Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 THANK YOU! these are hard to get in USA FDA pulled all positioners off the market! We can afford it just not the 5k for the helmet > > http://www.plagiocephalyflathead.com/ > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > that might help? They have calipers too.. I wish I had more info about it but I > don't. > > I saw these on ebay http://www.aperfectpillow.com/ > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > google google google > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 PS whats a caliper? > > http://www.plagiocephalyflathead.com/ > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > that might help? They have calipers too.. I wish I had more info about it but I > don't. > > I saw these on ebay http://www.aperfectpillow.com/ > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > google google google > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 A ruler that's in the shape of an open triangle to measure the headFrom: <amanda_amburgey@...>Plagiocephaly Sent: Thu, January 6, 2011 9:58:52 AMSubject: Re: plagio pillows PS whats a caliper? > > http://www.plagiocephalyflathead.com/ > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > that might help? They have calipers too.. I wish I had more info about it but I > don't. > > I saw these on ebay http://www.aperfectpillow.com/ > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > google google google > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 I had no idea. How lame. Are they a SIDS hazard? fyi my helmet was $1800. Man where are you guys going where helmets are 5k!? Boy I am feeling lucky! From: <amanda_amburgey@...>Plagiocephaly Sent: Thu, January 6, 2011 9:56:17 AMSubject: Re: plagio pillows THANK YOU! these are hard to get in USA FDA pulled all positioners off the market! We can afford it just not the 5k for the helmet > > http://www.plagiocephalyflathead.com/ > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > that might help? They have calipers too.. I wish I had more info about it but I > don't. > > I saw these on ebay http://www.aperfectpillow.com/ > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > google google google > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 I looked forever for something like this online but couldn't find it. It was probably because doctors say that there should be no pillows or blankets in a baby's crib so no one wants to sell a pillow and get sued if something happens. I have a 13 month old who had a DOC band and am giving birth again tomorrow. So we are trying to do everything possible to prevent having to pay $3500 again for a DOC band. This would be great if it weren't for the risk of suffocation from a pillow. What do you all think? Is a swaddled newborn (for the first month only while she isn't so mobile) stationary enough to not have to worry so much about her turning over onto the pillow? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Calipers = more general tool name for " craniometer. " Are you near Boston? Somebody else in your position wrote a blog: http://www.squidoo.com/Head-Cup--fixing-Plagiocephaly-without-a-helmet and gives a pretty good description of the item, if not proprietary designs. On Jan 6, 2011, at 12:58 PM, wrote: > PS whats a caliper? > > >> >> http://www.plagiocephalyflathead.com/ >> >> I found this... I am NOT endorsing it, I'm just saying there are >> these pillows >> that might help? They have calipers too.. I wish I had more info >> about it but I >> don't. >> >> I saw these on ebay http://www.aperfectpillow.com/ >> >> >> It might be worth a try if you can afford it since she's so tiny >> yet. :/ >> >> google google google >> > > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 I heard these are great for the car seat/swing. They are made by boppy. I found one to late on the game for my LO. I got one just incase we have another baby. Take care. http://www.target.com/gp/detail.html/176-7428343-6342841?asin=B001O9F6M8 & AFID=Fr\ oogle_df & LNM=|B001O9F6M8 & CPNG= & ci_src=14110944 & ci_sku=B001O9F6M8 & ref=tgt_adv_XSG\ 10001 > > I looked forever for something like this online but couldn't find it. It was probably because doctors say that there should be no pillows or blankets in a baby's crib so no one wants to sell a pillow and get sued if something happens. I have a 13 month old who had a DOC band and am giving birth again tomorrow. So we are trying to do everything possible to prevent having to pay $3500 again for a DOC band. This would be great if it weren't for the risk of suffocation from a pillow. What do you all think? Is a swaddled newborn (for the first month only while she isn't so mobile) stationary enough to not have to worry so much about her turning over onto the pillow? