Re: 's Blood Test

[Guest guest]

i wish i knew u were gonna be in ny today i would have loved to see u

Glade things went well

Chrissy

mom to

Louis 6 maddy 4 shane 2 ryan 10mons

[Guest guest]

,

So sorry to hear how hard that was for , you just wish you could go

through it for them. Hope you are doing well.

, Jonah's mom

's Blood Test

> I just want to share our day in NYC today.

>

> As we drove into NYC this morning (left the house at 7:25 a.m.) for

> 's blood test and x-ray, there was no traffic and in fact the

> traffic lights in NYC were all turning green at the same time. I

> said to my husband, this is going to well something's gotta give I'm

> sure. A commute that normally takes 1 1/2 with the traffic took

> less than an hour. We got to radiology at 8:30 to get 's bone

> age done but since they took to long to register her, we had to

> leave to go upstairs for her blood work. She met with Dr. H's two

> assistances. While she was being measured and then her blood

> pressure the one assistance decides to tell what she was

> there for. Well that's when " something's gotta give " gave. She

> screamed and yelled so bad (I was actually afraid that if Dr H was

> just arriving she would come in and yell at ). She fasted for

> this blood test and we had an appointment at 9 but we didnt' get

> taken until 9:30. threw up a couple of times and screamed

> before we got the line in. Everytime the doctors came into the room

> to draw more blood or check on the line she would flip out. I

> thought this stuff was supposed to make her groggy and tired. Yeah

> sure. finally fell asleep at the last 10 minutes (after 1

> hour and 50 mintues)and woke up to the doctors drawing the last two

> vials and taking the line out. She then told the doctors that they

> were her friends.

>

> We then went back downstairs to radiology and was very pale.

> I brought M & Ms for her and other snacks. Thankfully the x-ray went

> quick.

>

> It was just so crazy how crazy and upset was. She was

> becoming hoarse from screaming so much in the beginning. I hope we

> don't have to go through that again.

>

> B

> 5 1/2 and Kelli 3

>

>

>

>

>

>

>

[Guest guest]

Hi ,

How long was fasting for - when was last meal? Just curious because

Jordan will be doing OGTT in Nov and I forgot to ask Dr. H how many hours he

needs to be without food.

Hope all is well otherwise. Will see you in Oct for gathering.

mom to Jordan 37 lbs 41 in G tube, GH, Tums, Vit D and 9 weeks

[Guest guest]

Hi ,

How are you and doing? How's my buddy Jordan doing. Jodie Cals just

showed me pictures and she had some good ones of and Jordan holding hands

while sitting on Jenna Zwain's lap. That were so cute together.

For the blood test couldn't have anything after midnight. We let her

stay up a little later and made sure she drank a full can of Pediasure and a

snack. She usually does that every night before bed but like last night she

didn't want a snack and didn't finish her Pediasure, but she did eat very well

(for her) for dinner. Her appointment was for 9 a.m. but by the time they came

and got us out of thewaiting room it was about 9:30 and by the time they

measured her and did her weight and then got set up in the other room it was

about 9:45 or so. I asked if she could at least have some water at that point

since she was screaming so much but they said no. The persons drawingthe blood

were Dr. H's fellows. They were good and very compassionate and tried to work

as quickly as possible, although gave them a real good fight. They

started with the argenine and then I believe they added the clonidine but

according to Dr. H's report we were going to do the clonidine and if she

failed that do the argenine and I was tryign to hand them the prescription but

they were concentrating on getting started and really you couldn't hear a

thing with her screaming. Once they got IV line in I showed it to them. I

think the clonidine is supposed to make them drowsy but being that it's in the

morning and slept good the night before and didn't do that to her

especially with the fight she put up. Also they didn't start with the clonidine

so who knows.

I hope you are all well. Let me know how Jordan makes out and I can't wait to

see all of you in October.

B

lafl109@... wrote:

Hi ,

How long was fasting for - when was last meal? Just curious because

Jordan will be doing OGTT in Nov and I forgot to ask Dr. H how many hours he

needs to be without food.

Hope all is well otherwise. Will see you in Oct for gathering.

mom to Jordan 37 lbs 41 in G tube, GH, Tums, Vit D and 9 weeks