) You can also call me,

but I'd rather give you my phone number privately.

There is a GREAT GI doctor in town who knows a lot about RSS,

mostly because of Max. Now he has other RSS kids, too, so he is

learning more and more. I can certainly provide you with his info

if you'd like.

Also, since you are in Jersey City, you should really consider

taking your son to Dr. Harbison at Mt. Sinai Medical Center in NY.

She is one of the world's experts on RSS and is a true godsend.

There is nothing she won't do to help our kids. Max was her third

RSS patient and we have been with her for about 16 years. Now she

has over 130, probably closer to 150 at this point that she sees in

NY alone. (She sees other in Chicago at the yearly MAGIC Convention

in July.) And, would you believe, her secretary is named Yadira,

too? I can give you the phone numbers for both doctors.

I hope you really consider joining us on Saturday. It would be

really great for you to see RSS kids at various ages and stages in

life. And we are a friendly group of people.

Jodi Z