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 last i heard cranial technologies was up to $3600. 3 yrs ago when we got ours it was $3k On Thu, Jan 6, 2011 at 2:16 PM, critter lover <tinsel2003@...> wrote:  I had no idea. How lame. Are they a SIDS hazard?   fyi my helmet was $1800. Man where are you guys going where helmets are 5k!? Boy I am feeling lucky! From: <amanda_amburgey@...>Plagiocephaly Sent: Thu, January 6, 2011 9:56:17 AM Subject: Re: plagio pillows THANK YOU! these are hard to get in USA FDA pulled all positioners off the market! We can afford it just not the 5k for the helmet >> http://www.plagiocephalyflathead.com/ > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > that might help? They have calipers too.. I wish I had more info about it but I > don't.> > I saw these on ebay http://www.aperfectpillow.com/ > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > google google google> -- -mommy to Emma, Becca, , , , and Leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 We used MIMOS pillow for almost 2 months until we got a band. I was a bit afraid about SIDS at first but they are made of a breathable fabric and my daughter loved it. I strongly believe it prevented my daughter's plagio from getting worse. > > http://www.plagiocephalyflathead.com/ > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > that might help? They have calipers too.. I wish I had more info about it but I > don't. > > I saw these on ebay http://www.aperfectpillow.com/ > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > google google google > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 I'm a very careful mommy and would never recommend anything that might harm a baby. Heck after hearing about wrap deaths by suffocation I'd be scared. moms walking around the store not knowing their baby is dying. Sends shivers through my spine. That said I started with a bare crib and ended up with everything but the kitchen sink in it! I did have a body movement sensor but mainly I just decided to never sleep again I had exceptions though, my baby stopped breathing 5 times a day and so I had to do a lot of positioning and rolled up blankets and body pillows to get her in the best position. Another reason I never slept.. I had to be ready at the go to get her breathing again. So I did inadvertantly have a body pillow but it didn't have a hole in it like the mimos(?). I had no idea tummy time was important because of the head shape. I thought it was a muscle thing. It took her until more like 6 months to roll over and that's when things started getting removed from the crib. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Great update, . 20 weeks = 5 months (but can't be rolling over); looks like the three month limit was the old model. And check the picture out, -- patent pending, so it's not official, right? -- with an old toboggan, a heat gun, and some stadium seat cushions, you might put something like that together for under $50. (Just don't breathe the fumes.) I think the old design we've talked about emulating also supported more than just the head, with two layers of different-density foam from the craft store, floral design section. (Maybe that patent got rejected?) Eventually, you know, creative people who live in places where half the GDP doesn't go into medicine WILL come up with a cheaper helmet. There must already exist some non-toxic expanding foam for house insulation, which someone could spray into a sand pail and quickly dunk over their kid's head. Forget digital images, skip the " modeling " step altogether -- go straight to remodeling with a rough stone after it dries, to fashion an active helmet. Bail = chin strap... very " devo. " (As in, developing country.) -- Thad Launderville town, VT Clara age 2, STARband '10 On Jan 6, 2011, at 10:21 PM, stephaniebilliel wrote: > I found some more info. The cost for the plagio positioner is $299 > including follow-up appointments every 2 weeks. They give you $100 > off later if your baby still ends up needing their helmet (the > Boston Band). They won't see you until you have a prescription. > Also, it can't be used for brachy. > http://www.nopcoclinics.com/images/customer-files/ > Patient_Information_Handout.pdf > > > >>>>> >>>>> http://www.plagiocephalyflathead.com/ >>>>> >>>>> I found this... I am NOT endorsing it, I'm just saying there are >>>>> these pillows >>>>> that might help? They have calipers too.. I wish I had more info >>>>> about it but I >>>>> don't. >>>>> >>>>> I saw these on ebay http://www.aperfectpillow.com/ >>>>> >>>>> >>>>> It might be worth a try if you can afford it since she's so tiny >>>>> yet. :/ >>>>> >>>>> google google google >>>>> >>>> >>>> >>>> >>>> >>>> ------------------------------------ >>>> >>>> For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 WOW what a wonderfully positive article! I am in Chicago:( actually I am in Rockford IL near the state line of Wisconsin I can go to either state!I will go any where with in 300 miles.. I can afford anything between 500 to 1,000 Cranial Tech(DOC BAND) wanted 4,800 includes everything. Ahhh there is no way! I would lose my house and I can't open and credit card or take on the debt right now.. I find it disgusting they are CASHING in on a babies deformity... DISGUSTING REALLY... I even wrote them to see if there was assistance and their REPLY WAS " NO " we offer payment plans or care credit which has high interest.... > >> > >> http://www.plagiocephalyflathead.com/ > >> > >> I found this... I am NOT endorsing it, I'm just saying there are > >> these pillows > >> that might help? They have calipers too.. I wish I had more info > >> about it but I > >> don't. > >> > >> I saw these on ebay http://www.aperfectpillow.com/ > >> > >> > >> It might be worth a try if you can afford it since she's so tiny > >> yet. :/ > >> > >> google google google > >> > > > > > > > > > > ------------------------------------ > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 How old was your daughter when she started to use it? Sophia is 3 months already and I have read these pillows have little effectiveness after 3 months. Because the bones start to harden? > > > > http://www.plagiocephalyflathead.com/ > > > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > > that might help? They have calipers too.. I wish I had more info about it but I > > don't. > > > > I saw these on ebay http://www.aperfectpillow.com/ > > > > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > > > google google google > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 personally I did not have an issues with my son... Sophia how ever was born with tortacolis which caused the Plagio. If was not diagnosed till 2 months and we did not start treatment till three months referrals waiting for appts etc diagnosed two weeks before Christmas. Since you have the knowledge already I would get the pillow. Cranial Tech(doc bands) are not affordable. YOUR OLDEST CHILD WAS LUCKY TO HAVE ONE:)Knowing now what I did not know then I wish my child would of had a chance:( > > I looked forever for something like this online but couldn't find it. It was probably because doctors say that there should be no pillows or blankets in a baby's crib so no one wants to sell a pillow and get sued if something happens. I have a 13 month old who had a DOC band and am giving birth again tomorrow. So we are trying to do everything possible to prevent having to pay $3500 again for a DOC band. This would be great if it weren't for the risk of suffocation from a pillow. What do you all think? Is a swaddled newborn (for the first month only while she isn't so mobile) stationary enough to not have to worry so much about her turning over onto the pillow? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 We used it from 3-5 months. > > > > > > http://www.plagiocephalyflathead.com/ > > > > > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > > > that might help? They have calipers too.. I wish I had more info about it but I > > > don't. > > > > > > I saw these on ebay http://www.aperfectpillow.com/ > > > > > > > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > > > > > google google google > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 well it certainly would not hurt us to try it then would it:)))From: qqrykoo <qqrykoo@...>Subject: Re: plagio pillowsPlagiocephaly Date: Friday, January 7, 2011, 4:19 PM We used it from 3-5 months. > > > > > > http://www.plagiocephalyflathead.com/ > > > > > > I found this... I am NOT endorsing it, I'm just saying there are these pillows > > > that might help? They have calipers too.. I wish I had more info about it but I > > > don't. > > > > > > I saw these on ebay http://www.aperfectpillow.com/ > > > > > > > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > > > > > google google google > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Which center quoted you that price? All CT clinics charge $3,800 except for their licensed centers which set their own prices. Molly On Jan 7, 2011, at 5:04 AM, " " <amanda_amburgey@...> wrote: > Cranial Tech is now up to $4,800 THEY ARE REALLY CASHING IN!this includes treatment start to finish and all the scans etc... > > >>>> >>>> http://www.plagiocephalyflathead.com/ >>>> >>>> I found this... I am NOT endorsing it, I'm just saying there are these >>> pillows >>>> that might help? They have calipers too.. I wish I had more info about it >>> but I >>>> don't. >>>> >>>> I saw these on ebay http://www.aperfectpillow.com/ >>>> >>>> >>>> It might be worth a try if you can afford it since she's so tiny yet. :/ >>>> >>>> google google google >>>> >>> >>> >>> >>> >> >> >> >> -- >> -mommy to Emma, Becca, , >> , , and Leah >> > > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 I was quoted $3800 in February 2010 with a $300 discount if paid in full.From: "Foley, Molly" <mafoley@...>"Plagiocephaly " <Plagiocephaly >Sent: Fri, January 7, 2011 6:33:51 PMSubject: Re: Re: plagio pillows Which center quoted you that price? All CT clinics charge $3,800 except for their licensed centers which set their own prices. Molly On Jan 7, 2011, at 5:04 AM, "" <amanda_amburgey@...> wrote: > Cranial Tech is now up to $4,800 THEY ARE REALLY CASHING IN!this includes treatment start to finish and all the scans etc... > > >>>> >>>> http://www.plagiocephalyflathead.com/ >>>> >>>> I found this... I am NOT endorsing it, I'm just saying there are these >>> pillows >>>> that might help? They have calipers too.. I wish I had more info about it >>> but I >>>> don't. >>>> >>>> I saw these on ebay http://www.aperfectpillow.com/ >>>> >>>> >>>> It might be worth a try if you can afford it since she's so tiny yet. :/ >>>> >>>> google google google >>>> >>> >>> >>> >>> >> >> >> >> -- >> -mommy to Emma, Becca, , >> , , and Leah >> > > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Clinic in WI you see Molly I am on the state line in IL I border WI:( I did not hear you mention the clinic in OAK BROOK IL... ? > Cranial Tech is now up to $4,800 THEY ARE REALLY CASHING IN!this includes treatment start to finish and all the scans etc... > > >>>> >>>> http://www.plagiocephalyflathead.com/ >>>> >>>> I found this... I am NOT endorsing it, I'm just saying there are these >>> pillows >>>> that might help? They have calipers too.. I wish I had more info about it >>> but I >>>> don't. >>>> >>>> I saw these on ebay http://www.aperfectpillow.com/ >>>> >>>> >>>> It might be worth a try if you can afford it since she's so tiny yet. :/ >>>> >>>> google google google >>>> >>> >>> >>> >>> >> >> >> >> -- >> -mommy to Emma, Becca, , >> , , and Leah >> > > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 I was referred to one of the clinics in WISCONSIN... As I stated in one of my posts I am on the state line between IL and WIS. as Molly stated those WI clinics set there own prices:(From: stephaniebilliel <SBilliel@...>Subject: Re: plagio pillowsPlagiocephaly Date: Friday, January 7, 2011, 11:31 PM I think it's actually $3,800. That's what I paid for mine anyway. I don't think it could have gone up $1,000 in half a year. > > > > > > > > http://www.plagiocephalyflathead.com/ > > > > > > > > I found this... I am NOT endorsing it, I'm just saying there are these > > > pillows > > > > that might help? They have calipers too.. I wish I had more info about it > > > but I > > > > don't. > > > > > > > > I saw these on ebay http://www.aperfectpillow.com/ > > > > > > > > > > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > > > > > > > google google google > > > > > > > > > > > > > > > > > > > > > > > > -- > > -mommy to Emma, Becca, , > > , , and Leah > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Thanks for clarifying! Now it makes sense why you were quoted such a high price. MollyOn Jan 7, 2011, at 3:58 PM, Amburgey <amanda_amburgey@...> wrote: I was referred to one of the clinics in WISCONSIN... As I stated in one of my posts I am on the state line between IL and WIS. as Molly stated those WI clinics set there own prices:(From: stephaniebilliel <SBilliel@...>Subject: Re: plagio pillowsPlagiocephaly Date: Friday, January 7, 2011, 11:31 PM I think it's actually $3,800. That's what I paid for mine anyway. I don't think it could have gone up $1,000 in half a year. > > > > > > > > http://www.plagiocephalyflathead.com/ > > > > > > > > I found this... I am NOT endorsing it, I'm just saying there are these > > > pillows > > > > that might help? They have calipers too.. I wish I had more info about it > > > but I > > > > don't. > > > > > > > > I saw these on ebay http://www.aperfectpillow.com/ > > > > > > > > > > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > > > > > > > google google google > > > > > > > > > > > > > > > > > > > > > > > > -- > > -mommy to Emma, Becca, , > > , , and Leah > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Oak Brook is a CT clinic and will charge $3,800. MollyOn Jan 7, 2011, at 3:56 PM, Amburgey <amanda_amburgey@...> wrote: Clinic in WI you see Molly I am on the state line in IL I border WI:( I did not hear you mention the clinic in OAK BROOK IL... ? > Cranial Tech is now up to $4,800 THEY ARE REALLY CASHING IN!this includes treatment start to finish and all the scans etc... > > >>>> >>>> http://www.plagiocephalyflathead.com/ >>>> >>>> I found this... I am NOT endorsing it, I'm just saying there are these >>> pillows >>>> that might help? They have calipers too.. I wish I had more info about it >>> but I >>>> don't. >>>> >>>> I saw these on ebay http://www.aperfectpillow.com/ >>>> >>>> >>>> It might be worth a try if you can afford it since she's so tiny yet. :/ >>>> >>>> google google google >>>> >>> >>> >>> >>> >> >> >> >> -- >> -mommy to Emma, Becca, , >> , , and Leah >> > > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Care credit is interest free for 18 months..... > > >> > > >> http://www.plagiocephalyflathead.com/ > > >> > > >> I found this... I am NOT endorsing it, I'm just saying there are > > >> these pillows > > >> that might help? They have calipers too.. I wish I had more info > > >> about it but I > > >> don't. > > >> > > >> I saw these on ebay http://www.aperfectpillow.com/ > > >> > > >> > > >> It might be worth a try if you can afford it since she's so tiny > > >> yet. :/ > > >> > > >> google google google > > >> > > > > > > > > > > > > > > > ------------------------------------ > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Thank you Molly!From: stephaniebilliel <SBilliel@...>Subject: Re: plagio pillowsPlagiocephaly Date: Friday, January 7, 2011, 11:31 PM I think it's actually $3,800. That's what I paid for mine anyway. I don't think it could have gone up $1,000 in half a year. > > > > > > > > http://www.plagiocephalyflathead.com/ > > > > > > > > I found this... I am NOT endorsing it, I'm just saying there are these > > > pillows > > > > that might help? They have calipers too.. I wish I had more info about it > > > but I > > > > don't. > > > > > > > > I saw these on ebay http://www.aperfectpillow.com/ > > > > > > > > > > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > > > > > > > google google google > > > > > > > > > > > > > > > > > > > > > > > > -- > > -mommy to Emma, Becca, , > > , , and Leah > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Thank you Molly!From: stephaniebilliel <SBilliel@...>Subject: Re: plagio pillowsPlagiocephaly Date: Friday, January 7, 2011, 11:31 PM I think it's actually $3,800. That's what I paid for mine anyway. I don't think it could have gone up $1,000 in half a year. > > > > > > > > http://www.plagiocephalyflathead.com/ > > > > > > > > I found this... I am NOT endorsing it, I'm just saying there are these > > > pillows > > > > that might help? They have calipers too.. I wish I had more info about it > > > but I > > > > don't. > > > > > > > > I saw these on ebay http://www.aperfectpillow.com/ > > > > > > > > > > > > It might be worth a try if you can afford it since she's so tiny yet. :/ > > > > > > > > google google google > > > > > > > > > > > > > > > > > > > > > > > > -- > > -mommy to Emma, Becca, , > > , , and Leah > > > Quote Link to comment Share on other sites More sharing options...
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